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Medical Forum / Diseases and Disorders / Arthritis / August 2005Over the Limit complaint :-(
Which is so rare from Rosie but I have reason! The new Rheumy is a good one but the new Dx I have is cruddy. I've got UCTD. That's Undifferentiated Connective Tissue Disease for those who haven't been at ASA for a long time. I also have DDD and OA still, of the knees, and the one hip they did the bone density on sez I gotta watch out for osteopenia there. I'm unusual in that the hypothyroid commonly associated with UTCD got Dx'd first, rather than after. I'm starting Plaquenil. If that doesn't do it in 2 months, it's add on MTX which is fine by me...with Grape Seed Extract and extra Folic Acid I would be good to go. I'm already anemic so Pred. was out. YAY! The good news is no Pred. LOL Since I still have FM and have never ever found the return line I gotta go combo. So let's call it UTCD with OADDD and FMHypothyroidhypermobile. There. Three. Right? I know there's others out there who got the UTCD Dx before me...could I hear from ya, pleeze? I truly feel like a spotted zebra today. Hugs would be most welcome, dear ones. Thank ya! Hugs All Around from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II Ack! 'Scuse the typos. uCtd. :-) I forgot to add I also got the Parvo B19 virus dumped in there, too. Fifth Disease and associated joint pains, anyone? I think for this reason I got to keep the Neurontin...if not for the DDD reason, perhaps. So that's good. This one doesn't count on the 3 disease limit 'cuz...it just don't. LOL Thanks for listening to me complain and gripe! I appreciate it. More Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Which is so rare from Rosie but I have reason! The new Rheumy is a good > one but the new Dx I have is cruddy. I've got UCTD. That's Undifferentiated [quoted text clipped - 24 lines] > "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat > Outta Hell II >> Hugs would be most welcome, dear ones. Thank ya! >> >> Hugs All Around from Rosie Youuuu got em Rosie.... ((((((Rosie)))))). Getting answers is a good thing and you and I facing the outcome is important too. I can not help you with the problems other than I am pulling for you and you are in my prayers. It takes courage to keep digging with a doctor until a complete plan is formed to make your life better. Show us how,,, Rosie.... Keep us informed with what takes place. Harv Thanks, Harv! I sure will. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > >> Hugs would be most welcome, dear ones. Thank ya! > >> [quoted text clipped - 7 lines] > what takes place. > Harv > Ack! > [quoted text clipped - 47 lines] > Bat > > Outta Hell II {{{{{Rosie}}}}}, wish I could give a real (gentle) hug, since the cyber ones aren't all that great, but better than nothing :\. You have been in prayers since we first crossed paths, sorry to hear that they weren't working :-(. I suppose I'll need to pray a bit harder, and add a few songs to my ancestors. Be strong. Smokie Darling (Annie) Ma'am yes ma'am! And thanx, Annie Hon. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > > Ack! > > [quoted text clipped - 58 lines] > > Smokie Darling (Annie) Ah, Rosie! You're not playing fair hogging all the diseases. Our prayers will be for you. Luv ya - DeeTee <BG> I was on the phone with Sq. Jo when I popped this post open. We BOTH got a good laff from it, and thanks. Wuv U 2, DeeTee! Alphabet Soup Hog Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Ah, Rosie! You're not playing fair hogging all the diseases. Our > prayers will be for you. > > Luv ya - DeeTee "Rosemarie Shiver" <post147@strato.net> wrote in message > I know there's others out there who got the UTCD Dx before me...could > I > hear from ya, pleeze? I truly feel like a spotted zebra today. There is a whole herd of us spotted Zebra's here isn't there. Never heard that term before. And since no two zebra's have the same stripes, none would have the same spots either. I always wanted to be unique but this wasn't quite what I had in mind. Of course it does give us excellent camouflage while we plot right? Teach those hyena's and lions a thing or two. Jo LOL! Thank ya, Jo...I needed that. The spotted zebra is something my family used to say as shorthand for "ya just gotta be different. Gotta stand out from the crowd, huh." But if it confuzzles the predators it can't be ALL bad. Sorry you have it...but I'm kinda glad to be in your herd, Jo. Undifferentiated Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > "Rosemarie Shiver" <post147@strato.net> wrote in message > [quoted text clipped - 10 lines] > > Jo I have been searching for a group where people would understand, and I think I've found it! Hi all! My name is Charlene, and I have ankylosing spondylitis. I am on methotrexate, prednisone, Enbrel, azulfidine among others. May I join your group? (I sort of already did, cuz I couldn't post without joining, lol). I was just looking for a nice group, not full of spammers, that would understand arthritis and the pain that it really is. Have I found the right place? Char Yes Charlene, this is the place to be. Friendly. sympathetic, knowledgable people who give support and information. Gwen > I have been searching for a group where people would understand, and I > think I've found it! [quoted text clipped - 6 lines] > Have I found the right place? > Char >I have been searching for a group where people would understand, and I > think I've found it! [quoted text clipped - 6 lines] > Have I found the right place? > Char Bless you for your attitude and what you live with and you are most welcome here. I do not mind writing your full name. We have a long time well loved member of this newsgroup with the name of Char or maybe you would like,,,, Char2,,,, or make your own choice,,,, anyway it goes,,, you are most welcome here. Harv Soitenly! We have a Mama Char who hasn't been here enuff recently...so now ASA has 2 Char's. :-) Pull up some sand in the Sandbox and post away! If you have any chocolate, can I have some? I just don't even feel like being subtle...a blatant chocolate grab's the thing. <g> Welcome to ASA, also Char. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > I have been searching for a group where people would understand, and I > think I've found it! [quoted text clipped - 6 lines] > Have I found the right place? > Char You are here. Welcome and if you find a spammer feel free to chase them away. Don't sit near Kenny in the hot tub if you are shy (the ladies have a habit of stealing those hot red shorts of his and stringing them up the flag pole) and just give someone your chocolate to hold and order a drink. Some just drink soft drinks but KJ mixes a nasty margarita. Seriously to comment on your post above, enbrel sort of works for me but not fully either. That could be from all the infections and time off for that or could just be that my RA is more enthosopothy than all in my joints and therefore more like spondylitis we don't know. It is frustrating though. Wouldn't do without it though - it and prednisone keep me out of bed etc. Could you just have pain from previous damage? or are your joints still swollen and painful? Anyhow - welcome! Kelly >I have been searching for a group where people would understand, and I > think I've found it! [quoted text clipped - 6 lines] > Have I found the right place? > Char (((((rosie)))) this is NOT a club i would have wished for ya - but at least you will now be able to figure out how it is affecting your day to day i've never made a big deal of it but along with the still's: diagnosed childhood poly/dermatomytosis-some abatement in '59 - all that means is i stopped having the external rashes; since '83- collagen inflamation-mostly elbows and forearms, knees and heels where the skin peels away and fissures crack open - pulmonary fibrosis/nodulitis, polychrondritis, cellulitis, recurring vasculitis, reynaud's and and and - they tie it up in a bundle and call it uctd/syndrome...such fun. since my mother was eds IV, it took 'em a while to figure out that i 'wasn't' - and that's when they decided to use the connective tissue diag....in the 50-60's, they hadn't started using the uctd label - i think it was early 70's for that name. the muscle ache and fatigue that just washes over you - sometimes just getting out of a chair feels like more than can be done...ligaments and tendons that feel like they want to rip. any wonder that fibro stays ramped up? so welcome to the spotted zebra herd lady! congrats on staying away from the pred! too many years of it for me - part of why i'm brittle now. be well paul > I know there's others out there who got the UTCD Dx before me...could > I [quoted text clipped - 7 lines] > "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat > Outta Hell II Aw... Thanks, Paul. It's a comfort. So I'm like a combo of you and yer Mom, since it's EDS III and UCTD for me? Fertrue spotted zebra then. Dr. McCarthy sez it's 1 in 100 where this resolves to Lupus. Guess that's good...and shows me he's been leaning to the SLE end. Plaquenil, mebbe MTX which I can handle really well, and Neurontin. Could be worse. :-) Would be worse if this kept on untreated. I posted to our friend Dana about why UCTD for me and to our friend Mo about all the other stuffs and how I made this doc jump. Whut a day. LOL Thanks so much for letting me know you share this thingy, too. Hugs from 3ish Disease Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > (((((rosie)))) > [quoted text clipped - 38 lines] > > "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat > > Outta Hell II > Hugs would be most welcome, dear ones. Thank ya! > >Hugs All Around from Rosie Hugs back from Rosie1 to Rosie2. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Many thanks, Rosie the First! Re-Rosie Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > > Hugs would be most welcome, dear ones. Thank ya! > > [quoted text clipped - 6 lines] > > Please remove "Ima" to reply. {{{{{{{squishy Rosie hugs}}}}}}} Miss seeing you here...pop in more often, especially if you're here to complain. You know how we love that!lol Kelly C. > Which is so rare from Rosie but I have reason! The new Rheumy is a good > one but the new Dx I have is cruddy. I've got UCTD. That's Undifferentiated [quoted text clipped - 24 lines] > "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat > Outta Hell II :-) I'll be around...just not complaining. Kelly C. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > {{{{{{{squishy Rosie hugs}}}}}}} > [quoted text clipped - 31 lines] > > "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat > > Outta Hell II (((((( Rosie )))))) Hi Angela! Thanx for the hugs! Hugs Back Atcha from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > (((((( Rosie )))))) Wish I could take a few of those away for ya Rosie. Huge, squishy hugs coming your way. Kimmy Nah, Kimmy, Yer just great the way you is! Don't make me take a vote. LOL Kimmy Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Wish I could take a few of those away for ya Rosie. Huge, squishy hugs > coming your way. > > Kimmy Thanks for the nice welcome, and I don't mind being Char2. Rosemarie, I am sorry for what you are going through. What is DDD? What types of arthritis are you all suffering with? I have ankylosing spondylitis and fibromyalgia. It took about two years to finally get a diagnosis(a correct one, that is), and the fibro got tacked on somewhere in the middle of that two years. I am so glad to hook up with some people who know what arthritis can be like. I am so used to people telling me, "Oh, I have that in my little finger" and "Oh, my Dad has that". Do you guys often encounter that kind of thing? Char2 Heya Char! DDD is Degenerative Disc Disease. The discs between the spine bones are shrinking. There's every kind of arthritis here you can imagine ( there's over 170 kinds) and there's a similar spread on our sister group alt.support.arthritis.UK. The UK'ers are very nice about us crossposting there and vice-versa. If you wanna....c'mon over to alt.med.fibromyalgia. Some of us here are there, as well. I know what you mean. I wuz in the grocery line and the lady ahead of me was rubbing her elbow. The cashier asked her what was the matter and she said she had a 'touch' of Fibro! I mean....REALLY. That's someone who needs to be here, or there at AMF. :-) Sorry about your AS and FM, but glad yer here. Above 3 diseases and yer 'sposed to find the 'return line' and throw some back....but I ain't found it, yet! Perhaps you can, Charrly. <g> My addy's not munged and it's for the use of nice ppls. like yerself. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Thanks for the nice welcome, and I don't mind being Char2. > Rosemarie, I am sorry for what you are going through. [quoted text clipped - 7 lines] > Do you guys often encounter that kind of thing? > Char2 The UK group is UK.People.support.arthritis Gwen > Heya Char! > [quoted text clipped - 34 lines] > > Do you guys often encounter that kind of thing? > > Char2 Oh, yeah... Oops. Yup. Hey Gwen, I still have the OA but it's not the primary concern anymore. The RD didn't even talk about my lumbar OA at all. Guess if there's nothing to be done he ain't gonna say anything. Guess it's OA+ for me. :-( We OA'ers are still few, and that's really good. Gwen Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > The UK group is UK.People.support.arthritis > Gwen [quoted text clipped - 43 lines] > > > Do you guys often encounter that kind of thing? > > > Char2 As someone said previosly, you are hogging all the diseases. don't know why you couldn't be satisfied with OA, and maybe the DDD. No, you have to go adding on all the other stuff! Really, I am so sorry. It's bad when OA is about the least of your worries. Gwen > The UK group is UK.People.support.arthritis > Gwen [quoted text clipped - 43 lines] > > > Do you guys often encounter that kind of thing? > > > Char2 Thank ya, Gwen...yes that's true. On the other hand, perhaps the other stuff is stoppable; but heck if I can stop the bone shifting stuff that's causing the OA. Ya know whut I mean? Arrrggh. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > As someone said previosly, you are hogging all the diseases. don't know why > you couldn't be satisfied with OA, and maybe the DDD. No, you have to go [quoted text clipped - 55 lines] > > > > Do you guys often encounter that kind of thing? > > > > Char2 Been there - got the t-shirt. I just give them the look now - sort of a tolerating look. Gave up educating. Kelly {{{{{{{{{{{{{{{{{{Rosie}}}}}}}}}}}}}}}} Duckie > Which is so rare from Rosie but I have reason! The new Rheumy is a good > one but the new Dx I have is cruddy. I've got UCTD. That's Undifferentiated [quoted text clipped - 24 lines] > "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat > Outta Hell II  Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Hey you.....now cut that out!!! Sending soft gentle pain free hugs to ya Rosie and praying that brighter days are ahead for you! Donna G Thank ya kindly, Donna. Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > Hey you.....now cut that out!!! > > Sending soft gentle pain free hugs to ya Rosie and praying that brighter > days are ahead for you! > > Donna G Back atcha! {{{{Quack Quack}}}} Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > {{{{{{{{{{{{{{{{{{Rosie}}}}}}}}}}}}}}}} > Duckie [quoted text clipped - 46 lines] > _('< "AFLAC!" > (_<_) {{{{{Rosie}}}}} Sorry about your alphabetsoupitis. >{{{{{Rosie}}}}} Sorry about your >alphabetsoupitis. ROFLMAO!!! Love that new diagnostic term, Sarah! I think there may be a few here with that syndrome! Donna G I agree..it's a great term. Especially made for those of us who have no idea about any return line. Thanx, Sarah! LOL And WB, hope yer staying. :-) Hugs from Rosie -- "If you wanna get it done, you gotta fight for yourself." -- Meat Loaf, Bat Outta Hell II > >{{{{{Rosie}}}}} Sorry about your > >alphabetsoupitis. [quoted text clipped - 3 lines] > > Donna G Boy Rosie, you sure do have a lot going on. (((hugs))) I will add my hugs to those of the others. I am also sorry about the alphabetsoupitis. That one sounds like a doozy! Charlene |
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