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Medical Forum / Diseases and Disorders / Arthritis / November 2005

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Frustration

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Di - 01 Nov 2005 14:12 GMT
I'm frustrated.  I really am.  Breaking my ankle was bad enough, at
least, I thought.  But, insult is always added to injury.  And insult,
in this case, is the spin-off pain from the broken ankle.

At least, that's how my RD is considering it.  I had an appt with him
yesterday afternoon.  I told him that my ankle is healing, but asked him
for his thoughts on the orthopod's dx of DeQuervain's tenosynovitis of
my left wrist.  He concurred with the dx, and supports the pod's
treatment choice of PT for now.  That's fine.  I sure don't want
surgery, if I can help it.

I also complained that my right shoulder is causing me lots of distress.  
He asked me how long since I was off crutches.  I said two weeks.  He
said that it's still too soon for things to get back to normal.  He then
asked me how all else is doing.  I say same old same old.

In fact, it's not the same old same old.  Everything hurts.  My wrist
and ankle and shoulder, for sure.  But also, my SI/hip, my neck, my
back, my heels, both wrists, actually, and just about everything.  I
hurt alot, and was miserable with pain last night.  I'm still so sore
this morning.  But, I didnt' want to tell him about my latest greatest
flare (if that's what it is, which is likely), because I know that he'll
just throw prednisone at it.  He'll hardly look at anything, but just
prescribe pred.  I hate pred.

I've decided to see if this quiets down, and maybe call and go back in a
week or two, if it doesn't.  But, I'm just so frustrated with this
disease, and with all the spin off diseases that I have, like
Dupuytren's and DeQuervain's and osteopenia, and whatever.  I'm sick of
hurting.  I'm sick of how hard it is to just take my dog for a simple
short walk.  I'm sick of feeling blitzed from painkillers.  I'm just
hoping it all goes away.  

Do you ever have pain that is not so excrutiating that you cannot speak,
but enough and of a kind that you just feel sick, like maybe throwing
up?  Constant pain that just eats away at your soul?  I'm trying to keep
a positive attitude, but sometimes the pain gets the better of me.  I
feel sick today.  I'm depressed, even though I already take Zoloft.  I
am feeling like my job is not getting the attention it needs, which is
hurting me professionally.

Frustration is but a miserable understatement of what I'm feeling right
now.  I'm already late for work, and I'm not even dressed yet.  I'm
sitting here at the computer with my cup of coffee and my sharply aching
wrist, and my depression, and my sore hips, and my sore neck, and I need
a f.cking vacation in the worst way.  But, I have no time left, cause it
was all eaten away on being out when I broke my ankle.  I feel at wit's
miserable end.  I want to just go back to bed, but I have a meeting at
11:00 am this morning with a member of the wilderness committee.  I
can't stand the guy.  He is a real pain in the a.s, a sorry a.s gadfly
who is demanding and annoying.  I'll do me damnedest to be professional,
but I'm not going to like it.

Well, I sure rambled on long enough.  If you've made it this far,
thanks.  If you haven't, then never mind.  I just needed to vent.  As
much as venting feels good here, I sure wish it makes the pain go away.  
Damn...................

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Di
zinkadoodle at gmail dot com
www.pbase.com/di
www.dustydoggie.blogspot.com

Nann Bell - 01 Nov 2005 16:24 GMT
((((((((((((((((Di)))))))))))))))

here, I cut into the big 2-lb hunk of prime Cabot cheddar last night so join
the rest of us who are drifting into whine parties and have yourself a slice
and a glass!

> Frustration is but a miserable understatement of what I'm feeling right
> now.  I'm already late for work, and I'm not even dressed yet.  I'm
> sitting here at the computer with my cup of coffee and my sharply aching
> wrist, and my depression, and my sore hips, and my sore neck, and I need
> a f.cking vacation in the worst way.

A serious suggestion - as you seem to be having so much pain from your body
being thrown off by the ankle & crutches, how about getting a massage or two
somewhere?  That could do a lot to ease the unusual strains that have been
put on your body by the broken ankle.  Just make sure the person is willing
to start with a *gentle* massage, you can tell them that when you make an
appointment.  Don't want to make it even worse!

Then again, you could probably use a full day at a spa with loads and loads
of pampering, but I figure that might be too hard to handle with all the pain
you have going on.  I always dream of a day at a day spa when I feel the need
for a major break from things!  I suppose it's the concept of someone doing
for ME, rather than I doing for others, heehee.

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Charrlygrl1 - 01 Nov 2005 17:19 GMT
Di,
I am sorry for what you are going through.

>>Do you ever have pain that is not so excrutiating that you cannot speak,
but enough and of a kind that you just feel sick, like maybe throwing
up? <<

Yes, I do. It sometimes feels like some of my joints are directly
attached to my stomach. I feel the pain, and almost instantly I just
want to throw up.
>From your description of the joints in pain, you and I are very much
alike. I don't think it's unusual for depression to set in, especially
after dealing with so much pain, and for such a long time.
I wish I had something to offer you....)Nann's suggestion regarding the
spa sounds damn good to me!!!) but all I have is a hug (((Di)) and
wishes that things will soon settle down,
Charlene
vickie b. - 01 Nov 2005 19:06 GMT
DI,  At my last rheumy visit, I told my rheumy that I was ready to try
anything except surgery or long term therapy for my right wrist.  He
suggested and prescribed a TENS unit.  I've used it now for about three
months and it really helps.  This sends a charge through the wrist
relieving the swelling.  

Just a thought,

Vickie B.
Jo Firey - 01 Nov 2005 20:38 GMT
> ((((((((((((((((Di)))))))))))))))
>
[quoted text clipped - 13 lines]
> doing
> for ME, rather than I doing for others, heehee.

Back before day spa's were popular, I used to create my own a few days after
April 15.  (I'm a CPA)

I'd buy a new comfy sweatsuit and sandals, schedule a haircut and facial, a
manicure and pedicure and massage and some time in a Jacuzzi.  Buy a new
book and a nice bottle of wine.  I love a good light German wine.  I'd
replace old makeup and buy new perfume.  Have a light breakfast somewhere
and a light lunch and either pick up take out for dinner or something
special and easy to cook.

Now that I'm on disability, a whole day like that is no longer in the budget
but I do one or two things when I can.

Makes me feel good just to remember it.

I can't really say its a flare, but I'm sore all over right now.  Likely
from the cooler weather and the cooler house.  We only run the AC down to 78
degrees but only heat up to 70.  I do bump it up to 72 if I'm really
uncomfortable.  The worst pain is a joint in my right hand.  I fell against
it back in August and its been sore off and on.  Now there is a bump just
above the joint so it would appear I broke the bone.  And the callus is
making the joint swell enough to hurt.  I know it takes six weeks to two
months for the callus to fully form on a break.  Wish I could remember how
long it takes to shrink.

I'm off to shop.  May just buy a down comforter.  They are on sale
everywhere and we just loved the ones from some of our vacation hotel rooms
this year.

Any advice on how to keep the darn thing clean if you don't put a cover over
them?  I'd rather not make it heavier.

Jo
Nann Bell - 02 Nov 2005 16:55 GMT
> I'm off to shop.  May just buy a down comforter.  They are on sale
> everywhere and we just loved the ones from some of our vacation hotel rooms
[quoted text clipped - 4 lines]
>
> Jo

Um, I hope your asthma isn't sensitive to the whole dust mite thing?  Down
will kill you if you are sensitive to it.  If you are sensitive and you've
bought on of the things, I suggest getting a major allergy-proof cover for it
NOW.  (you could probably make on from the new allergy-proof microfiber
mattress coverings easily enough.  I know they periodically discuss duvet
covers over on alt.sewing and they sound quite easy to make, aside from
dealing with a huge volume of fabric.)

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Simply the thing I am shall make me live --- William Shakespeare

Harvey R. Stone - 01 Nov 2005 19:13 GMT
> I'm frustrated.  I really am.  Breaking my ankle was bad enough, at
> least, I thought.  But, insult is always added to injury.  And insult,
[quoted text clipped - 11 lines]
> said that it's still too soon for things to get back to normal.  He then
> asked me how all else is doing.  I say same old same old.

How long are you going to go before you tell the doctor what is actually
taking place?

> In fact, it's not the same old same old.  Everything hurts.  My wrist
> and ankle and shoulder, for sure.  But also, my SI/hip, my neck, my
[quoted text clipped - 3 lines]
> flare (if that's what it is, which is likely), because I know that he'll
> just throw prednisone at it.

Sorry,,,, you do not know that and again your doctor does not know what is
taking place.

He'll hardly look at anything, but just
> prescribe pred.  I hate pred.
>
> I've decided to see if this quiets down, and maybe call and go back in a
> week or two, if it doesn't.

Sounds like a plan but it is weeks of pain and more frustration when steps
might of been taken to stop all of it.

 But, I'm just so frustrated with this
> disease, and with all the spin off diseases that I have, like
> Dupuytren's and DeQuervain's and osteopenia, and whatever.  I'm sick of
> hurting.  I'm sick of how hard it is to just take my dog for a simple
> short walk.  I'm sick of feeling blitzed from painkillers.  I'm just
> hoping it all goes away.

Bless your heart,,, we have all felt this way at one time or another.   Just
be glad you have your dog  and even though you have taken several falls from
doing those walks,,, I know they are a joy if nothing happens.

> Do you ever have pain that is not so excrutiating that you cannot speak,
> but enough and of a kind that you just feel sick, like maybe throwing
> up?

Not for a long time but I know how you feel.

Constant pain that just eats away at your soul?  I'm trying to keep
> a positive attitude, but sometimes the pain gets the better of me.  I
> feel sick today.  I'm depressed, even though I already take Zoloft.

Take positive steps with your doctor EVEN if you need prednisone and that
depressed feeling will get beter.

I
> am feeling like my job is not getting the attention it needs, which is
> hurting me professionally.
[quoted text clipped - 15 lines]
> much as venting feels good here, I sure wish it makes the pain go away.
> Damn...................

Get your a.s to work because your one of the best at what you do and putting
up with a.sholes is something that many people have to live with and most
assuredly understand how you feel but do it anyway.

Harv
Carolj52@webtv.net - 01 Nov 2005 19:14 GMT
Di,Boy,I could of wrote your post,this is exactly the way I feel,and I'm
also so damn sick of feeling this way.I didn't break my ankle,but it
sure feels broke,along with my other foot,ankles,knees,elbow,lower
back,left shoulder and allergies.I know exactly where you're coming from
and you said it all.Hope you're feeling better soon. Carol
Charrlygrl1 - 01 Nov 2005 21:18 GMT
Just a note to add that Vickie B is right about the Tens.
I have one (wearing it right now on my upper back/neck/shoulder area)
and it does work well most of the time.
Char
Skip - 02 Nov 2005 01:17 GMT
Girl, vent away!

I suspect your doc needs to hear all about this - walk in there, hand him an
itemized list of hurts, and an empty bottle of pred and tell him:  tried
that, what's next.   If he can't/won't help, find someone else.

And treat yourself to a gentle massage.  For that while, everything will be
all right in the world.

> I
> can't stand the guy.  He is a real pain in the a.s, a sorry a.s gadfly
> who is demanding and annoying.  I'll do me damnedest to be professional,
> but I'm not going to like it.

Love that phrase!  Ya don't have to like it, just get through it and then
it's over.
Kelly - 02 Nov 2005 04:28 GMT
Di,
My experience is that anytime you injure a part of your body or have a flare
in a part of your body that affects the rest with RA.  Seems to just go
together.  You use parts of the body differently, walk differently etc.  Try
the pt for the deQuervains but again that is a problem frequently with a
flare as is the dupytrons for me.  I had surgery combined with the carpal
tunnel and it did help but still flares its ugly head occasionally.

You might find you do need the prednisone - your choice and his.  If your
dmard is working in general you should be able to use a pulse.  If it isn't
the prednisone might have to be used as well as.  In my case no dmard has
worked enough to reduce the prednisone but that is what gets me out of bed
so.....

I feel your frustration - can definitely understand.  If you trust your RD
though you do have to level with him.  If you don't like or trust him - well
might be time for another opinion??  Is that possible.

In the meantime I sure understand the frustration.  Might be time for
another opinion if you are not sure of your treatment though.

kelly
Di - 02 Nov 2005 06:16 GMT
> Di,
> My experience is that anytime you injure a part of your body or have a flare
[quoted text clipped - 3 lines]
> flare as is the dupytrons for me.  I had surgery combined with the carpal
> tunnel and it did help but still flares its ugly head occasionally.

Kelly, you have Dupuytren's?  I thought I was the only person here with
it.  You had the fasciectomy?  I did, a few years ago, along with tendon
release on my pinky and ring finger, and it worked great.  But, it has
recurred at the base of my thumb, now.  Not much to say, but
grrrrrrrrrrrr...............  <sigh>

> You might find you do need the prednisone - your choice and his.  If your
> dmard is working in general you should be able to use a pulse.  If it isn't
> the prednisone might have to be used as well as.  In my case no dmard has
> worked enough to reduce the prednisone but that is what gets me out of bed
> so.....

I've tried so hard to eliminate the pred.  I'm down to 2mg/day, which is
next to nothing.  But, it's not nothing, and if I go lower, or eliminate
it, then I'm sure to flare.  I just do not want to have to get a higher
dose going again, so I'm trying like hell to keep it where it is.  I
suppose, if I have to increase it, I will, but I so much do not want to.

> I feel your frustration - can definitely understand.  If you trust your RD
> though you do have to level with him.  If you don't like or trust him - well
> might be time for another opinion??  Is that possible.

Sometimes I trust him.  Sometimes I don't.  We've had issues in the
past, and we've worked it out.  He's been good for me, but he has a
tendency to just blow off people and prescribe pred, rather than just
hear them out.  I'm not alone in this, I'm sure.  He has a reputation
for having a lousy bedside manner, though when the office is slow, or if
I'm his last appt, I enjoy just sitting and chatting with him.  I think
he also enjoys it.  But, some days he's just abrupt, and that is what he
was like last week.  Very moody guy.

> In the meantime I sure understand the frustration.  Might be time for
> another opinion if you are not sure of your treatment though.

I did get a second opinion a few years ago, and returned to Dr. B.  Dr.
B. is my fourth RD, as I moved away from the first, and fired the next
two.  My second opinion was my fifth RD, but as I said, I returned to my
fourth.

> kelly

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Di
zinkadoodle at gmail dot com
www.pbase.com/di
www.dustydoggie.blogspot.com

Kelly - 03 Nov 2005 20:09 GMT
Hi Di,
Mine is not exacly depuytrens but linked into the lousy fact that my
arthritis causes inflammation of the tendons first before the joints.  All
the tendons just below the finger joints on the palm are almost always
inflamed as are the in the wrists and around the thumb - hence the
dequervains.  If my meds are under control this goes down, if not well they
are well inflamed and cause problems.  We treat all of these with ice,
cortisone, resting splints etc.  Occasionally the inflammation affects the
tendons going up the fingers.  That does tend  to go away with physio, ice,
rest etc.  The top f the palm however quite regularly needs a cortizon shot
and both times when they did the carpal tunnel they did trigger releases
cleaning out the great assortment of gunk in the top area of the palm (that
was my plastic surgeon's technical description.)

Kelly
>> Di,
>> My experience is that anytime you injure a part of your body or have a
[quoted text clipped - 50 lines]
>
>> kelly
Di - 04 Nov 2005 02:33 GMT
> Hi Di,
> Mine is not exacly depuytrens but linked into the lousy fact that my
[quoted text clipped - 11 lines]
>
> Kelly

Tendon issues really suck.  I have PA, so my tendons are often inflamed,
also.  My joints are mostly OA issues, except my SI, which shows
evidence of sclerosing on MRI.  My SI joints are often painful, but
nothing compared to what it was before I started taking Enbrel.  Enbrel
gave me my life back (which reminds me....... I need to get one out of
the fridge).

Anyway, it's good that you don't have Dupuytren's (DC), I suppose.  At
least, not on top of your RA.  RA is obviously the bane of your
existence, but DC is just annoying.  Painful at times, but mostly
annoying as all getout.

However, this DeQuervain's sucks boulders.  I start PT for it next
tuesday, and I'm actually looking forward to it.  I'm counting on it to
help me alot.  I just cannot undertake a surgery right now.  I just
can't. And, my RD thinks that the PT is definitely the right way to go,
as a first measure.  So, everyone, keep your crossable fingers crossed
for me.  <g>

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Di
zinkadoodle at gmail dot com
www.pbase.com/di
www.dustydoggie.blogspot.com

Gwen Love - 04 Nov 2005 02:51 GMT
Di, how about my legs?  I can cross my ankles!
Gwen

>> Hi Di,
>> Mine is not exacly depuytrens but linked into the lousy fact that my
[quoted text clipped - 36 lines]
> as a first measure.  So, everyone, keep your crossable fingers crossed
> for me.  <g>
Di - 05 Nov 2005 16:05 GMT
> Di, how about my legs?  I can cross my ankles!
> Gwen

Sure, Gwen.  Legs are fine.  So are ankles.  <g>
Signature

Di
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www.pbase.com/di
www.dustydoggie.blogspot.com

Squirrely - 02 Nov 2005 19:25 GMT
Di,

I don't blame you for being so frustrated I would be too. Hugs, TLC and warm
fuzzies coming your way.

I also know the frustration with the spin off diseases. So my heart does go
out to you big time.

I hope you are healing quickly and that things get back to a more normal for
you. ;-)

You did a good job of venting. I hope it helped. Sometimes it just helps to
get it off your chest. I hope this did.

I sure hope things turn around for you quickly. I am hoping that happens
really soon.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> I'm frustrated.  I really am.  Breaking my ankle was bad enough, at
> least, I thought.  But, insult is always added to injury.  And insult,
[quoted text clipped - 53 lines]
> much as venting feels good here, I sure wish it makes the pain go away.
> Damn...................
DeeTee and Bob Taggart - 03 Nov 2005 10:10 GMT
{{{{{Di}}}}}

No advice, hon, just wanted you to know I heard you.

DeeTee

> I'm frustrated.  I really am.  Breaking my ankle was bad enough, at
> least, I thought.  But, insult is always added to injury.  And insult,
[quoted text clipped - 53 lines]
> much as venting feels good here, I sure wish it makes the pain go away.
> Damn...................
Di - 04 Nov 2005 02:24 GMT
> {{{{{Di}}}}}
>
> No advice, hon, just wanted you to know I heard you.
>
> DeeTee

I want to thank you all for your well wishes, and spa advice, and whine,
I mean wine advice, and yes, Harv, the meeting went fairly well.  I
still think the guy is a dork.  But, thanks so much for the vote of
confidence.

Actually, I'm feeling somewhat better today.  Maybe, just maybe this
latest flare broke.  A broken flare.  Hmmmmmmmmmmm.......... What a
concept!  

Anyway, I was feeling great until I got a call from the hospital billing
department.  Seems my copay for the MRI on my ankle and foot is $888.00.  
Yes, that's eight hundred and eighty eight dollars.  WTF??!!!  I asked
what they charged for the MRI.  She said it was a kind of complicated
MRI, and the hospital billed my insurance company $11,000.00.  Yes,
that's eleven thousand dollars.  WTF??!!!  She said it was actually two
MRI's, one for the foot and one for the ankle.  But $11K?  Are they
kidding?  I've never had an MRI cost more than like $1,400.  I told her
that now I'm really, REALLY sick.  I'm gonna fight this.  Eleven grand
for an MRI.  They're freakin' out of their minds.  Anyone else get
hammered like this for a stupid test?  Goddam, my ankle wouldda healed
without the MRI, really.  I'm feeling kind of nauseous now.

But, my ankle is feeling better.  My flare is broken.  And, life is
good.
Signature

Di (....but still stressin' over the $11K)

zinkadoodle at gmail dot com
www.pbase.com/di
www.dustydoggie.blogspot.com

Gwen Love - 04 Nov 2005 02:50 GMT
Di, an MRI of my shoulder last December was $900.00.  I can't imagine
anything costing $11,000.    I  don't blame you for contesting it; I would
too. Thankfully Medicare plus my supplement pays everything except for my
prescriptions.
Gwen

>> {{{{{Di}}}}}
>>
[quoted text clipped - 26 lines]
> But, my ankle is feeling better.  My flare is broken.  And, life is
> good.
Jo Firey - 04 Nov 2005 04:10 GMT
>> {{{{{Di}}}}}
>>
[quoted text clipped - 26 lines]
> But, my ankle is feeling better.  My flare is broken.  And, life is
> good.

They have got to be kidding.  I've had tons of MRI's.  (No more due to
cochlear implant, but we MRI'd damn near everything before that just in
case)  I don't think I've ever had one billed over $2,500 and that was with
contrast.  Plus insurance didn't allow anything near that and if I had a
co-pay it would be based on what the insurance allowed, not the fantasy
amount they bill.

Jo
DianeW - 04 Nov 2005 05:47 GMT
I was charged 14K for two MRI's once -- one brain and one neck.  But
that was at Mayo Clinic in Jacksonville. I couldn't believe it!  But I
have noticed that the last two MRI's I had were higher priced than
usual. I thought it was because of the place I've been going to instead
of the hospital.

I'm glad you are feeling in better spirits today Di ---- HUGS!!!!!
Diane W
Nann Bell - 05 Nov 2005 02:53 GMT
> Anyway, I was feeling great until I got a call from the hospital billing
> department.  Seems my copay for the MRI on my ankle and foot is $888.00.  
[quoted text clipped - 8 lines]
> hammered like this for a stupid test?  Goddam, my ankle wouldda healed
> without the MRI, really.  I'm feeling kind of nauseous now.

Don't pay nuttin' until you get the statement from your insurance company!  I
don't believe anyone's estimate of my co-pay (unless it sounds really right)
until I check it out with BCBS.  Sometimes, I don't even believe them and the
customer service rep gets to talk to me!

(and my neck MRI two years ago was ~$700, forget what our co-pay ended up
being, but that's certainly more in line with your previous costs for MRIs!)

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Simply the thing I am shall make me live --- William Shakespeare

 
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