>If so--how are you doing, any suggestions, did you have to get
>a blood test, etc.
I am doing better, but not cured. Less drugs, more control, particulary for
related nasal problems including polyps going away. To get it, I had to get a
blood test to demonstrate high IGE and a skin test to demonstrate a positive
allergic reaction.
I have had zero side effects so far after 9months. My suggestion is that if
you do it, and it helps, be gradual in the reduction of your medications.
Otherwise good luck and enjooy it.
Also, be sure to go over with your physician the data from the clinical trials
on the incidence of tumors. That is something you need to make a judgment
about.
GRW - 20 Apr 2004 15:16 GMT
There is a great resource for Xolair users in the yahoo groups.
You can access it at:
http://health.groups.yahoo.com/group/xolair_users/
The group is moderated, so you have to join. There is a great deal of
conversation between members regarding experiences, side-effects,
insurance issues, etc.
Greg
> >If so--how are you doing, any suggestions, did you have to get
> >a blood test, etc.
[quoted text clipped - 9 lines]
> on the incidence of tumors. That is something you need to make a judgment
> about.
I hadn't even heard of this until visiting this ng. Is it quite new? I
plan to ask my pulmonologist about it at my next apmt. in two weeks. Is
anyone here had xolair added to their treatment? And does it help?
GRW - 23 Apr 2004 21:32 GMT
There is a Yahoo Group specifically for Xolair users. You can find it
at:
http://health.groups.yahoo.com/group/xolair_users/messages
The group is very active and you can get a lot of quetions answered.
To answer your question, I have been using Xolair since August and
have found it to be incredibly helpful in managing my asthma. I have
been able to reduce all of my med's with not adverse effects. I was
on 80 mg of prednisone a week and have cut that in half. I have
discontinued use of Flovent, although I still use Advair 500 2x daily.
I no longer carry a rescue inhaler because I don't need it. I also
still get allergy shots.
Biggest problem with Xolair is getting your insurance to cover it
because it is very expensive and it has only been on the market less
than a year. However, many insurance companies are coming around
because of the success rate of the drug. Apparently they have figured
out that with better asthma management, the likelihood of
hospitalization is significantly reduced.
Good luck.
Greg
> I hadn't even heard of this until visiting this ng. Is it quite new? I
> plan to ask my pulmonologist about it at my next apmt. in two weeks. Is
> anyone here had xolair added to their treatment? And does it help?