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Medical Forum / Diseases and Disorders / Arthritis / October 2005

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This and That (A BIt on the Whiney Side)

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RoseB - 30 Sep 2005 19:19 GMT
I am home from work this morning because I had an appointment with the
travelling OTs from the Arthritis Society. I have not seen them in
three years so had several issues to discuss.

I will get some working splints because I have been having wrist
problems. I wore them twenty plus years ago, but not recently.
Although my wrists are basically fused there are times when the
additional support of a splint is needed.

She taped my fourth toes with velcro straps and will send me some that
are made of a new material that has only become available. Although I
can get my toes to lie straighter that way instead of riding up and
over the baby toe, they are now numb and sore, so I do not think I can
leave these things on too long.

She did some shoe stretching of my New Balance walking shoes to
accommodate the bunions and toes that ride over each other. Once again
the shoes felt fine for the first ten minutes or so, but then once
again became unbearable, I think I am better off in sandals than a
closed shoe.

And she measured me for a new silver ring splint, since mine has
broken.

It is a valuable service that the Arth Society provides to those of us
in rural communities. Due to cut backs they have not made the trip in
recent years. That is unfortunate because this is a needed service, so
I hope that the program will be reinstated.

I continue to be hoarse. My voice came back over the summer, and on
the first day of school I was able to sing the national anthem. Boy,
did that feel good! But that is about how long my voice lasted. Now I
have difficulty talking on the phone, teaching, and there is no point
in trying to sing. Yesterday one of my students had his birthday, and
I felt really badly about not being able to lead in "Happy Birthday".
Of course I tried- but the voice goes and no sound is produced.

I have had my larynx scoped several times, and the only thing they say
is inflammation from RA and GERD and overuse. It till doesnt make
sense because my RA is controlled, and so is the GERD. I do need to
use my voice a great deal, but I try not to raise my voice
unnecessarily. It would not matter so much if I were in a different
profession.

So there it is- a bit whiney all the way through I suppose.
Maybe I am in the pity party mood.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Gwen Love - 30 Sep 2005 19:54 GMT
Rose, you are certainly allowed to have a pity party occasionally.  And it
looks to me as if you deserve it.
Gwen

>I am home from work this morning because I had an appointment with the
> travelling OTs from the Arthritis Society. I have not seen them in
[quoted text clipped - 47 lines]
>
>     Please remove "Ima" to reply.
vickie b. - 01 Oct 2005 06:16 GMT
Wow what a full life!  I especially liked the national anthem and
birthday song!

I did not know about the Arth Society.  This is a great service
especially to the rural areas.  

Take care,

Vickie B.
Cindy - 02 Oct 2005 01:26 GMT
(((((Rose))))))
You definitely deserve a Party now and again..
Cindy
>I am home from work this morning because I had an appointment with the
> travelling OTs from the Arthritis Society. I have not seen them in
[quoted text clipped - 47 lines]
>
>     Please remove "Ima" to reply.
d'huit - 02 Oct 2005 01:31 GMT
I am home from work this morning because I had an appointment with the
travelling OTs from the Arthritis Society. I have not seen them in
three years so had several issues to discuss.

I will get some working splints because I have been having wrist
problems. I wore them twenty plus years ago, but not recently.
Although my wrists are basically fused there are times when the
additional support of a splint is needed.

She taped my fourth toes with velcro straps and will send me some that
are made of a new material that has only become available. Although I
can get my toes to lie straighter that way instead of riding up and
over the baby toe, they are now numb and sore, so I do not think I can
leave these things on too long.

She did some shoe stretching of my New Balance walking shoes to
accommodate the bunions and toes that ride over each other. Once again
the shoes felt fine for the first ten minutes or so, but then once
again became unbearable, I think I am better off in sandals than a
closed shoe.

And she measured me for a new silver ring splint, since mine has
broken.

It is a valuable service that the Arth Society provides to those of us
in rural communities. Due to cut backs they have not made the trip in
recent years. That is unfortunate because this is a needed service, so
I hope that the program will be reinstated.

I continue to be hoarse. My voice came back over the summer, and on
the first day of school I was able to sing the national anthem. Boy,
did that feel good! But that is about how long my voice lasted. Now I
have difficulty talking on the phone, teaching, and there is no point
in trying to sing. Yesterday one of my students had his birthday, and
I felt really badly about not being able to lead in "Happy Birthday".
Of course I tried- but the voice goes and no sound is produced.

I have had my larynx scoped several times, and the only thing they say
is inflammation from RA and GERD and overuse. It till doesnt make
sense because my RA is controlled, and so is the GERD. I do need to
use my voice a great deal, but I try not to raise my voice
unnecessarily. It would not matter so much if I were in a different
profession.

So there it is- a bit whiney all the way through I suppose.
Maybe I am in the pity party mood.
    Rose   @}>->--

i didn't know there was such an org.  arth soc. sounds great.   what
worthwhile things they do!  i hope their funding is reinstated, too.

bummer about your voice not lasting after having it back so briefly, hon.
i agree with you.  the dx doesn't make sense, "especially" if they didn't
offer any kind of treatment for it.  did they take any throat cultures?  i'm
no ent, but i'm thinking something is definitely affecting your vocal cords,
possibly cord strain, which commonly happens to vocalists (been there and it
takes a lot of TLC and time to bring it back).  sounds like you need a
throat specialist who cares about restoring a singer's voice, or anybody's
voice who depends on their voice for a living.

and no.  i didn't thinkyou were whining at all.

kate

    Being educated means that rather than fearing the unknown, one seeks to
understand it. RB

    Please remove "Ima" to reply.
RoseB - 02 Oct 2005 05:26 GMT
>and no.  i didn't thinkyou were whining at all.
>
>kate

Well truth is I was having a pity party at the time. Heck, I have not
been to a good party lately, so had my own. LOL

They did not take cultures, and I am back to the chronic sinus thingys
that cleared up while I was off remicade. It's  a trade-off I think.
The anti-TNF drugs make me feel better but thery come with sinus
problems.

I am in  a better frame of mind today. Middle sis and I drove to
Langley to see elder sis after her surg. Her surgeon popped in when we
were there and said everything was good, that her tendons were strong
and she had 120 degrees of bend right after. He seemed like a great
doc, and  even had a sense of humor.

She seems to be doing well, and was controlling her pain with the
morphine pump. At one point though we became somewhat concerned
because she was looking a bit cyanotic. Middle sis (nurse) suggested
she put her CPAP on as they hooked it up to O2 as well. By the time
they checked her O2 sats they were back up again.

The surgical resident came in before we left so middle sis mentioned
her concerns about elder sis's O2 levels. I think they will watch it.

In spite of a torrential downpour at one point, it was a good trip and
a nice way to spend the day.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
d'huit - 02 Oct 2005 18:05 GMT
parsing this.  hope that's ok.

On Sat, 1 Oct 2005 17:31:21 -0700, "d'huit" <threecedars@comcast.net>
wrote:

>and no.  i didn't thinkyou were whining at all.
>
>kate

Well truth is I was having a pity party at the time. Heck, I have not
been to a good party lately, so had my own. LOL

~~~LOL  fooled me.  you have quiet parties<g>

They did not take cultures, and I am back to the chronic sinus thingys
that cleared up while I was off remicade. It's  a trade-off I think.
The anti-TNF drugs make me feel better but thery come with sinus
problems.

~~~do these sinus thingys come with post-nasal drip?  if so, that might be
the main offending culprit assaulting/irritating you vocal cords.  i have
forotten what the homemade concoction was (my throat doc in calif. in the
'60s told me to make and use) that i used as a thraot spray  when i was
performing, but it really works after a few days of total silence and
spraying.  i wonder if melinda or somebody else knows what i'm talking about
and can fill in the blanks in my memory for you.

I am in  a better frame of mind today. Middle sis and I drove to
Langley to see elder sis after her surg. Her surgeon popped in when we
were there and said everything was good, that her tendons were strong
and she had 120 degrees of bend right after. He seemed like a great
doc, and  even had a sense of humor.

~~~yeah!!!  i love hearing that.

She seems to be doing well, and was controlling her pain with the
morphine pump. At one point though we became somewhat concerned
because she was looking a bit cyanotic. Middle sis (nurse) suggested
she put her CPAP on as they hooked it up to O2 as well. By the time
they checked her O2 sats they were back up again.

The surgical resident came in before we left so middle sis mentioned
her concerns about elder sis's O2 levels. I think they will watch it.

~~~boy, good thing you guys did go!  glad you caught that for her, alerted
the staff and that your nurse-sis knew what would help her.

In spite of a torrential downpour at one point, it was a good trip and
a nice way to spend the day.

~~~it's sweet that it turned out well.

kate

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to
understand it. RB

    Please remove "Ima" to reply.
johnie - 02 Oct 2005 18:25 GMT
{{[rose]}}, you do sound a bit better. i know it is frustrating to
handle the age group your with every day without the ability to raise
your voice when needed. The timing of your visit was perfect. Catching
those docs on rounds isn't always easy. Glad to hear your sis is making
some progress.

As for you, well as difficult as it may be the primary concern is
getting some rest for your throat. Perhaps this would be a good week to
teach your kids what it would be like to be mute. No one can use their
voice. They have to invent ways of communicating without sound.
Inroduce some basic sign language each day and make it a week long
project.

Hope you start feeling better.
johnie
RoseB - 02 Oct 2005 19:01 GMT
>As for you, well as difficult as it may be the primary concern is
>getting some rest for your throat. Perhaps this would be a good week to
>teach your kids what it would be like to be mute. No one can use their
>voice. They have to invent ways of communicating without sound.
>Inroduce some basic sign language each day and make it a week long
>project.
It sounds like a plan. LOL
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Squirrely - 04 Oct 2005 00:50 GMT
Rose,

I sure hope things go better with your voice and that you can find a nice
easy fix for it. I know this has been bothering you for along time. I know
you need your voice for school and the children. I feel for you and my heart
goes out to you big time.

I am so glad you have the Arthritis Society to help you with splints and
such up there. That is great.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

Gwen Love - 02 Oct 2005 20:15 GMT
Johnie, what a smart idea.
Gwen

> {{[rose]}}, you do sound a bit better. i know it is frustrating to
> handle the age group your with every day without the ability to raise
[quoted text clipped - 11 lines]
> Hope you start feeling better.
> johnie
Nann Bell - 02 Oct 2005 06:01 GMT
Rose, you may have felt whiny, but you really didn't sound whiny to me!  That
is a great service your Arthritis Society has, it's a shame we don't ahve
anything like that here in the States.  our Arthritis Foundation has a huge
budget, but they figure most folks are getting all such services from
therapists affiliated with their doctors.  of course, some haven't the
insurance to cover such help, or any way to pay... just another of the cracks
that some folks fall through.

About your voice, just out of curiosity, do you have costochondritis?  Or any
other ribcage trouble?  I ask becuase mine really affects my voice and a lot
of singing and/or talking really affects my costo.  And I never have gotten
back to being able to speak (scream?) as loudly as I could before the costo
started up.  It's a real comedown from one who was in a foursome dubbed the
"leatherlungs" by our high school band director!  LOL  Poor man, he sat in
front of us at a few football games, then chose to sit at the other end of
the band from then on!

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

RoseB - 02 Oct 2005 08:00 GMT
Thanks for your post, Nann.
I have costo off and on, but do not have it right now. I feel that
everything is well controlled right now, so really the RA or reflux
should not be a problem. I can see that it is strain, but one would
think it would get better over time.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Jo Firey - 02 Oct 2005 16:48 GMT
> Thanks for your post, Nann.
> I have costo off and on, but do not have it right now. I feel that
> everything is well controlled right now, so really the RA or reflux
> should not be a problem. I can see that it is strain, but one would
> think it would get better over time.

Rose,
How is your GERD being controlled?  I ask because I went through such a
rough time with it.  In fact I'm over due for my annual esophageal biopsy
right now.

For the first many years, I took acid blockers (prilosec) and had my
esophagus dilated whenever it got too bad.  I slept on a foam wedge and on
my left side to let anatomy and gravity help keep everything in my stomach.
No late meals, no coffee, no chocolate or wine.  The Barrets cleared up but
I finally had to have surgery anyway.  Skipping the bad part and problems on
the surgery. my sore tongue cleared up.  My sore throats went away.  My
asthma virtually disappeared.  If I had it to do over, I might pick a
different surgeon, but I would definitely have to have it done.

Jo
RoseB - 02 Oct 2005 19:02 GMT
>Rose,
>How is your GERD being controlled?  

Just through prevacid, gaviscon if needed, and diet. I don't generally
have the feeling of reflux any more so it seems that it is being
controlled.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Jo Firey - 02 Oct 2005 19:53 GMT
>>Rose,
>>How is your GERD being controlled?
>
> Just through prevacid, gaviscon if needed, and diet. I don't generally
> have the feeling of reflux any more so it seems that it is being
> controlled.

I never had the feeling of reflux.  Or of heartburn for that matter.  My
first symptom of GERD was when I started coughing like a cat with a hairball
when I tried to swallow something.  The scaring had already caused Barrets
Esophagitis and was closing off my esophagus.  All because of a defective
valve at the top of my stomach.

I'd at least be asking my doctor if an endoscopy is in order if I were you.

Jo
chebet - 02 Oct 2005 20:31 GMT
Much of this sounds so familiar to me.  I've had one heck of a year.  Not
even counting rheumatoid arthritis, the sinus problem
seems to be overtaking everything else. I've had a coughing problem for many
years but not as severe as it is now.

I was hoarse for two months in late winter into spring.  Lots and lots of
coughing and lots and lots of phlegm.  I've been told
I have asthma, post nasal drip and sinusitis. It seems when my throat gets a
tickle (dry) I start coughing and I produce lots of phlegm.

Right now I'm doing pretty good because I only cough about 8 times a day
(I'm counting) but the coughing lasts around 90 seconds and sometimes it's
so vicious I feel like upchucking. After that, I feel fine until the next
episode.
I was on Advair, Flonase and Prevacid.  None seemed to help.

I'm going for a GERD test in two weeks.  I don't think I have reflux because
I don't have any symptoms.
This is such a mystery and I wish we could find out the cause because I am
sick of coughing.

As for the arthritis, I am into two weeks of using Methotrexate.

I have quite a bit of Imuran and Plaquenil left but I understand it's not a
good idea to give it to anyone.  It's a shame
because I'm sure someone could use this medication.

Enough of my ranting.
Betty

>>Rose,
>>How is your GERD being controlled?
[quoted text clipped - 7 lines]
>
>     Please remove "Ima" to reply.
Charrlygrl1 - 03 Oct 2005 19:03 GMT
Betty,
You are so right. I have been on so many NSAIDS and other medications
that didn't work me, and they are taking up a whole shelf in my
kitchen. IT is such a shame because we all know that there are so many
people out there that don't have insurance that could probably use some
of these meds. What a waste.
Sorry I got off on that rant...what I meant to say was:
Rose, I hope that you feel better soon, and are able to get to the
bottom of the problem with your voice-that must be so frustrating,
Charlene
Squirrely - 04 Oct 2005 00:53 GMT
Hi Betty,

Could some of your hoarseness have to do with thyroid issues. I have that
problem alot with mine. Especially when the allergies are going crazy like
now.

I have had something similar to you with it lasting for along time.  It
started as a virus and won't go away. I have heard others talk about this
kind of thing too. So hopefully you will get better real soon.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Much of this sounds so familiar to me.  I've had one heck of a year.  Not
> even counting rheumatoid arthritis, the sinus problem
[quoted text clipped - 37 lines]
>>
>>     Please remove "Ima" to reply.
RoseB - 04 Oct 2005 01:35 GMT
>Hi Betty,
>
[quoted text clipped - 5 lines]
>started as a virus and won't go away. I have heard others talk about this
>kind of thing too. So hopefully you will get better real soon.

No, it has to do with RA affecting the larynx. It just doesn't seem
like there is a quick fix, especially since I use my voice all the
time. This seems to be a chronic problem. I was like this most of last
year, and now again.

Thanks for your concern.
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
 
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