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Medical Forum / Diseases and Disorders / Arthritis / November 2005sleepless in NC
Hi folks It is 3 am and this pain just won't let me sleep;. last trip to the RD last month, he upped my oxycontin 20 mg to 3 a day and I swear I don t feel like they do as much good as a Tylenol. does anyone have this same problem? A few months ago they started filling my RX with generic. do you think it possible that the generic may not be working? I have another appt in early dec and I will discuss it with him. I am wondering if he can get me off that oxy and find something else that would help. I thought that oxy was a very powerful med but either it has worn out for me or the generic is not working. has anyone else had either of these problems? I do need some relief gonna try going to bed again to sleep janice > Hi folks > It is 3 am and this pain just won't let me sleep;. last trip to the RD last [quoted text clipped - 9 lines] > gonna try going to bed again to sleep > janice A few comments, just off the top of my head: - if your pain is getting worse, there may have been a progression in the disease process that needs to be evaluated or reevaluated. - sometimes people habituate to the levels of painkillers they're given. This is a very tricky business, especially with these drugs, and a pain management specialist may need to be consulted. - why not take tylenol (aka panadol aka acetominophen) along with the oxycontin? A lot of people find it gives them just that little bit more relief - discuss sleeping tablets with your RD. Stillnox is supposed to be much less addictive than other sleeping pills, but I find Ativan to be the most effective for me with fewer side effects the next day. Cheers, Ari  Signaturespammage trappage: remove the underscores to reply I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/ | Hi folks | It is 3 am and this pain just won't let me sleep;. last trip to the RD last [quoted text clipped - 9 lines] | gonna try going to bed again to sleep | janice what anti-inflamitories are you taking? oxycontin isn't an anti-inflamitory it wont help with the swelling. after 14yrs I've learned go for the source first then the pain will help ease itself. > what anti-inflamitories are you taking? oxycontin isn't an > anti-inflamitory > it > wont help with the swelling. after 14yrs I've learned go for the source > first then > the pain will help ease itself. Well said and the way it is. It is the DMARD-disease modifying drugs that change your life if you have inflam.arth.\\ Harv What kind of arthritis? Mine is just inflamatory but the pain gets awful at times? I have it in my right shoulder and left hip. Either or both of which wakes me up at night. Or keeps me from going to sleep, depending on which side I lay on. The Dr perscribed (prescriped???) Ultracet but it doesn't do any more than just Tylenol. He gives me sort of shot that the nurses call Cortizone but it isn't.. Cortizone hurts when it goes in and keeps me pain free for quite a while. The stuff he shoots with can almost be put in the muscle or the joint. Last time I insisted on the joint but it doesn't do any good at all. It is not Cortizone. If I am pain free when I first try to sleep I can go to sleep without a pill. But after 2 to 4 hours the pain is there and even if I can get rid of it (heat helps a lot) I cannot go back to sleep without a pill. I have been taking Lunesta which is not supposed to be habit forming. It works just fine but the insurance company may cut me off. It is very, very expensive. I am seeing an orthopedic man in a couple of weeks. My family physician swears I should have a hip replacement but I'll never see 80 again and I really don't want it. Well, I have wept and wailed long enough. Thanks for the shoulders. (Painfree, I hope.) Pixi > | Hi folks > | It is 3 am and this pain just won't let me sleep;. last trip to the RD [quoted text clipped - 18 lines] > first then > the pain will help ease itself. > What kind of arthritis? Mine is just inflamatory but the pain gets awful > at [quoted text clipped - 28 lines] > > Pixi Hi Pixi,,,,,, No matter how old you are,,,, it does not mean you should live in pain or with pain to this extent. Please,,,,, please see a Rheumatologist. No matter what doctor you see,,, you have misunderstandings about what is taking place and sometimes we have to force out doctor to tell us what is taking place. The sad part of this is your doctor may not know what is taking place. Please see a RD and continue to post here with questions or just to say how you feel or my doctor said this or that. Believe me when I say that you will find that many have been there and want to help you with what is taking place. Even though you are over 80,,, it is not to late to learn and share what has taken place in your life so that someone else does not let there problems go until it is too late for a joint or joints. I have tried to be a honest as I can with you and in no way should you read any of it as a critism of yourself but I can not say the same for the doctor that let you get this way. Harv > > What kind of arthritis? Mine is just inflamatory but the pain gets awful > > at [quoted text clipped - 46 lines] > doctor that let you get this way. > Harv Thank you Harvy. I needed that. I have no idea where to find a Rheumatologist closer than 170 miles. I live in the back of beyond. We have doctors here, of course, but not specialists. The orthopedic man I am going to see on the 23rd is 70 miles from here. Never thought I would get so old and decrepit or I would never have moved here. I am sure that many have been here and much worse. At least it isn't rheumatoid. I limp when I walk because of the pain and my fingers are a bit crooked but I have no stiffness or swelling. Otherwise, I'm in find shape. Could use a good night's sleep though. Thanks again. Pixi > Hi Pixi,,,,,, No matter how old you are,,,, it does not mean you should > live in pain or with pain to this extent. [quoted text clipped - 13 lines] > doctor that let you get this way. > Harv Pixi, no matter if you are 90, a hip replacement is a good thing. You do have to do therapy afterward, but it is well worth it! Gwen > What kind of arthritis? Mine is just inflamatory but the pain gets awful > at [quoted text clipped - 57 lines] >> first then >> the pain will help ease itself. > Pixi, no matter if you are 90, a hip replacement is a good thing. You do > have to do therapy afterward, but it is well worth it! > Gwen Its been at least fifteen years since I met a client that I thought of as old and sick at the time. When I learned he was going for hip replacements I privately thought it was a terrible idea. Why would someone so near the end of their life put themselves through such misery. Its been a delight to get to know him and his wife. He turned out to have a wonderful sense of humor. I'll miss them. They sold their house and moved to Arizona last year. Jo Hey Pixi, I accidently deleted your post about how far you are from specialists, so I'm answering on this one instead. It might be worth it to check around and see if any specialists do any traveling to sites closer to you. I say that because my RD's main office is 80 miles away but twice/month he has a clinic just 35 miles from me - and once/month he's about 50 miles away. I think he has another remote office now that he has a partner, but I forget where - it isn't closer to me than where I've been seeing him! I had to see him at the main office originally, but now I get to see hime closer. The ortho who's gonna be working on my thumbs is also 80 miles away. We do have a few in the town 25 miles from us, but none who specialize in hands. It might really be worth it to see if you can see an RD or a pain specialist. Heck, however many years you have left, you ought to be able to enjoy them as much as possible! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > What kind of arthritis? Mine is just inflamatory but the pain gets awful at > times? I have it in my right shoulder and left hip. Either or both of [quoted text clipped - 22 lines] > > Pixi At one point I had to have shot in shoulder area. It did not feel like when they give me shot of cortizone but that was because the dr used lanocaine in it. It helped numb it so I didn't feel the burning and after affects that I usually get. Maybe that is what they did to you too. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > What kind of arthritis? Mine is just inflamatory but the pain gets awful > at [quoted text clipped - 28 lines] > > Pixi I ended up with a Pain Management Dr. The combo of pain meds 30MG every 8 hours and painkilling/cortisone shots have helped tremendously. I now can sew a bit (20 min instead of just 10) and can make dinner. On my really good days I can also do laundry, but my guys have to carry the clothes to/from. If I would have known I was going to be this bad I would have had the washer/dryer put into the bathroom next to the bedrooms instead of a large linen closet. Butterfly > Hi folks > It is 3 am and this pain just won't let me sleep;. last trip to the RD [quoted text clipped - 12 lines] > gonna try going to bed again to sleep > janice > I ended up with a Pain Management Dr. The combo of pain meds 30MG every 8 > hours and painkilling/cortisone shots have helped tremendously. I now can [quoted text clipped - 22 lines] > > gonna try going to bed again to sleep > > janice Oxycontin is long acting. You may need additional breakthru for at bedtime when yer weary and the pain isn't adequately controlled. If yer doing OK thru the day and it's bedtime when yer in pain discuss a breakthru PK( short-acting) to get you to sleep. HTH! Hugs from Rosie Signature"If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Hi folks > It is 3 am and this pain just won't let me sleep;. last trip to the RD last [quoted text clipped - 9 lines] > gonna try going to bed again to sleep > janice Oh Janice, I am sorry to hear you are in such pain. Wishing you some sleep. Sending healing vibes your way. I feel for you sweetie. Dec is a long time to wait. Could you not put a call in to him now and see if he can prescribe something that works. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Hi folks > It is 3 am and this pain just won't let me sleep;. last trip to the RD [quoted text clipped - 12 lines] > gonna try going to bed again to sleep > janice |
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