> "Women who controlled treatment decision less likely to choose breast
> conserving surgery or reconstruction than if surgeon determined treatment."
[quoted text clipped - 4 lines]
>
> That would kind of go against the popular wisdom, wouldn't it? Reactions?
I don't know Ann, the surgeons obviously think lumpectomy is 'best', but
perhaps patients don't.
I personally feel that breast-conserving surgery is perfectly appropriate
where the tumour is a very small part of the breast, but I have always been
concerned that the idea pandered more to fear than clinical sense.
When faced with this choice, the natural first reaction is to look for an
escape, a way to deny the body-change, something you can do once which will
be permanent and means you never need to change your own body-image. At
first sight lumpectomy seems to offer this. When my wife first had cancer,
as it turned out there was no choice but mastectomy, but in the research we
did, I soon realised that whatever happened, things would never be the same
again, and the choice was not between learning to live with a body change,
or no change but some short-term complications; it was between learning to
live with a change, or learning to live with a change -plus- the
complications.
Whether or not that is true, it is likely that other patients are picking up
on this as we did. Add to that the extra feeling of security, getting rid
of the scare for once and for all, and I think you can understand why some
women opt for it.
Another question is whether surgeons are also biased the other way.
Surgeons are mostly men, perhaps they put more value on conserving women's
approximate body shape than do the women themselves, and have less awareness
of the practicalities for the patient.
I notice that the article makes a similar observation regarding
reconstruction, that women who had it generally reported lower quality of
life than those who didn't. That also was the impression we got, (again, as
things turned out there was no opportunity anyway) on the face of it
reconstruction sounds wonderful, a way to get back to the pre-cancer
situation, and forget about it. But when you take into account all the
extra surgery and complications, the numbness and changed feelings, changes
with aging and so on, you realise that you will never be truly be as you
were and able to forget about it, all you will ever be able to do is fool
others into thinking that you can forget about it. It's still really only
cosmetic, and prosthesis is really not bad.
Tim Jackson
bartalo@webtv.net - 23 Jul 2004 00:01 GMT
>Another question is whether surgeons
> are also biased the other way. Surgeons
[quoted text clipped - 4 lines]
> awareness of the practicalities for the
> patient.
Good point, Tim. In my own case, I was not given a chance to be
involved in the decision by my own surgeon. When I asked him why he
decided on the lumpectomy he said " I took everything I felt I needed to
take and nothing I did not need to take". My own feelings are that all
women should be told more about their bc and their options and allowed
to be included in a decision which will impact their lives so much.
I recently had to undergo a biopsy for a something "suspicious" which
appeared on my annual mammogram in the same breast. I was terrified but
thank goodness it turned out to be a calcification lump and benign. I
am grateful for what I have left but it also means I must live with
enormous fears whenever I have a mammogram. Like I said, women need to
be allowed to help make the decisions about their own bodies.
Bea
WDW1972 - 23 Jul 2004 02:35 GMT
>My own feelings are that all
>women should be told more about their bc and their options and allowed
>to be included in a decision which will impact their lives so much.
Bea, I agree - but I think women can be responsible for doing some research on
their own. There are so many websites, and of course Dr. Love's book. There's
really no excuse to not be in control of your own situation - unless you choose
to give that control to someone else (foolish thing, imo).
In my case, for ME - I'd always opt for the least invasive surgery unless there
was a significant reason/necessity for the more extreme procedure. My
lumpectomy was the right choice for me - I'll lose a breast only as a last
resort, and if that happens I'll hopefully have reconstruction as quickly as
possible. For other women a different decision could be just as right for
them, and that's fine too. Bottom line - we all need to remember we're in
charge of our bodies and do what we feel is best under the circumstances.
Sue - DivaofDVC aka WDW1972
DVC '97 OKW, Beach Club, Vero Beach, & Hilton Head
bartalo@webtv.net - 23 Jul 2004 04:23 GMT
>Bea, I agree - but I think women can be
> responsible for doing some research on
> their own. There are so many websites,
> and of course Dr. Love's book.
Sue, how can a patient do research if they aren't given all the
information they need about their particular bc? In my case, I had
doctors who seemed to feel it was best not to discuss the particulars
about my bc. I have a new oncologist who seems brutally honest and
decided he was going to tell me the truth about my condition. He scared
the wits out of me but at least I know where I stand with this damnable
disease and how hard I have to fight to try to prevent it from returning
if I value my life (which I do!)
BTW when I asked my surgeon why he and my first oncologist did not
discuss all the facts with me he just said "each doctor has his own way
of discribing the disease to his patient". However, he did not refute
the information my new oncologist shared with me.
Bea