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Medical Forum / Diseases and Disorders / Arthritis / December 2005Intro
Hi all, I am new to this NG and thought I'd take a minute to introduce myself. I am Yanosz, a twenty seven year old male, residing in Two Rivers Alaska with my partner Rick, my two service dogs Dewey and Turk and Rick's sled dogs... Ten years ago, I was diagnosed with Fibromyalgia. Two years ago, I was diagnosed with Ankylosing Spondylitis and possible RA. This past July, it was determined that I also have Reflexive Sympathetic Dystrophy. I also have AML, a form of Leukemia. I have had AML for seven years and although I am not in 'remission' I have not gotten any worse either. My blood counts have stayed exactly the same for six years now. I take several different meds for pain, to many to list here without boring everyone, chemo meds for the AML and Arava for the AS. As of right now, I have seen no improvement on the Arava... Anyway, I look forward to getting to know all of you.  Signature-- Yanosz Descouedresz Email: yanosz@charter.net On Yahoo: yanoszd IMPORTANT: This email is intended for the use of the individual addressee(s) named above and may contain information that is confidential privileged or unsuitable for overly sensitive persons with low self-esteem, no sense of humor or irrational religious beliefs. If you are not the intended recipient, any dissemination, distribution or copying of this email is not authorized (either explicitly or implicitly) and constitutes an irritating social fauxpas. No animals were harmed in the transmission of this email, although the mutt next door is living on borrowed time, let me tell you. Disclaimer: the above is the author's personal opinion and is not the opinion or policy of his employer or of the little green men that have been following him all day. Welcome to ASA Yanosz..... Enbrel and Methx really work well for many AS people but then Remicade and Methx work just as well for others. I do not believe many people here can tell you what is going to happen with your combo of problems to solve. I hope you are under the care of a good Rheumatologist and if you have AML and RSD another doctor that can work with your RD. You are not the first person from Alaska to post here and I hope you come back many times in the future. Harv > Hi all, > [quoted text clipped - 18 lines] > > Anyway, I look forward to getting to know all of you. Hi, I was first tried on Methotrexate but it made me so nauseous that I couldn't even keep water down. As for my rheumatologist,, she is very knowledgeable about AS, fibro and RSD. Unfortunately, she needs to take Bedside Manner 101. *smile* Yan ----- Original Message ----- From: "Harvey R. Stone" <none@nobody.net> Newsgroups: alt.support.arthritis Sent: Thursday, December 08, 2005 7:47 PM Subject: Re: Intro > Welcome to ASA Yanosz..... Enbrel and Methx really work well for many AS > people but then Remicade and Methx work just as well for others. I do not [quoted text clipped - 4 lines] > you come back many times in the future. > Harv Welcome: You certainly have a plateful of health concerns. I am so sorry to hear about that. You will find this group to be very knowledgeable and supportive. It sounds as though you lead a pretty exciting life in the wilds of Alaska. LOL At one time we had a poster from Alaska. He lives in Anchorage if I remember correctly. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. hi yanosz, i'm sorry you have so much to deal with! the thought of alaskan weather on my hand joints is not pleasant. have you tried enbrel or remicade for your AS? i don't know if they might be contraindicated with your other problems, but it's certainly worth looking into. diane Hi, No I haven't tried either one of those. Perhaps, I should ask my rheumatologist about them? -- Yan > hi yanosz, > i'm sorry you have so much to deal with! the thought of alaskan weather [quoted text clipped - 5 lines] > > diane > Hi all, > [quoted text clipped - 10 lines] > am not in 'remission' I have not gotten any worse either. My blood counts > have stayed exactly the same for six years now. Was the AML a development of myelodysplastic syndrome (MDS)? > I take several different meds for pain, to many to list here without boring > everyone, chemo meds for the AML and Arava for the AS. As of right now, I > have seen no improvement on the Arava... > > Anyway, I look forward to getting to know all of you. Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ Was the AML a development of myelodysplastic syndrome (MDS)? *** Yes it was indeed. Yan > Was the AML a development of myelodysplastic syndrome (MDS)? > [quoted text clipped - 3 lines] > > Yan This is very interesting to me, as MDS is usually seen in much older people. I have MDS (stable, no shift in cell percentages) as an evolution of aplastic anaemia after we screwed around with my treatment that had been working for years. Is it hypocellular (too few cells) or hypercellular (too many cells, typical MDS) MDS? I ask because there may be a root cause that I've been noticing in a few patients that I've had contact with online. If you'd prefer to discuss this aspect of your health care privately, my email address is munged: take out the two underscores _ and it works. Given your age and the progression to AML I'd like to know more about what your haematologist has planned for your future, and if you're requiring blood transfusions or not. Cheers, Ari Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ Hi Yanosz! Boy, you sure do have a lot going on. I have AS and fibro, I had previously thought that just those two were difficult to handle. You must be one hell of a fighter. I hope that you post here more often : ) Charlene I'll email you tomorrow after I've had rest and can think clearly. *smile* -- Yan > > Was the AML a development of myelodysplastic syndrome (MDS)? > > [quoted text clipped - 19 lines] > > Ari |
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