Medical Forum / Diseases and Disorders / Arthritis / October 2005
This and That (A BIt on the Whiney Side)
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RoseB - 30 Sep 2005 19:19 GMT I am home from work this morning because I had an appointment with the travelling OTs from the Arthritis Society. I have not seen them in three years so had several issues to discuss.
I will get some working splints because I have been having wrist problems. I wore them twenty plus years ago, but not recently. Although my wrists are basically fused there are times when the additional support of a splint is needed.
She taped my fourth toes with velcro straps and will send me some that are made of a new material that has only become available. Although I can get my toes to lie straighter that way instead of riding up and over the baby toe, they are now numb and sore, so I do not think I can leave these things on too long.
She did some shoe stretching of my New Balance walking shoes to accommodate the bunions and toes that ride over each other. Once again the shoes felt fine for the first ten minutes or so, but then once again became unbearable, I think I am better off in sandals than a closed shoe.
And she measured me for a new silver ring splint, since mine has broken.
It is a valuable service that the Arth Society provides to those of us in rural communities. Due to cut backs they have not made the trip in recent years. That is unfortunate because this is a needed service, so I hope that the program will be reinstated.
I continue to be hoarse. My voice came back over the summer, and on the first day of school I was able to sing the national anthem. Boy, did that feel good! But that is about how long my voice lasted. Now I have difficulty talking on the phone, teaching, and there is no point in trying to sing. Yesterday one of my students had his birthday, and I felt really badly about not being able to lead in "Happy Birthday". Of course I tried- but the voice goes and no sound is produced.
I have had my larynx scoped several times, and the only thing they say is inflammation from RA and GERD and overuse. It till doesnt make sense because my RA is controlled, and so is the GERD. I do need to use my voice a great deal, but I try not to raise my voice unnecessarily. It would not matter so much if I were in a different profession.
So there it is- a bit whiney all the way through I suppose. Maybe I am in the pity party mood. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Gwen Love - 30 Sep 2005 19:54 GMT Rose, you are certainly allowed to have a pity party occasionally. And it looks to me as if you deserve it. Gwen
>I am home from work this morning because I had an appointment with the > travelling OTs from the Arthritis Society. I have not seen them in [quoted text clipped - 47 lines] > > Please remove "Ima" to reply. vickie b. - 01 Oct 2005 06:16 GMT Wow what a full life! I especially liked the national anthem and birthday song!
I did not know about the Arth Society. This is a great service especially to the rural areas.
Take care,
Vickie B.
Cindy - 02 Oct 2005 01:26 GMT (((((Rose)))))) You definitely deserve a Party now and again.. Cindy
>I am home from work this morning because I had an appointment with the > travelling OTs from the Arthritis Society. I have not seen them in [quoted text clipped - 47 lines] > > Please remove "Ima" to reply. d'huit - 02 Oct 2005 01:31 GMT I am home from work this morning because I had an appointment with the travelling OTs from the Arthritis Society. I have not seen them in three years so had several issues to discuss.
I will get some working splints because I have been having wrist problems. I wore them twenty plus years ago, but not recently. Although my wrists are basically fused there are times when the additional support of a splint is needed.
She taped my fourth toes with velcro straps and will send me some that are made of a new material that has only become available. Although I can get my toes to lie straighter that way instead of riding up and over the baby toe, they are now numb and sore, so I do not think I can leave these things on too long.
She did some shoe stretching of my New Balance walking shoes to accommodate the bunions and toes that ride over each other. Once again the shoes felt fine for the first ten minutes or so, but then once again became unbearable, I think I am better off in sandals than a closed shoe.
And she measured me for a new silver ring splint, since mine has broken.
It is a valuable service that the Arth Society provides to those of us in rural communities. Due to cut backs they have not made the trip in recent years. That is unfortunate because this is a needed service, so I hope that the program will be reinstated.
I continue to be hoarse. My voice came back over the summer, and on the first day of school I was able to sing the national anthem. Boy, did that feel good! But that is about how long my voice lasted. Now I have difficulty talking on the phone, teaching, and there is no point in trying to sing. Yesterday one of my students had his birthday, and I felt really badly about not being able to lead in "Happy Birthday". Of course I tried- but the voice goes and no sound is produced.
I have had my larynx scoped several times, and the only thing they say is inflammation from RA and GERD and overuse. It till doesnt make sense because my RA is controlled, and so is the GERD. I do need to use my voice a great deal, but I try not to raise my voice unnecessarily. It would not matter so much if I were in a different profession.
So there it is- a bit whiney all the way through I suppose. Maybe I am in the pity party mood. Rose @}>->--
i didn't know there was such an org. arth soc. sounds great. what worthwhile things they do! i hope their funding is reinstated, too.
bummer about your voice not lasting after having it back so briefly, hon. i agree with you. the dx doesn't make sense, "especially" if they didn't offer any kind of treatment for it. did they take any throat cultures? i'm no ent, but i'm thinking something is definitely affecting your vocal cords, possibly cord strain, which commonly happens to vocalists (been there and it takes a lot of TLC and time to bring it back). sounds like you need a throat specialist who cares about restoring a singer's voice, or anybody's voice who depends on their voice for a living.
and no. i didn't thinkyou were whining at all.
kate
Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
RoseB - 02 Oct 2005 05:26 GMT >and no. i didn't thinkyou were whining at all. > >kate Well truth is I was having a pity party at the time. Heck, I have not been to a good party lately, so had my own. LOL
They did not take cultures, and I am back to the chronic sinus thingys that cleared up while I was off remicade. It's a trade-off I think. The anti-TNF drugs make me feel better but thery come with sinus problems.
I am in a better frame of mind today. Middle sis and I drove to Langley to see elder sis after her surg. Her surgeon popped in when we were there and said everything was good, that her tendons were strong and she had 120 degrees of bend right after. He seemed like a great doc, and even had a sense of humor.
She seems to be doing well, and was controlling her pain with the morphine pump. At one point though we became somewhat concerned because she was looking a bit cyanotic. Middle sis (nurse) suggested she put her CPAP on as they hooked it up to O2 as well. By the time they checked her O2 sats they were back up again.
The surgical resident came in before we left so middle sis mentioned her concerns about elder sis's O2 levels. I think they will watch it.
In spite of a torrential downpour at one point, it was a good trip and a nice way to spend the day. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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d'huit - 02 Oct 2005 18:05 GMT parsing this. hope that's ok.
On Sat, 1 Oct 2005 17:31:21 -0700, "d'huit" <threecedars@comcast.net> wrote:
>and no. i didn't thinkyou were whining at all. > >kate Well truth is I was having a pity party at the time. Heck, I have not been to a good party lately, so had my own. LOL
~~~LOL fooled me. you have quiet parties<g>
They did not take cultures, and I am back to the chronic sinus thingys that cleared up while I was off remicade. It's a trade-off I think. The anti-TNF drugs make me feel better but thery come with sinus problems.
~~~do these sinus thingys come with post-nasal drip? if so, that might be the main offending culprit assaulting/irritating you vocal cords. i have forotten what the homemade concoction was (my throat doc in calif. in the '60s told me to make and use) that i used as a thraot spray when i was performing, but it really works after a few days of total silence and spraying. i wonder if melinda or somebody else knows what i'm talking about and can fill in the blanks in my memory for you.
I am in a better frame of mind today. Middle sis and I drove to Langley to see elder sis after her surg. Her surgeon popped in when we were there and said everything was good, that her tendons were strong and she had 120 degrees of bend right after. He seemed like a great doc, and even had a sense of humor.
~~~yeah!!! i love hearing that.
She seems to be doing well, and was controlling her pain with the morphine pump. At one point though we became somewhat concerned because she was looking a bit cyanotic. Middle sis (nurse) suggested she put her CPAP on as they hooked it up to O2 as well. By the time they checked her O2 sats they were back up again.
The surgical resident came in before we left so middle sis mentioned her concerns about elder sis's O2 levels. I think they will watch it.
~~~boy, good thing you guys did go! glad you caught that for her, alerted the staff and that your nurse-sis knew what would help her.
In spite of a torrential downpour at one point, it was a good trip and a nice way to spend the day.
~~~it's sweet that it turned out well.
kate
Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
johnie - 02 Oct 2005 18:25 GMT {{[rose]}}, you do sound a bit better. i know it is frustrating to handle the age group your with every day without the ability to raise your voice when needed. The timing of your visit was perfect. Catching those docs on rounds isn't always easy. Glad to hear your sis is making some progress.
As for you, well as difficult as it may be the primary concern is getting some rest for your throat. Perhaps this would be a good week to teach your kids what it would be like to be mute. No one can use their voice. They have to invent ways of communicating without sound. Inroduce some basic sign language each day and make it a week long project.
Hope you start feeling better. johnie
RoseB - 02 Oct 2005 19:01 GMT >As for you, well as difficult as it may be the primary concern is >getting some rest for your throat. Perhaps this would be a good week to >teach your kids what it would be like to be mute. No one can use their >voice. They have to invent ways of communicating without sound. >Inroduce some basic sign language each day and make it a week long >project. It sounds like a plan. LOL Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Squirrely - 04 Oct 2005 00:50 GMT Rose,
I sure hope things go better with your voice and that you can find a nice easy fix for it. I know this has been bothering you for along time. I know you need your voice for school and the children. I feel for you and my heart goes out to you big time.
I am so glad you have the Arthritis Society to help you with splints and such up there. That is great.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
Gwen Love - 02 Oct 2005 20:15 GMT Johnie, what a smart idea. Gwen
> {{[rose]}}, you do sound a bit better. i know it is frustrating to > handle the age group your with every day without the ability to raise [quoted text clipped - 11 lines] > Hope you start feeling better. > johnie Nann Bell - 02 Oct 2005 06:01 GMT Rose, you may have felt whiny, but you really didn't sound whiny to me! That is a great service your Arthritis Society has, it's a shame we don't ahve anything like that here in the States. our Arthritis Foundation has a huge budget, but they figure most folks are getting all such services from therapists affiliated with their doctors. of course, some haven't the insurance to cover such help, or any way to pay... just another of the cracks that some folks fall through.
About your voice, just out of curiosity, do you have costochondritis? Or any other ribcage trouble? I ask becuase mine really affects my voice and a lot of singing and/or talking really affects my costo. And I never have gotten back to being able to speak (scream?) as loudly as I could before the costo started up. It's a real comedown from one who was in a foursome dubbed the "leatherlungs" by our high school band director! LOL Poor man, he sat in front of us at a few football games, then chose to sit at the other end of the band from then on!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
RoseB - 02 Oct 2005 08:00 GMT Thanks for your post, Nann. I have costo off and on, but do not have it right now. I feel that everything is well controlled right now, so really the RA or reflux should not be a problem. I can see that it is strain, but one would think it would get better over time.
Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Jo Firey - 02 Oct 2005 16:48 GMT > Thanks for your post, Nann. > I have costo off and on, but do not have it right now. I feel that > everything is well controlled right now, so really the RA or reflux > should not be a problem. I can see that it is strain, but one would > think it would get better over time. Rose, How is your GERD being controlled? I ask because I went through such a rough time with it. In fact I'm over due for my annual esophageal biopsy right now.
For the first many years, I took acid blockers (prilosec) and had my esophagus dilated whenever it got too bad. I slept on a foam wedge and on my left side to let anatomy and gravity help keep everything in my stomach. No late meals, no coffee, no chocolate or wine. The Barrets cleared up but I finally had to have surgery anyway. Skipping the bad part and problems on the surgery. my sore tongue cleared up. My sore throats went away. My asthma virtually disappeared. If I had it to do over, I might pick a different surgeon, but I would definitely have to have it done.
Jo
RoseB - 02 Oct 2005 19:02 GMT >Rose, >How is your GERD being controlled? Just through prevacid, gaviscon if needed, and diet. I don't generally have the feeling of reflux any more so it seems that it is being controlled. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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Jo Firey - 02 Oct 2005 19:53 GMT >>Rose, >>How is your GERD being controlled? > > Just through prevacid, gaviscon if needed, and diet. I don't generally > have the feeling of reflux any more so it seems that it is being > controlled. I never had the feeling of reflux. Or of heartburn for that matter. My first symptom of GERD was when I started coughing like a cat with a hairball when I tried to swallow something. The scaring had already caused Barrets Esophagitis and was closing off my esophagus. All because of a defective valve at the top of my stomach.
I'd at least be asking my doctor if an endoscopy is in order if I were you.
Jo
chebet - 02 Oct 2005 20:31 GMT Much of this sounds so familiar to me. I've had one heck of a year. Not even counting rheumatoid arthritis, the sinus problem seems to be overtaking everything else. I've had a coughing problem for many years but not as severe as it is now.
I was hoarse for two months in late winter into spring. Lots and lots of coughing and lots and lots of phlegm. I've been told I have asthma, post nasal drip and sinusitis. It seems when my throat gets a tickle (dry) I start coughing and I produce lots of phlegm.
Right now I'm doing pretty good because I only cough about 8 times a day (I'm counting) but the coughing lasts around 90 seconds and sometimes it's so vicious I feel like upchucking. After that, I feel fine until the next episode. I was on Advair, Flonase and Prevacid. None seemed to help.
I'm going for a GERD test in two weeks. I don't think I have reflux because I don't have any symptoms. This is such a mystery and I wish we could find out the cause because I am sick of coughing.
As for the arthritis, I am into two weeks of using Methotrexate.
I have quite a bit of Imuran and Plaquenil left but I understand it's not a good idea to give it to anyone. It's a shame because I'm sure someone could use this medication.
Enough of my ranting. Betty
>>Rose, >>How is your GERD being controlled? [quoted text clipped - 7 lines] > > Please remove "Ima" to reply. Charrlygrl1 - 03 Oct 2005 19:03 GMT Betty, You are so right. I have been on so many NSAIDS and other medications that didn't work me, and they are taking up a whole shelf in my kitchen. IT is such a shame because we all know that there are so many people out there that don't have insurance that could probably use some of these meds. What a waste. Sorry I got off on that rant...what I meant to say was: Rose, I hope that you feel better soon, and are able to get to the bottom of the problem with your voice-that must be so frustrating, Charlene
Squirrely - 04 Oct 2005 00:53 GMT Hi Betty,
Could some of your hoarseness have to do with thyroid issues. I have that problem alot with mine. Especially when the allergies are going crazy like now.
I have had something similar to you with it lasting for along time. It started as a virus and won't go away. I have heard others talk about this kind of thing too. So hopefully you will get better real soon.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> Much of this sounds so familiar to me. I've had one heck of a year. Not > even counting rheumatoid arthritis, the sinus problem [quoted text clipped - 37 lines] >> >> Please remove "Ima" to reply. RoseB - 04 Oct 2005 01:35 GMT >Hi Betty, > [quoted text clipped - 5 lines] >started as a virus and won't go away. I have heard others talk about this >kind of thing too. So hopefully you will get better real soon. No, it has to do with RA affecting the larynx. It just doesn't seem like there is a quick fix, especially since I use my voice all the time. This seems to be a chronic problem. I was like this most of last year, and now again.
Thanks for your concern. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
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