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Medical Forum / Diseases and Disorders / Arthritis / January 2006Need to ask a question
Hi everybody, Ever since I started dealing with my Lymphoma I have had a breathing problem. I have been waking up from sleep and find that I am short of breath and I can not just lay back down shortly and go back to sleep. I must get up and sit upright. After several hours it gets better and I can breathe more normally. Sometime it if I get too warm in bed it will trigger it. One night not too long ago, I got so warm in bed I woke up crying out for help, this had never happened to me before and I was also breathless with that episode. I have only been getting three to five hours a night sleep most of the time.. I have discontinued the use of anything I have used which has a listed side effect saying it can effect your breathing. I stopped doxepine, lidocaaine pain patches and the thermo heat patches. The only thing I use is the oxycodone 40 mg ER and oxycodone 10mg both of which have a side effect concerning breathing. This is the only pain med. I use and I have been using it sparingly. I have a fairly high tolerance for pain, so I tough it out sometimes and delay taking a pain pill. I have severe RA and fibromyalgia along with osteopenia. My orthopedic back surgeon checked me recently and said there is no way that my stenosis or scoliosis is causing the breathing problem. I had the first of the three steroid epidural injections for my neck and back pain last week and that has not dissipated the problem. I do have an appointment with the Pulmonary Doctor on 1/18. My cancer Doctor had me do a pulmonary test done before he started my chemo so there will be a bench mark report available. I neglected to ask for a copy of that report, so I will ask for both results this time around. Has anyone here had any type of breathing problems related to their RA, related immune problems or otherwise? Don Whitely > Hi everybody, > [quoted text clipped - 30 lines] > > Don Whitely Have you been evaluated for sleep apnoea? I strongly suggest you get a referal to a sleep specialist and arrange a sleep study as soon as possible. Ari  Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ Ari, No, I have never been tested for sleep apnea. According to the search I did on symptoms, I am not currently demonstrating the most common signs of sleep apnea. I am not of course ruling it out since I need an evaluation by a Doctor. My wife has laid next to me and listened for my breathing etc. and at the moment agrees. I will be happy to know that the Doctor will consider it among many other things as we search for a cause to this problem. Don Whitely >> Hi everybody, >> [quoted text clipped - 37 lines] > > Ari > Ari, > > No, I have never been tested for sleep apnea. According to the search I > did on symptoms, I am not currently demonstrating the most common signs > of sleep apnea. Obstructive sleep apnoea is only one of the things I was concerned about. This is also assuming the pulmonary specialist does not find anything that could be causing this, such as fluid build up from shallow breathing and chemo after effects while you're laying down sleeping. > I am not of course ruling it out since I need an > evaluation by a Doctor. My wife has laid next to me and listened for my [quoted text clipped - 45 lines] >> >> Ari Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ Ari, According to my last CT scan on 12/13/05 the results showed the following: There is no pulmonary infiltrate or pleural effusion. no pulmonary nodules are seen. Don Whitely >> Ari, >> [quoted text clipped - 56 lines] >>> >>> Ari Don RA lung disease afects 500,000 people. It is more widespread than previously thought and has been hard to detect until lots of damage was done. There is a new treatment and detection techniques. http://www.mayoclinic.org/news2005-rst/2559.html johnie don, i'm certainly guessing that your breathing problem is somehow related to one of the various diseases you're dealing with, but reading about it reminded me of when i was deep in the throws of hot flashes. i often woke up panicky and short of breath during the night with a sensation of suffocating. i just throw that out incase one of your meds is causing hot flashes. diane Diane, Your comment is not really that far fetched. There have been times when my wife says my head and the back of my neck take on a rosy glow, just like a hot flash. I have experienced times when I am cold and soon after I may be extremely warm. I do experience an increase in body temperature after I have taken my Oxycodone sometimes, just as though I stepped in front of a heater. My new RD had suggested a Testosterone test, but he forgot to order it. We had so many things to discuss that day, it is not his fault. I am going to e-mail him and ask him to order the test so I can go to the outpatient lab and get it done on one of my frequent trips to the hospital for tests and appointments. Don Whitely > don, i'm certainly guessing that your breathing problem is somehow > related to one of the various diseases you're dealing with, but reading [quoted text clipped - 4 lines] > > diane > My new RD had suggested a Testosterone test, but he > forgot to order it. We had so many things to discuss that day, it is > not his fault. I am going to e-mail him and ask him to order the test > so I can go to the outpatient lab and get it done on one of my frequent > trips to the hospital for tests and appointments. Please be sure to follow thru on this one as it is caused by Oxy use. That turned out to be a major problem for me but fixable with a shot once a month and patches to fill in the gaps. As it turned out it was one of the main reasons my osteoporosis got so severe. Energy levels will also rise significantly. johnie >>My new RD had suggested a Testosterone test, but he >>forgot to order it. We had so many things to discuss that day, it is >>not his fault. I am going to e-mail him and ask him to order the test >>so I can go to the outpatient lab and get it done on one of my frequent >>trips to the hospital for tests and appointments. Johnie, Would you please tell me what the name and strength of the once a month shots you were are are taking as well as the name and strength of the patches. TIA Don Whitely > Please be sure to follow thru on this one as it is caused by Oxy use. > That turned out to be a major problem for me but fixable with a shot > once a month and patches to fill in the gaps. As it turned out it was > one of the main reasons my osteoporosis got so severe. Energy levels > will also rise significantly. > johnie I have the exact same thing and it's related to my connective tissue disorder, Don. I have some constant pleurisy they can't get rid of...but enuff fluid to cause the feeling of suffocation. I find that having a fan blowing cool air on me all night long stops the suffocating. Since the coolness bothers me due to hypothyroid I have 2 comforters on and a watch cap on my head...but I can breathe! You might want to follow Ari's advice and get checked for sleep apnea. In the meantime, raise the head of your bed and sleep that way...I learned to years ago. I have an adjustable bed. Hugs from Rosie Signature"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Hi everybody, > [quoted text clipped - 30 lines] > > Don Whitely Hi Rosie, I will try raising my head this afternoon when I try taking a nap to see if that will help. I can remember my MIL always sleeping with multiple pillows under her head and we later discovered she had emphysema due to years of smoking. I did smoke but stopped in 1987 and I was not a heavy smoking chain smoker (thank goodness). Don Whitely > I have the exact same thing and it's related to my connective tissue > disorder, Don. I have some constant pleurisy they can't get rid of...but [quoted text clipped - 8 lines] > > Hugs from Rosie Oh Rosie, I could not resist this one. Sorry. But this would be a picture I would like to see. You know how it is with older women, bundled up with quilts, stocking caps, and hot water bottles. Now how young were you saying you were. ;-) SignatureHugs, prayers, good thoughts, Warm fuzzies, TLC, and Love Squirrely Jo Since the > coolness bothers me due to hypothyroid I have 2 comforters on and a watch > cap on my head...but I can breathe! >Hi everybody, > >Ever since I started dealing with my Lymphoma I have had a breathing >problem. Dolnb, My sister that went through breast cancer uses an oxygen machine for breathing difficulties as a result of lungs damaged from the chemo. I will forward your post to her and see what she says- if you do not mind that is. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. >>Hi everybody, >> >>Ever since I started dealing with my Lymphoma I have had a breathing >>problem. Rose, I do not mind your discussing my problem with your sister. I would imagine her chemo was more extensive. It is hard to know what all of these various drugs will do to your body. We compromise all the time taking drugs with side effects, but accepting them to attack what we see as a greater evil than the side effect. Don Whitely > Dolnb, > My sister that went through breast cancer uses an oxygen machine for [quoted text clipped - 5 lines] > > Please remove "Ima" to reply. |
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