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Medical Forum / Diseases and Disorders / Arthritis / November 2005

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frustrated once again

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Becky - 29 Oct 2005 17:57 GMT
Well I had my 2 month visit with my RA since I have been on enbrel. He
seemed to be so happy that I looked good, said that my hands weren't
swollen, well they never have been. I told him about my legs and calf
muscles are aching so much and could it be the shot, he said no, try to
exercise more, said my hips were bursitis and get a cortisone shot again in
2 weeks, the first one hasn't done much, and told me to come back in later
December and up the mtx to 17.5.  I have been on the enbrel 9  shots now,
and the muscle aches started about the 3 shot but he does not feel it is
related at all. I am not sure.
Does anyone have experience with this?  I would love to find something that
would help me with the muscle pain, I am not able to hardly do anything the
muscle pain is so intense.
Thanks
Becky
Skip - 30 Oct 2005 00:20 GMT
I'd be tempted to ask him if he knows the dfference between hearing and
listening.  Others here are well versed with embrel, I can say if it keeps
hurting that much, don't wait until December to go back.
In the meantime, here's sending a hug!

Skip

> Well I had my 2 month visit with my RA since I have been on enbrel. He
> seemed to be so happy that I looked good, said that my hands weren't
[quoted text clipped - 10 lines]
> Thanks
> Becky
diclidophora@yahoo.co.uk - 30 Oct 2005 12:18 GMT
Becky.

Yes I do.
I get a lot of pain, knees, shoulders and muscles around those joints.
I don't seem to have got a totally satisfactory answer yet.
I also take enbrel.

Peter

> Well I had my 2 month visit with my RA since I have been on enbrel. He
> seemed to be so happy that I looked good, said that my hands weren't
[quoted text clipped - 10 lines]
> Thanks
> Becky
Charrlygrl1 - 31 Oct 2005 18:55 GMT
Hi Becky,
Sorry you are still in so much pain.
I am on Enbrel,(also on prednisone, azulfidine, 20mgs of MTX per week,
8 pills, and ultram for pain )and I have lots of problems with muscles
in my calves (in the back, like those leg cramps that wake you up
during the night?), my forearms, shoulders, etc...

I was also diagnosed with fibromyalgia about a year after the first
arthritis problems started (I have ankylosing spondylitis). My RD seems
to attribute a lot of my muscular problems to my fibro.  I also have
lots of problems with my achilles tendons-plantar's
fasciiitis-inflammation where the tendon inserts into the bone. I also
experience pretty bad back spasms at times.

For me, it did take about 3 months to get the full effects of the
Enbrel.
I doubt this helped you at all, (sorry!) but these have been my
experiences,
Char
Squirrely - 01 Nov 2005 07:31 GMT
Becky,

I am wishing you a better outcome than this. I am sorry things are not
working out for you. Do you have FMS, asking because of the muscle pain you
are saying about.

I feel for you and hope things settle back down soon.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Well I had my 2 month visit with my RA since I have been on enbrel. He
> seemed to be so happy that I looked good, said that my hands weren't
[quoted text clipped - 10 lines]
> Thanks
> Becky
Becky - 02 Nov 2005 02:40 GMT
Thanks to everyone for the replies, yes I was diagnosed with first
connective tissue then they changed it to FM then about 5 years later they
threw in the RA diagnosis.  It is very frustrating. To top it off tonight
when I took out the enbrel the needle had all been bent I didn't notice that
when I got the box, guess I should look at those carefully when I pick them
up. Had to really jam it since some of hte point was gone, hope it was okay
to use it.
Thanks again for the replies it helps to know others are going thru a lot of
the same.
Becky
> Becky,
>
[quoted text clipped - 18 lines]
>> Thanks
>> Becky
Squirrely - 02 Nov 2005 10:15 GMT
Thanks Becky for responding about the fms. I am having brain problems
lately. Can't remember anything let alone who has what.
I am sorry you have to deal with fms too. I also have it so I know what heck
you go thru with it.

I don't know about the needles thing. I hope it did ok. It is a shame that
they don't check to make sure everything is ok before they give it to you.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Thanks to everyone for the replies, yes I was diagnosed with first
> connective tissue then they changed it to FM then about 5 years later they
[quoted text clipped - 28 lines]
>>> Thanks
>>> Becky
 
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