After getting some valuable advice from many of you here in this usenet
group I scheduled an emergency appointment with my Rheumatologist.
After returning to part time work this week (22 hours) after 10 months
or so of inactivity and being approved of SSD in April, my body has
been decimated so to speak. I worked hard on Monday due to training
and Tuesday thru Thursday it was more half days. But, today I woke up
and due to my AS I am stiff as a board and feel like someone beat the
heck out of me overnight. The best way to describe it is like I ran a
marathon or something. I scheduled the emergency visit because of all
the pain and stiffness. My stomach is bothering me immensely to the
point its like Irritable bowl which I think is the Naprosyn I am
taking. And of course its the usual suspects, my neck which is fused,
my low back, hips and frozen shoulders. Here is what my Dr. told me.
First of all he scheduled a CT scan for my stomach, an MRI for my
cervical area and finally when I asked about Remicade he agreed and
said lets give it a 90 day trial run. So there you go. He said stay
off the naprosyn for a while due to stomach problems and said take
small doses of coated aspirin. He also told me to lose weight. I
weigh in about 240 and a shade under 6 ft. tall. The problem is all my
weight is in my stomach and back end. I take a 40 size pants but
around the waist its getting to tight. He is a great Dr. that gives me
great advice. No metho until we see the results of remicade he said.
Hopefully, this will help. He did say once again my problem is mostly
bone rubbing bone pain. He said my condition is moderate. He said
since I'm working part time and able to get to and from my condition
isn't like some severe cases he gets. But my problem he said is too
much fusion going on at 48 years of age. I forgot to tell him about my
severe rib pain where at times its hard to breath. Is this part of the
AS too? Half the time I don't understand all of this even though I do
read up on it a lot. I still haven't come to grips with all the pain
and stiffness yet even though I have been battling this AS for over 20
years. The severe pain though has only been the past 5 years or so.
Thanks to all of you for the advice once again. Sorry for the long
update but if this helps someone else then I suppose its good. The
moral of the story is don't put off pain and uncomfortable living.
React immediately. That's why usenet is VALUABLE.
Rosemarie Shiver - 02 Dec 2005 18:17 GMT
That is really good news that you're getting back on a DMARD. Aggressive
treatment and keeping up on how bad the AS is is essential.
Your telling of your experiences is indeed likely to help others in the
same straits. I'm sending you good wishes on the job situation!
Hugs from Rosie

Signature
"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat
Outta Hell II
> After getting some valuable advice from many of you here in this usenet
> group I scheduled an emergency appointment with my Rheumatologist.
[quoted text clipped - 32 lines]
> moral of the story is don't put off pain and uncomfortable living.
> React immediately. That's why usenet is VALUABLE.
Alix M. Hall - 02 Dec 2005 23:48 GMT
DMARD is good--but take it easy--don't be a hero at the job thing--that is
something I always have to remind myself because sometimes I think I am
super Alix and ALWAYS regret it when I do--just take good care of yourself
ok?

Signature
Love,
Alix
"We are all pencils in the hand of God." ~Mother Teresa
Nann Bell - 03 Dec 2005 00:05 GMT
Aim will probably be along shortly, but I do remember her talking about rib
pain such as you mention as part of her AS, as well as the difficulty
breathing. It'd probably be a good idea to put a call into his office and
have that part passed on to him. I doubt he'll make any immediate changes,
but it is certainly additional justification for going on Remicade and might
be useful when dealing with your insurance. Also, it's good for him to know
so he can help keep an eye on it in the future.

Signature
Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare
thelongestday320@aol.com - 03 Dec 2005 03:22 GMT
Thanks Rosie, Alix and Nann. That's is a great idea Nann to call in
about my rib pain. Kind of wish my Dr. had an email or at least his
office had one. And you're right Alix. To think of some who have to
work through their pain. I am very blessed by God that I have a great
source of support with my wife and her very good job and my SSD. Not
to get to philosophical but those in pain without health insurance
really bothers me. I appreciate everyone's concern. It is good to
talk to others. Thank God we're in the computer age. Prayers for all.
Charrlygrl1 - 03 Dec 2005 15:57 GMT
Hi TLD,
That is absolutely great news!
I agree about calling in about your rib pain. There is a condition
common to those with AS (which, fortunately, I have been able to avoid
so far) called chostochondritis (SP?). It is rib cage pain. I may not
have spelled it properly, but it should be good enough for you to do
some research on it, if you so desire. Many people on an AS board that
I frequent suffer from it, and say that it is quite painful.
Alix is sure right about the overdoing it, though. I know that many of
my problems are much, much worse when I overdo things. My main problem
is trying to find that line and not to cross it. I am still learning.
I am excited for you that your doc is getting aggressive. I would love
to hear how your first infusion goes, and if it helps you.
Lots of luck,
Char