 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Arthritis / December 2005Huge whine - long - you can delete
Well it is another pity party from Kelly so feel free to delete. If someone ever figures out what has happened or wants to solve this one I would be grateful. Thursday I went to my gp for a flu shot instead to find out he had heard from the rd and I was to try to get in for a solu medrol 3 day 1 gram a day drip into the hospital. It was ideally suppose to be inpatient but we made a deal and got outpatient so they would even do it.Sunday I had to wait 5 hours in emergency until a bed came up but I didn't care. The drips have helped a bit I guess (don't know what I should have expected.) A bit less pain, my toes will go flat when I want them. The bladder is now overactive and I have to run when I know I have to go. The bowel is starting to work better too. So all that is good. The foot is still wild but guess that could still work itself out. The leg is still shaky. The worst is the side effects. I noticed today that my eyesight is not very clear so will have to bring that up tomorrow when I go see my gp. I am also quite shaky and feeling really rough but expected that after the shock of the medrol drip. My blood pressure was fine the whole time but I am now wondering if my blood sugar isn't a bit off. Will get them to check that tomorrow. I don't have an actual appointment but my husband does so will go in with him. I hate not being free to drive. That is the worst sometimes I think. Well not really - the unknown is the worst. I don't know where I stand with this. It is not RA and not MS and no one seems to know what to expect. I suspect again I am talking months. It is almost 7 weeks now and really I am still sick. I can't hide that truth. It is also 7 weeks with no arthritis med except the 10 mg of prednisone (although the 1 g a day of solu medrol was sure nice to the joints - what joints????) Anyhow that is my whine. I am not looking forward to Christmas especially since it is almost impossible to get out alone to do shopping etc. Think I will get some of it done on the net and get Pat to shop for some more of it. The wrapping etc - well might not even do it. That might be a solution. The house is filthy and the dog keeps tracking stuff in and out and we had started doing some painting and renovating and packing boxes and well that is still everywhere. It is Pat's fairly busy time right now so he is doing all he can driving me to appointments, looking after things his parents need (elderly, no car, living in a house, need help with finances etc.) Just feel I shouldn't put anything more on top of him. Of course it is cold today too and going to snow tomorrow so that will be another challenge to start the day off with. Glad my appointments aren't until noon (Victoria BC is not used to snow - this sets the drivers wild). Anyhow no more bitching. It is 8 o'clock and I can probably go have a bath and crawl back into bed. Spent most of yesterday and today there and the way I feel I probably should do everyone a favour and spend the next month there too. By the way Rose - the book was great. I do like her writing. I have order Jenifer Chiaverini's new book from Barnes and Noble online today so look forward to that too. It is a series I reread over and over. They are quilt related but well written. I reread the Courage Tree yesterday - was a nice break. I concentrate better on light reading right now - I have Anna Karina but know that is not in the picture right now. My mother in law lent me War and Peace (her favorite book) but can't keep my concentration on that. Off to bed. Thanks for listening. Just a bunch of whines but damn I am still scared and in the dark on this. I think I need to be concentrating on looking at MS symptoms and treatments but just don't know . This is just not a common thing to happen and no one but me is in charge right now it feels like. Kelly kelly, you're entitled to several long whines every day if you like. i think of you every day and wonder how you're doing. 7 weeks. unreal. it's so hard when you don't want to be a burden on anyone else. do you have friends or a church community that could organize to help you out? do you feel like your docs are giving you the best treatment? i keep wondering if you should be at mayo or someplace like that. i can only imagine how scary this must be. have you read my latest book (the bay at midnight)? if not, send me your address separately and i'll mail it to you. hugs, diane It really is hard Diane and I am not normally a whiner. I am pretty independent in my own way. I have lots of friends and they are doing lots for me thank goodness. The hardest thing is that really there isn't much to ask them for. I have a couple of functional hours of the day and don't always know when that is. Luckily my husband has been great through all this and my family as well. The friends come to quilt every week although I have to quit that for a bit so I don't catch anything from them (lack of flu shot, and the medrol leaving me with a suspect immune system). I think the doctor's are doing the best they can. I am in Canada so no medical would cover me in the states believe me. I should know more of what my rd says on Wednesday. The neurologist just seemed to think it would eventually go away as far as I can tell but then he also knew nothing about enbrel. I have a great relationship with my rd and he just bugged everyone at the conference so hopefully he has some answers. I haven't read your latest book (it is on my Christmas list for my kids to give to me). I will not spoil it though since I asked them for it. I have read all the rest Diane and they are excellent reads. The online support helps so much - sometimes this feels so alone but I know that all of you will understand. The hardest sometimes is to tell people that I still would have taken enbrel for the last 3 years. What were the chances of this - I figure less than 2 %. Bigger chance of getting hit by a car and it gave me a degree of comfort. I suspect though that my rd will want this to be gone before he starts me on something else (guessing kineret although we will have to find special funding as the provincial powers that be have not approved this for payment - only humira, remicade and enbrel - all tnf receptors.) Thanks Diane, Just the understanding helps. I am scared but also mainly whiny tonight. Kelly > kelly, you're entitled to several long whines every day if you like. i > think of you every day and wonder how you're doing. 7 weeks. unreal. [quoted text clipped - 12 lines] > > diane ((((Kelly)))) You are easily the quietest whiner I have every heard (read). I would be driving everybody nuts with the complaining and wanting to get better NOW! I think of you daily and check in to see your updates, all the while hoping and praying for you to wake up one day soon, with all this crap behind you. Please be patient with yourself and the progress you are making. 7 weeks seems like a long time, but your body is worth the wait. Hugs, Kelly C. > Well it is another pity party from Kelly so feel free to delete. If someone > ever figures out what has happened or wants to solve this one I would be [quoted text clipped - 60 lines] > > Kelly Thanks kelly, coming from you and Rachel that means a lot. I have followed your trials with the meds and know how hard it has been. I think I just hoped the solu medrol would be a permanent solution and I would wake up and be better. What a dreamer - didn't even give a thought to the drop I knew would happen with that amount of medrol. But you know if we didn't dream none of us would survive this disease would we? I am off to bed - had my bath and sat through "Scrooge" and the commercials. Almost enough to put me to sleep (although think a demerol might help as well tonight.) Thanks Kelly. It is always nice to know I have such friends as all of you behind me. Kelly > ((((Kelly)))) > [quoted text clipped - 104 lines] >> >> Kelly > Well it is another pity party from Kelly so feel free to delete. If someone > ever figures out what has happened or wants to solve this one I would be [quoted text clipped - 60 lines] > > Kelly Kelly, You are more than entitled to whine whenever the "need" the strikes (and I'm hoping the strike is very, very soft). I whine here, what seems like, all the time. In fact, I wonder sometimes if I *ever* write when it isn't a whine (if that's the case, sorry everybody). Sending softest "e"-hugs to you, and hoping that everything works out for the best. Prayers and offerings you and your family. Smokie Darling (Annie) I am so sorry to hear that things have not improved that much (yet). I am hopeful that each day will bring you closer to a full recovery, and htat the time needed will not be too long. I do check in also to see if you have posted an update. Never feel that you are whining. I think that others on the group feel as I di, we want to hear about how you are doing adn what progress has been made. I am glad that you liked hte book. If there is ever anything I can do, please holler, and I am sure that I can do it. Have you considered the S*ars catalogue for your Christmas shopping? It is a benefit for those of us who can not get out and do all the store shopping that we would like. Also London drugs has a website and you may be able to do some on-line shopping that way. I hope that the snowfall you get will be light. Snow is great for kids, but for those of us with mobility issues, it can be a real hassle. Take care. Rose Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Rose, S*ars doesn't put out a catalog any more, do they? Gwen >I am so sorry to hear that things have not improved that much (yet). I > am hopeful that each day will bring you closer to a full recovery, and [quoted text clipped - 24 lines] > > Please remove "Ima" to reply. >Rose, S*ars doesn't put out a catalog any more, do they? >Gwen In Canada they do. She can also access it online at www.sears.ca Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Kelly, Hugs and prayers...Also My counselor said that if you spend 5 minutes or less telling us how bad you feel today...That is not whining....So See you are still not whining, just letting us know how you feel.... Lots of hugs Cindy > Well it is another pity party from Kelly so feel free to delete. If > someone ever figures out what has happened or wants to solve this one I [quoted text clipped - 61 lines] > > Kelly whine away--or think of it as therapy to a bunch of people who care about you--{{{{{{{Kelly}}}}}  SignatureLove, Alix "We are all pencils in the hand of God." ~Mother Teresa Kelly, I haven't been here as long as most of the others, so I don't know you that well. But I have been reading and keeping up since this MS thing (whatever it is) hit. I don't think you have been whining at all. In fact, If I were you, I would probably be a gibbering, drooling idiot in the psycho ward by now. I think you are one strong lady. Hang in there, Char > Kelly, > I haven't been here as long as most of the others, so I don't know you > that well. > But I have been reading and keeping up since this MS thing (whatever it > is) hit. > I don't think you have been whining at all. A little whining now and then is fine. This is a nice positive group that will make reasonable responses and give you a good word and the complaints are reasonable. I used to read a migraine news group before the headaches cleared up and in that group people actually post suicide notes. This is a much better group to deal with. Anyway, I may want to complain from time to time. I may even have this stuff clear up too. Well, it could happen. SignatureUsing Opera's revolutionary e-mail client: http://www.opera.com/mail/ This is a much better group to deal with. Anyway, I may want to > complain from time to time. I may even have this stuff clear up too. > Well, it could happen. We want to hear about that too. It gives other people hope and it Can happen and does. Harv Kelly, you are doing great! I wish I could whine as coherently! skip > Well it is another pity party from Kelly so feel free to delete. If > someone ever figures out what has happened or wants to solve this one I [quoted text clipped - 61 lines] > > Kelly Thanks everyone. I accomplished a few things today. I have hired a friend's university daughter for 2 hours a week to do whatever I don't want to ask anyone else to do. That could be anything from picking something up off the floor (and believe me sometimes that is an issue), to walking my 1 1/2 year old dog who needs more attention that I am getting him, to washing my floor. you idea of the church friends did that Diane. Then I went to the doctor after researching again. He says the eyesight, shakiness, etc should pass and gave me a new prescriptions. Since I had come off the med that was suppose to ease the spasticity it occured to me we should have replaced that. Did some research this morning and he agreed it would be worth while (As you can tell I am leading this one. When I get my medical degree I will let you know.) We agreed to try baclofen hoping it will not leave me stoned and in tears like the clonazepam ( it was a tranquilizer and on me more like a tranquilizer for horses - knocked me flat on my rear in tears constantly at the lowest dose) Hopefully I will get more information tomorrow from my rd. I also finally got a flu shot which was concerning me as there are reports of flu. I am still weepy today - I think it is the clonazepam as I tried again to take it because I was in pain. I am not doing that again - it is in my pile to go to the pharmacist for disposal. Anyhow I am a bit better today - even managed to get my hair washed properly and kept a shoe on my foot for 1/2 hour which is a miracle in itself. My foot really protests at any sensation like that but since it snowed last night a bit and I had to go to the doctor - well socks and sandles didn't seem the thing. Oh and my husband took me to lunch and the drug store - the highlight of my day. Boy life is boring when the drugstore is exciting (bought some chocolate and depends - life is sweet. Thanks everyone, Kelly > Kelly, you are doing great! I wish I could whine as coherently! > [quoted text clipped - 66 lines] >> >> Kelly Dear Kelly, Well I don't know about the drugstore but the chocolate makes it a red letter day! Three years ago now right after Christmas, I gave my three kids and husband a card. I requested that each write the top three things that they like to do at Christmas. (There are no sacred cows) I was surprised at the things that they picked. I've used that as a guide to remove a lot of fluff from Christmas. The parties that they didn't enjoy well we don't do those. Christmas tree became a nuts and bolts affair only-you know tree and lights, no ornaments! I do just the most important and I have found it to be liberating! (But this is my first year to have a child come in from college! and I excited!) Take care, (((((Kelly))))) (((((Pat))))) spouses are wonderful! Vickie B. kelly, i hope the baclofen helps, and i doubt it will make you stoned. my sister and i both take it, she for MS spasms and me for esophageal spasms. it doesn't make either of us tired, although i know that's a potential side effect. glad you hired someone to help! very smart move. diane So glad for your progress, and that is progress. Will continue to pray it continues -- fast! Gwen > Thanks everyone. I accomplished a few things today. I have hired a > friend's university daughter for 2 hours a week to do whatever I don't [quoted text clipped - 101 lines] >>> >>> Kelly (((((((((((((((((((((((((((Kelly)))))))))))))))))))))))))))))) prayers continue. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare {{{{{{Kelly}}}}}} DeeTee > Well it is another pity party from Kelly so feel free to delete. If > someone ever figures out what has happened or wants to solve this one I [quoted text clipped - 61 lines] > > Kelly Kelly, You have every right to whine sweetie. Thank you for the update on what is happening with you. I like that because then I know better how to pray for you. Sweetie, I wish I were there to give you hugs in person and be able to help you out. But I am not so these cyber hugs will have to do. Love you. You take care. I sure hope you get better quickly. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Well it is another pity party from Kelly so feel free to delete. If > someone ever figures out what has happened or wants to solve this one I [quoted text clipped - 61 lines] > > Kelly |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.