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Medical Forum / Diseases and Disorders / Arthritis / October 2005enbrel side effect?
Has anyone who has been on enbrel had problems with muscle aches in your legs? After about shot 3 or 4 it seems my legs started achy really bad, and now it is in my calf's, knees, feels like you have exercised and walked up lots of hills but haven't they sure ache at night. Thanks Becky Hi Becky, I don't know if it's from the Enbrel or not, but I have pains in the back of both calves-it feels like they are on the verge of cramping, (like those nasty leg cramps that sometimes wake you up at night). I have been on Enbrel a little over a year now, and for me, the leg tightness only started up a month or two ago. I have found that laying my calves over the heating pad at night helps a little bit. Maybe it would help you as well? Charlene Hi Becky, up till now I am not experiencing many side-effects from the 50mg dose. I think. The only thing I did notice the first time, was a kind of "rush' (don't exactly know how to describe it) through my body, it sort of felt like it took away my breath for a couple of minutes and felt very aware of my heart beating. A bit weird, like the wrong kind of excitement. 2nd time was more okay. I also do have a very typical kind of muscle-ache in my right shoulder and neck and it will not go away, feels like the time I broke my collarbones (yes, both at the same time in motorcycle accident), but I honestly couldn't say if this is because of the Enbrel. Slipping on the stairs 2 days ago didn't make it any better. Last monday I had to go in for bloodtests and somehow it all went wrong, blood was spraying from the vain on nurse, myself and the floor, then she tried my left arm, same story, I could feel myself fading and passing out! Never ever experienced this before. She just couldn't keep the needle in because the bloodpressure kept pushing the needle out. Anyway, apart from the fatigue that's still there and overwhelming, I feel reasonably good on the Enbrel again. I think I remember something in the prescibing info about Enbrel possibly doing something to muscles, will look into it later, you should probably best see your rd about this, I am going to see mine next monday and tell him about the bloodtesting thing. I run a test on my bloodpressure and pulse but think it looks pretty normal. Will have rd do that anyway while I'm there. Good luck and take care Nikki > Has anyone who has been on enbrel had problems with muscle aches in your > legs? After about shot 3 or 4 it seems my legs started achy really bad, and > now it is in my calf's, knees, feels like you have exercised and walked up > lots of hills but haven't they sure ache at night. > Thanks > Becky Hi Nikki, Thanks for the advice, I did call me RD and he is in south America on vacation, so called the my primary care doc and he is out due to family crisis till Oct. 10th, so I called the enbrel hotline, they said to call me doctor andt hat was it, So guess I will wait till next week. It maybe related to the orthodics that I was wearing and then quit, and now I am trying again, but the pain in my knee is really bad, and seems to be shoe related I think, the muscle aches seem to be really bad in the am and then they get better as the day goes on then come again at night. Hard to figure with me, I swear I am here on earth for all the physicians to have job security! Thanks Becky > Hi Becky, > [quoted text clipped - 43 lines] >> Thanks >> Becky Becky, I don't think Enbrel effects the muscles in the way you describe, it's not in the 2 lists with side effects that I found. Inflammation of e.g. veins is a possibility amongst others, but it sounds more like it is an orthopedic problem. Years ago my left knee was so bad I could bend it almost backwards, it was very swollen all the time and very sore. I used crutches to walk and a wheelchair when needed, my rd sent me to an orthopedic dr to have special shoes made. This doctor told me he thought maybe it wasn't rheumatic, but just the (slight, 2,5 cm.) difference in length between my legs. That it is a very common thing, so I did go for the ortho shoes with an inlay 2,5 cm higher for my left leg, and within weeks, away went the pain in my knee and ankle! Stupid me; I didn't think of this before when you mentioned the pain in your calves and knee. I still have to make sure I look after the knee though, as it has suffered some damage with the constant swelling before I had the ortho shoes, but with these shoes, I manage to walk for appr. 50 minutes to an hour on good days without hurting the next day. Anyway, for your sake, I do hope it's the same for you! > Hi Nikki, > Thanks for the advice, I did call me RD and he is in south America on [quoted text clipped - 19 lines] >>>Thanks >>>Becky <snip> Last monday I had to go in for bloodtests and somehow it all went wrong, blood was spraying from the vain on nurse, myself and the floor, then she tried my left arm, same story, I could feel myself fading and passing out! Never ever experienced this before. She just couldn't keep the needle in because the bloodpressure kept pushing the needle out. <snip> Nikki very scary, ((((((nikki)))))). an artery will spray, because it has the force of the heart's pumping function behind it, to get oxygenated blood to and through all the distant and very tiny capillaries in the body. but i've never heard of a vein actually spraying. the return trip of oxygen depleted blood, in veins, back to the heart has much reduced force behind it. this experience sounds like you had an incompetent lab tech/nurse, who kept hitting arteries, which can be dangerous. did you wind up with sub-dermal tissue rapidly swelling at and around the blood draw sites? boy, i think i would try to remember who that lab tech/nurse was and avoid her at all costs in the future! i might even report her, for the sake of other patients. out of curiosity, what was your blood pressure reading that day, nikki? kate Becky wrote: > Has anyone who has been on enbrel had problems with muscle aches in your > legs? After about shot 3 or 4 it seems my legs started achy really bad, [quoted text clipped - 3 lines] > Thanks > Becky > <snip> > Last monday I had to go in for bloodtests and somehow it all went wrong, [quoted text clipped - 25 lines] > > kate I've never heard of such a thing and I've got about as much experience with having blood drawn and IV's started as is possible for one person. Not even when I was on blood thinners for clots. Jo I get a lot of pain, mainly knees and shoulders. I also have a tendency to get cramp in my calves. While my knees have hurt ever since I got RA, I think the pain is worse than it should be if the RA is under control I have asked about Enbrel and pain, but have not so far had an answer which I feel is totally convincing. I am coming to the conclusion that, whatever my inflammatory indicators say - and they are low - my RA is incompletely controlled. Peter >I get a lot of pain, mainly knees and shoulders. I also have a tendency > to get cramp in my calves. While my knees have hurt ever since I got [quoted text clipped - 3 lines] > I have asked about Enbrel and pain, but have not so far had an answer > which I feel is totally convincing. Hi Peter,,, I hope you understand that no one here can tell you what your bodies reaction to a medicine is going to be. I can only tell you that Enbrel has almost completely controlled my RA but so did Remicade for the short time I used that. >I am coming to the conclusion that, > whatever my inflammatory indicators say - and they are low - my RA is > incompletely controlled. > > Peter I think your conclusion is correct and something your RD can help you with by adjusting what you take and that includes your calves and cramps. Harv I get a lot of pain, mainly knees and shoulders. I also have a tendency to get cramp in my calves. While my knees have hurt ever since I got RA, I think the pain is worse than it should be if the RA is under control I have asked about Enbrel and pain, but have not so far had an answer which I feel is totally convincing. I am coming to the conclusion that, whatever my inflammatory indicators say - and they are low - my RA is incompletely controlled. Peter I get a lot of pain, mainly knees and shoulders. I also have a tendency to get cramp in my calves. While my knees have hurt ever since I got RA, I think the pain is worse than it should be if the RA is under control I have asked about Enbrel and pain, but have not so far had an answer which I feel is totally convincing. I am coming to the conclusion that, whatever my inflammatory indicators say - and they are low - my RA is incompletely controlled. Peter PS. Sorry about the triplicate. Either Google or my ISP refused to respond to the first 2 entries Peter > <snip> > Last monday I had to go in for bloodtests and somehow it all went wrong, [quoted text clipped - 22 lines] > > thnx Kate, it did look scary but I just had no energy to make a scene, just wanted it to be over with asap before I would faint, which practically happened. I could feel myself go, had to sit on the chair facing the floor for a while and was then brought to a bed to lie down. They also gave me some drink because my sugarlevels had gone to a very low level. I spent 30 minutes in hospital until I felt fit enough to leave again. I don't exactly know what you mean by sub-dermal tissue (not me being stupid, just my lack of knowledge of english medical language). It looked a bit bruised (blueish) for a couple of days but now it's alright. Must've looked worse than it actually was. My blood pressure looke normal afterwards, a 137/81, which is a bit higher than usual, but then again, I walked home (15-20 minutes). 10 minutes later it was completely normal again, also pulse is okay, between 43 and 46, which is normal for me. I wouldn't know the nurses name, as I said, no energy, just make sure I will not have her help me next time. Also I wasn't feel well in the morning, before I went, just thought it was the usual fatigue so I never gave it a 2nd thought. Saw my rd last monday, he checked my puls and blood pressure and it was still okay. Thanks for asking and caring, Nikki >Has anyone who has been on enbrel had problems with muscle aches in your >legs? After about shot 3 or 4 it seems my legs started achy really bad, and >now it is in my calf's, knees, feels like you have exercised and walked up >lots of hills but haven't they sure ache at night. >Thanks >Becky Dont know how i missed this, but I would worry about a dvt I have had one and it was in the calf area and was very painful. The leg also was swollen, red and hard. Get it checked Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. > >Has anyone who has been on enbrel had problems with muscle aches in your > >legs? After about shot 3 or 4 it seems my legs started achy really bad, and [quoted text clipped - 11 lines] > > Please remove "Ima" to reply. |
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