> Dairy helps me out when I am feeling badly and inflamed. It helps my
> swelling in my hands. and it helps edema. I think to each his own. I do
[quoted text clipped - 22 lines]
>> deformities, but no more extra pain from dairy. I love soy products now.
>> Still, some people are allergic to soy. Jan2
Why do
they give me all these drugs if there is no stopping the joints from being
> destroyed? -- drugs which destroy vital organs like, liver, heart veins,
> bowel function, nervous system, and also teeth, bone, etc? My hair was
> falling out on methotrexate. That's the first time I heard of that." my
> doctor said. Yeah--right! And it drove my BP to a very dangerous level.
> The drug was working and she still increased my dose. Thank you for
> replying to my post. Jan2
Hi Jan, I want to try to get you not to be your own worst enemy. It is
not our medicines fault that we have inflam.arth. It is not the doctors
fault that you have inflam.arth.
We must try to control our immune system. Methx usually has to get up
to 15mg a week before it really even starts to control inflam.arth. Please
understand that if it is not controlled the damage to our system and our
joints is on going.
I first came down with RA when I was 38 and 45 before I saw a RD. Like
many people here, I took Methx for 7 or 8 years and it did its job for me in
almost all of those years at 17.5 mg and at the end when it was not working
too well,,,, 20mg by shot and then it was stopped and I moved on to Arava
for a year. Most of those years with Methx, I took 5mg of prednisone and 10
mg a day for the first year with steroid shots in my knees, ankles, feet,
and shoulders
By the way, grape seed extract and/or biotin will help with the loss of
hair. Please find you a RD that you can talk to and feel at ease with.
Accept that you have a disease that can not be cured at this time and people
like me that have had RA for over 25 years do control it and live a good
life. I have had both shoulders shot with steroids this year while in a
bad flare.
We nearly all have what we call flares and it is in this time when the most
RA damage takes place,,,, IMO.
It could be that one of the newer medicines for RA will be your answer
and I hope you have good insurance if you do. We all come here for support
and other peoples opinion of what has taken place with them. I want you to
remember that we need to believe in our doctors and our medicine because the
mind controls a great deal of how bad inflam.arth is for a person. We must
also remember that inflam.arth does more damage to our system and joints
than the medicine does. You are lucky that in these days we have choices
in what works best for us and there are new medicines coming out.
About blood pressure,, that is a problem for all of us and we can cause a
great deal of the problem. Please be positive and read in this newsgroup
how many different types of people deal with what we have. Tomorrow is
going to be better and you are going to help make it that way.
Harv
Jan Hall - 24 Mar 2005 04:50 GMT
I am beginning to wonder if there is any point in my posting here. You are
the third...forth here who misread my post, the one that enraged spambuster.
I posted about s-p-e-c-i-f-i-c experiences of m-y o-w-n, sharing my own
experience with dairy, yet spambuster did not like that I was not
generalizing. I set my own boundaries. Others can read into my words
whatever spirit the need to see. They can set their boundaries too. They may
not set mine. If I get many more high handed replies from any other person
needing to dishonor me by assuming dominance over me, and finding insult
where there was none intended by me, then I will be certain that the spirit
in here is not to look up, but to look down with no hope. I still don't
understand what in my words are so threatening to the few who keep trying to
get me to accept that they know my heart. I treat others as equals, until
they give me reason not to. What does my life have to do with yours? Why do
you need to read into my posts "a need to speak for others." It was
information, period. Jan2
> Why do
> they give me all these drugs if there is no stopping the joints from being
[quoted text clipped - 41 lines]
> Tomorrow is going to be better and you are going to help make it that way.
> Harv
Harvey R. Stone - 24 Mar 2005 05:22 GMT
Hi Jan,,,, I have made my last post with you for quite awhile. You have
a great deal of anger and a need to slap someone when it is not required or
needed. No one is really speaking with you in a harsh manner but you take
it that way and have a need to lash out at someone that is trying to help
you with the truth as they know it. Its not about personalities as much
as it is a need to accept the disease you have. Please read my post again.
There is a great deal in it that had to be learned the hard way and the
reason it was put here is to help to deal with it all. So it goes.
Harv
>I am beginning to wonder if there is any point in my posting here. You are
>the third...forth here who misread my post, the one that enraged
[quoted text clipped - 59 lines]
>> way.
>> Harv
Jo Firey - 24 Mar 2005 05:46 GMT
>I am beginning to wonder if there is any point in my posting here.
Probably not when you insist on extreme overreaction to even a polite
expression of good wishes that you had found a solution for yourself.
Jo
firechief - 24 Mar 2005 05:46 GMT
> I I get many more high handed replies from any other person
> needing to dishonor me by assuming dominance over me,
You'll get nowhere with your tirades and false accusations.
Calm down. Visit your shrink if you haven't lately.