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Medical Forum / Diseases and Disorders / Arthritis / December 2005back from RD appt (long)
and murder should be legal! I swear, my damn DOG was smarter then he was. The fool had every license and degree hanging up, but he had to have slept with someone to get them, because his medical knowledge just sux the big left toe! So, needless to say, i'm back off RD hunting now... I get there at 8:30am get right back, which omg was so nice, didn't have to sit and wait which i'm usually ticked by the time I get to see the dr. Well, he asks me a few questions, goes over my other labs and reports I'd brought in, went over what my GP sent to him. Then proceeds to tell me that being possitive on a HBL-A27 is very common and it's a bogus blood test as it is and means absolutely nothing. Then I questioned him on the prior arthritis found and he says.. ."that's nothing as well, everyone has it when they get older." I look at him and ask him, well how old then? He replies, "usually when you are post-menopausal" I blink several times then sigh, then ask... "Do I look to be post-menopausal?" he replies, "yes." --- I reply, "thanks I'm ONLY 38!" Then he replies, "oh well you're too young then anyhow to have arthritis, it's probably just something else." -- more eye rolls and sighs. Then he had me get up on the exam table. He starts literally poking my shoulders, mid back and lower back about sending me through the rooftops and each poke says, "Is this tender," before I can even answer he's moved onto another spot poking away. Never ONCE did he check me for range of motion, nor did he check any reflexes, in my knees or elbows. I told him about hurting my wrist/thumb a few months back and that I went to the ER and they'd had another xray of the same hand 2yrs before which they compared and said, I'd lost most the cartlidge in my hand and wrist.. --- I explained to him how my fingers and wrist ache and play hell trying to grip anything. He said, diabetics are like that. I said, this has nothing to do with that at all! His reply was "whatever" Then I told him, that 3 other doctors that I'd seen, none of which were RD's said, that it was more less AS and that because the conventional drugs weren't working that I needed something stronger which is why they refered me to him. He comes back with, well I don't think it's AS, I think it's Fibromy?? (sorry, I still think thats a bullshit disease) --- I said, no, I don't believe it is, I've looked the symptoms up and I don't have ONE of them! but I do have almost every symptom of AS -- I also have a high c-reactive protein, are you going to run any RA factor tests? my knees at anytime can turn flame hot, red and hurt like hell to the touch, which is how my hands hurt too. -- His reply, no you're too young to have RA. Well my last plea was.... I told him I have other autoimmune diseases and RA and AS both are autoimmune. He proceeds to tell me, that Type 2's aren't autoimmune LOL, I came back with... "NO sh.t Sherlock!... I'm a Type 1! antibodies and all!" he asked when I was dx'd... told him day after my 33rd bday, told me I was wrong, ONLY those under 20 can get IDDM. Well at that point, I knew he didn't know his a.s from a hole in the ground ... I thanked him for his time and told him he was SERVERELY wrong. Then tells me I have the right to seek a second opinion. LOL d'uh ya think? Sorry this is so long... I swear! I honestly don't know if i'm coming or going anymore. I often wonder if I went to the ER and said, I'm gonna kill myself because.... if I'd get faster treatment. I'm not in much pain right now... only because I took all my drugs this morning, but in another hour, my belly will start hurting and I wont wanna take anymore then I'm gonna start hurting, then I'm gonna become a royal b-i-t-c-h... and I'm just SO SO SO sick of this everyday for the past 13yrs... Btw, I have a call into my GP... called her nurse the MINUTE I got to the car... if anything I'm going to see if she'll just treat me... Tomorrow I have my 2nd set of SI injections at the pain clinic. LMAO, gee, guess they just wanted my money since theres nothing wrong with me. Funny how THEY saw all the inflamation and she was one of the dr's that told me it was AS. *sigh*... Thanks for letting me rant.. Just sometimes, getting it off my chest helps to move on. Reisa... **Legalize murder for idiotic doctors!** Sorry, I'm not laughing at your pain, I'm laughing at your yahoo doc. They're not the end-all, be-all, I learned long ago. Long-story-short, though I don't post often, I spent most of my youth fighting a flavor of Leukemia called CML. Also have had bad hayfever all my life. When I was first diagnosed with RA five years ago (initial RA factor was 983, forget what my SED was but it was some equally ugly number), I got a referral from my PCP to the "best" RD in town. Ordered a bunch of x-rays for posterity, told me most patients with my numbers would be being carried through the door, then promptly told me to take 9 ibuprofen/day. Huh? That's it??!!! Knowing my immune system's fugazzi I've put all my eggs in the immunologist basket, went out and found a good one and have been working it from that angle ever since. Good luck. I know it's frustrating. I'm trying to recall the last time I didn't hurt and I honestly can't remember any more. Suerta. > and murder should be legal! > [quoted text clipped - 110 lines] > > **Legalize murder for idiotic doctors!** Don't worry about it being murder is you put him out of your misery--he clearly is brain dead and should be taken out as he learned nothing in med school or thereafter--so if he is a zombie or a robot with some of his wires crossed, it can't be murder, can it????  SignatureLove, Alix "We are all pencils in the hand of God." ~Mother Teresa > and murder should be legal! Ah, jeez, Sorry he was an idjit, Reisa! Ya gotta throw that one back and get another one. That one's not a keeper. Hey, girl...you can have Fibromyalgia on top of AS and spondylosis, too. If they get good control of your inflammation and you're still taking opiate pain killers and yer still not a whole lot lower on the pain scale you could be an FM'er. Not that anyone would want ya to be...but it sure is a legit arthritic condition. I'm an alphabet hog, so take it from me...and get a GOOD RD quick! :-) Reisa Hugs from Rosie Signature"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > > and murder should be legal! [quoted text clipped - 96 lines] > > **Legalize murder for idiotic doctors!** Reisa, Welcome to the group. Sorry you have to be here. I saw your other post too about you being able to get another RD which is good. You also mentioned in that other post, that the neurosurgeon said it was the body's way of spasming to help stablize the spine. Spasms are from the muscles. FMS is muscles, tendons and ligaments. I also have both arthritis and fms. I don't consider it being a bullshit disease. It is very real believe me. You have muscles, soft tissue, tendons, and ligaments running throughtout the body. So it could be fms. But it also could be something else. He was not the RD that would help you though from what he said. You being positive on the HBL-A27 says you could have AS. AS causes those types of problems. I am glad you are getting another RD that might be able to tell you exactly what you are dealing with. Sometimes the FMS can make it feel like your bones are hurting because of the muscles, tendons and ligaments running right beside them. So I wouldn't totally rule that out yet. Also with you saying he was poking your shoulder, mid back and lower back and almost sending you thru the roof. That could be tender points from FMS. Keep an open mind about it. You want to get help don't you. You want to get better. So you will need the correct help that goes with whatever diagnosis you get. Good luck, keep us updated on what they find is causing it. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >> and murder should be legal! >> [quoted text clipped - 115 lines] >> >> **Legalize murder for idiotic doctors!** {{{{{{{{{{RK}}}}}}}}}}} Now that is one scary account of an RD visit. Can't believe there are actually doctors out there like that that still have a license to practice. Really scary!!! Sure hope the new RD that your doctor sends you to works out much better for you. In the meantime, praying that the SI injections can keep you fairly comfortable. Keep us posted on the new RD and don't give up hope yet, there really are some great doctors out there, sometimes it just takes a bit of searching. Donna G Hi RK, Sorry you are having such a bad time with your doctor and getting treated. The majority or us have probably been to one similar to this doc. Hope you find another one that will treat your symptoms so you can begin to feel better and your pain can be validated. Now - to address Fibromyalgia (that bullshit disease). I've had fibro and inflammatory arthritis for 13 years. Believe me, it is not bullshit. My life changed overnight and has never been the same. Fibromyalgia is considered one of the many diseases listed under the arthritis umbrella. It's not some mystery disease. The name means Fibro-muscle myalgia - pain. Chronic muscle pain doesn't have to be some mysterious disease it just means what it says. Everyone wants their pain to be validated and those with Fibromyalgia want to be validated as much as anyone with pain from RA or AS. I hope this has enlightened you somewhat to what Fibro is. Once again, I hope that you find some relief soon. debbie m. > and murder should be legal! > [quoted text clipped - 95 lines] > > **Legalize murder for idiotic doctors!** Thanks debbie, well, right there, proves I don't have (that bullshit) disease. :-) I do not have muscle pain! My freakin BONES hurt. I think i'm old enough, lol well maybe not, to know the difference between bones and muscles. Stupid a.s me passed out on the couch last night and didn't move to the recliner, well this morning, I've been up already for 2.5hrs and I still can hardly breath without severe back pain. My lungs expand, feels just like someone hitting me with a baseball bat in my mid back that radiates to the lower area. I even told that fool that. My back burns on occasion, but thats when I've really overdone it during the day. I hope you're doing well .. Reisa. | Hi RK, | [quoted text clipped - 118 lines] | > | > **Legalize murder for idiotic doctors!** this is a licensed rheumatologist??? you're too young to have RA? unreal. just unreal. diane | this is a licensed rheumatologist??? you're too young to have RA? | unreal. just unreal. | | diane lol by the licenses on his wall he was... I don't think I've ever heard of a worse doctor. I agree with him; you need a second opinion! Gwen > and murder should be legal! > [quoted text clipped - 110 lines] > > **Legalize murder for idiotic doctors!** I am floored that a dr. treated you like that. And an RD to boot!! I'd be writing to the medical board to complain. Don't know if this would help, but if you post what state you're in and major city you're next too, maybe someone can recommend an RD. With so many people on this board, there has to be someone who lives in your area, or has an RD who might know of a competent colleague. good luck in your search and I'm so sorry that you're having to deal with more pain as the result of an obviously ignorant dr. alison |I am floored that a dr. treated you like that. And an RD to boot!! I'd be | writing to the medical board to complain. Don't know if this would help, [quoted text clipped - 7 lines] | | alison thanks alison, actually I live in right next to the city of Columbus Ohio. I looked in the phone book, there are 3 listed! I checked my insurance website, there are the same 3 listed. I did get ahold of my GP's nurse, who grabbed my doc coming out from another patient and gave her a quick run down. She remembered the name of another RD at the OSU. The nurse called me back, she said they would be able to get me in before the end of Dec and would call me back in a day or two with the appt. So, we shall see. I do plan on filing with the medical board as well as my insurance co. thanks again Mama Char, who posted to us on the "hi family!" thread, always says "Someone had to graduate at the bottom of the class." I've had a couple of those RDs, though I don't think any as drastically horrendous as yours, though the last one came close. You're doing right by looking out for yourself, despite what this bozo said. Try to find a good RD though, even the best PCP can't keep up with all the advances and you're better off with a specialist, assuming you can find one who actually knows something. And like Rosie said, you might have fibro in there too - that's what I thought of when you were talking about the pain on different pokes. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Thanks everyone. I did get a call back from the nurse. She caught my gp and explained it to her, she has another RD lined up for me, just waiting on the appt now. Said it should be before end of Dec., in the meantime she said if I needed anything just let her know. (medication wise) I'm close to just asking her if "we" can treat this and hell with the RD., she seems to know her stuff. In a hour I have to leave for another set of SI injections so when I get home, I plan on phoning my insurance co and filing a report as well as the Ohio medical board. To those who suggested I might have FB as well, I highly doubt it. Okay, <g> I'll apologize and rening, it's not a "bullshit" disease... BUT, I know for a fact I do not have it. I don't have muscle pains. The only muscle that hurts on me is my lower back, and that doesn't even hurt, when I overdo things it burns, which has done this since before my back surgery and my neurosurgeon told me it was the bodys way of spasming to help stablize the spine. He'd given me flexeril and simply works wonders when I start to burn, I pop a few and relax for 30-40mins and the burning is gone, or subsided enough to get up and go again. It's my freakin bones that hurt! The only way I can describe it, is it feels like when you wack your knee or elbow on a corner, not the tingling ... the after pain when you touch it and you press on the bone and it actually hurts. That's a majority of how my body feels everyday. I've felt like that for going on 14yrs now. Anyhow, thanks again to everyone.. I'll keep ya updated, need to waddle in and get dressed to get out the door to the pain clinic. Least the SI injections are helping to keep the majority of the swelling down. I do get minor relief from it. Been able to cut back on the naproxen somewhat. Take care and well wishes all Reisa | and murder should be legal! | [quoted text clipped - 44 lines] | symptoms up | and I don't have ONE of them! but I do have almost every symptom of AS -- I | also | have a high c-reactive protein, are you going to run any RA factor tests? my [quoted text clipped - 47 lines] | | **Legalize murder for idiotic doctors!** ;-O *GASP* No! This cannot really have happened to you! My gosh, are you sure the man is an rd and not some kind of fraud?? Like in that movie with Leonardo Dicaprio?? {{{RK}}} Nikki > and murder should be legal! > [quoted text clipped - 95 lines] > > **Legalize murder for idiotic doctors!** RK, This is a bunch of bull. However, I do know how it feels. I am on my third RD in just over 2.5 years. Actually the fibro was diagnosed in me before the AS was, even though the AS problems started earlier than the fibro ones did. It is not unusual to have an autoimmune arthritis, and then to develp fibro. I agree with the others, off to see a new RD. Let us know how you make out, and good luck, Char It's not murder to pull the plug on those who are brain-dead. Reisa, so sorry you had to go through that. So glad your GP is sharp and sticking with this. Having a GP who believes you and stands by you when things are amorphous is a wondrous gift. Something you say concerns me - you keep saying your bones hurt. Has your GP done a screen for a blood/bone marrow disorder? I don't want to be an alarmist, but it reminds me of my dad, who had multiple myeloma. Not saying that's what you might have. But just wondering whether that has been screened out, yet. Adelle > and murder should be legal! > [quoted text clipped - 110 lines] > > **Legalize murder for idiotic doctors!** |
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