Medical Forum / Diseases and Disorders / Arthritis / October 2005
Prednisone..when the heck does it let you sleep
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jo - 03 Oct 2005 20:44 GMT Well am doing great on this med..pain is at an all time low, am also able to unclench my left hand for the first time in 2 years.. House is clean and moral is high..but I think I need more than 3 hrs a night of sleep. Wow my family keeps teasing me they'r going to take my pills away from me....thank to you all who strongly supported taking this med I turned 50 yesterday and I feel better than I did at 45.. Any suggestion on how to achieve that great, all nesty, feeling of needing to go to bed..
johnie - 03 Oct 2005 23:15 GMT well jo, the old demon has got you now.>g< Most likely you will be able to get rid of the pred once you find a DMARD therapy that works amd with a little luck keep some of those energy levels. Unfortunately, i have not responded well to any DMARDS so i have been stuck with the pred for about 15 years this round. Long term pred use can be very destructive (so it goes).
As for sleep, you will in general need less for awhile. Enjoy it. It won't last. I think you mentioned that you were taking an afternoon dose. If so stop that and take all of your pred between 5 and 7am. That coincides with your normal adrenal release and will not effect your sleep nearly as much.
Good luck and enjoy the reprieve from 'arthur'. I am a bit envious. I remember the feeling from that first round of pred all too well... It was an extremely spiritual experience.>bg<
johnie
> Well am doing great on this med..pain is at an all time low, am also > able to unclench my left hand for the first time in 2 years.. [quoted text clipped - 5 lines] > Any suggestion on how to achieve that great, all nesty, feeling of > needing to go to bed.. Harvey R. Stone - 04 Oct 2005 03:43 GMT > well jo, the old demon has got you now.>g< Most likely you will be able > to get rid of the pred once you find a DMARD therapy that works amd [quoted text clipped - 14 lines] > > johnie Hi Jo,,,, johnie has told it just like it is. Please pay attention about taking a heavy hitter DMARD if you have inflam.arth.... Like Kitty, and johnie there are some people that their body just will not put up with DMARD therapy and must make it on steroids. You have read the worries we have from taking too much prednisone for too long. Just like johnie said,,, I had to move my afternoon dose back to the early and late morning to be able to sleep well at night. I had to smile at your joy in being able to do some things again. So many of us have been there. I have a full months supply just setting there because I do not take it anymore but I have it if I need it. Please do not over do.... your muscles and tendons will pay you back. My right knee was like your hand. I just would not bend it enough to make the curb or step and down I would go. Sooo embarrassing. Good luck with it all and keep the pressure on for medicine that will let you get off prednisone. Harv
Squirrely - 04 Oct 2005 01:14 GMT Jo,
I sure hope you keep feeling better all the time. Happy Belated Birthday to you. You take care and know that I am thinking of you. I hope you get some good sleep soon.
The only thing that makes me sleep half way decent is I take an ativan before bed. That knocks me out in about an hour after taking it and then keeps me asleep for about 5-6 hrs.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
Jo Firey - 04 Oct 2005 01:22 GMT > Well am doing great on this med..pain is at an all time low, am also > able to unclench my left hand for the first time in 2 years.. [quoted text clipped - 5 lines] > Any suggestion on how to achieve that great, all nesty, feeling of > needing to go to bed.. Welcome to my world. (And your family probably isn't teasing)
I don't recall how much pred you are taking or how long you might have to take it. I know if I take a high dose burst - usually for my asthma, I will sleep plenty when I get back off it. Like a zombie.
What I truly hate is to be brimming over with pred energy and too ill at the same time to do much of anything with the energy. Except to plan recipes in my head for all the things I'm going to cook as soon as I'm well enough to stand up.
If you are on a long term fairly low dose, sleep will eventually catch up with you as your body adjusts.
Jo
Alison DeLorme - 04 Oct 2005 02:26 GMT glad to seethe pred is working for you. I know many people have the best luck with taking pred in the early morning, basically letting it wear off throughout the day so that at bedtime they can sleep. I was the opposite. I found the best time was just before bedtime (11pm or so). I would fall asleep before the hyper-state would kick in and I never had any problems staying asleep - as long as something (like my 3 children) didn't wake me in the middle of the night. If they did, then I often had a hard time going back to sleep. Another benefit to the pred at night was that it helped keep the morning stiffness at bay. My pred timeclock ran about 20 hrs - meaning I was 4hours short for 24hr relief. But taking it at night, the slow down would be in the late evening time, when I would be resting anyway. And since I am always more limber and hurt less at night then the morning, it worked well for me.... it's worth a try if the early morning dose doesn't work for you...
alison
spodosaurus - 04 Oct 2005 03:50 GMT > Well am doing great on this med..pain is at an all time low, am also > able to unclench my left hand for the first time in 2 years.. [quoted text clipped - 5 lines] > Any suggestion on how to achieve that great, all nesty, feeling of > needing to go to bed.. Stillnox :-)
I'm only on 15mg a day and I haven't slept more than 3 continuous hours in 7 to 8 weeks.
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jo - 04 Oct 2005 11:59 GMT am now on 20mg a day for the next 4 days...I don't have a Rheum but my gp prescribed the pred..so I'll try to contact her today. I had a doosey of a panic attack last night but am sure its due to lack of sleep. So this am I took 10mg at 6am, am thinking of taking the other 10mg at 8am, but I wonder if its too soon after the first dose. Harvey, I take 1/2 tab of clonazepam (0.5mg) but it sure didn't work last night....so this am I feel flushed and strung tigher than William Tell's bow... Hope that my gp finds a Rheum so I can look into this DMARD therapy I have read about here over the last couple months. Stillnox, what do you do with the other 21 hours in your day.:-))))))) Hugs to you all and wish for a gimpless day..I'm going to go see if there's dustball under the fridge :-))))))))))
Harvey R. Stone - 04 Oct 2005 14:38 GMT > am now on 20mg a day for the next 4 days...I don't have a Rheum but my > gp prescribed the pred..so I'll try to contact her today. I had a [quoted text clipped - 9 lines] > Hugs to you all and wish for a gimpless day..I'm going to go see if > there's dustball under the fridge :-)))))))))) Oooh, I hate that kind of feeling. The last time I felt that way, I had jury duty the next day and did not sleep well the night before. My right knee was big as a grapefruit and the pad behind my toes on my left foot felt like I forgot an icepick in it. That was a long day and so was the next one. I had taken extra prednisone to try to get through all those tunnels and stairways a person has to use in downtown Houston. I was wired and it is a good thing they took the DAs offer and went to jail. I was going to bring my own rope. LOLOL
I think you need to get with your GP and let the doctor know how you feel. That may be too much pred for you. Please push for an appointment with an RD.
Harv
Mary Z - 04 Oct 2005 14:47 GMT > So this am I took 10mg at 6am, am thinking of taking the other >10mg at 8am, but I wonder if its too soon after the first dose. If you do a query on this Newsgroup I will bet you find most people take the entire dose in the AM. taking prednisone in the evening will definitely interfer with your sleep. You need to push your GP into seeing a Rheumatologist, you have had this for months and they don't have you on a DMARD yet? Doesn't sound like proper treatment to me.
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Charrlygrl1 - 04 Oct 2005 21:18 GMT Hi Jo! I'm soo glad that you're feeling better. However, prednisone is not something that you want to be on for very long, if there is an alternative that works for you. DMARDS, NSAIDS or biologics...or in my case some of each! Prednisone certainly makes you feel better, but it does nothing to stop the progression of the arthritis (or whatever the problem may be). Again, I am glad that you're feeling better! Charlene
joQC - 04 Oct 2005 21:40 GMT My understanding is that I will do 15 mg for 5 days beginning Friday, then 10 mg for another 5 days, then 5mg beginning on the 17 of october but I see no stop date on the calendar my phamarcy gave me. So if I did 5 days on 5mg and stopped on Oct 21 , I will have been on Pred for 25 days and taken a total of 325 mg of Pred......as i said in earlier post I went to see the GP but she said to return sometime at the end of October when I was down to 5mg. Tks to all of ((((you)))) for taking the time to respond and give of your own experience, its extremely helpfull in removing fear of meds.... In earlier post someone noted " Fear the disease not the Meds " I thought that's a good way to think outside of the box again thks :-)))))
spodosaurus - 05 Oct 2005 09:31 GMT > Hi Jo! > I'm soo glad that you're feeling better. However, prednisone is not [quoted text clipped - 3 lines] > Prednisone certainly makes you feel better, but it does nothing to stop > the progression of the arthritis Hmmm...doesn't the anti-inflamatory effect of prednisone reduce the progression of inflamatory damage to the joints? Pred also reduces lymphocyte counts and suppresses their function, and in RA it's the T-cells that are actively attacking the joints.
> (or whatever the problem may be). > Again, I am glad that you're feeling better! > Charlene
 Signature spammage trappage: remove the underscores to reply
I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/
Jo Firey - 04 Oct 2005 22:20 GMT >> So this am I took 10mg at 6am, am thinking of taking the other >>10mg at 8am, but I wonder if its too soon after the first dose. [quoted text clipped - 5 lines] > don't have you on a DMARD yet? Doesn't sound like proper treatment > to me. I've always either taken it all at once first thing in the morning, or else very late at night. Most of my doctors have agreed with this. Yes it only gives you 20 rather than 24 hours coverage, but you gotta sleep sometime.
Jo
Charrlygrl1 - 05 Oct 2005 19:01 GMT Spod, Perhaps I should've phrased that differently, you are right. Prednisone does have immuno-regulatory properties as well as being a strong anti inflammatory. However, since long term use at high dosages is so dangerous, maybe I should've said that unless there is no other choice, prednisone is not the primary treatment of choice for erosive arthritis, (though for those who don't respond to DMARDS, NSAIDS, or cannot take them for whatever reason, sometimes there is no choice). Following is a quote from John Hopkins:
Corticosteroids have both anti-inflammatory and immunoregulatory activity. They can be given systemically or can be injected intra-articularly. Corticosteroids are useful in early disease as temporary adjunctive therapy while waiting for DMARDs to exert their antiinflammatory effects. Corticosteroids are also useful as chronic adjunctive therapy in patients with severe disease that is not well controlled on NSAIDs and DMARDs. The usual dose of predinisone is 5 to 10mg daily. Although prednisone can be started at higher doses (15 to 20mg daily), attempts should be made to taper the dose over a few weeks to less than 10mg daily. Once started, corticosteroid therapy is very difficult to discontinue and even at low doses. Tapering of prednisone should be done slowly over a few weeks and symptoms may reoccur with small changes in the prednisone dose.
Thanks for pointing out my error, Char
Squirrely - 14 Oct 2005 15:17 GMT Jo,
Happy Belated Birthday.
I use Ativan at night to sleep and also for the anxiety that I suffer because of the thyroid stuff. It helps me sleep.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> Well am doing great on this med..pain is at an all time low, am also > able to unclench my left hand for the first time in 2 years.. [quoted text clipped - 5 lines] > Any suggestion on how to achieve that great, all nesty, feeling of > needing to go to bed..
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