 |
 | Home | Contact Us | FAQ | Search & Site Map | Link to Us |
 | Sign In | Join | Other 45 Sites in Network |
Medical Forum / Diseases and Disorders / Arthritis / November 2005Got a call from my RD yesterday
Got home from work yesterday and there was a message on the answering machine from my RD. "Stop taking your medication now!!!!" I can't get hold of her until Monday, but I've already stopped the Sulfasalazine. I saw my GP today, and he said that between the Sulfasalazine and the Voltaren, it was most likely the Sulfasalazine that caused something to show up in my last blood test. Unless some other miracle drug shows up soon (I want my Bextra back, damnit!!!), looks like I'll be trying Enbrel next. Despite my bad experience this week Brad, Enbrel is the best thing invented since electricity to me. Would I have taken it for 3 years if I thought this would happen now - YES!!!!! It has given me part of my life back easily with next to no side effects (sinus infections aside and now that I have the personal steamer from Vicks I don''t even think that would be an issue. Keeping in mind this side effect is about at at .5% chance (note the point) this is pretty rare. Go for it if they offer it! I hated sulfasalazine so that was a no issue! Hoping the best for you! Kelly > Got home from work yesterday and there was a message on the answering > machine from my RD. [quoted text clipped - 10 lines] > Unless some other miracle drug shows up soon (I want my Bextra back, > damnit!!!), looks like I'll be trying Enbrel next. (sinus infections aside and now that I >have the personal steamer from Vicks I don''t even think that would be an >issue. Enbrel has been the best for me. It has worked even better than remicade did. I am one of those individuals who experienced the opposite result to what most people here have. I thoght I was doing well on remicade but my esr was never lower than 48. Now from enbrel, it has been in the 20s. I have not had that in more than35 years. People comment on the difference in me. I need to get one of those Vick's Steamers I think. I am on my second round of antibiotics since school started, and this infection seems pretty entrenched so it looks as though i will need another course. Maybe the steamer would help my chronic hoarseness. I cannot remember what my voice is supposed to sound like I have been hoarse for so long. I hate that. It is a little problem, but for me- as a teacher- it is major. I just want to be able to sing Happy Birthday again when a student has their special day. :( My sad lament for the day... (Mini pity party over) Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. this is just a little personal one Rose and was about 30.00. Sure seems to work for me. I love it. kelly > (sinus infections aside and now that I >>have the personal steamer from Vicks I don''t even think that would be an [quoted text clipped - 24 lines] > > Please remove "Ima" to reply. >this is just a little personal one Rose and was about 30.00. Sure seems to >work for me. I love it. I will look for it, Kelly. Thanks. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. >I need to get one of those Vick's Steamers I think. I am on my >second round of antibiotics since school started, and this infection [quoted text clipped - 9 lines] > > Rose @}>->-- I would also suggest you consider having a endoscopy done to check for reflux. One of the symptoms for that is a hoarse throat or continual coughing. I have reflux and can tell when I've neglected my Gaviscon as I start being hoarse and having to cough a lot. Good luck. I'm sure that as a teacher, it is a real hassle. Loujean God didn't promise us that life would be fair. If it were, who would try for the stars? >I would also suggest you consider having a endoscopy done to check for >reflux. One of the symptoms for that is a hoarse throat or continual >coughing. I have reflux and can tell when I've neglected my Gaviscon >as I start being hoarse and having to cough a lot. I have been on prevacid for about ten years, and felt that the reflux was well controlled. I was recently prescribed to take it twice a day though just in case that is a contributing factor. Thanks. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. I keep wondering if you have had your thyroid checked as it can cause a husky voice. Sincerely Lorrie F > >I would also suggest you consider having a endoscopy done to check for > >reflux. One of the symptoms for that is a hoarse throat or continual [quoted text clipped - 10 lines] > > Please remove "Ima" to reply. Dr switched me to Prilosec (prescription strength). Works better and faster. Have Barrett's Disease Butterfly >>I would also suggest you consider having a endoscopy done to check for >>reflux. One of the symptoms for that is a hoarse throat or continual [quoted text clipped - 11 lines] > > Please remove "Ima" to reply. Scary. But take comfort in that your RD cares enough about you to call. Good luck. DeeTee > Got home from work yesterday and there was a message on the answering > machine from my RD. [quoted text clipped - 10 lines] > Unless some other miracle drug shows up soon (I want my Bextra back, > damnit!!!), looks like I'll be trying Enbrel next. Brad, I'm sorry that you're having to come off of the sulfasalazine. Don't you hate that stuff? Do your pills leave like an orange residue on your fingers? I am on that as well as Enbrel and MTX and prednisone. Reading everyone's story here about how Enbrel changed their lives makes me sort of jealous. I wish that it would do the same for me. I would have to say that, on most days, things are better than they were. Just not as good as I'd hoped they would be. Searching for the right meds just sucks-I feel for you. I hope that Enbrel works a miracle in your life. (I also hope that you have health insurance-wow, is that stuff expensive!). I also hope that it works for you right away. Please let us know how you make out, Charlene > Brad, > I'm sorry that you're having to come off of the sulfasalazine. Don't [quoted text clipped - 11 lines] > Please let us know how you make out, > Charlene Charlene, you are not alone. My mtx/Enbrel combo (with NSAIDs) works better than mtx/Arava did, but it has not been a miracle. Fatigue, stiffness and pain are all eased, but all are still there. Fatigue-wise, it's like I just hit a wall in the afternoon. It's really annoying to not get a miracle. I'm trying to stay off pred (long details involved there) but some days I'd give anything for that little boost..........  SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Bruce, I hope things get worked out for you and they get to the bottom of all this. I hope you get meds that will help you. Wishing you lots of luck. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Got home from work yesterday and there was a message on the answering > machine from my RD. [quoted text clipped - 10 lines] > Unless some other miracle drug shows up soon (I want my Bextra back, > damnit!!!), looks like I'll be trying Enbrel next. Bruce, hope you get to talk to the doctor tomorrow and see what's up. Gwen > Bruce, > [quoted text clipped - 15 lines] >> Unless some other miracle drug shows up soon (I want my Bextra back, >> damnit!!!), looks like I'll be trying Enbrel next. Brad, Might want to try humira which has a slightly different side effects profile. I am on enbrel now as humira didn't hold for the two weeks it needed to for me and my insurance would not ok once a week. I know side effects are possible but I feel like the biologics offered fewer side effects than any other DMARD and sure as heck less than any of the NSAID's did for me. And for the rest of you think Neti Pot <G> m I think the Neti Pot saved me from having this cold - now in week 8 from turning really ugly with infection needing antibiotics. Duckie > Brad, > Might want to try humira which has a slightly different side effects [quoted text clipped - 10 lines] > > m Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >>Got home from work yesterday and there was a message on the answering >>machine from my RD. [quoted text clipped - 10 lines] >>Unless some other miracle drug shows up soon (I want my Bextra back, >>damnit!!!), looks like I'll be trying Enbrel next. Follow-up: I was able to talk to my RD today, and it was not the Sulfasalazine that caused the problem, it was the Voltaren SR. The bloodwork I had done just over a week ago showed some issues with the liver functions. She is trying me on Naproxen E as an anti-inflammatory before we take the Enbrel route. |
Reply to this Message |
 Sign In
 Join
 My Latest Posts My Monitored Threads My Blog My Photo Gallery My Profile My Homepage Start New Thread Enable EMail Alerts Rate this Thread
|
©2008 Advenet LLC Privacy Policy - Terms of Use
This website includes both content owned or controlled by Advenet as well as content owned or controlled by third parties.