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Medical Forum / Diseases and Disorders / Arthritis / October 2005

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re:any positives

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Stuart - 10 Oct 2005 16:46 GMT
Thanks all for your responses to my question.  Broadly, theres not much on
the sunny side of RA then.
One thing still puzzles me though. From what ive read, my immune system
thinks that my joints are attacking me, so is sending its forces to attack
them.  I have had a stinking cold for the last week or so, so why isnt my
immune system attacking that aswell?  Is it because its too busy attacking
my joints??  Also, am I now more susceptible to other infections.?  There is
a scare on now in the UK about bird flu, and people with 'some serious
diseases' are being encouraged to get a flu jab.  Would I be in that
categorie, or doesnt RA lower your resistance to catching airborne diseases?
(Dont worry, I get to see my rheumatologist on the 18th Oct for the first
time, so he/she can answer my barrage of questions!)
Thanks again all,
Cheers
Stuart
Harvey R. Stone - 10 Oct 2005 19:02 GMT
> Thanks all for your responses to my question.  Broadly, theres not much on
> the sunny side of RA then.
[quoted text clipped - 12 lines]
> Cheers
> Stuart

Hi Stuart,    Good thoughts,,, good questions and the answer to one of them
is yes....  I just got through being treated for testing positive for TB.
Airborne bacteria at its worst.
   I found out a long time ago that I needed to make myself a list of my
questions about RA and our world.
I also found out that my doctor liked the fact that I just handed it to him
when he walked in.
Harv
stuart - 11 Oct 2005 23:01 GMT
>> Thanks all for your responses to my question.  Broadly, theres not much
>> on the sunny side of RA then.
[quoted text clipped - 21 lines]
> him when he walked in.
> Harv
Harvey, you have been through some stuff.  Thanks for taking the time to
give me some pointers.  You mentioned previously that you had RA since you
were 38 but didnt get it under control until you were 45.  Is that because
you were not diagnosed until you were 45, or did it take that long to find
the right drugs to help you?
Stuart
Harvey R. Stone - 12 Oct 2005 16:33 GMT
> Harvey, you have been through some stuff.  Thanks for taking the time to
> give me some pointers.  You mentioned previously that you had RA since you
> were 38 but didnt get it under control until you were 45.  Is that because
> you were not diagnosed until you were 45, or did it take that long to find
> the right drugs to help you?
> Stuart

Hi Stuart,,,,  I found out a long time ago that people can be their own
worst enemy about a great many things in this life.   You will find that a
great many people in this newsgroup are here to share what has taken place
in their life with arthritis and with the things that we all live with in
our daily life.    38 to 45 was my family doctors fault.   He put me on
Naprosyn (500mg prescription) and I took that up to the max amount per day
to keep working and living with the pain of RA.   At 45, he finally threw up
his hands and sent me to a RD who on the first appointment put me on gold
shots and a strong steroid for RA.   That was 3 RDs ago and back then we did
not have the choices we have today.   Methx was just coming into favor as a
prescription with RDs willing to try it on their patents.  My first RD was
not one of them.  My 2d RD was.   The first RD retired and my insurance
through my company stopped paying for gold shots which caused my 2d RD to
put me on Methx and changed my steroid to prednisone along with a whole
string of NSAIDs trying to find one that worked.
          It took a few years for me to realize that a lot of people wasted
quite a few joints on the latest rub on not to mention all the money wasted
trying to find an easy way to live with RA.   There is no easy way,,,, cheap
way,,,, and the disease marches on while we play games.   One day, our
arteries and veins no longer take some of the procedures a person can do to
fight RA and we start to loose the battle to be sort of normal as we live
with RA.   spelling- Prosorba filtering of the blood comes to mind.
Kitty,,, KJ and others.
       As far as myself,  I have come to realize how lucky I am with my
disease and how well each of my DMARDs has worked to battle what RA does to
a person because I have been able to change when one of them stops working
for me and I have an RD that is willing to change and sees the need.   I
have been pretty close to the bottom at one time as far as attitude and
depression while trying to get my four kids raised and on their own and
living with pain with each step or each grasp or each set of stairs that
seemed to have no top.   I also came to realize that other people fight the
same battles, live with the same kind of pains and have to live with the
fact that what they have is not going to let them do many things in life.
The secret to it all is to find the things you can do and do them well while
helping others to see how they can apply this to their life.    The rewards
for this effort are far more than what some people do that can not stand the
truth or being told the truth such as the fear of DMARDs or salesmen trying
to make a buck off of people in pain.   As you have noticed,  we have quite
a few good people in this newsgroup that do what they can to help people
live with Arth....and do a much better job of doing what is called "Support"
in their own way.   Many times I am going to tell you what I think or what I
have lived with even if you do not want to listen and sometimes that is not
productive.  So it goes.

Harv

RoseB - 10 Oct 2005 20:47 GMT
I think that is basically what happens- the immune system is so busy
mounting an attack against "self" that there are no troops ready to
send when one gets something else like a cold. That is why these other
infections are somewhat opportunistic.

You would probably be a good candidate for the flu shot, and also one
called pneumovax against pneumonia.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
stuart - 11 Oct 2005 23:01 GMT
Thanks Rose, I will certainly push to get the jabs
Stuart
>I think that is basically what happens- the immune system is so busy
> mounting an attack against "self" that there are no troops ready to
[quoted text clipped - 8 lines]
>
>     Please remove "Ima" to reply.
Jo Firey - 10 Oct 2005 22:10 GMT
> Thanks all for your responses to my question.  Broadly, theres not much on
> the sunny side of RA then.
[quoted text clipped - 12 lines]
> Cheers
> Stuart

Many of us find that if we get a cold or the flu, at least initially our
joints will be a little better while our immune system is busy elsewhere.
It still takes it a while to gear up to attack a cold or the flu.

And while I am concerned about the next pandemic, I think right now it is
the scare du jour.

If as some have suggested this is related to the 1917 pandemic, it isn't
even really the flu.  And one report even indicated it was more dangerous
for young healthy people than for others.

Jo
Charrlygrl1 - 11 Oct 2005 17:29 GMT
Hi Stuart,
I hope things go well on your RD visit.
I don't remember the specifics of your first post, but your Rd will
tell you, if you do have RA, most of the drugs used to treat it are
immuno suppressents,
(sp?), which will, of course, supress your immune system. Before I
started on Enbrel my Rd required me to take a TB test and to get a flu
shot. Once you are on the RA meds, if you do get a flu shot it needs to
be one without a live virus (I believe the inhaled vaccine has live
virus, while the shot does not...if I remember correctly).
Also, every one of my arthritis drugs has a warning saying that I will
be more susceptible to infection by taking the drug.
I have gone a little germ crazy as a result (who wants to get a cold
and then have to go off of the arthritis meds which make it possible
for me to even get around). I keep Lysol in my desk at work and am
constantly spraying phones and keyboards. Door knobs too, LOL.
I usually will write down a list of questions and issues for when I see
my RD, that way I don't forget anything.
I hope that your visit goes well, and please let us know how you make
out,
Charlene
stuart - 11 Oct 2005 23:07 GMT
> Hi Stuart,
> I hope things go well on your RD visit.
[quoted text clipped - 17 lines]
> out,
> Charlene

Hi Charlene, so your a female version of Niles then! (Frasier).  I already
have a nice long list and i am adding to it all the time.  I will let you
know how I get on, thanks for the concern.
Stuart
stuart - 11 Oct 2005 23:07 GMT
>> Thanks all for your responses to my question.  Broadly, theres not much
>> on the sunny side of RA then.
[quoted text clipped - 25 lines]
>
> Jo
I have heard that also Jo, that healthy people aged 16 to 35ish are most at
risk.  Bad news for them but so long as the aim is slightly off us for a
while.....
Charrlygrl1 - 12 Oct 2005 16:27 GMT
Stuart,
Ha!!!! A female version of Niles??? LOL!!!
I certainly hope that I at least look better than the ugly vivid
picture of a female Niles that I have in my head right now....why can't
I stop laughing???
Char
 
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