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Medical Forum / Diseases and Disorders / Asthma / October 2006

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Question for 000doc

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Jason Johnson - 15 Oct 2006 21:24 GMT
My doctor referred me to a specialist to determine if I had asthma.
The specialist (after looking at my CAT skan and lung X-rays) determined
that I did NOT have asthma but instead had calcium deposits (non-cancer)
on my lungs. Do you know whether or not my breathing problems will
stay the same or will get worse as I get older. I am now 56 years
old. I have some of the symptoms of asthma. I should note that the
specialist had his nurse conduct a standard asthma test. The results
of that standand asthma test were that I did NOT have asthma.
Jason
00doc - 17 Oct 2006 21:49 GMT
> My doctor referred me to a specialist to determine if I had asthma.
> The specialist (after looking at my CAT skan and lung X-rays) determined
[quoted text clipped - 5 lines]
> of that standand asthma test were that I did NOT have asthma.
> Jason

The "asthma test", by which I think you mean office spirometry (where
you breath into the machine several times), cannot rule out asthma. It
can confirm that you have asthma if the results are typical and if they
reverse after giving a bronchodilator (usually albuterol). If you are
having symptoms during the test and the test does not show obstruction
then it can make asthma unlikely, but alone it cannot rule out asthma.
Asthma by definition is a reversible process so on a good day you may
have no signs or symptoms and normal tests. In some people, especially
people with mild or very intermittent problems it can be hard to
"catch" it on the testing and we have to go more with the descriptions
of the problem and response to medications (and or keep repeating the
test until you get it). The best thing to do in this situation is to
try to provoke an attack, either by a methacholine challenge (they have
you breath something that brings it on in the lab) or some other
maneuver (many pediatric pulmonologists will have the kid run around
for a bit and then try it). I have found where I am that it is
exceedingly difficult to get a methacholine challenge test - the
pulmonologists just don't want to do them - so it is often hard to
figure out.

In any event - if you are seeing a pulmonary specialist about a
pulmonary problem it is fair game to ask why you are having the
symptoms and expect a reasonable diagnosis and treatment plan.
After-all, you were sent to evaluate the symptoms - not just to rule in
or out any one particular disease. If the one you are seeing is not
doing this then it would be reasonable to seek a second opinion.

Again, I am guessing - but usually the calcium deposits are from old
infections and irritations and have nothing to do with breathing
problems. If it is more extensive than I am imagining then this is
another fair question for the pulmonologist.
Jason Johnson - 22 Oct 2006 20:05 GMT
On Oct 15, 4:24 pm, j...@nospam.com (Jason Johnson) wrote:
> My doctor referred me to a specialist to determine if I had asthma.
> The specialist (after looking at my CAT skan and lung X-rays) determined
[quoted text clipped - 5 lines]
> of that standand asthma test were that I did NOT have asthma.
> Jason

The "asthma test", by which I think you mean office spirometry (where
you breath into the machine several times), cannot rule out asthma. It
can confirm that you have asthma if the results are typical and if they
reverse after giving a bronchodilator (usually albuterol). If you are
having symptoms during the test and the test does not show obstruction
then it can make asthma unlikely, but alone it cannot rule out asthma.
Asthma by definition is a reversible process so on a good day you may
have no signs or symptoms and normal tests. In some people, especially
people with mild or very intermittent problems it can be hard to
"catch" it on the testing and we have to go more with the descriptions
of the problem and response to medications (and or keep repeating the
test until you get it). The best thing to do in this situation is to
try to provoke an attack, either by a methacholine challenge (they have
you breath something that brings it on in the lab) or some other
maneuver (many pediatric pulmonologists will have the kid run around
for a bit and then try it). I have found where I am that it is
exceedingly difficult to get a methacholine challenge test - the
pulmonologists just don't want to do them - so it is often hard to
figure out.

In any event - if you are seeing a pulmonary specialist about a
pulmonary problem it is fair game to ask why you are having the
symptoms and expect a reasonable diagnosis and treatment plan.
After-all, you were sent to evaluate the symptoms - not just to rule in
or out any one particular disease. If the one you are seeing is not
doing this then it would be reasonable to seek a second opinion.

Again, I am guessing - but usually the calcium deposits are from old
infections and irritations and have nothing to do with breathing
problems. If it is more extensive than I am imagining then this is
another fair question for the pulmonologist.

~~~~~~~~~~~~~~~~~~~~~~~~

doc,
Thanks. The pulmorary specialist that I was referred to had the best
equipment that is available related to testing people for asthma. The
equipment is controlled by a computer. The test took about one hour. The
nurse had me inhale something but I don't know what it was. It may have
been a
methacholine challenge test but I am not sure. The end result was a
computer print out. I recall that the doctor had that same print-out in
front of him when he told me that the test indicated that I did not have
asthma. My major symptom of asthma (or perhaps of the symptoms of calcium
deposits) is that I have a difficult time breathing during the night hours
when I am lying flat on my back.
If I am setting up or lying on my side, I breath much better. I don't have
this problem during the day if I am lying flat on my back. I suspect the
reason the problem is worse at night is because various hormone levels are
lower at night. One of those hormones is cortisol which reduces swelling.
I found out that cortisol levels are highest in the morning and lowest at
night. Do you believe that I should have another asthma test in the near
future--perhaps during the late evening hours? There is a product called
Isocort that has hydrocortisone in it--do you believe that I should try
taking a dose of it during the evening hours to see if it helps me to
breath better when I am lying flat on my back?
Jason

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
rchrdcarlisle@NOTyahoo.com - 22 Oct 2006 22:58 GMT
>My major symptom of asthma (or perhaps of the symptoms of calcium
>deposits) is that I have a difficult time breathing during the night hours
[quoted text clipped - 3 lines]
>reason the problem is worse at night is because various hormone levels are
>lower at night.

Difficulty breathing while lying flat and improving upon sitting up is
not asthma nor due to calcium deposits. What you are describing is
called orthopnea and characteristic of a heart problem such as
congestive heart failure due to fluid accumulation in the lungs while
lying down. Fluid accumulation improves upon sitting up resulting in
breathing easier.

Do you also awaken from sleep with shortness of breath? If so I would
suggest getting checked out by a cardiologist.

As I recall you also spoke of ankle swelling. This is also a sign of a
heart problem such as CHF.

Good luck.

RC
Jason Johnson - 23 Oct 2006 20:33 GMT
On Sun, 22 Oct 2006 12:06:00 -0700, jason@nospam.com (Jason Johnson)
wrote:

>My major symptom of asthma (or perhaps of the symptoms of calcium
>deposits) is that I have a difficult time breathing during the night hours
[quoted text clipped - 3 lines]
>reason the problem is worse at night is because various hormone levels are
>lower at night.

Difficulty breathing while lying flat and improving upon sitting up is
not asthma nor due to calcium deposits. What you are describing is
called orthopnea and characteristic of a heart problem such as
congestive heart failure due to fluid accumulation in the lungs while
lying down. Fluid accumulation improves upon sitting up resulting in
breathing easier.

 Do you also awaken from sleep with shortness of breath? If so I would
suggest getting checked out by a cardiologist.

As I recall you also spoke of ankle swelling. This is also a sign of a
heart problem such as CHF.

Good luck.

RC

~~~~~~~~~~~~~~~~~~~~~~~~~~~~

RC,
Yes, I do have edema. My regular doctor tested my blood pressure while I
was setting down and tested it again when I stood up. It was lower when I
stood up. He told me that I had edema. He told me that is was not a major
case of edema so refused to prescribe a loop diurectic.
I made a note related "orthospnea" and will do a medlineplus search for
that term and will discuss it with my regular doctor. He is an internist.
He may or may not refer me to a cardio. I had a stress test by a cardio.
last year and he told me that my heart was working great.
I did have a case of shortness of breath when I had a case of bronchitis.
My father died of heart disease when he was about 65 years old. I am now
56 years old. I ride an exercise bike 4 miles per day at a high rate of
speed.
Believe it or not, I breath well while riding a bike but have a hard time
breathing normally at night when I am lying flat on my back.
My doctor seems to think that I have NO medical problems.
He actually stated, "Lots of people have edema so you have nothing to
worry about." I should have stated, "That's true but it's your job to
figure out the reason I have edema." I know that it's not related to
medications because I do not take any medications.
Thanks for your post and advice,
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
00doc - 23 Oct 2006 21:50 GMT
> In article <d3qnj2d0scksjpskhv90i8eljjsdlo2...@4ax.com>,
>
[quoted text clipped - 50 lines]
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Unfortunately, most cases of edema are what we call lymph edema - just
from being upright/gravity and there are no abnormal tests. The doc can
try to make sure it is not due to other things like heart problems, low
protien levels, thryoid problems, problems with the veins but usually
there is no abnormal test. Whether it is worth taking a loop diuretic
for it depends on how bad it is and how risk adverse you are about the
medication. It is a judegment call.
Jason Johnson - 24 Oct 2006 00:14 GMT
On Oct 23, 3:33 pm, j...@nospam.com (Jason Johnson) wrote:
> In article <d3qnj2d0scksjpskhv90i8eljjsdlo2...@4ax.com>,
>
[quoted text clipped - 50 lines]
> Jason
> ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Unfortunately, most cases of edema are what we call lymph edema - just
from being upright/gravity and there are no abnormal tests. The doc can
try to make sure it is not due to other things like heart problems, low
protien levels, thryoid problems, problems with the veins but usually
there is no abnormal test. Whether it is worth taking a loop diuretic
for it depends on how bad it is and how risk adverse you are about the
medication. It is a judegment call.

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Yes, I agree. I read about the side effects of diurectics and want to
avoid taking them unless I have no choice. One of the side effects of loop
diurectics is "Ringing or buzzing in the ears, hearing loss, deafness,
fainting, etc"
source: "The Pill Book"

Needless to say--I don't want to risk deafness.

Now I understand why the doctor did not conduct any tests--he probably
assumed that it was  lymph edema based upon info. from my medical file
such as a stress test that was conducted last year.

Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
rchrdcarlisle@NOTyahoo.com - 24 Oct 2006 00:29 GMT
>One of the side effects of loop
>diurectics is "Ringing or buzzing in the ears, hearing loss, deafness,
>fainting, etc"
>source: "The Pill Book"
>
>Needless to say--I don't want to risk deafness.

Sometimes a little information is a dangerous thing. You are probably
as likely as getting deaf from not taking loop diuretics as by taking
them assuming you don't overdose on them.

It is important to recognize that just because a condition is
associated with a medication does not mean it has a causal connection.
Correlation does not imply causation.

Look up any medication in the PDR and look at the side effects. You
would probably not want to take any of them. They include side effects
that may not even be connected to the medication in order to CTA.

RC
Jason Johnson - 24 Oct 2006 01:14 GMT
On Mon, 23 Oct 2006 16:17:07 -0700, jason@nospam.com (Jason Johnson)
wrote:

>One of the side effects of loop
>diurectics is "Ringing or buzzing in the ears, hearing loss, deafness,
>fainting, etc"
>source: "The Pill Book"
>
>Needless to say--I don't want to risk deafness.

Sometimes a little information is a dangerous thing. You are probably
as likely as getting deaf from not taking loop diuretics as by taking
them assuming you don't overdose on them.

It is important to recognize that just because a condition is
associated with a medication does not mean it has a causal connection.
Correlation does not imply causation.

Look up any medication in the PDR and look at the side effects. You
would probably not want to take any of them. They include side effects
that may not even be connected to the medication in order to CTA.

RC

~~~~~~~~~~~~~~~~~~~

RC,
Good points. You are correct. I tend to worry too much. I developed some
memory problems as a result of taking statins so that causes me to worry
more than most people about listed side effects of various medications. I
have weak kidneys and have problems with every medication that indicates
that the medication can cause kidney problems. You would be amazed about
the number of medications that have that warning. If you have a copy of
the PDR--you already know that I am correct.
Jason
~~~~~~~~~~~~~~
rchrdcarlisle@NOTyahoo.com - 24 Oct 2006 21:30 GMT
>RC,
>Good points. You are correct. I tend to worry too much. I developed some
>memory problems as a result of taking statins so that causes me to worry
>more than most people about listed side effects of various medications.

Unfortunately the effect of your worrying is that you may be reluctant
to takes meds that you really need or your worrying will result in
your developing more intense side effects when you do take the
medication.   .

> I
>have weak kidneys and have problems with every medication that indicates
>that the medication can cause kidney problems.

Drinking too much water can screw up your kidneys too. And do watch
the air you breathe as it could really do a number on your kidneys.

Btw, your belief that you have "weak kidneys", whatever that means, is
likely another manifestation of your obsessive worrying about your
health and physical condition. Has any doctor told you that you have
something wrong with your kidneys? If so exactly what is the problem?

> You would be amazed about
>the number of medications that have that warning.

No I would not be amazed. I know quite well that the list of side
effects is far in excess of what is actually a causal relationship
between the med and the side effect. The worst effect of all the side
effects listed in the PDR is worriers like you who obsess about the
possibility of getting a side effect that likely will not occur unless
of course your worrying ends up making it a self fulfilling prophecy

> If you have a copy of
>the PDR--you already know that I am correct.

I do know you are correct. Hopefully you will realize that the list of
side effects does not accurately portray the actual risk.

Have you seen the list of side effects from placebo? Sometimes placebo
causes more side effects than the real medication. The mind is a very
powerful thing and can cause physical symptoms as a result of
anxiety/worrying.

RC

>Jason
Jason Johnson - 24 Oct 2006 22:38 GMT
On Mon, 23 Oct 2006 17:14:54 -0700, jason@nospam.com (Jason Johnson)
wrote:

>RC,
>Good points. You are correct. I tend to worry too much. I developed some
>memory problems as a result of taking statins so that causes me to worry
>more than most people about listed side effects of various medications.
Unfortunately the effect of your worrying is that you may be reluctant
to takes meds that you really need or your worrying will result in
your developing more intense side effects when you do take the
medication.   .




> I
>have weak kidneys and have problems with every medication that indicates
>that the medication can cause kidney problems.

Drinking too much water can screw up your kidneys too. And do watch
the air you breathe as it could really do a number on your kidneys.

Btw, your belief that you have "weak kidneys", whatever that means, is
likely another manifestation of your obsessive worrying about your
health and physical condition. Has any doctor told you that you have
something wrong with your kidneys? If so exactly what is the problem?


> You would be amazed about
>the number of medications that have that warning.

No I would not be amazed. I know quite well that the list of side
effects is far in excess of what is actually a causal relationship
between the med and the side effect. The worst effect of all the side
effects listed in the PDR is worriers like you who obsess about the
possibility of getting a side effect that likely will not occur unless
of course your worrying ends up making it a self fulfilling prophecy


> If you have a copy of
>the PDR--you already know that I am correct.

I do know you are correct. Hopefully you will realize that the list of
side effects does not accurately portray the actual risk.

Have you seen the list of side effects from placebo? Sometimes placebo
causes more side effects than the real medication. The mind is a very
powerful thing and can cause physical symptoms as a result of
anxiety/worrying.

RC

~~~~~~~~~~~~~~~~~~~~~~~~

RC,
When I was a baby I had nephrotic syndrome. My creatinine level rose from
1.1 to 1.9 MG/DL while I was taking statins so I stopped taking statins.
My creatinine level is now 1.1 MG/DL. Last year, my doctor prescribed a
thiazide diurectic
and I had really bad side effects. I developed a bad case of hyponatremia.
I have not tried taking Loop diurectics. I read that Loop diurectics work
better for people that have hyponatremia. My doctor told me that I may
have Distal Renal Tubular Acidosis based upon various blood tests. I have
some of the symptoms of nephrotic syndrome such as edema. I know that I do
not have ESRD.
I control the high acid levels by avoiding high acid foods and liquids. I
realize that I worry about my health more than most people. My sister died
of a heart attack at the age of 64 years old and I am now 55 years old.
Sarah said that I have hypocondria and she is correct. I do not take any
medications but I would take a medication if I really needed to take a
medication. I may have to start taking a Loop Diurectic if I can not find
a non-medication solution to my serious edema problems.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
rchrdcarlisle@NOTyahoo.com - 25 Oct 2006 00:48 GMT
>Sarah said that I have hypocondria and she is correct.

I agree with Sarah, whoever she is.





RC
rchrdcarlisle@NOTyahoo.com - 23 Oct 2006 21:56 GMT
>RC,
>Yes, I do have edema. My regular doctor tested my blood pressure while I
>was setting down and tested it again when I stood up. It was lower when I
>stood up. He told me that I had edema. He told me that is was not a major
>case of edema so refused to prescribe a loop diurectic.

Just because edema is mild does not mean that it is not a
manifestation of a more serious disorder.

>I made a note related "orthospnea" and will do a medlineplus search for
>that term and will discuss it with my regular doctor.

It is "orthopnea". Waking up in the middle of the night short of
breath is called "paroxysmal nocturnal dyspnea" if you happen to have
that in the absence of asthma.

> He is an internist.
>He may or may not refer me to a cardio. I had a stress test by a cardio.
>last year and he told me that my heart was working great.

If your heart is working "great" then I doubt that you have congestive
heart failure which is due to the heart not working so great and
therefore having fluids backed up into lungs and lower extremities
causing difficulty breathing and dependent edema.



>My father died of heart disease when he was about 65 years old.

Genetics plays an important role in disease. Your symptoms suggest
possible heart disease and your family history dictate that your
symptoms be taken seriously.

> I am now
>56 years old. I ride an exercise bike 4 miles per day at a high rate of
>speed.
>Believe it or not, I breath well while riding a bike but have a hard time
>breathing normally at night when I am lying flat on my back.

If you are able to exercise at high intensity without unusual
shortness of breath I doubt you have congestive heart failure. Are you
obese? A smoker?

>My doctor seems to think that I have NO medical problems.

Yes, and you think you have many medical problems. That must cause you
great distress.

>He actually stated, "Lots of people have edema so you have nothing to
>worry about."

It is true that a lot of people have edema. But it is also true that
the edema may be a sign or precursor of more serious malady.

> I should have stated, "That's true but it's your job to
>figure out the reason I have edema."

I don't know if I would word it that way. You might say that you
understand that edema may be a sign of more serious problem and you
would like to determine the cause of the edema.

> I know that it's not related to
>medications because I do not take any medications.
>Thanks for your post and advice,

My pleasure.

RC
Jason Johnson - 24 Oct 2006 00:08 GMT
On Mon, 23 Oct 2006 12:33:38 -0700, jason@nospam.com (Jason Johnson)
wrote:

>RC,
>Yes, I do have edema. My regular doctor tested my blood pressure while I
>was setting down and tested it again when I stood up. It was lower when I
>stood up. He told me that I had edema. He told me that is was not a major
>case of edema so refused to prescribe a loop diurectic.

Just because edema is mild does not mean that it is not a
manifestation of a more serious disorder.


>I made a note related "orthospnea" and will do a medlineplus search for
>that term and will discuss it with my regular doctor.

It is "orthopnea". Waking up in the middle of the night short of
breath is called "paroxysmal nocturnal dyspnea" if you happen to have
that in the absence of asthma.


> He is an internist.
>He may or may not refer me to a cardio. I had a stress test by a cardio.
>last year and he told me that my heart was working great.

If your heart is working "great" then I doubt that you have congestive
heart failure which is due to the heart not working so great and
therefore having fluids backed up into lungs and lower extremities
causing difficulty breathing and dependent edema.


 



>My father died of heart disease when he was about 65 years old.

Genetics plays an important role in disease. Your symptoms suggest
possible heart disease and your family history dictate that your
symptoms be taken seriously.



> I am now
>56 years old. I ride an exercise bike 4 miles per day at a high rate of
>speed.
>Believe it or not, I breath well while riding a bike but have a hard time
>breathing normally at night when I am lying flat on my back.

If you are able to exercise at high intensity without unusual
shortness of breath I doubt you have congestive heart failure. Are you
obese? A smoker?



>My doctor seems to think that I have NO medical problems.

Yes, and you think you have many medical problems. That must cause you
great distress.


>He actually stated, "Lots of people have edema so you have nothing to
>worry about."

It is true that a lot of people have edema. But it is also true that
the edema may be a sign or precursor of more serious malady.



> I should have stated, "That's true but it's your job to
>figure out the reason I have edema."

I don't know if I would word it that way. You might say that you
understand that edema may be a sign of more serious problem and you
would like to determine the cause of the edema.



> I know that it's not related to
>medications because I do not take any medications.
>Thanks for your post and advice,

My pleasure.

RC

~~~~~~~~~~~~~~~~~~~~~~

RC,
No, I am not obese. I will use your words (re: edema) instead of my words.
Your words sound much better than my words and may have a better result.
Doctors see lots of patients that are near death so seem to ignore people
like me that appear to be be healthy based on blood tests and urine tests.
There are lots of causes for edema and many busy doctors don't want to
take the time needed to figure out the cause of edema. They usually give
the patient a prescription for a diuretic without conducting any tests or
any referrals. I have an HMO (Hurry Me Out) insurance program which makes
it even harder for my doctor to make referrals or spend time conducting
expensive tests such as CAT skans. I don't know the true cause of the
edema but I would like to find out.
I will take your advice related to scheduling an appointment with the
asthma specialist. I can usually see any specialist that I have seen
before without a referral. Of course, the specialist must agree to see
me--otherwise--my insur.
will not pay for it. One person referred to it as "HMO Hell".
Thanks again for your help and advice.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
rchrdcarlisle@NOTyahoo.com - 24 Oct 2006 00:24 GMT
>RC,
>No, I am not obese. I will use your words (re: edema) instead of my words.
>Your words sound much better than my words and may have a better result.

Yes. Many doctors become defensive if they think that you are
questioning their professionalism.

>Doctors see lots of patients that are near death so seem to ignore people
>like me that appear to be be healthy based on blood tests and urine tests.

This is true. I don't know if you have a serious medical disorder. As
I have told you in the past I am suspicious that you worry
unnecessarily about your health although I remain open minded that you
may have a real problem. Even paranoid people get persecuted
sometimes.

>There are lots of causes for edema and many busy doctors don't want to
>take the time needed to figure out the cause of edema. They usually give
>the patient a prescription for a diuretic without conducting any tests or
>any referrals.

This is true. Most cases of edema in older individuals is due to
benign causes such as incompetent leaky vessels as you get older and
there is no treatable illness.

> I have an HMO (Hurry Me Out) insurance program which makes
>it even harder for my doctor to make referrals or spend time conducting
>expensive tests such as CAT skans.

This is a problem with HMO's which maximize profits by doing fewer
tests. However failure to make an early diagnosis by doing a test may
cost them more in the long run, not to mention potentially costing the
patient his life.

> I don't know the true cause of the
>edema but I would like to find out.

You may never find out.

>I will take your advice related to scheduling an appointment with the
>asthma specialist.

I don't think I suggested scheduling an appointment with an asthma
specialist. I thought your asthma test was negative. I suggested a
cardiac workup by a cardiologist but it sounds like you may have
already had a cardiac workup when you had stress test and were told
that your heart was fine.

> I can usually see any specialist that I have seen
>before without a referral. Of course, the specialist must agree to see
>me--otherwise--my insur.
>will not pay for it. One person referred to it as "HMO Hell".
>Thanks again for your help and advice.

Good luck.

RC
>Jason
Jason Johnson - 24 Oct 2006 01:07 GMT
On Mon, 23 Oct 2006 16:08:26 -0700, jason@nospam.com (Jason Johnson)
wrote:

>RC,
>No, I am not obese. I will use your words (re: edema) instead of my words.
>Your words sound much better than my words and may have a better result.  
Yes. Many doctors become defensive if they think that you are
questioning their professionalism.


>Doctors see lots of patients that are near death so seem to ignore people
>like me that appear to be be healthy based on blood tests and urine tests.
This is true. I don't know if you have a serious medical disorder. As
I have told you in the past I am suspicious that you worry
unnecessarily about your health although I remain open minded that you
may have a real problem. Even paranoid people get persecuted
sometimes.



>There are lots of causes for edema and many busy doctors don't want to
>take the time needed to figure out the cause of edema. They usually give
>the patient a prescription for a diuretic without conducting any tests or
>any referrals.

This is true. Most cases of edema in older individuals is due to
benign causes such as incompetent leaky vessels as you get older and
there is no treatable illness.



> I have an HMO (Hurry Me Out) insurance program which makes
>it even harder for my doctor to make referrals or spend time conducting
>expensive tests such as CAT skans.

This is a problem with HMO's which maximize profits by doing fewer
tests. However failure to make an early diagnosis by doing a test may
cost them more in the long run, not to mention potentially costing the
patient his life.



> I don't know the true cause of the
>edema but I would like to find out.

You may never find out.


>I will take your advice related to scheduling an appointment with the
>asthma specialist.

I don't think I suggested scheduling an appointment with an asthma
specialist. I thought your asthma test was negative. I suggested a
cardiac workup by a cardiologist but it sounds like you may have
already had a cardiac workup when you had stress test and were told
that your heart was fine.



> I can usually see any specialist that I have seen
>before without a referral. Of course, the specialist must agree to see
>me--otherwise--my insur.
>will not pay for it. One person referred to it as "HMO Hell".
>Thanks again for your help and advice.

Good luck.

RC

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

RC,
The stress test was done about a year ago by a cardio. Doc told me that
pulmonary specialists can do some sort of cardio work up to determine if
heart problems are the cause of breathing related problems. It would be
great to have that sort of test to rule in or rule out my heart as a cause
of my edema problems and breathing problems. Of course, the pulmonary
specialist that done the asthma test may or may not want to conduct such a
test. My HMO insur. company might not even let me get such a test. I know
that I worry more than I should worry about my breathing problems and
edema problems. My neighbor has serious thyroid problems and does not even
seem to be concerned about all of the symptoms that she is having.
Everyone is different.
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
00doc - 23 Oct 2006 03:17 GMT
> ~~~~~~~~~~~~~~~~~~~~~~~~
>
[quoted text clipped - 5 lines]
> been a
> methacholine challenge test but I am not sure.

In the regular test they do it once (usually three breaths - but maybe more
if they are not consistent enough) then they have you inhale some albuterol
and then repeat it. In a methacholine challenge test they keep repeating the
test after having you inhale increasing doses of methacholine until one of
them makes you wheeze.

> The end result was a
> computer print out. I recall that the doctor had that same print-out in
[quoted text clipped - 13 lines]
> breath better when I am lying flat on my back?
> Jason

It would probably be heard to schedule the test outside of normal office
hours. You could follow peak flows at home and see if they drop at night. It
is not as good but still something.

While asthma is often worse at night the part about worsening symptoms wth
lying down could be from a number things (the heart as well as other
things). Pulmonologists often recommend cardiac work-ups and it sounds like
this is not impossible in this case so I would be surprised if he didn't
recommend it in you. Again, even if he doesn't think it is asthma it is fair
to ask him to arrive at some other diagnosis. If he is not working with you
to find out what it is, not just what it is not, then you need a second
opinion.

As for the Isocort - I wouldn't. For one thing if the product really does
have corticosteroids in it (or get your body to produce more of them) then
it is a toxic drug that should be used with great caution and with close
monitoring. It is also a very expensive verison of one of the cheapest drugs
around ($25 would keep you in prednisone for over a year). If it does not
then it is just a total scam. Either way it is a scam.

Signature

00doc

Jason Johnson - 23 Oct 2006 20:44 GMT
"Jason Johnson" <jason@nospam.com> wrote in message
news:jason-2210061206000001@66-52-22-102.lsan.pw-dia.impulse.net...
> ~~~~~~~~~~~~~~~~~~~~~~~~
>
[quoted text clipped - 5 lines]
> been a
> methacholine challenge test but I am not sure.

In the regular test they do it once (usually three breaths - but maybe more
if they are not consistent enough) then they have you inhale some albuterol
and then repeat it. In a methacholine challenge test they keep repeating the
test after having you inhale increasing doses of methacholine until one of
them makes you wheeze.

> The end result was a
> computer print out. I recall that the doctor had that same print-out in
[quoted text clipped - 13 lines]
> breath better when I am lying flat on my back?
> Jason

It would probably be heard to schedule the test outside of normal office
hours. You could follow peak flows at home and see if they drop at night. It
is not as good but still something.

While asthma is often worse at night the part about worsening symptoms wth
lying down could be from a number things (the heart as well as other
things). Pulmonologists often recommend cardiac work-ups and it sounds like
this is not impossible in this case so I would be surprised if he didn't
recommend it in you. Again, even if he doesn't think it is asthma it is fair
to ask him to arrive at some other diagnosis. If he is not working with you
to find out what it is, not just what it is not, then you need a second
opinion.

As for the Isocort - I wouldn't. For one thing if the product really does
have corticosteroids in it (or get your body to produce more of them) then
it is a toxic drug that should be used with great caution and with close
monitoring. It is also a very expensive verison of one of the cheapest drugs
around ($25 would keep you in prednisone for over a year). If it does not
then it is just a total scam. Either way it is a scam.

~~~~~~~~~~~~~~~~~~

doc,
Thanks for your advice. I'll call the pulmonologist and see if he will
arrange for me to get a cardiac work-up.
I am also trying to get a referral to a Endocrinologist since I recently
found out that high levels of cortisol and/or Aldosterone can cause people
to excrete high levels of potassium and retain sodium.
When people retain sodium, they also retain water. The end result is edema
and I have edema. It's much worse when I eat any foods that contain high
levels of salt. I now avoid any foods that have high levels of salt.
What a drag it is getting old. I am only 55 years old but during the night
hours, I feel like I am 75 years old.
Thanks again,
Jason
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
 
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