My doc, Mittie Doyle, can't be reached since Katrina hit us here in New
Orleans.
I'm 71, have had rheumatoid arthritis for about 12 years, in great
health GENERALLY. 5 years ago, methotrexate did wonders for me once the
dosage was increased to the max, 25mg (10 pills). Actually, I was doing
great on injections of 25mg .. but then the injectable form became
unavailable... which happens to be when my problems started.
Since March... 7 months ago... I started getting weak knees and some
swelling and pain in my fingers. Dr. Doyle was about to add Enbrel to
my meth... but alas, the storm stopped that.
I was able to get another 50 pills while a refugee in Austin TX.
On my own, I have increased the dosage to 11 pills (27.5 mg / wk) two
times... and it seems to be better.
I am reasoning that my size (200 lbs, 6'4") should allow a higher
dosage. PLUS I have never had any problems with the blood work at 25
mg's/wk.
Is this fairly safe? Should I as the Red Cross to set me up for testing
right away? What tests? Should I get ANY Rheumatologist I can find to
check me out here, or can I keep looking for Dr. Doyle for a while?
If anyone could help me find Mittie, I would appreciate it!!!
TIA
Reggie Dawes
Mary Z - 07 Oct 2005 18:00 GMT
I was on mtx up to 38 mg, but I tolerate the stuff really well. Many
Drs say 25 mg is the max dose, but some go higher. Based on my personal
experience If your liver was handling the 25 ok you are probably ok but
discuss with a Dr as soon as possible. -- MZ
Walt Hanks - 07 Oct 2005 18:13 GMT
First, let me offer my condolences for the trauma you have experienced.
Next, I should say that you should never increase your dose without medical
approval. That said, MTX in pill form is known to be less effective than
MTX in injectable form (which is widely available now), so the bump in dose
would be a reasonable expectation. Just be sure to have blood work done
regularly.
Once you see your rheumatologist again, adding Enbrel will probably be a
better choice, or switching back to injectable. But for now, just make sure
your liver is OK.
BTW, while 25 mg/wk is the maximum dose commonly used for RA, much higher
doses are used for PA; and of course, doses for cancer patients are many
times what you are taking.
Walt Hanks
> My doc, Mittie Doyle, can't be reached since Katrina hit us here in New
> Orleans.
[quoted text clipped - 27 lines]
>
> Reggie Dawes
Charrlygrl1 - 07 Oct 2005 20:24 GMT
Reggie,
I would also like to offer my condolences for what you have been
through.
I do think that having your liver monitored would be a good idea, until
you can find your old doc, or a new doc.
I hope that everything works out ok,
Charlene
RoseB - 07 Oct 2005 21:50 GMT
I think the others have given you excellent advice. I just wanted to
semd my commiserations to what you have been th rough. I can not even
imagine what that would have been like. I admire your strength. I hope
that you can find your Rd again soon.
Rose @}>->--
Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
RegiDaws - 08 Oct 2005 11:57 GMT
And I am grateful to all of you, as usual.
My refuges in Jackson MS, Austin TX, and now Metairie have been
wonderful. The goodness of people always amazes me. People, even within
the big corporations, are letting their hearts show.
R.