3ed shot enbrel ?

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Becky - 06 Sep 2005 02:36 GMT

Well I have know had my 3 rd shot of enbrel. I can say that it does not
hurt,but that is about all I can say. It flares up my bladder, worse each
time. My shoulders and ankles feel like they are on fire, this started when
I started the e nbrel, did not have that before and my whole body feels like
it has been beaten up by someone.
It is really discouraging. I can say that I may not be as tired but that is
it. I am still taking the mtx, they had me skip a week,a nd then go back but
I was at 17.5l and the fatigue was to much so now at 15.
I start back to work and was hoping for a miracle of feeling better, but
guess that is not in the cards.
I am almost ready to go to a naturopath and try the veggie diet and no
sugar or wheat or anything like that and eat lots of fish.
I am trying to be positive but it seems weird that as soon as I started the
enbrel I would have all these new symptoms. And as far as the hips they are
no better, today they are even stiffer.
My RA doc suggested a physical therapist, so had to see the primary care doc
for a referral and he said get a cortisone shot, so I have an appointment
in3 days for that, but I am a little leery about sticking more crap in my
body.
How many here have benefited from physical therapy over cortisone shots?
Well I am off to a very early bed, have to be up at 5 am to be at work by 7.
Hope everyone enjoyed a restful labor day.
Thanks
Becky

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Smokie Darling (Annie) - 06 Sep 2005 17:12 GMT

> Well I have know had my 3 rd shot of enbrel. I can say that it does not
> hurt,but that is about all I can say. It flares up my bladder, worse each
[quoted text clipped - 20 lines]
> Thanks
> Becky

Have you told your RD about the side effect (burning joints nowhere
near the injection site)? The bladder thing needs to be brought up as
well. I think I'd be talking to the RD constantly until I got a good
answer. Remicade used to *raise* my bp, where the normal side effect
was to lower bp. So, just because it isn't "typical" of the drug for a
side effect, doesn't mean it isn't a side effect.

I can tell you, I had cortisone shots in my right wrist and my right
ankle. It was amazing how well it worked, and for how long. Of
course, now my right wrist is fused, so I can't have a shot in the
joint again (since "technically" there is no joint anymore).

Is there a possibility that you can try Humira or Remicade? Enbrel
worked for me, Remicade worked for me. Humira did some of the worst
things, but that's another story.

My RD told me that physical therapy (when all this started) would not
work for me, since I was already swimming 3 or 4 days a week (45
minutes non-stop). After the surgery and continuing problems, PT
doesn't want me. I've gone in a few times, but when they check my
blood pressure (during and after) it is higher (stroke level higher
320/180) and it stays there until I've taken pain pills, and even then
they don't get back to my normal (108/65) for several days. In my
case, and admittedly I'm weird, PT didn't help, but others have shown
great relief from it.

Smokie Darling (Annie) - wishing you well

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