Medical Forum / Diseases and Disorders / Arthritis / September 2005
about busy days and synovectomies
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Nann Bell - 22 Sep 2005 22:35 GMT Hey guys!
haven't been around all that much lately due to life getting disgustingly busy. It's all been slowing down and I think I am finally catching up on my rest again. The final installments in this wave of busy-ness was dinner for 11 Tuesday night (second one of these in a week, one for each governing body of our 2 churches) and my RD appointment Wednesday.
sigh, my RD didn't really like the continued swelling in my thumbs. We got Xrays of both hands and the joint spaces still looked tolerable, not great but not bad either. So he's thinking I might really benefit from synovectomies on the thumbs. I have an appointment with the hand surgeon to discuss this in a month (90 miles away - ugh). But I'm curious just how much recovery I'd be most likely looking at if we do this. I'm figuring since they'll just be "cleaning stuff out" as my RD said, it won't be too bad - as in a few days of laying low, then gently beginnning to use thumbs again. Any input just to give me an idea until we/I see the surgeon?
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
vickie b. - 22 Sep 2005 22:48 GMT no advice on your thumbs! But I was so glad to hear from you!
Vickie B>
Mary Z - 23 Sep 2005 03:50 GMT >sigh, my RD didn't really like the continued swelling in my thumbs. We got >Xrays of both hands and the joint spaces still looked tolerable, not great >but not bad either. Good luck Nan! I don't have any advice perhaps KJ can help you I think she had them done. Need to put arthur to bed, arthur time to visit mr sleeping bag! How is the Enbrel or Hurmira (?) working for you? -- MZ
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Nann Bell - 23 Sep 2005 16:02 GMT > Good luck Nan! I don't have any advice perhaps KJ can help you I > think she had them done. Need to put arthur to bed, arthur time to > visit mr sleeping bag! How is the Enbrel or Hurmira (?) working for > you? -- MZ It's Enbrel for me and it does help, but isn't a miracle drug. I think it's that old PA vs. RA bug-a-boo again. stubborn PA just doesn't seem to have miracle drugs as often. But the Enbrel has definitely improved my energy levels and reduced my morning stiffness, etc. I get more done and feel better overall, just not as much as I dreamed of! (heck, I had dreams of being able to get through the day without a nap but I can't, so I guess I'm still in my second childhood!) My RD's contemplating reducing the mtx to see what happens. Having never had this degree of control of either the PA or the Ps before on one DMARD alone, I'm not sure it'll work. We'll see. I'd even be wiling to give arthur my *good* sleeping bag!
I'll drop KJ a note as she's probably not watching ASA too closely these days. I was thinking some folks had had synovectomies on their hands, but it might be some of the folks who are currently otherwise occupied. If it gives me back real use of my thumbs again, it'll be worth it! Even Mike's noticed the "ouch"es are slipping out more often and he's accustomed to hearing them.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Diane - 23 Sep 2005 04:07 GMT it doesn't sound too bad, nann, but then, i've never had it done. i had a major tenosynovectomy on my wrist and was amazed to be typing within a few days. i hope yours would be that easy.
glad to hear from you!
diane
d'huit - 23 Sep 2005 17:51 GMT ((((((((nann)))))))))) i didn't know your thumbs had gotten so bad. ouchies, is right. need to rest those paws a bit more in the meantime. i'm no help with info on the procedure. but i'll be praying you find the best guy to do it and that your recovery goes well and quickly.
kate
> Hey guys! > [quoted text clipped - 21 lines] > Any > input just to give me an idea until we/I see the surgeon? Nann Bell - 24 Sep 2005 05:14 GMT > ((((((((nann)))))))))) i didn't know your thumbs had gotten so bad. > ouchies, is right. need to rest those paws a bit more in the meantime. i'm > no help with info on the procedure. but i'll be praying you find the best > guy to do it and that your recovery goes well and quickly. > > kate it's mostly that my thumbs have only been reasonably good for a few scattered months out of the last 5.5 years. I could work around it more with any other finger, but the opposable thumbs really were a step forward in evolution and even all my work-arounds aren't enough now. Naturally, everything I love doing uses the hands a lot. Even holding on to books to read them is a hassle. sigh.............
Oh and one of our vestries (governing body of the local parish in the Episcopal church) discovered this week that our bathroom needs major work. Next meeting where they can approve the expenditure is 10/19 so sometime after that our upstairs bathroom will most likely be torn up. Until then, we have a (small) hole through the floor looking into the basement, serving as a warning not to step in that area as we don't know how much more of the subflooring is rotten. Too much drama. (Been leaving the basement bathroom to Mike as he likes to shower there anyway. I need to see if it's tolerably clean before they tear up the upstairs one - especially if my thumbs are in recovery when this happens. Maybe I'll just fly down to visit my mom while they do the work!)
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
d'huit - 24 Sep 2005 17:09 GMT <snip> it's mostly that my thumbs have only been reasonably good for a few scattered
> months out of the last 5.5 years. I could work around it more with any > other [quoted text clipped - 21 lines] > while > they do the work!) i must've caught you on a goodthumb weekend during that gimp picnic. datburned evolution, got us used to certain physical innovations and conveniences and then, lets us down by also making those changes vulnerable to disease and damage. sigh . . . the life of a prototype can be so hard.<g> visiting your mom sounds like a good option during the construction stuff. momhugs might be good things to have available during your recovery too, just cuz they always are.
kate
Nann Bell - 28 Sep 2005 15:17 GMT > i must've caught you on a goodthumb weekend during that gimp picnic. > datburned evolution, got us used to certain physical innovations and [quoted text clipped - 5 lines] > > kate
I was probably still a bit up from all the pred that got me through the move to Michigan. Also, I had my DH along to help out and he is very well trained ;) I'm amazed at what I CAN do without my thumbs, or with very little, but one just does tend to need both hands more often without thumbs.
Heh, for some totally unexpected reason, I slept 10.5 hours last night. Woke at 10:12 this morn, with a 10:15 mammogram appointment. No alarm set because I NEVER sleep THAT late! Luckily I was going to the mobile unit that comes out here, a couple of blocks from our house. But I had to throw on clothes and run over there and do all the paperwork and the testing without coffee or mornig meds or time to slowly wake up my thumbs. It was NOT fun!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Duckie - 23 Sep 2005 18:13 GMT You think he will want you to do both thumbs at the same time??!!!!! May I suggest a tool to help wipe your arse and I have a box of stuff that I had mailed to Gwen [that right] when she had her thumb done. Just say the word and I will redirect it to you. Of course, I am assuming that box is still in the hall closet and not in one of the pods. errrrgghhh Duckie
> Hey guys! > [quoted text clipped - 13 lines] > in a few days of laying low, then gently beginnning to use thumbs again. Any > input just to give me an idea until we/I see the surgeon?
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Nann Bell - 24 Sep 2005 05:15 GMT > You think he will want you to do both thumbs at the > same time??!!!!! Mike asked that too. I have no idea. I must admit I don't want to have to drive over to Petoskey TOO many times for surgery, even though Mike will be doing the driving. He does see patients in Cheboygan also, which is closer, but I don't know if he operates there. Their hospital is *really* small too and I don't know how far I trust them. Then again, Petoskey's hospital's nurses now hold the record for the longest organized strike in the labor movement....
At least our congregations should be understanding about him needing to take me over there - they've become quite accustomed to seeing me in my thumb braces.
> May I suggest a tool to help wipe your arse and I have > a box of stuff that I had mailed to Gwen [that right] > when she had her thumb done. You need thumbs for that????? I've barely used my thumbs in that capacity for some time now. The real trick is keeping your thumb braces clean. (I can do that, but sometimes it's easier just to take the brace off.) Hmmm, may need gloves to wear though to make sure the incision stays clean!
Just realized, Mike will *definitely* have to do the dishes for a while if I get this done, heehee. (he always talks about how he loves to wash dishes, but doesn't actually do them more than about 35-40% of the time)
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Duckie - 25 Sep 2005 23:13 GMT I am not sure about your doctor but I was figuring you would be in some sort of cast situation. If that is the case you will definitely need something to help. At least for a week. Of course you are now off the Arava.... I went looking and the magic box of goodies must be in storage. It is not where it used to be which was the hall closet. oh well. Duckie
> Mike asked that too. I have no idea. I must admit I don't want to have to > drive over to Petoskey TOO many times for surgery, even though Mike will be [quoted text clipped - 20 lines] > get this done, heehee. (he always talks about how he loves to wash dishes, > but doesn't actually do them more than about 35-40% of the time)
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Nann Bell - 28 Sep 2005 15:17 GMT > I am not sure about your doctor but I was figuring you > would be in some sort of cast situation. If that is the [quoted text clipped - 4 lines] > hall closet. oh well. > Duckie oh yes, off Arava is a wonderful thing. Less frequent trips and much less urgency. Don't miss the stuff at all!
If it is a cast situation, I think I'll vote for doing one at a time. I might be able to do all the follow up stuff at their closer office and save on gas costs some. It was painful last week to drive 60 miles RT to the RD, using almost 3 gallons of gas, and not figuring out any other errands to combine with the trip! Argh.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
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