Medical Forum / Diseases and Disorders / Arthritis / December 2005
Another question here.
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Squirrely - 12 Dec 2005 18:02 GMT I know there has to be others out there like me.
What do you do for meds when you are allergic to most meds. I can't take Nsaids because of the aspirin and stomach bleeding possibility.
Right now as many of you know, I can't afford, drs, etc, no insurance. So I can't even get pred.
So is there something else out there I could use for the inflammation.
This fog is killing me. My whole body is falling apart.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
Charrlygrl1 - 12 Dec 2005 18:58 GMT SqJo, Is is possible for you to use Tylenol? How about Ibuprofen? I sometimes use that Capsaizin cream (sp?) on my ankles and feet. It is made out of caspsaicin (sp?) which is the stuff that makes peppers hot. I would use it very, very sparingly until you find out how you react to it. I wish I had better ideas for you. If I think of anything else later, I will post it. I just wish you could get a break, ((Jo)) Char
Squirrely - 12 Dec 2005 20:28 GMT I am sorry I should have said that. I do take Tylenol and it doesn't seem to be working right now.
I am half afraid to use the capsaizin cream. I am sweating like a pig and I heard that stuff is really hot. I don't think I could handle that right now because of the heat stuff going on in my body.
I wish I had that violet stuff I got from a friend along time ago. It worked well without heating you up.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> SqJo, > Is is possible for you to use Tylenol? How about Ibuprofen? [quoted text clipped - 7 lines] > ((Jo)) > Char Squirrely - 14 Dec 2005 11:40 GMT Thanks Char, for the ideas.
I wish I could have used them. I am taking the pred right now. I had 2 50's left. So I split them in half and are taking them. I have a couple 20 and a couple 10's. So I will have to use them up and i don't know what I will do after that. I was saying them for the adrenal insuffenciency (addisons stuff) if i needed it for them. But it doesn't seem to be working for that right now either. It is helping the pain somewhat, but not like I would like it too.
I do take Tylenol on a daily basis for pain. But it is not doing good enough with this fog being in. I just wish the damn fog would go away.
I have tried, heat and ice, hot showers, nothing is helping this time. I have a feeling there is something bad going on with the back this time. It was messing with the ribs big time. Starting from the back. I usually get it all front in the chest, but this time from back. Then Jim tried rubbing me down. Helped while he was rubbing. But after that, it got worse. I could tell it was coming up from lower back and throwing it into the thoracic and cervical areas too.
I am tired of all this, real tired. I have a virus, the pain, and the addisons all acting up at once. I don't know why it can't just be one thing at a time.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> SqJo, > Is is possible for you to use Tylenol? How about Ibuprofen? [quoted text clipped - 7 lines] > ((Jo)) > Char spodosaurus - 12 Dec 2005 19:31 GMT > I know there has to be others out there like me. > [quoted text clipped - 7 lines] > > This fog is killing me. My whole body is falling apart. You might be able to go to the ER. It'll cost, but most hospitals will do one of two things: 1. use you as a charity case and get a tax break 2. allow you to pay what you can afford, even $5 or $10 a month. I've experienced both of these things when I could not afford medical care in the States, and it helped me get through. With this visit get a script for pred. IIRC it's not very expensive, just make sure the doc gives you enough repeats to last a while. Perhaps even doubling the dose, that way you can stretch the refills out even longer by breaking the tablets in half.
Cheers,
Ari
 Signature spammage trappage: remove the underscores to reply
I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/
Squirrely - 12 Dec 2005 20:31 GMT Thanks Ari,
I might have to do that. I do have a few pred left and I just broke a 50 in half to take. This virus is going bad on me. My lungs bother me, and then the pain is bad. I already have a hospital bill that I don't know how in the heck I am going to pay it. I don't even know at this point how much it is. But I do know they want like 10 percent a month and I know I can't come up with that.
Till last night when hubbies mom called and asked if we were making it, I didn't think we would be able to pay Jan. rent. But they are going to send some money to help with it. So that was a miracle. It was just at the beginning of Nov. they said they would not be able to help us anymore with money.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
>> I know there has to be others out there like me. >> [quoted text clipped - 23 lines] > > Ari spodosaurus - 13 Dec 2005 10:32 GMT > Thanks Ari, > [quoted text clipped - 4 lines] > But I do know they want like 10 percent a month and I know I can't come up > with that. Tell them so. Most hospitals will take what they can get. Sometimes it goes smoothly, but sometimes it's a negotiation. You should determine what you can comfortably pay each month, and then offer to pay less than this when speaking with hospital billing. If they want more, then increase the amount you're offering to pay to what you can comfortably pay each month and let them know that you can't pay more than this and still eat. I simply had to stick to my offer of $10 a month for a while because I could not afford more. They hassled me about it for a while, but I stood firm and they accepted it. I guess they could have sent it to a collection agency, but then they get even less. As long as you're paying something, they should agree. I hope you're able to get your medication soon.
Ari
 Signature spammage trappage: remove the underscores to reply
I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/
Squirrely - 13 Dec 2005 17:07 GMT Thanks Ari,
I did have two 50 mg pred on hand. So I took and split them. I took 25 yesterday and will take 25 today. Then I might split the other one into 4's so I can use for 6 days and see if that helps.
This fog is killing me. I told Denise last night when we talked that I don't know if I will make it thru this year with the fog. Last year it was Jan and Feb the fog was in. It usually is in Jan and Feb. By the end of Feb I was crying almost every night and morning till the fog finally left. Now we have had several days with fog in Nov. and a solid week this time in Dec. It looks like it is here to stay. It just kills my bones so much.
Also I figured out why my lungs are so bad the last couple of days. We have the unhealthy for certain individuals air quality going on. I thought I was getting worse with the flu, but it must be the air again.
So I am hoping that the pred I have on hand and was saving for if I got really bad will get me thru this.
His parents just called Sun and said they will help us make the rent payment. So that will be a plus.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
>> Thanks Ari, >> [quoted text clipped - 18 lines] > > Ari Nicole H - 14 Dec 2005 02:58 GMT Squirrely Where are you? I'm in central CA and we have a lot of fog and the horrible air. You must be close.
> Thanks Ari, > [quoted text clipped - 42 lines] >> >> Ari Squirrely - 14 Dec 2005 07:51 GMT yes I am, just a stones throw from you. I am in Central CA too. We talked before about this. if you email me I will tell you where, I don't like to put my town up on the neg.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> Squirrely > Where are you? [quoted text clipped - 48 lines] >>> >>> Ari Nicole H - 12 Dec 2005 20:25 GMT Pred is dirt cheap so if you can explain the situation to an old doctor, maybe he'll rx pred for you. I've found it's cheaper than tylenol. Omega 3 fatty acids have been shown to help with inflammation... so diet wise, maybe add some of those in. good luck
>I know there has to be others out there like me. > [quoted text clipped - 8 lines] > > This fog is killing me. My whole body is falling apart. Nicole H - 12 Dec 2005 20:29 GMT www.drweil.com
Chronic low-grade inflammation has been linked to the development of many age-related health conditions. Although this process may be barely noticed, there are things you can do to prevent or delay health issues related to inflammation. Consider using turmeric (see yesterday's Daily Tip), following an anti-inflammatory diet, and taking ginger, a natural anti-inflammatory herb that may help to lessen the risks and/or symptoms of many inflammatory-related disorders. Dried ginger preparations are actually more powerful than fresh because of a chemical conversion of its constituents on drying. Capsules of dried, powdered ginger are now commonly sold in health food stores; use only those that are standardized for their content of active components. The recommended starting dose is 1 gram per day (usually two capsules), taken after a meal to avoid stomach irritation. There is no toxicity and you can stay on it indefinitely.
>I know there has to be others out there like me. > [quoted text clipped - 8 lines] > > This fog is killing me. My whole body is falling apart. Squirrely - 14 Dec 2005 12:01 GMT Nicole,
I will check into this, I am not sure I will be able to do these as I have a problem with herbals, supplements, vitamins and such. But I will research and see if it lists any of my usual problems that i have taking the other stuff and if not I will give it a try.
I think the pred would work better for me at this point though. I am going to have to call my old dr and see if I can get some more.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> www.drweil.com > [quoted text clipped - 24 lines] >> >> This fog is killing me. My whole body is falling apart. MaryLou - 12 Dec 2005 20:51 GMT >I know there has to be others out there like me. > [quoted text clipped - 7 lines] > >This fog is killing me. My whole body is falling apart. i have trouble with nsaids and stomach, too. I have IBS and it makes that flare up. for the worst pain i take vicodin, but only a little and with a laxative or i'll constipate up and then bleed. i get some relief from muscle relaxer or xanax when i'm really bad off, too. my best luck for relief w/o side effects has been just doing nothing and reclining with a heating pad, and sometimes i use ice packs. also some exercise in a warm pool feels good at least while i'm in the pool, or a hot bath. i'm trying to learn to meditate but that's hard to concentrate. (i have osteo in the spine and chondromalacea in the knees) one of the most annoying things is the numbness in my L.hand, no meds make that go away.
I hope you find something to give you some relief soon.
Squirrely - 14 Dec 2005 11:26 GMT For some reason lately, when I use heating pad or take warm to hot shower, it makes me swell more. If i put the heating pad on an area, or aim the shower flow in that area, it quickly swells more. Ice and I don't do well at all. I am thinking whatever inflammation I have and try the heat on, is areas where there is bursitis that acts up from the heat. I am not sure though.
Also I found out not to use cortizone 10 cream on an area that is already inflammed. I put some on the other day thinking if cortisone shots work, this would work too. It made it swell more and the pain actually got worse. My body is really acting weird these days.
I have been putting the heater on and walking around with just bare minimum clothes on because of the sweating I have been having. but the heater helps get the chill out of the bones. then I don't hurt as much. Still hurt but it is more bearable.
I don't have transportation to get to a pool to exercise. I can't sit in tub to do soaking either because the hips go when I do. I do try hot showers as you saw above and get the swelling.
I have OA, FMS, bursitis, CMP, Costochrondritis, and more. I also have DDD in lower back and I believe from the last xrays of the neck I am getting it there too.
I get numbness and tingling in both arms and hands. I can tell it is coming from the neck and shoulder blade area. Because when they are activated that is when I get it. Also things like typing, holding a phone, stuff like that make it happen too.
Our bodies are a real mess aren't they. I also have IBS.
They had tried me on Soma and Flexerall and that made the palpatations from the thyroid stuff worse. See this is why I am such a hard patient to treat. I bet they are glad I don't have insurance so they don't have to put up with me like they used to.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> i have trouble with nsaids and stomach, too. I have IBS and it makes that > flare up. for the worst pain i take vicodin, but only a little and with a [quoted text clipped - 11 lines] > > I hope you find something to give you some relief soon. Nanny - 14 Dec 2005 01:18 GMT Ah, Squirrely, you don't have much going for you, do you? I guess I need to count my own blessings that I have insurance, and that I am not allergic to any drug so far. Bless you! I wish I could wave a magic wand or take some of that pain away from you. I truly don't know of any other anti-inflammatories than what you mentioned. Gentle hugs and good thoughts, Nanny
>I know there has to be others out there like me. > [quoted text clipped - 8 lines] > > This fog is killing me. My whole body is falling apart.
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