I have an appt with the neusurgeon today

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Cindy - 13 Dec 2005 12:00 GMT

Hello...Have been lurking mostly, but just wanted to tell you about my saga
and see if anyone has any information to share...

Brief History...In 1999, I lost my hearing in my right ear..Acute sudden
hearing loss...While doing an MRI for that, they found a tumor in my rt
cavernous sinus(brain).
After having brain surgery for biopsy, they did Gamma Knife on me. All was
well...Then in 2002 I was dx with FMS..also have osteoarthritis in just
about every joint, and psuedogout. Finally got SSDI in May of this
year...But I have started having severe headaches...Localized in my rt
temple and behind my eye..Then spreading the rest of my head..Dr sent me to
a neurologist...Who sent me for MRI and decided I should see my surgeon
again. He moved, so I got a new one..
I had to pick up my MRIs and radiology reports from the hospital to take
with me. I thought I had to have them all...Since 1999. I was reading the
radiology reports...In 11/99 and in Feb 2000, The radiologist reported that
by the way...I have a mild Chiari I Malformation with lowering of the Cele.
Tonsils.

After reading about it, It could be my trouble and maybe it is that giving
me FM symptoms. I see the Neurosurgeon today. I am hoping that this is
significant as it will be possible to be repaired surgically and give me my
life back.
Anyone with any thoughts on this... I am trying to not get my hopes up..I
just hope the doctor doesn't think I am a lunatic or something .

Cindy

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Harvey R. Stone - 13 Dec 2005 14:49 GMT

> Hello...Have been lurking mostly, but just wanted to tell you about my
> saga and see if anyone has any information to share...
[quoted text clipped - 23 lines]
>
> Cindy

No, no, don't even think that. Just lay out all the facts as you know them
calmly. The doctor must know what your day to day life is like. Pulling
for you Cindy and you are in my prayers today.
Merry Christmas
Harv

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Squirrely - 14 Dec 2005 11:09 GMT

Oh Cindy,

I didn't remember that you went thru all this. I think there is someone over
on the fibro group that had to do with the Chiari I Malformation.

I hope you get good answers and help for this with your neurosurgeon.

You might ping actofil over on the fibro group, I believe she has this and
has done research on it.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Hello...Have been lurking mostly, but just wanted to tell you about my
> saga and see if anyone has any information to share...
[quoted text clipped - 23 lines]
>
> Cindy

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vickie b. - 14 Dec 2005 12:21 GMT

Cindy, while I have no advice I do want to let you know that my heart
and prayers go out to you.

Vickie B>

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Cindy - 14 Dec 2005 16:10 GMT

Thank you for your thoughts and prayers.
I didn't get the answer I wanted today...
Seems I do have a mild one, but it is not crowding at all and does not
appear to be my problem.
However the scar tissue from the surgery is probably responsible for the
headache pain.
I really liked this doctor. He was very thorough and answered all my
questions and explained everything in lanquage that I could understand. He
does Want me to see a surgeon that specialty is the Skull Base and follow up
the Gammaknife procedure with him...I agreed hoping that anything will help.

Also he put me on Neurotin for pain since he thinks the scar tissue has made
the nerves in my face and head very unhappy...

Thanks again..

> Hello...Have been lurking mostly, but just wanted to tell you about my
> saga and see if anyone has any information to share...
[quoted text clipped - 23 lines]
>
> Cindy

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Newsgroup Spambuster - 17 Dec 2005 00:43 GMT

{{{{{{{{{{{{{Cindy}}}}}}}}}}}}}}}

Glad the neurosurgeon was a good one who listened to your concerns and
was able to give you at least a few answers as well as something for
your pain. Praying that your next appointment with the surgeon goes
well and yeilds answers that will be helpful to you!!!

Pain free prayers winging their way to you!!!

Donna G

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