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Medical Forum / Diseases and Disorders / Arthritis / January 2006who's taking the most remicade?
i bet i win on this one. 9mg/kg body weight every 6 weeks. diane sorry Diane..I beat you. 10 mg/kg every 6 wks Karen >i bet i win on this one. 9mg/kg body weight every 6 weeks. > > diane >i bet i win on this one. 9mg/kg body weight every 6 weeks. I am delighted I don't' win! 5 mg/kg every 8 weeks..... yahoo.... and it continues to be a miracle. Visit my website: http://www.mzuschlag.com mary, count your blessings. you are sooo lucky and i'm so glad for you. karen, i'm glad i'm not alone. has your doc told you you're at the max dose? have you been gradually going up up up due to fade? diane Hi Diane, Yeah, my dr thinks I've maxed out. The dose has been fairly stable since last spring. We changed from MTX (25mg/wk) to Arava (20mg/day) in Oct to see if we could get the remicade to last more than 4-5 weeks, It seemed to worked for the Dec infusion, but my hands and feet are flaring on this cycle and I have 2 weeks 2 go until the next infususion. I failed enbrel and humira so we're running out of options. We've talked about Orencia but since my dr is leaving in Mar, I don't know if we will make the switch. Karen > mary, count your blessings. you are sooo lucky and i'm so glad for you. > > karen, i'm glad i'm not alone. has your doc told you you're at the max > dose? have you been gradually going up up up due to fade? > > diane karen, i'm sorry to hear this. i still have humira left to try. and my rd says there may be new things on the horizon next year. . . or the year after. nothing has ever gotten my RA completely under control either. diane I am at 7mg, but my third dose had no effect whatsoever. Like you, I am running out of options, have gone thru MTX, Arava, Humira, and Enbrel. Oh, and Preddy, which works wonders, as we know, but is not so good for the long term. I see my RD again on the 24th- we'll see what he suggests next. Happy New Year! Martin Martin, It took a while for us to find the right combination of dose and frequency. I saw no effect at all until we hit 8 mg/kg every 6 weeks. Are you taking anything else besides Remicade and Pred Karen >I am at 7mg, but my third dose had no effect whatsoever. Like you, I am > running out of options, have gone thru MTX, Arava, Humira, and Enbrel. [quoted text clipped - 3 lines] > Happy New Year! > Martin > Martin, > It took a while for us to find the right combination of dose and frequency. [quoted text clipped - 9 lines] > > Happy New Year! > > Martin Yeah, Arava and Ibu. The Ib seems to be my most effective med, but it's been more then 10 yrs I've taken 2400mg a day. I wonder how long my stomach can take it? Martin > Yeah, Arava and Ibu. The Ib seems to be my most effective med, but it's > been more then 10 yrs I've taken 2400mg a day. I wonder how long my > stomach can take it? > > Martin Hi Martin,,, Everyone is different on that. I took prescription Naprosyn about as long as you did with no problems even after I started DMARDs. I also took Arava for about a year without a lower problem but then my stomach said,,,, enough,,, enough and on a scope was red and inflamed. The Arava was stopped and it went away and Enbrel became my drug of choice. Everyone is different on that and as long as it works for you,,,, go for it. Harv > Yeah, Arava and Ibu. The Ib seems to be my most effective med, but it's > been more then 10 yrs I've taken 2400mg a day. I wonder how long my > stomach can take it? > > Martin Ibuprofen has always been the most effective NSAID for me, but I just couldn't work withing its effective time frame. The time when it wears off and then waiting for the next dose to kick in would cost me 1.5-2 hours. The longer acting NSAIDs aren't quite as effective as ibu for me, but it's a joy to have them last longer. I really miss Bextra though, it really lasted me a full 24 hours! Oh, I took widely varying doses of ibu (anywhere from 800-3200mg) for 12 years with no real somtach trouble, but of course YMMV. I've had more stomach trouble with my merry-go-round of NSAIDs since Bextra was pulled than I ever had on ibu.  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare |
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