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Medical Forum / Diseases and Disorders / Arthritis / September 2005Wondering about Johnie
Just wondering, I am concerned about him. I also miss him greatly. I wish I knew how he was doing.  SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Just wondering, I am concerned about him. I also miss him greatly. > I wish I knew how he was doing. Johnie is doing fairly well. I just got an email from him today. He bought some land and is going to build a house he designed. If he's not lurking, I'll let him know you were asking about him. :=) SignatureDi zinkadoodle at gmail dot com www.pbase.com/di Thank you so much Di, He has been on my mind alot lately. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >> Just wondering, I am concerned about him. I also miss him greatly. >> I wish I knew how he was doing. >> > Johnie is doing fairly well. I just got an email from him today. He > bought some land and is going to build a house he designed. If he's not > lurking, I'll let him know you were asking about him. :=) that's great, future-oriented news. i'm so glad. diane SJ, I too was getting worried about Johnie, especially when he didn't respond to his birthday wishes and other private emails. Am thrilled to death to read this thread about him feeling well enough to build a new home!!! You go Johnie!!! Wishing you continued feel good days and extra measures of energy! Thanks Diane for letting us know what is up!!! Donna G > SJ, I too was getting worried about Johnie, especially when he didn't > respond to his birthday wishes and other private emails. [quoted text clipped - 7 lines] > > Donna G You bet!! See, I really do lurk around here from time to time. :-) SignatureDi zinkadoodle at gmail dot com www.pbase.com/di And you do need to keep posting from time to time, so we can keep up with you, Di. Gwen > > SJ, I too was getting worried about Johnie, especially when he didn't > > respond to his birthday wishes and other private emails. [quoted text clipped - 9 lines] > > > You bet!! See, I really do lurk around here from time to time. :-) thanks again Di, I just got an email from him. I do hope you post more too and keep us updated on how it is going with you. You are missed when not here. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >> SJ, I too was getting worried about Johnie, especially when he didn't >> respond to his birthday wishes and other private emails. [quoted text clipped - 9 lines] >> > You bet!! See, I really do lurk around here from time to time. :-) > thanks again Di, I just got an email from him. I do hope you post more too > and keep us updated on how it is going with you. You are missed when not > here. I've been posting more today. :-) SignatureDi zinkadoodle at gmail dot com www.pbase.com/di I see and I am so glad about it too. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >> thanks again Di, I just got an email from him. I do hope you post more >> too >> and keep us updated on how it is going with you. You are missed when not >> here. >> > I've been posting more today. :-) as coincidence would have it i have been doing a fair amount of wondering about him also. he has apparently lost what little remained of his feeble, little mind. Over-extended and Under-nourished he plows ahead like a 'normy' which he becomes less of by the day thanks to the long-term use of pred. and its least endearing side-effect...'osteoporosis' coupled with the ongoing breakdown of these surgically enhanced hands. It isn't more fun the second time around but i am appreciative of the good 5 years i got from the replacements. The knuckle replacements aren't faltering. The tendons that are left are rupturing like a bad round of 'russian roullete'. But like the only kind of chronically ill person any of us can allow ourselves to be all of these little nuisances have to be ignored...even as i have my good suit taken in another inch this year. At an inch a year the good news is when i reach the age of 65 i won't have to sneak into the annual "Little People's Conference" anymore.>g< Even better news is i have reduced my pred to below 10 working my way to 5. As so many of you know this process is BRUTAL no matter what reduction method you choose. But the rewards for me are significant in light of the massive amount of bone loss i have experienced. My life is good as i sit here listening to my sweet Acacia fussing about what he doesn't want for breakfast this morning. The love of a 4 year old can get you thru just about anything. I really will try to stop by more often as i miss you guys and think about you often. So many of you have become a permanent part of my journey, despite how far i may drift away. TODAY, my thoughts are with the folks that only last week inhabited one of the great cities of the world. I am in shock at the daily reports and search to find ways i can do more to help this special group of people recover. My gratitude goes to the amazing city of Houston for their generosity of spirit in this matter. I wish nothing but better days for each of you lovely people. big desert love, your desert bud, johnie > Just wondering, I am concerned about him. I also miss him greatly. > I wish I knew how he was doing. lol and another pops out of the woodwork. Good to hear from you Johnie. And I can NOT believe that Acacia is 4. How in the world did that happen? Happy for you about the pred. I am down to 4mg and was firmly told by my RD to halt there until he saw me again. I am very proud of myself and know you are proud of you as well. Stick around. Duckie > as coincidence would have it i have been doing a fair amount of > wondering about him also. he has apparently lost what little remained [quoted text clipped - 41 lines] >>Just wondering, I am concerned about him. I also miss him greatly. >>I wish I knew how he was doing. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) aw, how wonderful to hear from you johnie, and to know you're doing well. give that grandson (4?? are you kidding??) a hug from us. diane ((((Johnie)))) It's so good to see you here again, my friend! You have been so missed.:) I can't believe how time flies. Little Acacia isn't so little anymore, is he? Please take good care of yourself and your wonderful family. Many hugs, Kelly C. > as coincidence would have it i have been doing a fair amount of > wondering about him also. he has apparently lost what little remained [quoted text clipped - 41 lines] > > Just wondering, I am concerned about him. I also miss him greatly. > > I wish I knew how he was doing. Johnnie, It is great to hear from you. I am sorry to hear about your hands. I know how difficult that must be for you. Thanks for the update. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Good to hear from you again Johnie, I am sorry I have not kept up with you lately. I am grieving the loss of two fms friends and possibly a third one. Haven't heard from her since the NO thing. She was real bad off, so don't know if she made it out of there. So haven't felt like talking much or emailing or posting. I am trying to catch up a little today if I can. I am sick again too so that doesn't help. I am sorry to hear about your hands and the pred issues. I think I have to go back on pred again for 4-5 days since I am sick again. I am glad to hear your pred is being reduced. I hope you can get it down and hopefully off it. I know how much of an issue this has been for you. I am so glad you have Acacia there so yo can be with him. I know you are having fun with him. ;-) Yes my thoughts have been with those that have lost everything too. Quite the devastion for them for many years to come. I am also hoping the best for all. I do read posts and do pray and send good thoughts where needed. Your shaking and baking friend, SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > as coincidence would have it i have been doing a fair amount of > wondering about him also. he has apparently lost what little remained [quoted text clipped - 41 lines] >> Just wondering, I am concerned about him. I also miss him greatly. >> I wish I knew how he was doing. Johnie, my friend, can't even begin to tell you the joy I feel at popping into ASA and seeing your name on the boards!! You have been dearly missed but always thought of and prayed for!!! God bless the joy and love of children. Aren't they just great? and it seems like they can make you smile and laugh no matter what you are going through!!! Give Acacia a hug for me!!! How is Lucy doing? So happy to hear that you are still plugging along despite all your trials and even happier to hear you are at a point of being able to wean down a bit on your pred!!! Happy dance for you!!! How is your breathing doing overall? Many prayers and healing hugs to you dear friend!!! Donna G > Johnie, my friend, can't even begin to tell you the joy I feel at > popping into ASA and seeing your name on the boards!! > You have been dearly missed but always thought of and prayed for!!! > God bless the joy and love of children. Aren't they just great? and it > seems like they can make you smile and laugh no matter what you are > going through!!! Give Acacia a hug for me!!! I will give him a huge hug for ya. that is the easiest thing in the world for me cause he is one truly huggable kid. Acacia has a great sense of humor and is in that joke making up stage. We have always put a lot of effort into making each other laugh but recently it seems to have taken on even more of our time. its really a blessing to have him around. > How is Lucy doing? Lucy is doing great. She got spectacular reviews for a large installation we put together for the museum here and she and i are creating a new piece of Interactive Virtual Reality for the museum in Scottsdale this december. So we don't have a lot of free time between that, the house, and Acacia plus Miguel is also finishing up his degree here at UofA. Its fun but exhausting. > So happy to hear that you are still plugging along despite all your > trials and even happier to hear you are at a point of being able to wean > down a bit on your pred!!! Happy dance for you!!! The pred reduction is really hard but "happy dancing' is the correct term. Many of the bad side effects i was experiencing are clearing up. Even the little pooches of fat and round face have gone away. My energy levels and pain levels are still out of whack but i know its worth it and eventually everything will calm down. I am now trying to get it to 7.5mg(.5mg. at a time). > How is your breathing doing overall? Amazingly well. i am worried as usual about this winter but am doing what i can in terms of prevention. I always am thinking of you and hoping yours is under control. I know how fragile it all really is. Of course the key to mine is the valley fever and right now it seems to be under control. One bad flu and all bets are off. With a bit of luck we will both get thru this winter healthy, right...right. > Many prayers and healing hugs to you dear friend!!! Right back at ya sweetie. big desert hugs, johnie > as coincidence would have it i have been doing a fair amount of > wondering about him also. he has apparently lost what little remained [quoted text clipped - 6 lines] > your desert bud, > johnie Johnie, my wonderful desert bud, it's so good to see you post. You da man!!!! Sounds like things are just humming along, such as it is, though you seem in reasonably good spirits. Hug Acacia for me. He's so beautiful. Almost as beautiful as my grandson. <g> SignatureDi zinkadoodle at gmail dot com www.pbase.com/di > Johnie, my wonderful desert bud, it's so good to see you post. You da > man!!!! Sounds like things are just humming along, such as it is, > though you seem in reasonably good spirits. Hug Acacia for me. He's so > beautiful. Almost as beautiful as my grandson. <g> > -- Di and Squirrely and Diane and Gwen and Duckie and Kelly and RoseB and Donna... you guys always make me remember why i can't stay away for long. you are all very special people. you nailed it Di, for a gimp with numerous ongoing complications i am 'humming' right along. Have no choice with a house to build and a schedule that has to be kept. As i was telling my new friend "fred the rattlesnake"( who by the way is 9 years old and also a real sweetie) 'one step at a time little buddy, one step at a time". Fred is the resident 'Watch Critter" of our little piece of the planet. We met cause I put my foot down about 6 inches from Freds head. Our eyes locked and its been nuthin short of a love fest since. I discovered quickly that the only reason Fred was being so docile our first meeting was that he had just swallowed a large rodent and it was about one-third of the way down his torso. He couldn't move if he wanted to. He was grateful i didn't kill him at his most vulnerable and its been a relationship of tolerance and respect ever since. Now if i can get my neighborhood 'mountain lion' to stop in for a visit i will feel like i finally made it back to the wilderness (such that it is). I might crash and burn next year but i will have a dry/warm/cool shelter with incredible views to crash and burn in.>BG< I am trying to pace myself properly so with a little luck and a lot of support i should be able to get it all done. It seems so many on the NG have had a rough summer. Im sorry i haven't been able to respond in a supportive way. I know from all the support i have received here over the years how much it helps. JEEEEZ,DI...I DID SEE THE PICS OF YOUR ANKLE. Poor baby, i hope your healing up quickly. I hope everyone is catching a break from these '&%#%$^^%#' diseases. More later. johnie You take care and know that you are being thought of always. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >> Johnie, my wonderful desert bud, it's so good to see you post. You da >> man!!!! Sounds like things are just humming along, such as it is, [quoted text clipped - 41 lines] > > johnie > You take care and know that you are being thought of always. Squirrely Jo, thank you SJ. i don't remember if i ever told you how nice it was to get your cards this summer. It really did cheer me up when they arrived. It is such a nice thing you do for so many of us. you should know that you too are always being thought of. johnie Your welcome Johnie, I know I am being thought of too. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo >> You take care and know that you are being thought of always. > [quoted text clipped - 6 lines] > > johnie Yay!! Huge hugs! Take care of yourself. Kelly C. > Di and Squirrely and Diane and Gwen and Duckie and Kelly and RoseB and > Donna... [quoted text clipped - 35 lines] > > johnie > Yay!! Huge hugs! Kelly, thanks for the hugs but you need em more than me. With sadness i was reading your update on {{{{Rachel}}}}. Poor kid, i was really hoping that things were gonna improve a lot faster. They will eventually but i know this was a real bump in the road. Is she doing better? My thoughts are with you and your family. I just can't imagine how hard this is for you. I hope you know that i would do anything i could to help. Please keep us posted on any progress. hang tough kiddo. love, johnie > > Yay!! Huge hugs! > > [quoted text clipped - 8 lines] > love, > johnie Johnie, I have only to look to my dear friend Duckie to see someone who lives well with epilepsy. I take a great deal of hope from her example. Rachel is doing well with her med. increase and is beginning 5th grade band this week. She will be playing the flute and is really looking forward to it. We try and take things one day/event at a time. I can't tell you how much the support of this group has meant to us. I am trying to help Rachel understand the huge amount of blessings her life holds, even among the hardships. I think she's going to be an amazing woman. Love to you and yours, Kelly C. It sounds like a little piece of paradise- especially with the tamed "critters". LOL It is good to hear from you, and find out about what you are doing. As for me, I have started my 29th year of teaching. I know, I know, but I was only 10 or so when I started. (g) It is hard to believe that I have done this for that long. I recently heard from one of my former students- he was in my very first class. He now lives in the same province as me, and mentioned us getting together at some point. That was really exciting- to hear that he has made a life for himself and done relatively well. We miss you when you are gone, so do pop in when you can. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Thank you Rose, i am going to try and be as regular as I can. WOW, 29 years is amazing. I am impressed. There is nothing more honorable than a life as a teacher. In a different era my maternal grandmother did 30 years after starting at 17 in 1915 outside of Paris,TX. desert hugs, johnie > It sounds like a little piece of paradise- especially with the tamed > "critters". LOL [quoted text clipped - 13 lines] > > Please remove "Ima" to reply. >There is nothing more >honorable than a life as a teacher. In a different era my maternal [quoted text clipped - 3 lines] >desert hugs, >johnie Thanks Johnnie. I bet your grandmother had some interesting tales to tell. LOL Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Rose, I would imagine you have a few to tell yourself. I wish she had kept a journal. After teaching she did 25 years as a social worker and lived another 30 taking care of the rest of us.>g< Im not sure they make them like that anymore. Are you going to retire after 30 and write a book? johnie > >There is nothing more > >honorable than a life as a teacher. In a different era my maternal [quoted text clipped - 11 lines] > > Please remove "Ima" to reply. >Rose, I would imagine you have a few to tell yourself. I wish she had >kept a journal. After teaching she did 25 years as a social worker and [quoted text clipped - 3 lines] > >johnie You never know. At the moment I am investigating something that will bring a new challenge. Here's a cute little anecdote from yesterday... We gather together on the carpet for group activities. Then for students to go back to their seats, we sometimes select certain features to make smaller groups travelling in a fairly confined space. Yesterday, I asked thiose with laces in their shoes to go to their desks, then those with zippers, then velcro. One little boy told me he could not be a velcro because he was Indian and his parents were from India. LOL Well I said, you can be both! You can be an Indian and a "velcro" too. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. > > Johnie, my wonderful desert bud, it's so good to see you post. You da > > man!!!! Sounds like things are just humming along, such as it is, [quoted text clipped - 20 lines] > > johnie Johnie, my hummin' desert bud. Has a nice ring to it, doncha think? Hummin' with his rattler. <g> Yeah, my ankle is a drag. Right now the worst part of having a broken ankle is walking on crutches. And, this freakin' cast. I don't think I've slept much since my leg was casted. Next thursday, Sept 6th, the cast comes off. I think I'm gonna go into a coma like sleep for three days. :-) SignatureDi zinkadoodle at gmail dot com www.pbase.com/di www.dustydoggie.blogspot.com johnie, it sounds like you are having some amazing experiences while getting this house put together. I've not met many folks who managed to make friends with a rattlesnake! Drop in from time to time to update us and let us know where and when we can see some pictures of this house! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare > johnie, it sounds like you are having some amazing experiences while getting > this house put together. I've not met many folks who managed to make friends > with a rattlesnake! Drop in from time to time to update us and let us know > where and when we can see some pictures of this house! Nann, in this part of the world you either find a way to co-exist with rattlers or kill them. It is very common for people to have the snakes removed and relocated but that is just a prolonged death sentence. Rattlers are intensely territorial. When removed they will nearly always die trying to get back to their habitat. Folks don't like to acknowledge that fact but its more humane to go ahead and kill them quickly than relocate them. My feelings are that I am the one that has chosen to move into their part of the world so it is my obligation to find a way to co-exist. Most of the time this can be done with a little work and a lot of caution. I grew up on a farm and ranch that was full of rattlers and there the protocol was usually to kill them. They were always getting into places where you had to work and it was very common to get bit just trying to get your chores done. A good example was; we irrigated using aluminum tubes that pulled water out of a ditch into rows of crop. Each tube was about an inch in diameter, curved into a third of a circle and about 3 feet long. Rattlers loved to crawl into the tubes when not being used cause they were warm. You would start a tube by cupping your hand over one end, put the other end in the ditch of water and shake back and forth until you had enough suction to pull water thru the tube. The rattler trying to get out would bite anything in its way which had a 50% chance of being your hand. Needless to say it was easy to rationalize killing over co-existence. But here it is a completely different matter and the notion of killing critters cause its inconvenient to have them around just doesn't jive no more. Its also a lot more interesting to find ways to live with your surroundings than just clear cut everything in your path. I am keeping both a video and written diary and we will be publishing both when the project is complete. johnie > But here it is a completely different matter and the notion of killing > critters > cause its inconvenient to have them around just doesn't jive no more. > Its also a lot more interesting to find ways to live with your > surroundings than just clear cut everything in your path. I hear ya there! That's the way I grew up in Florida, in the days before affordable air conditioning caused the insane population boom down there. I grew up with the belief that we should give alligators their territory, also water moccasions. We did kill coral snakes on out property though. Though they taught us how to respond if bitten, my folks were concerned about protecting their kids form snakes on the property. (We were just taught to stay out of the back, swampy area when wet to avoid the moccasions.) I am keeping > both a video and written diary and we will be publishing both when the > project is complete. Cool! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
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