> doctors were surprised at the extent of their disease. Look into the new
> Balloon Sinuplasty before you decide to go this route, but you should know
> that a CT scan, although called the "gold standard", doesn't always pick up
> everyone who has severe disease.
> > 5. I get conjested when sleeping flat on my back. So I sleep with 3
> > pillows. Is this consistent with nasal drip? Or GERD? Or both?
>
> Both, unfortunately. And people with asthma have night time symptoms.
:) disgusting.
> I sure will. After all, it all depends on the patient to figure out
> what's going on. Yes, docs can help, but you only get 10 min of their
> attention once a month. No wonder they can't figure it out, especially
> for elucive things like asthma. For the last 6 mo I've been reading
> stuff online myself, and asking my docs' opinion on that, and most of
> the time they agreed that it's worth checking out.
Isn't it just something. I've been told everything from I am coughing for
"attention" to I have Chronic Bronchitis (I am a non smoker afterall who has
gone years without meds). I don't consider either of those as valid a
diagnosis. Asthma is like Chronic Fatigue - a catchall diagnosis for people
who are sometimes short of breath and/or coughing. Must be more than one
thing going on here. Some people are reporting complete asthma remission
after months of antibiotics. Others get temporary relief by moving (see
MSC's posts about pollution). I saw a recent report I have to go find again
about the number of people who were once diagnosed with asthma who no longer
take prescription asthma meds. It was to me a surprisingly high percentage.
That says infection to me. And most recently Webmed suggested that doctors
treat sinus infections with 4 to 6 weeks of antibiotics, not just 7 to 10
days. So you see, it could be just a matter of undertreatment. But I am not
an expert on people "getting over" allergies. I did read that it only takes
a short time of not being exposed to see an improvement in allergy symptoms.
But if you don't know what it is, how do you avoid it and "not get exposed"
to an allergen? Have you had RAST testing or skin scratch tests?
> > doctors were surprised at the extent of their disease. Look into the new
> > Balloon Sinuplasty before you decide to go this route, but you should know
[quoted text clipped - 3 lines]
> So, they are surprised only after opening up the sinuses and seeing for
> themselves? Amzaing. I do have an appointment with a sinus doc.
Yes, I have seen people say that - as much as you can believe from reading
on the internet newsgroups. I have seen several people (how many can talk
their docs into surgery after a negative CT scan, afterall?) post to that
effect. I personally had the ENT get so upset about my CT Scan, I had
surgery about 2 weeks after he had the results. And they said I had tested
negative for any infections and cancer - but that was in the days before
they tested for C or M pneumoniae. We will see now that I have an ENT at
Emory and that test is now available if I have one of those infections.
Since you are adult onset, you should look into the research on those
infections. I believe M pneumoniae is the one that produces the productive
cough.
> BTW, from the "conjecstion" feeling in the throat - can one tell where
> it's coming from - nose? esphagus? lungs? there must be a way, there
> are only 3 options. And then it's a cause-and-effect thing to figure
> out which one comes first and causes the 2 others.
I can tell if the congestion is coming from my lungs or my sinuses at this
point. Early on, I didn't know, but your body is able to produce that effect
from any of those areas, so you can't go by the "possibilities". All cards
are still in play if you know what I mean. It is common for asthmatics to
report that their asthma is better after sinus surgery. Figure that out!
> > Have you had 24 hour PH monitoring? What GERD meds have you tried
> > specifically? And for how long? More than two months on Nexium or a double
> > dose of Acifex? If you just did an OTC, you didn't really have a valid test
> > of the effectiveness of GERD meds.
If you have silent Gerd, the proton pump inhibitors are supposed to work
best. You really need to do a 2 month test of prescription meds. I know I
still have symptoms, but my doctor is certain (he was going to be the most
surprised person in the room if my Ph test was negative and it was not) that
I have silent GERD. And I still have problems but I am much better if I take
Acifex.
> OK, I agree, I haven't had a valid test. And no pH meter (I've heard
> about ). I've been taking prevacid for ~2 weeks and has disconsinuted
[quoted text clipped - 3 lines]
> that would make me suffacte). Why would GERD suddently become worse
> exactly when the sinuses got infected?
My understanding is the acid from your stomach will burn your respiratory
tract and you will experience sinus symptoms related to GERD you don't feel.
I can tell you that I don't feel any reflux or heartburn, but I am convinced
after taking these meds that I must have it. However I can't explain why I
still have a green nasal discharge - like I must also have an infection.
More than one thing going one here like I said.
> Is there an assay to determine exactly what type of fluids one gets in
> the throat that causes the cough? Like, a sputum and a microscopy test?
> Every time I eat certain foods I feel like I am drowning for ~10-15
> min. The foods are not necessarily acidic. And the disgusting stuff is
> not acidic (I know how true reflux feels).
If they did I am unaware of it. Perhaps you have the option of visiting
National Jewish in Denver where the bulk of the "front line" research is
currently originating.
> Actually, I have access to high-end microscopes. I will probably look
> at the sputum (disgusting) and check in a med book what what I see
> means. Acutally, I have access to all sorts of biomedical stuff, but I
> am not an MD. Like, in theory, if I could do bloodwork on myself, and
> all the other assays I should be able to do myself.
I'm not medically trained, but http://www.sinuses.com/ has been of help to
me to track on the research regarding which "bugs" are responsible for most
sinusitis, although I know that isn't my only problem. Sinusitis would not
account for my being "short of breath". Do you have that?
> >Do you have nose bleeds?
>
> No
With GERD or Sinusitis you could expect that, but you are early on in this
game. It probably took me 6 or 7 years to develop that symptom.
> Do you have a green discharge or do you need to
> > blow your nose often?
>
> Yes. All the time.
Not green unless you have a cold? Can you tell if you are having a cold, or
do you pretty much have congestion all of the time?
> > Do you have your tonsils? They have scoped your throat and you have been
> > told you don't have swollen tonsils?
>
> Yes, everything is fine.
You would expect with GERD to see some damage to the throat - like nodules
or swollen tonsils.
> > > 5. I get conjested when sleeping flat on my back. So I sleep with 3
> > > pillows. Is this consistent with nasal drip? Or GERD? Or both?
Both. Sorry.
> > Both, unfortunately. And people with asthma have night time symptoms.
>
[quoted text clipped - 8 lines]
> do have a 13% response to albuterol by spyromtery. I've had this
> response long before I developed the asthma problems.
My experience is that albuterol helps me "Move the mucus". I told my doctor
I was "drowning in my own mucus". But this has not always been the case. I
started with a tight dry cough that lasted for several years before it
became productive and before I had sinus issues. Just going downhill
basically over the years.
> Also, after reading scary stuff about adviar (I was on 500/50 2x a
> day) I have reduced it to 1x a day - 2 weeks ago - and haven't noticed
> any difference.
Advair doesn't help me substantially either, but albuterol does. Singular
helps as did Zyrtec so I think I must have allergies too. Isn't this fun?
> > It is common not to have a low peak flow if you have
> > asthma and you just take a peak flow sometime during the day. Asthma by
[quoted text clipped - 10 lines]
>
> Figuring this out is becoming a full time job
I understand that! As I told you before, I believe at this stage, and by
testing that I have all three conditions. I don't think I always had all
three conditions, but I have to wonder if one doesn't lead to the others. I
can tell you that the Emory doctor "saw me in action" and he didn't think I
was that "abnormal" over other patients who had come to him in the past.
Isn't is amazing that your body can behave in such an counterproductive
manner?
Mostly you get online and you waste your time. I don't want to discourage
you, but the fact is the internet is composed of a "bunch of nuts" all
posting about their latest greatest alternative treatments. And even if you
take the "latest greatest" research to your doctor, he or she will go by
protocol and you will get what is "accepted' by the medical establishment.
My advice is to go to a teaching hospital if it is available because,
believe me, your every day physician isn't going to be able to help you. Not
that they don't want to, but the answer is not available to them.
runcyclexcski@yahoo.com - 19 Nov 2006 01:44 GMT
> Isn't it just something. I've been told everything from I am coughing for
> "attention" to I have Chronic Bronchitis (I am a non smoker afterall who has
[quoted text clipped - 3 lines]
> thing going on here. Some people are reporting complete asthma remission
> after months of antibiotics.
In fact, I did try Dr Hahn's method - went through 2 months of
antibiotiics. I've also gone through 3 courses of doxycycline and 1
course of amoxyciline. The latter one was for Lyme disease, which I
coincidentally got when camping (speaking of Chronic Fatigue and
multiple things going on). So, I am thinking if I had bacterial growth
in the sinus, it's either a super bug resistant to 4 types of
antibioitics (I did not list all of them above), or, it's a fungus.
>And they said I had tested
> negative for any infections and cancer - but that was in the days before
[quoted text clipped - 3 lines]
> infections. I believe M pneumoniae is the one that produces the productive
> cough.
I think they've tested that for me too, and found nothing. But false
negatives are frequent since the bacteria grow in a thin layer of cells
lining up the airways, hard to get enough material for culture or PCR
or wahtever they use to do the testing.
> I can tell if the congestion is coming from my lungs or my sinuses at this
> point.
How?
>.And I still have problems but I am much better if I take
> Acifex.
Actually, I have some left-overs of Acifex. And i will try to talk my
doc into Nexium or smth.
> My understanding is the acid from your stomach will burn your respiratory
> tract and you will experience sinus symptoms related to GERD you don't feel.
> I can tell you that I don't feel any reflux or heartburn, but I am convinced
> after taking these meds that I must have it.
So, they say green discharge == nasal, and clear == lungs?
>However I can't explain why I
> still have a green nasal discharge - like I must also have an infection.
> More than one thing going one here like I said.
> I'm not medically trained, but http://www.sinuses.com/ has been of help to
> me to track on the research regarding which "bugs" are responsible for most
> sinusitis, although I know that isn't my only problem. Sinusitis would not
> account for my being "short of breath". Do you have that?
I am not sure how to define "short of breath". When I exercise I am
feeling "uneasy" in the lungs, and I can't talk to my exercise buddies
at a pace that I never had any trouble talking (have to catch my breath
while talking). I think hyperventialation through the mouth can cause
that, when the sinuses are closed.
> With GERD or Sinusitis you could expect that, but you are early on in this
> game.
Thanks :) Only one year.
>It probably took me 6 or 7 years to develop that symptom.
> Not green unless you have a cold? Can you tell if you are having a cold, or
> do you pretty much have congestion all of the time?
pretty much congested all the time.
> I understand that! As I told you before, I believe at this stage, and by
> testing that I have all three conditions. I don't think I always had all
[quoted text clipped - 3 lines]
> Isn't is amazing that your body can behave in such an counterproductive
> manner?
I would think that one would have higher chances of things not
developing into each other if the doctors were more creative about
their work and treated every patient as a little separate project. It
should not take 1 year to go through all the possibilities we have
listed above. When I showed up with my symptoms 1 year ago it took them
only 1 week to rule out the "scary stuff" - lung cancer, lymphoma,
leukemia, heart disease, even TB. Once that stuff has been cleared out,
they essentially put me on hold. Even if I see the same doc every
month, it takes him 15 min just to recall where we were last time. Or,
it could be that attitude that the cause of asthma is not known anyway,
so why wasting their time. And besides, there is more money to be made
on chemos than on pills and inhalers.
> Mostly you get online and you waste your time. I don't want to discourage
> you, but the fact is the internet is composed of a "bunch of nuts" all
> posting about their latest greatest alternative treatments.
It's 90% garbage, but 10% is worth it. Also, understanding the
technical language of most asrticles helps me a lot. And, being at
academia, I have access to most PDFs (isn't it funny that they want you
to pay $30 per research paper on healthcare? Isn't the point of
research on helthcare to made the results available to the public?) I
could shoot PDFs your way if you are interested.
>And even if you
> take the "latest greatest" research to your doctor, he or she will go by
> protocol and you will get what is "accepted' by the medical establishment.
I do go to a teaching hospital. It works both ways. Docs are definitely
more open-minded, but they have much more advanced ADDs than in the
private practice and the waiting times are much longer.
TRN - 19 Nov 2006 05:57 GMT
> In fact, I did try Dr Hahn's method - went through 2 months of
> antibiotiics. I've also gone through 3 courses of doxycycline and 1
[quoted text clipped - 3 lines]
> in the sinus, it's either a super bug resistant to 4 types of
> antibiotics (I did not list all of them above), or, it's a fungus.
Did you find that you got any better? Or only that your constant symptoms
were gone?
> >And they said I had tested
> > negative for any infections and cancer - but that was in the days before
[quoted text clipped - 26 lines]
>
> So, they say green discharge == nasal, and clear == lungs? I dunno.
They say nothing to either effect
> >However I can't explain why I
> > still have a green nasal discharge - like I must also have an infection.
[quoted text clipped - 43 lines]
> so why wasting their time. And besides, there is more money to be made
> on chemos than on pills and inhalers.''''
This is news to me> I had no idea they knew the cause of asthma. Doc?
of nuts" all
> > posting about their latest greatest alternative treatments.
>
[quoted text clipped - 4 lines]
> research on helthcare to made the results available to the public?) I
> could shoot PDFs your way if you are interested.
Well it is free to me if I can get hubby to be interested. So I read it
all. Not that it helps at that much;
> >And even if you
> > take the "latest greatest" research to your doctor, he or she will go by
[quoted text clipped - 3 lines]
> more open-minded, but they have much more advanced ADDs than in the
> private practice and the waiting times are much longer.
You stay were you are. Sounds like you are good.
TRN - 19 Nov 2006 06:22 GMT
> > In fact, I did try Dr Hahn's method - went through 2 months of
> > antibiotiics. I've also gone through 3 courses of doxycycline and 1
> > course of amoxyciline. The latter one was for Lyme disease, which I
> > coincidentally got when camping (speaking of Chronic Fatigue and
I am sick of cut and paste today and need to apologies if I have not
answered everything. Did you see new ads by CDC on Chronic F? Look into mito
disease.
NorthShoreCEO - 19 Nov 2006 16:38 GMT
> In fact, I did try Dr Hahn's method - went through 2 months of
> antibiotiics.
That's not Dr. Hahn's protocol. His calls for twelve weeks,
which is three months. I'm not surprised it didn't work.
runcyclexcski@yahoo.com - 19 Nov 2006 21:41 GMT
> That's not Dr. Hahn's protocol. His calls for twelve weeks,
> which is three months. I'm not surprised it didn't work.
I gave an estimated number. If I counted it precisely, I would not be
suprised if it came up to three months. The protocol I was following
WAS based on Hahn's work.
TRN - 19 Nov 2006 22:18 GMT
> > That's not Dr. Hahn's protocol. His calls for twelve weeks,
> > which is three months. I'm not surprised it didn't work.
>
> I gave an estimated number. If I counted it precisely, I would not be
> suprised if it came up to three months. The protocol I was following
> WAS based on Hahn's work.
I only got better - not cured either. Still I appreciated the forward
progress.
Did you notice no improvement? I am surprised because at least while you
were on the antibiotics, their anti inflammatory effect should have made you
feel a bit better. Assuming of course that you have inflammation. There were
some kids that were studied at National Jewish who had asthma without
inflammation - I didn't track on what happened with that research, but this
might give you a direction to investigate.
runcyclexcski@yahoo.com - 20 Nov 2006 21:57 GMT
> Did you notice no improvement? I am surprised because at least while you
> were on the antibiotics, their anti inflammatory effect should have made you
> feel a bit better. Assuming of course that you have inflammation. There were
> some kids that were studied at National Jewish who had asthma without
> inflammation - I didn't track on what happened with that research, but this
> might give you a direction to investigate.
I don't recall feeling any better with the azythromycin.
But the inflammation could be what's going on. Turns out, Advair was
helping, and I noticed the difference after reducing the dose by a
factor of 2. Took 2 weeks before the effects came back (drowning after
each meal and during exercise). This was the highest dose of Advair.
The idea that I am now stuck with the steroid for life is very
uncomfrotable. I guess I have to choose between drowning after each
meal or goiing blind sometime down the road.
TRN - 21 Nov 2006 00:31 GMT
> I don't recall feeling any better with the azythromycin.
>
[quoted text clipped - 5 lines]
> uncomfrotable. I guess I have to choose between drowning after each
> meal or goiing blind sometime down the road.
I'm glad you are finding something that helps. Not everyone has systemic
side effects from Advair. Although you are on a steroid, in the inhaled
form, you don't see the same side effects (like going blind). Hopefully the
IL-13 or IL 5 drugs will be out and help us. One trial that is just
concluding in Dec this year is stage 2.
NorthShoreCEO - 20 Nov 2006 00:54 GMT
>> That's not Dr. Hahn's protocol. His calls for twelve weeks,
>> which is three months. I'm not surprised it didn't work.
[quoted text clipped - 4 lines]
> following
> WAS based on Hahn's work.
Got it. Some people find no relief using just Azithromycin, but
do find relief with Dr. Wagshul's protocol, which combines that
with doxycycline, if I recall correctly. Unfortunately, I don't
know if anyone ever spelled out what that was, but maybe your
doctor would be willing to contact him on your behalf.
Here is his contact information:
FRED WAGSHUL, M.D.
ASTHMA AND RESPIRATORY CENTER OF SOUTH DAYTON,
455 Byers Road,
Miamisburg, Ohio 45342
937-859-5864
With adult onset asthma following an illness, I'd be persistent,
too.
Runcycleski, if you haven't seen an ears, nose, throat doctor,
then you've left that stone unturned. It could be that you have
polyps that are contributing to your breathing problems, or a
sinus infection that isn't bad enough to really knock you out,
but is causing the asthma. My ent says that most chronic sinus
infections are just undertreated and require six weeks on an
antibiotic. Sometimes the infection is anaerobic, requiring
Metronidazole aka Flagyl. Or, you may have some problem that is
preventing proper drainage, like enlarged turbinates or a
deviated septum.
Something to at least check out.
runcyclexcski@yahoo.com - 19 Nov 2006 01:47 GMT
> Runcycleski, if you haven't seen an ears, nose, throat doctor,
> then you've left that stone unturned. It could be that you have
[quoted text clipped - 6 lines]
> preventing proper drainage, like enlarged turbinates or a
> deviated septum.
I have just scheduled an appointment with an ENT. Wonder why my doc
hasn't come up with the idea before.
I did go through various a/biotics (wth different rationales, not just
the sinuses), with no effect.
Richard Friedel - 19 Nov 2006 08:07 GMT
.........
> I have just scheduled an appointment with an ENT. Wonder why my doc
> hasn't come up with the idea before.
>
> I did go through various a/biotics (wth different rationales, not just
> the sinuses), with no effect.
But while you're about it, think of scientific priorities and less of
tradition. Ongoing research shows that blood oxygenation is massively
dependent on nitric oxide from the nose. Is this accepted by the ent's
etc? This research provides a scientific explanation for yoga, which
has a good reputation on asthma and breathing. See link I posted
earlier in this thread. Ramdev should provide an expurgated version
freed of Hinduism for the West, but his exercises do seem healthy and
convincing. In particular the classical bhastrika exercise indicates
how close thoracic asthmatic breathing in an attack with frantic rasing
of the shoulders is to an efficient remedy. The only difference could
be that in bhastrika sufficient nitric oxide is obtained from the nose.
Don't see why asthmatic breathing in an attack should be considered
perverse and why belly breathing should be taught as a remedy.
On the perils of nose surgery, see
http://www.bcm.edu/oto/grand/72194.html
"over 60 billion dollars a year is spent on the surgical treatment of
this complaint." . But the writer expressly professes that the form of
the nose does not follow function, i. e. function is not understood.
Could there be an ugly truth that self-treatment with breathing
exercises is the better and more scientific alternative to the
biomedical model, which can be stultifying? Regards, Richard Friedel