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Medical Forum / Diseases and Disorders / Arthritis / February 2006That new *O* RA Med?
Today at the RD...he suggested a new RA infusion drug that will be available within the next week or so. I wanted to research it but for the life of me I cannot remember the name of it! Between the blow of needing that ulnar drift surgery and bilateral TKR the name was just not going to stick with me today. Thanks! Shandi >Today at the RD...he suggested a new RA infusion drug that will be available >within the next week or so. I wanted to research it but for the life of me [quoted text clipped - 4 lines] >Thanks! >Shandi Orencia Thumper > >Today at the RD...he suggested a new RA infusion drug that will be available > >within the next week or so. I wanted to research it but for the life of me [quoted text clipped - 7 lines] > Orencia > Thumper And/or Abatacept (same stuff). I couldn't remember the "O" name either. Thanks. I may be looking at that in a few months, since the doctor doesn't want me to stay on Cytoxan too long (preferably no more than 6 months). Smokie Darling (Annie) >> >Today at the RD...he suggested a new RA infusion drug that will be available >> >within the next week or so. I wanted to research it but for the life of me [quoted text clipped - 14 lines] > >Smokie Darling (Annie) Wow, it isn't even approved for RA. I don't think I've run into anyone that used it for RA before. Have you tried the TNF inhibitors? Thumper Hello, On Dec. 27 2005, the FDA approved Orencia (abatacept / CTLA4-ig) made by Bristrol-Myers Squibb company. Take a look at this homepage. http://www.orencia.com/orencia/splash/home/index.jsp?BV_UseBVCookie=Yes I was in the trial with Orencia and it was a very good time. Wil Belgium >>> >Today at the RD...he suggested a new RA infusion drug that will be >>> >available [quoted text clipped - 22 lines] > anyone that used it for RA before. Have you tried the TNF inhibitors? > Thumper >Hello, >On Dec. 27 2005, the FDA approved Orencia (abatacept / CTLA4-ig) made by [quoted text clipped - 7 lines] >Wil >Belgium I was referring to Cytoxan that the poster said he/she was on. It is NOT approved for RA Thumper >>>> >Today at the RD...he suggested a new RA infusion drug that will be >>>> >available [quoted text clipped - 22 lines] >> anyone that used it for RA before. Have you tried the TNF inhibitors? >> Thumper > >Hello, > >On Dec. 27 2005, the FDA approved Orencia (abatacept / CTLA4-ig) made by [quoted text clipped - 11 lines] > NOT approved for RA > Thumper Um, Medicare is paying part of it, so it has to be approved for RA. They did not pay anything on the Rituxan/Rituximab, as it hasn't been approved. Smokie Darling (Annie) >> >Hello, >> >On Dec. 27 2005, the FDA approved Orencia (abatacept / CTLA4-ig) made by [quoted text clipped - 17 lines] > >Smokie Darling (Annie) This from MedicineNet.com PRESCRIBED FOR: Cyclophosphamide is used for the treatment of several types of cancers and often in combination with other drugs to treat breast cancer, leukemia and ovarian cancer. It also is approved for treating nephrotic syndrome (a disease of the kidneys) in children. Unapproved uses include the treatment of Wegener's granulomatosis, severe rheumatoid arthritis, lupus erythematosus, advanced mycosis fungoides, and a number of forms of vasculitis. I don't know if this ifo is correct or not. I searched other sites but hey don't address what it is approved for. Thumper > >> >Today at the RD...he suggested a new RA infusion drug that will be available > >> >within the next week or so. I wanted to research it but for the life of me [quoted text clipped - 18 lines] > anyone that used it for RA before. Have you tried the TNF inhibitors? > Thumper Which the Cytoxan or the Orencia? Doc said on Thurs that Orencia had just been approved, but he doesn't want me to be his first patient on it (since I had just *great* luck with Rituximab <snerk>). Cytoxan has been approved for RA for years. My very first RD (1999) talked about using it on me if the smaller stuff didn't work. Current doc calls it the "big gun", but doesn't like it's listed side-effects (and possible side-effects), but since nothing else was working. It seems to helping a great deal. I've been on: Remicade (great 'til I started reacting), Humira (never worked, and I reacted instantly, but was never removed til I did it), Enbrel (worked really well, but when I'd get sick and have to stop, it stopped working), ummmm.... I think there's another one, but seem pull it out of my head. Smokie Darling (Annie) i read the article on orencia. is it also a tnf inhibitor? wasn't there something coming down the pipeline that DIDN'T increase our risk of infection? i'm tired of having the antibacterial hand santizer strapped to my belt. diane, not meaning to sound so grumpy and ungrateful!!! Diane, Orencia is NOT a TNF inhibitor. Orencia is a T-cell regulator. It is slowing down the production off the T-Cells. Orencia is acting in an earlier stage and prevent the production off TNF alpha. Therefore it is better then the TNF inhibiters. The infection risk is minor, that's the opinion off my RD. Wil Belgium >i read the article on orencia. is it also a tnf inhibitor? wasn't there > something coming down the pipeline that DIDN'T increase our risk of > infection? i'm tired of having the antibacterial hand santizer strapped > to my belt. > > diane, not meaning to sound so grumpy and ungrateful!!! Hi Diane, Orencia/abatacept is not a TNF inhibitor and according to the early reports, there is supposed to be considerably less risk of infection with orencia. At least that is what my RD told me and he has been so excited about this med being approved and hitting the market. It is now approved and is supposed to be available next this coming week. My RD said you start off with your first infusion, then a second infusion one week later, the 3rd infusion 2 weeks after the second infusion, and then it is just once a month after that! My RD said of the patients he had on it for the trials, it has worked very well, especially for those who did not do well with enbrel and the other TNF's. He really wants me to try it, and I am thinking about it. My biggest hesitation is that I have such poor veins and establishing IV access can be a big problem. The RD's really do seem excited about this drug! Donna G And from my reading the infusion only takes about 30 minutes! I thought I would die of boredom having that Remicade infused. Shandi > Hi Diane, > [quoted text clipped - 13 lines] > > Donna G That's right, the infusion is a piece off cake. Wil Belgium > And from my reading the infusion only takes about 30 minutes! I thought I > would die of boredom having that Remicade infused. [quoted text clipped - 18 lines] >> >> Donna G this is all very exciting news. it said not to take at the same time as a a tnf inhibitor. does anyone know how long a washout period one would need after taking remicade or enbrel? diane So this stuff works really well? I have tried Remicade but had to stop the infusions because of severe sideffects, i am now on and off Enbrel and on pred 5mg per day. Although it's very good with the RA itself, Every 2 months I have to switch to a higher dose Prednisolon, because of Enbrel side effects. I can hardly wait to start on something which will not cause me so many other health issues. But then I wouldn't want infusions anymore, I'd prefer to jab the needle myself, or even better; take it orally. I am still waiting for dna-jp1 to be approved, because that has to be taken orally. So exiting to not have to think about having to book a holiday and depending on a fridge for the injections! Nikki > That's right, the infusion is a piece off cake. > Wil [quoted text clipped - 22 lines] >>> >>>Donna G >So this stuff works really well? >I have tried Remicade but had to stop the infusions because of severe >sideffects, i am now on and off Enbrel and on pred 5mg per day. Although >it's very good with the RA itself, Every 2 months I have to switch to a >higher dose Prednisolon, because of Enbrel side effects. What side effects are you experiencing thumper? >I can hardly wait to start on something which will not cause me so many >other health issues. [quoted text clipped - 33 lines] >>>> >>>>Donna G Thumper, Approved or not approved for use, Cytoxan has been used for many, many years to treat RA and Lupus. It is not uncommon at all to use this med for RA, at least not in my area. It can be a very helpful/beneficial med for some people!!! Donna G >Thumper, > [quoted text clipped - 4 lines] > >Donna G The reason I was surprised is because I thought I had taken just about every RA med there is. At least the ones in common use for the last 8 years. Thumper Hi, I don't see how this new drug Orencia is so much better side-effect wise than Enbrel. I have heard of dna-jp1 which is taken orally and going into phase III trails, which is a T-cell regulator without the risks Enbrel or Orencia still seem to give. I may be deadwrong here, perhaps you could take a look at: http://www.medicalnewstoday.com/medicalnews.php?newsid=35382 Nikki > Diane, > Orencia is NOT a TNF inhibitor. Orencia is a T-cell regulator. It is [quoted text clipped - 11 lines] >> >>diane, not meaning to sound so grumpy and ungrateful!!! There is another drug on the horizon for RA which is still being tested- Golimumab If you do a google search on it, you will see all the studies going on. Char >Hi, > >I don't see how this new drug Orencia is so much better side-effect wise >than Enbrel. I don't believe that's the point. Enbrel no longer works for me. I am on Humira now but if that stops working then I'll go to Orencia. I'm not changing because of side effects. Thumper >I have heard of dna-jp1 which is taken orally and going into phase III >trails, which is a T-cell regulator without the risks Enbrel or Orencia [quoted text clipped - 21 lines] >>> >>>diane, not meaning to sound so grumpy and ungrateful!!! I understand what you're saying, it was just to reply to Wil's remark from his doctor saying Orencia didn't cause (or hardly) any side-effects. in my case, the Enbrel works fine for RA, but I have to come off it every 8 weeks and start increasing Prednisolon for 3-5 weeks and live with more pain and discomfort during these periods, because of side effects. This is why I am so interested in the TNF regulator meds, especially dna-jp1 which over here is claimed to (up till now) cause no side effects at all. The side effects are a pain (not literally) and undermine my overall health. That being said, ofcourse I am very grateful to even be on Enbrel and having insurance which over the costs, Enbrel has helped so much to prevent any more damage to my left wrist. I do hope you do not have to switch to anything else and the Humira will work for you for a very long time! Nikki >>Hi, >> [quoted text clipped - 31 lines] >>>> >>>>diane, not meaning to sound so grumpy and ungrateful!!! >I understand what you're saying, it was just to reply to Wil's remark >from his doctor saying Orencia didn't cause (or hardly) any side-effects. [quoted text clipped - 15 lines] > >Nikki I was off Humira for an infection for about a moth and it took one hell of a long time to get me back to where I want to be and I had to double up the Humira. Thumper >>>Hi, >>> [quoted text clipped - 31 lines] >>>>> >>>>>diane, not meaning to sound so grumpy and ungrateful!!! Assuming my RD can get some, and depending on what my med ins says, I am to have my first infusion of Orencia on the 24th of this month. I have had Enbrel, Humira, and Remicade. The Remicade has my RA markers down to normal according to blood work, but I have experienced no relief after several infusions and an increase in the Remicade dosage. I have my hopes high for this new med. Martin >Assuming my RD can get some, and depending on what my med ins says, I >am to have my first infusion of Orencia on the 24th of this month. I [quoted text clipped - 4 lines] > >Martin Good luck. Please let us know he outcome. Thumper Nikki. I just wonder what side effects of enbrel you experience.? I get much more pain than I think I should. Peter > I understand what you're saying, it was just to reply to Wil's remark > from his doctor saying Orencia didn't cause (or hardly) any side-effects. [quoted text clipped - 51 lines] > >>>> > >>>>diane, not meaning to sound so grumpy and ungrateful!!! >Nikki. > >I just wonder what side effects of enbrel you experience.? >I get much more pain than I think I should. > >Peter I would be interested in the answer also. I had no side effects but it just stopped working for me after a few years. Then again, maybe the disease progressed so far it just couldn't keep up with the pain level. I have no discernible joint damage so far. Thumper >> I understand what you're saying, it was just to reply to Wil's remark >> from his doctor saying Orencia didn't cause (or hardly) any side-effects. [quoted text clipped - 51 lines] >> >>>> >> >>>>diane, not meaning to sound so grumpy and ungrateful!!! Good luck, Martin! I hope it works for you. Please let us know how you make out, Char Hello everyone, I'd like to make a request, publicly, because I never get a reply when trying to go to the source. My name is Smokie Darling, and I would like to respectfully request that "Annie" (barnabus----@yahoo.com - partially masked to protect her) stop using my name to post to Google and Usenet groups. I thank you for the celebrity status, but these posts are starting to interfere with my school and my work. I can understand the need for a different identity when posting to groups, but the addition of what I can only assume is your real first name to your signature kind of undermines any anonymity you might have by using my name. As I said, I have emailed this person several times, and have received no repsonse, so this is my only course of action. Thank you for your time, and I look forward to resolving this issue. Sincerely, Smokie Darling (Not Annie) > Hello everyone, I'd like to make a request, publicly, because I never > get a reply when trying to go to the source. [quoted text clipped - 11 lines] > no repsonse, so this is my only course of action. Thank you for your > time, and I look forward to resolving this issue. The only email I received from you was yesterday, and I replied within 10 minutes of getting it. I do not appreciate being accused of ignoring someone with a valid question (i.e., not a troll, as I do not believe you are one). I have used Smokie Darling (Annie) since approximately February of 2004. The Annie, parenthetically, identifies me to my friends. Smokie Darling is my cat. As I do not post in the group you appear to frequent, I do not see how my name is a problem. Also, since our email addresses are completely different, I don't see how I am affecting either your school work or your employment. Smokie Darling (Annie) > I can understand the need for a different >identity when posting to groups, but the addition of what I can only [quoted text clipped - 4 lines] >no repsonse, so this is my only course of action. Thank you for your >time, and I look forward to resolving this issue. A quick review in google shows our Annie posting since February of 2004 and you have only been posting since September of 2005. So who took on the name first???? You never post in this NG so what is the big deal. Take a deep breath and chill. -- MZ
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