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Medical Forum / Diseases and Disorders / Arthritis / December 2005

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RK - 12 Dec 2005 21:26 GMT
Mid-morning I got a call from the other RD my GP refered me too.  She wasn't
going to
take on anymore new patients but the nurse said my GP pushed the RD... she
said, my
GP said, if anything let me fax her file over and tell me what you think so
I can treat the
patient.  I was flabbergasted!  Well after review of my xrays, mri reports,
my labs and
what the GP had written, the RD agreed to see me and agreed that the GP's
diagnosis
was more then likely correct and which the RD will be seeing me for
treatment of "AS
and RA in my hands/wrist and knees"

I guess my GP just kinda cut through all the red-tape -- she knows how
miserable I am
and swore she'd do what needed to be done.  Guess she lived up to her end of
the deal.
Hell I didn't even know that was legal.

Now, only downfall the RD's nurse said for me to stay on my wonderful drug
cocktail
till my appt with them, to run more blood work to see which will work better
between
remicade and enbrel.  Said, they need to make sure my liver is fine and
blood count.

Now, I have a question... I have some horrible gas going on these days.  My
stomach
feels like it's in knots and I've a stomachache most the day, then at night
if I eat or not
seems like I'm burping every 20mins.  Tastes like my stomach is toxic! I'm
on 30mg of
Prevacid now.  Anything else you can recommend to help coat my stomach?

btw, I try to stay away from milk, another one of my nice autoimmune
problems is i'm
a type 1 diabetic and I'm really struggling right now with keeping my
glucose in order
from all the pain triggering it higher then the steriod injections zooming
it upwards for
3-4 days after then playing hell for another 2 weeks to get me back into
order again..
though it's been great, lol I've lost 14lbs not that I needed it to start
with.  stupid me kept
forgetting to change my basal profile and was running without enough
insulin, so started
dumping ketones... I can usually tell, my head feels like its goign to
explode -- doc told
me was from lack of insulin, and dehydration -- brain is starved, gawd!
isn't life grand.

here I'd like to find a cliff to drive off of to end my pain, when in
reality, killing myself is
a 24-48hr ordeal and no one would be the wiser till i'm gone... simply
suspend my pump.
unforuntately, I only want to die for a few hours to get a bit of relief..
I'm not out to kill myself
forever.. does anyone else feel that way? or am I the only nutcase?

thanks again for all your help guys.. I don't really know any of you, but
rest assured I am
reading and getting to know you all little by little and I'm praying for all
of you.  Not sure
if this will help anyone or not, but how I keep myself going daily is to
remember my mom
once told me... "I used to complain about having holes in my shoes, until I
met a man who
had no feet"  -- moral? just remember no matter how badly we think we hurt
and cannot see
the light at the end of the tunnel, there is always someone out there worse
off then yourself.

<<< hugs to all >>>

Reisa
spodosaurus - 12 Dec 2005 21:34 GMT
> Now, I have a question... I have some horrible gas going on these days.  My
> stomach
[quoted text clipped - 3 lines]
> on 30mg of
> Prevacid now.  Anything else you can recommend to help coat my stomach?

You might want to ask your GP to rule out gastric paresis. Some
medications exacerbate this problem in me. Food and water will just sit
in my stomach, sometimes for 12-16 hours. It's painful when it gets bad
and I can dehydrate. I also end up refluxing/burping up food and water
that cannot leave the stomach. A few things really aggrivate this in me
including liver problems from medication and opiate based painkillers
(ALL of them). Infections can also cause significant problems.
Medication does not always have to aversely affect the liver to cause
this, either.

Cheers,

Ari

Signature

spammage trappage: remove the underscores to reply

I'm going to die rather sooner than I'd like. I tried to protect my
neighbours from crime, and became the victim of it. Complications in
hospital following this resulted in a serious illness. I now need a bone
marrow transplant. Many people around the world are waiting for a marrow
transplant, too. Please volunteer to be a marrow donor:
http://www.abmdr.org.au/
http://www.marrow.org/

RK - 12 Dec 2005 21:40 GMT
| > Now, I have a question... I have some horrible gas going on these days.  My
| > stomach
[quoted text clipped - 17 lines]
|
| Ari

Hmm interesting, I know i'm a very slow digester.  Even back when I had
my surgery 14yrs ago, the doc that knocks ya out (I cant spell it) said I
had
food still in my stomach and noted I was told not to eat after 10pm the
night
before.  Hell I last ate at 6pm the night before.  Gave me satisfaction lol
I was
told I bit his hand when he tried to tube me.

I didn't start to have any troubles up till a few months ago... I'm sure my
stomach
has to be half eaten from all the drugs I take.  Think I"ll try some baking
soda
see if that helps neutralize the acid a bit.

Thanks.
spodosaurus - 12 Dec 2005 21:50 GMT
> | > Now, I have a question... I have some horrible gas going on these days.
> My
[quoted text clipped - 37 lines]
>
> Thanks.

There are medications that can be used to help this. The easiest to
obtain is motilium. It got me through mild to just under moderate
problems. It was very little help (but some, intermittently) for severe
problems. The best is prepulsid, but you have to have an ECG done
beforehand as people with a certain type of electrical activity in their
heart can have serious/fatal problems with prepulsid (hence it's harder
to obtain).

Ari

Signature

spammage trappage: remove the underscores to reply

I'm going to die rather sooner than I'd like. I tried to protect my
neighbours from crime, and became the victim of it. Complications in
hospital following this resulted in a serious illness. I now need a bone
marrow transplant. Many people around the world are waiting for a marrow
transplant, too. Please volunteer to be a marrow donor:
http://www.abmdr.org.au/
http://www.marrow.org/

Joan Carter - 12 Dec 2005 21:40 GMT
>Now, I have a question... I have some horrible gas going on these days.  My
>stomach
[quoted text clipped - 3 lines]
>on 30mg of
>Prevacid now.  Anything else you can recommend to help coat my stomach?

I feel for you, as I had the same reaction to Arthrotec, then Diclofenac. My GP
told me that the general OTC antacids don't do a lot, you need one of the
prescription PPI (?) drugs. I have been on Losac for two weeks and just starting
to feel as if my stomach is not being clawed apart. All I can offer you is good
luck in finding something soon.
---
Joan
Nann Bell - 13 Dec 2005 04:19 GMT
first of all, what meds are you on right now, to maintain you until you see
the RD?  The severe gas could be a side effect from one of them.  I had
incredible gas and bloating when I was on Relafen and Arthrotec made my
stomach hurt something awful.  I often use rxlist.com to look up the common
side effects of my meds when something strange is going on with me.

Secondly, how long has this been going on and are you running fevers or any
such thing?  I ask because I had a stomach bug that has basically been
mega-gas for over 4 weeks now.  In the middle of those weeks, I had about 2.5
weeks of intermittent fevers, some of them with the full chills and sweats
bit.  My doc concluded it was some virus and told me they've seen a lot of
unusual viruses this fall for some reason.  

tips I've figured out during the course of this bug:
eat only small amounts at a time and eating more often rather than eating a
full meal at a time.  Cut back on caffeine and carbonated beverages - both of
those will really aggravate a gassy situation in your digestive track.  And
of course, don't take your meds on an empty stomach, except for those few
meds that expressly say to do so.

cut back on fiber for the short term, and if this is dragging on, start
taking bean-o anytime you're eating something with fiber - it really does
help.  I was almost doubled over at times with the pain of the gas moving
through my intestines if I ate any vegetables or whole grain bread, etc.  I
finally tried the bean-o because I needed more nutrition in my food.

I've also been taking simethicone during the day - it does help break up the
gas and get it out of there.  If you get more of it out earlier in the day,
it's not as nasty in the evening.

And if this continues, you really should see your doc about it.

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Charrlygrl1 - 13 Dec 2005 17:03 GMT
Nann is right re: NSAIDS. Relafen did cause stomach upset for me, but
it did dissipate over the first few weeks.
I have AS and it also can affect the wrists/hands and feet. In fact my
wrists was where it all started.
Good luck to you, RK...please catch us up after you see the new rheumy.
Char
Squirrely - 14 Dec 2005 11:41 GMT
Nann,

this was the other post I wanted to share with those girls that are really
suffering from the bug. But I won't till I get your ok, if not ok, that will
be fine too. ;-)

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Secondly, how long has this been going on and are you running fevers or
> any
[quoted text clipped - 29 lines]
>
> And if this continues, you really should see your doc about it.
Nann Bell - 14 Dec 2005 13:29 GMT
> Nann,
>
> this was the other post I wanted to share with those girls that are really
> suffering from the bug. But I won't till I get your ok, if not ok, that will
> be fine too. ;-)

ok, again  :)  add in the bit about probiotics from my other ok - I forgot it
when I typed all of this up.  The pills really did help some even when I was
still suffering greatly from this.  Heh, and it all added to my generally
favorable impression of my PCP!

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Squirrely - 14 Dec 2005 20:12 GMT
Thanks Nann,

I will share all of it that was helpful for you. Maybe it will help them get
better sooner too.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

>> Nann,
>>
[quoted text clipped - 10 lines]
> still suffering greatly from this.  Heh, and it all added to my generally
> favorable impression of my PCP!
bevboo - 13 Dec 2005 23:54 GMT
well I know when I'm having those bad gassy days and I have no milk
around I eat plan dry soda crackers.  Or I guzzle some kind of soda pop
to get that last belch out. Doesn't always solve the problem but
sometime even a 1/2 hour of relief is better then none.
Jo Firey - 14 Dec 2005 01:10 GMT
> well I know when I'm having those bad gassy days and I have no milk
> around I eat plan dry soda crackers.  Or I guzzle some kind of soda pop
> to get that last belch out. Doesn't always solve the problem but
> sometime even a 1/2 hour of relief is better then none.

The relief milk provides is only temporary at best.  Milk has a lot of sugar
in it and can cause digestive problems even for those who are no lactose
intolerant.

One thing I learned when I had the gastric surgery was to avoid any sugary
liquid.  That it would go through the stomach too fast and cause spasms in
the small intestine.

Jo
 
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