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Medical Forum / Diseases and Disorders / Arthritis / September 2005

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may have to stop enbrel

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Becky - 31 Aug 2005 17:37 GMT
Well I have had 2 shots, and I actually can feel a little difference I
think. The problem I am having is the combination of the mtx and enbrel have
flared up an old problem of interstitial cystitis. The doctor said maybe I
should stop it and see if it goes away and then restart it and if it does we
will know it is from the enbrel. I am positive it is but I don't want to
quit it. I called my urologist and his advice was the same, said since I
have not had any problems with IC for over 10 years he fills that it is drug
related.
Have any of you had symptoms from the enbrel that after awhile went away?>
Thanks
Becky
nikki - 31 Aug 2005 19:22 GMT
Hi Becky,

yes, but I described them in my answer to your previous post I think.

I am trying my first shot since approx. 2 months tonight, starting on
25mg. I will have a shot every 4th day.
If that goes will, I am going to try the 50mg shot and see how that goes.

I don't know about my bladder but somehow it seems sort of overactive
(drink a glass of water and have to go the toilet 10 minutes after) and
it feels like infection when I am on Enbrel, especially when I have the
recommended quantity of shots. (2 days every week which means once every
3rd day and once evert 4th day).

Also sinusproblems and bronchitis are much better without Enbrel.
Also really yukky-white slimey stuff in mouth is completely gone.
My allergies have gone (rashes, bumps, sun etc), BUT I should also tell
you I also feel much more tired, and had to up prednisolon, just 5 mg
because I did not want to have to tamper when I started oon Enbrel again.
With Enbrel I take no painkillers at all, without it I find myself
looking for them every now and then again.

I am told to stop using Enbrel every time there's a urinal infection or
or bladderproblem, so I am on and off Enbrel.

Guess it will help until the new med is approved, so until then I'll be
using Enbrel.

Hope in the end it turns out alright for you,

Nikki

> Well I have had 2 shots, and I actually can feel a little difference I
> think. The problem I am having is the combination of the mtx and enbrel have
[quoted text clipped - 7 lines]
> Thanks
> Becky
Becky - 01 Sep 2005 17:10 GMT
Hi Niki,
Thanks for the response, this is the first one I have seen from you.  My
computer is weird I can see what I post but most of the other messages are
form clear back in November.  It says at the bottom that I have 3246 unread
and 66609 that are not downloaded so not sure what I am doing wrong.
Anyway thanks
Becky
> Hi Becky,
>
[quoted text clipped - 40 lines]
>> Thanks
>> Becky
nikki - 02 Sep 2005 17:22 GMT
Ah,

nevermind Becky, maybe I am mistaken (foggy RA brains from Holland ;-))
I hope you can continue on Enbrel, maybe a little later,

Nikki

> Hi Niki,
> Thanks for the response, this is the first one I have seen from you.  My
[quoted text clipped - 48 lines]
>>>Thanks
>>>Becky
 
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