Medical Forum / Diseases and Disorders / Arthritis / November 2005
Frustration
|
|
Thread rating:  |
Di - 01 Nov 2005 14:12 GMT I'm frustrated. I really am. Breaking my ankle was bad enough, at least, I thought. But, insult is always added to injury. And insult, in this case, is the spin-off pain from the broken ankle.
At least, that's how my RD is considering it. I had an appt with him yesterday afternoon. I told him that my ankle is healing, but asked him for his thoughts on the orthopod's dx of DeQuervain's tenosynovitis of my left wrist. He concurred with the dx, and supports the pod's treatment choice of PT for now. That's fine. I sure don't want surgery, if I can help it.
I also complained that my right shoulder is causing me lots of distress. He asked me how long since I was off crutches. I said two weeks. He said that it's still too soon for things to get back to normal. He then asked me how all else is doing. I say same old same old.
In fact, it's not the same old same old. Everything hurts. My wrist and ankle and shoulder, for sure. But also, my SI/hip, my neck, my back, my heels, both wrists, actually, and just about everything. I hurt alot, and was miserable with pain last night. I'm still so sore this morning. But, I didnt' want to tell him about my latest greatest flare (if that's what it is, which is likely), because I know that he'll just throw prednisone at it. He'll hardly look at anything, but just prescribe pred. I hate pred.
I've decided to see if this quiets down, and maybe call and go back in a week or two, if it doesn't. But, I'm just so frustrated with this disease, and with all the spin off diseases that I have, like Dupuytren's and DeQuervain's and osteopenia, and whatever. I'm sick of hurting. I'm sick of how hard it is to just take my dog for a simple short walk. I'm sick of feeling blitzed from painkillers. I'm just hoping it all goes away.
Do you ever have pain that is not so excrutiating that you cannot speak, but enough and of a kind that you just feel sick, like maybe throwing up? Constant pain that just eats away at your soul? I'm trying to keep a positive attitude, but sometimes the pain gets the better of me. I feel sick today. I'm depressed, even though I already take Zoloft. I am feeling like my job is not getting the attention it needs, which is hurting me professionally.
Frustration is but a miserable understatement of what I'm feeling right now. I'm already late for work, and I'm not even dressed yet. I'm sitting here at the computer with my cup of coffee and my sharply aching wrist, and my depression, and my sore hips, and my sore neck, and I need a f.cking vacation in the worst way. But, I have no time left, cause it was all eaten away on being out when I broke my ankle. I feel at wit's miserable end. I want to just go back to bed, but I have a meeting at 11:00 am this morning with a member of the wilderness committee. I can't stand the guy. He is a real pain in the a.s, a sorry a.s gadfly who is demanding and annoying. I'll do me damnedest to be professional, but I'm not going to like it.
Well, I sure rambled on long enough. If you've made it this far, thanks. If you haven't, then never mind. I just needed to vent. As much as venting feels good here, I sure wish it makes the pain go away. Damn...................
 Signature Di zinkadoodle at gmail dot com www.pbase.com/di www.dustydoggie.blogspot.com
Nann Bell - 01 Nov 2005 16:24 GMT ((((((((((((((((Di)))))))))))))))
here, I cut into the big 2-lb hunk of prime Cabot cheddar last night so join the rest of us who are drifting into whine parties and have yourself a slice and a glass!
> Frustration is but a miserable understatement of what I'm feeling right > now. I'm already late for work, and I'm not even dressed yet. I'm > sitting here at the computer with my cup of coffee and my sharply aching > wrist, and my depression, and my sore hips, and my sore neck, and I need > a f.cking vacation in the worst way. A serious suggestion - as you seem to be having so much pain from your body being thrown off by the ankle & crutches, how about getting a massage or two somewhere? That could do a lot to ease the unusual strains that have been put on your body by the broken ankle. Just make sure the person is willing to start with a *gentle* massage, you can tell them that when you make an appointment. Don't want to make it even worse!
Then again, you could probably use a full day at a spa with loads and loads of pampering, but I figure that might be too hard to handle with all the pain you have going on. I always dream of a day at a day spa when I feel the need for a major break from things! I suppose it's the concept of someone doing for ME, rather than I doing for others, heehee.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Charrlygrl1 - 01 Nov 2005 17:19 GMT Di, I am sorry for what you are going through.
>>Do you ever have pain that is not so excrutiating that you cannot speak, but enough and of a kind that you just feel sick, like maybe throwing up? <<
Yes, I do. It sometimes feels like some of my joints are directly attached to my stomach. I feel the pain, and almost instantly I just want to throw up.
>From your description of the joints in pain, you and I are very much alike. I don't think it's unusual for depression to set in, especially after dealing with so much pain, and for such a long time. I wish I had something to offer you....)Nann's suggestion regarding the spa sounds damn good to me!!!) but all I have is a hug (((Di)) and wishes that things will soon settle down, Charlene
vickie b. - 01 Nov 2005 19:06 GMT DI, At my last rheumy visit, I told my rheumy that I was ready to try anything except surgery or long term therapy for my right wrist. He suggested and prescribed a TENS unit. I've used it now for about three months and it really helps. This sends a charge through the wrist relieving the swelling.
Just a thought,
Vickie B.
Jo Firey - 01 Nov 2005 20:38 GMT > ((((((((((((((((Di))))))))))))))) > [quoted text clipped - 13 lines] > doing > for ME, rather than I doing for others, heehee. Back before day spa's were popular, I used to create my own a few days after April 15. (I'm a CPA)
I'd buy a new comfy sweatsuit and sandals, schedule a haircut and facial, a manicure and pedicure and massage and some time in a Jacuzzi. Buy a new book and a nice bottle of wine. I love a good light German wine. I'd replace old makeup and buy new perfume. Have a light breakfast somewhere and a light lunch and either pick up take out for dinner or something special and easy to cook.
Now that I'm on disability, a whole day like that is no longer in the budget but I do one or two things when I can.
Makes me feel good just to remember it.
I can't really say its a flare, but I'm sore all over right now. Likely from the cooler weather and the cooler house. We only run the AC down to 78 degrees but only heat up to 70. I do bump it up to 72 if I'm really uncomfortable. The worst pain is a joint in my right hand. I fell against it back in August and its been sore off and on. Now there is a bump just above the joint so it would appear I broke the bone. And the callus is making the joint swell enough to hurt. I know it takes six weeks to two months for the callus to fully form on a break. Wish I could remember how long it takes to shrink.
I'm off to shop. May just buy a down comforter. They are on sale everywhere and we just loved the ones from some of our vacation hotel rooms this year.
Any advice on how to keep the darn thing clean if you don't put a cover over them? I'd rather not make it heavier.
Jo
Nann Bell - 02 Nov 2005 16:55 GMT > I'm off to shop. May just buy a down comforter. They are on sale > everywhere and we just loved the ones from some of our vacation hotel rooms [quoted text clipped - 4 lines] > > Jo Um, I hope your asthma isn't sensitive to the whole dust mite thing? Down will kill you if you are sensitive to it. If you are sensitive and you've bought on of the things, I suggest getting a major allergy-proof cover for it NOW. (you could probably make on from the new allergy-proof microfiber mattress coverings easily enough. I know they periodically discuss duvet covers over on alt.sewing and they sound quite easy to make, aside from dealing with a huge volume of fabric.)
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Harvey R. Stone - 01 Nov 2005 19:13 GMT > I'm frustrated. I really am. Breaking my ankle was bad enough, at > least, I thought. But, insult is always added to injury. And insult, [quoted text clipped - 11 lines] > said that it's still too soon for things to get back to normal. He then > asked me how all else is doing. I say same old same old. How long are you going to go before you tell the doctor what is actually taking place?
> In fact, it's not the same old same old. Everything hurts. My wrist > and ankle and shoulder, for sure. But also, my SI/hip, my neck, my [quoted text clipped - 3 lines] > flare (if that's what it is, which is likely), because I know that he'll > just throw prednisone at it. Sorry,,,, you do not know that and again your doctor does not know what is taking place.
He'll hardly look at anything, but just
> prescribe pred. I hate pred. > > I've decided to see if this quiets down, and maybe call and go back in a > week or two, if it doesn't. Sounds like a plan but it is weeks of pain and more frustration when steps might of been taken to stop all of it.
But, I'm just so frustrated with this
> disease, and with all the spin off diseases that I have, like > Dupuytren's and DeQuervain's and osteopenia, and whatever. I'm sick of > hurting. I'm sick of how hard it is to just take my dog for a simple > short walk. I'm sick of feeling blitzed from painkillers. I'm just > hoping it all goes away. Bless your heart,,, we have all felt this way at one time or another. Just be glad you have your dog and even though you have taken several falls from doing those walks,,, I know they are a joy if nothing happens.
> Do you ever have pain that is not so excrutiating that you cannot speak, > but enough and of a kind that you just feel sick, like maybe throwing > up? Not for a long time but I know how you feel.
Constant pain that just eats away at your soul? I'm trying to keep
> a positive attitude, but sometimes the pain gets the better of me. I > feel sick today. I'm depressed, even though I already take Zoloft. Take positive steps with your doctor EVEN if you need prednisone and that depressed feeling will get beter.
I
> am feeling like my job is not getting the attention it needs, which is > hurting me professionally. [quoted text clipped - 15 lines] > much as venting feels good here, I sure wish it makes the pain go away. > Damn................... Get your a.s to work because your one of the best at what you do and putting up with a.sholes is something that many people have to live with and most assuredly understand how you feel but do it anyway.
Harv
Carolj52@webtv.net - 01 Nov 2005 19:14 GMT Di,Boy,I could of wrote your post,this is exactly the way I feel,and I'm also so damn sick of feeling this way.I didn't break my ankle,but it sure feels broke,along with my other foot,ankles,knees,elbow,lower back,left shoulder and allergies.I know exactly where you're coming from and you said it all.Hope you're feeling better soon. Carol
Charrlygrl1 - 01 Nov 2005 21:18 GMT Just a note to add that Vickie B is right about the Tens. I have one (wearing it right now on my upper back/neck/shoulder area) and it does work well most of the time. Char
Skip - 02 Nov 2005 01:17 GMT Girl, vent away!
I suspect your doc needs to hear all about this - walk in there, hand him an itemized list of hurts, and an empty bottle of pred and tell him: tried that, what's next. If he can't/won't help, find someone else.
And treat yourself to a gentle massage. For that while, everything will be all right in the world.
> I > can't stand the guy. He is a real pain in the a.s, a sorry a.s gadfly > who is demanding and annoying. I'll do me damnedest to be professional, > but I'm not going to like it. Love that phrase! Ya don't have to like it, just get through it and then it's over.
Kelly - 02 Nov 2005 04:28 GMT Di, My experience is that anytime you injure a part of your body or have a flare in a part of your body that affects the rest with RA. Seems to just go together. You use parts of the body differently, walk differently etc. Try the pt for the deQuervains but again that is a problem frequently with a flare as is the dupytrons for me. I had surgery combined with the carpal tunnel and it did help but still flares its ugly head occasionally.
You might find you do need the prednisone - your choice and his. If your dmard is working in general you should be able to use a pulse. If it isn't the prednisone might have to be used as well as. In my case no dmard has worked enough to reduce the prednisone but that is what gets me out of bed so.....
I feel your frustration - can definitely understand. If you trust your RD though you do have to level with him. If you don't like or trust him - well might be time for another opinion?? Is that possible.
In the meantime I sure understand the frustration. Might be time for another opinion if you are not sure of your treatment though.
kelly
Di - 02 Nov 2005 06:16 GMT > Di, > My experience is that anytime you injure a part of your body or have a flare [quoted text clipped - 3 lines] > flare as is the dupytrons for me. I had surgery combined with the carpal > tunnel and it did help but still flares its ugly head occasionally. Kelly, you have Dupuytren's? I thought I was the only person here with it. You had the fasciectomy? I did, a few years ago, along with tendon release on my pinky and ring finger, and it worked great. But, it has recurred at the base of my thumb, now. Not much to say, but grrrrrrrrrrrr............... <sigh>
> You might find you do need the prednisone - your choice and his. If your > dmard is working in general you should be able to use a pulse. If it isn't > the prednisone might have to be used as well as. In my case no dmard has > worked enough to reduce the prednisone but that is what gets me out of bed > so..... I've tried so hard to eliminate the pred. I'm down to 2mg/day, which is next to nothing. But, it's not nothing, and if I go lower, or eliminate it, then I'm sure to flare. I just do not want to have to get a higher dose going again, so I'm trying like hell to keep it where it is. I suppose, if I have to increase it, I will, but I so much do not want to.
> I feel your frustration - can definitely understand. If you trust your RD > though you do have to level with him. If you don't like or trust him - well > might be time for another opinion?? Is that possible. Sometimes I trust him. Sometimes I don't. We've had issues in the past, and we've worked it out. He's been good for me, but he has a tendency to just blow off people and prescribe pred, rather than just hear them out. I'm not alone in this, I'm sure. He has a reputation for having a lousy bedside manner, though when the office is slow, or if I'm his last appt, I enjoy just sitting and chatting with him. I think he also enjoys it. But, some days he's just abrupt, and that is what he was like last week. Very moody guy.
> In the meantime I sure understand the frustration. Might be time for > another opinion if you are not sure of your treatment though. I did get a second opinion a few years ago, and returned to Dr. B. Dr. B. is my fourth RD, as I moved away from the first, and fired the next two. My second opinion was my fifth RD, but as I said, I returned to my fourth.
> kelly
 Signature Di zinkadoodle at gmail dot com www.pbase.com/di www.dustydoggie.blogspot.com
Kelly - 03 Nov 2005 20:09 GMT Hi Di, Mine is not exacly depuytrens but linked into the lousy fact that my arthritis causes inflammation of the tendons first before the joints. All the tendons just below the finger joints on the palm are almost always inflamed as are the in the wrists and around the thumb - hence the dequervains. If my meds are under control this goes down, if not well they are well inflamed and cause problems. We treat all of these with ice, cortisone, resting splints etc. Occasionally the inflammation affects the tendons going up the fingers. That does tend to go away with physio, ice, rest etc. The top f the palm however quite regularly needs a cortizon shot and both times when they did the carpal tunnel they did trigger releases cleaning out the great assortment of gunk in the top area of the palm (that was my plastic surgeon's technical description.)
Kelly
>> Di, >> My experience is that anytime you injure a part of your body or have a [quoted text clipped - 50 lines] > >> kelly Di - 04 Nov 2005 02:33 GMT > Hi Di, > Mine is not exacly depuytrens but linked into the lousy fact that my [quoted text clipped - 11 lines] > > Kelly Tendon issues really suck. I have PA, so my tendons are often inflamed, also. My joints are mostly OA issues, except my SI, which shows evidence of sclerosing on MRI. My SI joints are often painful, but nothing compared to what it was before I started taking Enbrel. Enbrel gave me my life back (which reminds me....... I need to get one out of the fridge).
Anyway, it's good that you don't have Dupuytren's (DC), I suppose. At least, not on top of your RA. RA is obviously the bane of your existence, but DC is just annoying. Painful at times, but mostly annoying as all getout.
However, this DeQuervain's sucks boulders. I start PT for it next tuesday, and I'm actually looking forward to it. I'm counting on it to help me alot. I just cannot undertake a surgery right now. I just can't. And, my RD thinks that the PT is definitely the right way to go, as a first measure. So, everyone, keep your crossable fingers crossed for me. <g>
 Signature Di zinkadoodle at gmail dot com www.pbase.com/di www.dustydoggie.blogspot.com
Gwen Love - 04 Nov 2005 02:51 GMT Di, how about my legs? I can cross my ankles! Gwen
>> Hi Di, >> Mine is not exacly depuytrens but linked into the lousy fact that my [quoted text clipped - 36 lines] > as a first measure. So, everyone, keep your crossable fingers crossed > for me. <g> Di - 05 Nov 2005 16:05 GMT > Di, how about my legs? I can cross my ankles! > Gwen Sure, Gwen. Legs are fine. So are ankles. <g>
 Signature Di zinkadoodle at gmail dot com www.pbase.com/di www.dustydoggie.blogspot.com
Squirrely - 02 Nov 2005 19:25 GMT Di,
I don't blame you for being so frustrated I would be too. Hugs, TLC and warm fuzzies coming your way.
I also know the frustration with the spin off diseases. So my heart does go out to you big time.
I hope you are healing quickly and that things get back to a more normal for you. ;-)
You did a good job of venting. I hope it helped. Sometimes it just helps to get it off your chest. I hope this did.
I sure hope things turn around for you quickly. I am hoping that happens really soon.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> I'm frustrated. I really am. Breaking my ankle was bad enough, at > least, I thought. But, insult is always added to injury. And insult, [quoted text clipped - 53 lines] > much as venting feels good here, I sure wish it makes the pain go away. > Damn................... DeeTee and Bob Taggart - 03 Nov 2005 10:10 GMT {{{{{Di}}}}}
No advice, hon, just wanted you to know I heard you.
DeeTee
> I'm frustrated. I really am. Breaking my ankle was bad enough, at > least, I thought. But, insult is always added to injury. And insult, [quoted text clipped - 53 lines] > much as venting feels good here, I sure wish it makes the pain go away. > Damn................... Di - 04 Nov 2005 02:24 GMT > {{{{{Di}}}}} > > No advice, hon, just wanted you to know I heard you. > > DeeTee I want to thank you all for your well wishes, and spa advice, and whine, I mean wine advice, and yes, Harv, the meeting went fairly well. I still think the guy is a dork. But, thanks so much for the vote of confidence.
Actually, I'm feeling somewhat better today. Maybe, just maybe this latest flare broke. A broken flare. Hmmmmmmmmmmm.......... What a concept!
Anyway, I was feeling great until I got a call from the hospital billing department. Seems my copay for the MRI on my ankle and foot is $888.00. Yes, that's eight hundred and eighty eight dollars. WTF??!!! I asked what they charged for the MRI. She said it was a kind of complicated MRI, and the hospital billed my insurance company $11,000.00. Yes, that's eleven thousand dollars. WTF??!!! She said it was actually two MRI's, one for the foot and one for the ankle. But $11K? Are they kidding? I've never had an MRI cost more than like $1,400. I told her that now I'm really, REALLY sick. I'm gonna fight this. Eleven grand for an MRI. They're freakin' out of their minds. Anyone else get hammered like this for a stupid test? Goddam, my ankle wouldda healed without the MRI, really. I'm feeling kind of nauseous now.
But, my ankle is feeling better. My flare is broken. And, life is good.
 Signature Di (....but still stressin' over the $11K)
zinkadoodle at gmail dot com www.pbase.com/di www.dustydoggie.blogspot.com
Gwen Love - 04 Nov 2005 02:50 GMT Di, an MRI of my shoulder last December was $900.00. I can't imagine anything costing $11,000. I don't blame you for contesting it; I would too. Thankfully Medicare plus my supplement pays everything except for my prescriptions. Gwen
>> {{{{{Di}}}}} >> [quoted text clipped - 26 lines] > But, my ankle is feeling better. My flare is broken. And, life is > good. Jo Firey - 04 Nov 2005 04:10 GMT >> {{{{{Di}}}}} >> [quoted text clipped - 26 lines] > But, my ankle is feeling better. My flare is broken. And, life is > good. They have got to be kidding. I've had tons of MRI's. (No more due to cochlear implant, but we MRI'd damn near everything before that just in case) I don't think I've ever had one billed over $2,500 and that was with contrast. Plus insurance didn't allow anything near that and if I had a co-pay it would be based on what the insurance allowed, not the fantasy amount they bill.
Jo
DianeW - 04 Nov 2005 05:47 GMT I was charged 14K for two MRI's once -- one brain and one neck. But that was at Mayo Clinic in Jacksonville. I couldn't believe it! But I have noticed that the last two MRI's I had were higher priced than usual. I thought it was because of the place I've been going to instead of the hospital.
I'm glad you are feeling in better spirits today Di ---- HUGS!!!!! Diane W
Nann Bell - 05 Nov 2005 02:53 GMT > Anyway, I was feeling great until I got a call from the hospital billing > department. Seems my copay for the MRI on my ankle and foot is $888.00. [quoted text clipped - 8 lines] > hammered like this for a stupid test? Goddam, my ankle wouldda healed > without the MRI, really. I'm feeling kind of nauseous now. Don't pay nuttin' until you get the statement from your insurance company! I don't believe anyone's estimate of my co-pay (unless it sounds really right) until I check it out with BCBS. Sometimes, I don't even believe them and the customer service rep gets to talk to me!
(and my neck MRI two years ago was ~$700, forget what our co-pay ended up being, but that's certainly more in line with your previous costs for MRIs!)
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
|
|
|