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Medical Forum / Diseases and Disorders / Arthritis / October 2005

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Larynx and Carotid involvement?

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Ray - 17 Oct 2005 23:26 GMT
Does anybody have any Larynx and Carotid involvement that does not respond to Prednisone?  Since I can't take NSAID's (even COX-2) because of my stomach, my Doc doesn't have any ideas.  Presently take Enbrel which had been helping inflamation.

Ray
RoseB - 18 Oct 2005 00:48 GMT
>Does anybody have any Larynx and Carotid involvement that does not respond to Prednisone?
 Since I can't take NSAID's (even COX-2) because of my stomach, my
Doc doesn't have any ideas.  Presently take Enbrel which had been
helping inflamation.

>Ray

I have laryngeal involvement, and am generally hoarse. I too am on
enbrel, but that involvement has not changed. What does work is when I
do not use my voice. When I am not teaching the hoarseness improves.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Alison DeLorme - 18 Oct 2005 01:44 GMT
I don't have any solutions, sorry. But it's nice to know there are others
out there with this. For a long time I didn't connect the RA to my throat
and vocal problems. And then I began my masters for speech pathology. After
learning about the oral and vocal anatomy it dawned on me that the RA was
likely the culprit. I also realized the the problems I had with my ears were
likely from mild RA flares as well...

anyway, just letting you know you're not alone. I'm on humira, mtx, and
advil. It helps for the most part. In terms of laryngeal issues, I get them
only occasionally now...

alison
RoseB - 18 Oct 2005 02:24 GMT
>anyway, just letting you know you're not alone. I'm on humira, mtx, and
>advil. It helps for the most part. In terms of laryngeal issues, I get them
>only occasionally now...
>
>alison

In your SLP training, did you learn about anything that would help?

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Alison DeLorme - 19 Oct 2005 01:16 GMT
>>>In your SLP training, did you learn about anything that would help?<<<

unfortunately, no.  At least not for RA related. For those with typical
swelling due to abuse/overuse, there are programs to train people to become
better speakers - reduce the vocal abuse: keeping volume down, projecting
the voice, using the pitch that's right for you, etc. But for people with
RA, it's more an issue of immune response, just like any other part of the
body. It's related to the cartilage and tendons. Immediate rest is initially
good. But like any other joint in the body, underuse in an RA patient can
cause even more problems.

alison
RoseB - 19 Oct 2005 02:07 GMT
>>>>In your SLP training, did you learn about anything that would help?<<<
>
[quoted text clipped - 8 lines]
>
>alison

Thanks Alison.
I think that  for me using the sound field system is a necessity to
save my voice, but I find it difficult because we have the microphones
attached to the headset rather than the kind that fits around the
neck.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Adelle - 18 Oct 2005 04:47 GMT
Hi Alison;

Could you please say a bit more about your ear involvement? Maybe in a
separate thread? I have bouts of tinnitus (also TMJ issues) and wonder how
much is the teeth grinding and how much is the RA.

Adelle

>I don't have any solutions, sorry. But it's nice to know there are others
>out there with this. For a long time I didn't connect the RA to my throat
[quoted text clipped - 8 lines]
>
> alison
 
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