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Medical Forum / Diseases and Disorders / Arthritis / January 2006Amanda's RD Appointment
It was one of those good news/bad news visits. The good news is that Dr. George is sure she doesn't have lyme disease. The bad news is that he is also pretty sure she has some form of spondyloarthropathy. He found inflammation in the connective tissues around her spine and in her finger. He also said she has bursitis in her knee, which he injected. She started on Daypro tonight and will go back next month for more tests, etc. He stopped the abx and will discuss what to do next when we see him again. I'm glad she doesn't know what this means yet. It's hard enough that I do. Walt Hanks >I'm glad she doesn't know what this means yet. It's hard enough that I do. > >Walt Hanks Sigh. It doesn't stop sometimes does it. I am sorry to hear this, Walt. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Walt, My thoughts and prays are with you and your family. I am so sorry to hear about Amanda. I know only to well what path this may lead to down the line as she gets older. I know you can take some solace in the fact that new treatments are coming on line regularly giving many of us, Amanda included, a better chance at a better healthful life. Remember, she has lived through your many problems so she is probably much stronger than you think when it comes to this. Don Whitely > It was one of those good news/bad news visits. > [quoted text clipped - 11 lines] > > Walt Hanks Ah Walt. Major hugs to you. Tell my wrapping buddy hello. I too have produced a child who has RA. I beat myself up when I first found out. All I can say is that it does get easier - the guilt - that is. But she is a beautiful child as is Amanda and the world is a better place for them being here. Thank goodness for the DNA unraveling and all the good scientists have learned since then. It is such a difference from when my father was alive when aspirin was the only thing between the disease and a person. We have come a long long way. Duckie Duckie, I guess I will also join that group of parents. My oldest daughter has fibromyalgia stenosis, osteoporosis and scoliosis and my youngest has severe fibromyalgia and migraines. The only thing I don't share with them is migraines. My oldest just did her three epidural injections and I am on my way to my second on the 11th. You are right, I can remember my Aunt operating a cash register in a grocery store back in the early 50's rubbing her sore swollen rheumatoid hands between customers in response to her pain . Don Whitely > Ah Walt. Major hugs to you. Tell my wrapping buddy hello. I too have > produced a child who has RA. I beat myself up when I first found out. [quoted text clipped - 6 lines] > We have come a long long way. > Duckie Walt, Well, that just sucks, no two ways about it. Regarding spondyloarthropathy, it is not the same as RA. I have Ankylosing Spondylitis, which is one of the spondyloarthropathies. In the case of females, AS can be very similiar to RA, however. Bursitis, heel pain (plantar's fasciitis), spasms...all kinds of things can be connected with spondy, but I suppose you already know this. I am so sorry...I am assuming that Amanda is your daughter? I can't think of anything more painful than having this kind of arthritis, except for having to see your child suffer with it. ((Walt and Amanda) Char P.S. I have found www.spondylitis.org to be very helpful to me, and it does go into the various types of spondyloarthropathy. > It was one of those good news/bad news visits. > [quoted text clipped - 12 lines] > > Walt Hanks Hi Walt,,,, Oooh, I am sooo sorry to read what your doctor had to say. I would take Lyme any day and so would you. A big part of the job of raising children is to make them ready to handle what life and people will deal them. I realize that your YET was in capitol letters and I can not think of anyone that will do a better job than you to help her deal with the life before her. Harv No wisdom, just hugs. Sadness is normal. But banish any guilt. It's out of our hands; it's just how the genetic dice roll. As someone else already said, medications have come a long way. We can hope this will prolong Amanda's health and comfort in very meaningful ways. Adelle I'm the child w/RA of a mom with RA (and my sister has w/JRA). With that strong a family history, am expecting my kids to show some sort of auto-immune something (being Eeyore again). > It was one of those good news/bad news visits. > [quoted text clipped - 12 lines] > > Walt Hanks and the other good news is that it is being treated early and there are new drugs coming out every day so perhaps she won't ahve as much trouble with it as you have. And she has had an admirable model of how to live with chronic illness in her father.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Walt, sorry to hear the news about Amanda, but you are a good example for her and I feel she will do wonderful in dealing with it. Just like her dad does, she will overcome this all. Keep us updated on how it is going. Amanda hugs coming. SignatureHugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo > It was one of those good news/bad news visits. > [quoted text clipped - 12 lines] > > Walt Hanks Walt, Sorry to hear about Amanda's new diagnoses, but can't think of a better role model in dealing with trials than you for her to look up at!!! May God bless you both!!! Hugs, Donna G |
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