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Medical Forum / Diseases and Disorders / Arthritis / August 2005Bursitis
Hello I have been recently diagnosed with rheumatoid arthritis but have had bursitis in my left hip for 20 years now. It has gotten to the point of so much pain I cannot lay on that side, walk hardly at all. I am in chronic agonizing pain. I've had physio, exercise, heat, ice and lately 2 cortisone injections. I take anti-inflammatory meds for my arthritis but still no relief. Has anyone been through this? What did you do to finally get relief? I'm beyond frustrated with it all and cannot stand this much longer. I am in Canada so if it means finding a doc that deals specifically with this problem it would have to be here in Canada. Anything you could tell me would be greatly appreciated. Thanks so much, have a great and hopefully pain-free day! Maggie To respond privately remove nospam. Maggie, I don't have an answer for you. But my heart and prayers go out to you! Take care, Vickie B. Thank you Vickie, that's very kind and very much appreciated! > Maggie, I don't have an answer for you. But my heart and prayers go > out to you! > > Take care, > > Vickie B. Hi Maggie: You need to see a rheumatologist, a doctor who works specifically with rheumatic conditions. RA is an autoimmune disease, and requires more than antiinflammatory medicine. RA is also systemic and involves joints and tendons, and also may involve heart, liver, lungs, and kidneys. It can be very serious if untreated. The class of drugs that gives the best response is referred to as a disease modifying drug (DMARD) and it helps to suppress the over active immune system. Have you had an exray on that hip? You could have more than bursitis going on. Getting the RA under control should also help with the bursitis. Ask your doctor for a referral to a rheumatologist, if he has not already suggested it. HTH Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Hi Rose Thank you for your informative and kind response. I guess I didn't explain myself very well :) Lack of sleep does that I think. I have a rheumatologist. I take plaquenil and arthrotec. I thought those were just called anti-inflammatories. I'm so new to this arthritis info as I was just diagnosed the end of March. I have MS to go with that. Medications are a problem for me as I've had an attack of pancreatitis so we have to be careful. My rheumatologist wants me to cut down on the arthrotec because of the pancreatitis. I have had an xray and no bony abnormalities. Just the bursitis. It has just gotten so much worse I am desperate for some pain relief. Cortisone is supposed to help. I read another post that I have yet to answer that said sometimes it takes awhile for the injection to work so maybe that's the answer. Thanks very much for taking the time to answer my post. I'm sorry I wasn't very clear. Have a great day Maggie > Hi Maggie: > You need to see a rheumatologist, a doctor who works specifically with [quoted text clipped - 19 lines] > > Please remove "Ima" to reply. The arthrotec is an anti-inflammatory but the plaquenil is a very mild dmard (disease modifying drug). There are many other dmards to try and it will be trial and error (and what your drug plan or your province's drug plan will cover). There is mtx (methotrexate), penicillamine, gold (used more in Canada than the states), antibiotic treatment, arava, enbrel, kineret, remicade and many more. The enbrel is not going to likely be used in your case because of the ms - although I believe at least one person here is using it with ms. The cortisone is just a stop gap - it will sometimes need more than one shot and does take a couple of days to work in some cases. Sometimes you will need reinjecting as well if they miss the right spot. Keep working with your rd (rheumatologist.) He is the person who will help find the answer. In the meantime also try ice, range of motion exercise, work with your body to find proper positions to sit, rise etc. Good luck and welcome to the group. The ms complicates stuff but there is a wealth of information here and on some of the other sites. Try www.arthritis.ca which is the arthritis society page for Canada as well. Kelly > Hi Rose > Thank you for your informative and kind response. I guess I didn't explain [quoted text clipped - 37 lines] >> >> Please remove "Ima" to reply. >Hi Rose >Thank you for your informative and kind response. I guess I didn't explain >myself very well :) And I assumed that you had not seen an Rd when you asked about a doc. :) Plaquenil is considered to be a DMARD, but arthrotec is an NSAID (antiinflammatory). There are many DMARDs available now. Plaquenil is one of the milder ones and is a good place to start. If it is not working though, you need to let the Rd know. We do have another regular participant with both RA and MS. I am not sure if she is around or away. Perhaps she can post about her treatment protocol. I hope that the cortisone kicks in for you. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. >Thanks very much for taking the time to answer my post. I'm sorry I wasn't >very clear. Have a great day >Maggie Maggie, welcome to the crazy world of RA and MS. I don't have the pancreatitis though. I do have asthma, though, if that counts. I have had RA for 4 + years, MS for 30 years. I am on MTX, Plaquinil, Meloxicam and Betaseron. Those are the big ones. :-) If you want to e-mail me with questions about those two lovely diseases please do so at jcarter at ripnet dot com All the best, and welcome to the asylum. Are you on asms as well as this forum? Lots of crazy folks over there too, not that anyone here is crazy. <running for my life> --- Joan Hi Joan Thank you so much. I have emailed so let me know if you don't get it as I may have messed up somewhere. Not that I've ever done that before... LOL Maggie > On Mon, 01 Aug 2005 22:29:22 GMT, "Maggie" <Magwheels@nospamshaw.ca> wrote > in [quoted text clipped - 23 lines] > --- > Joan >Hi Joan >Thank you so much. I have emailed so let me know if you don't get it as I >may have messed up somewhere. Not that I've ever done that before... LOL No email from you yet. >Maggie --- Joan HRMMMM I can't figure out what happened. Try emailing me please Joan and see if that gets through this way at least. Please and thank you! Maggie Magwheels at shaw dot ca > On Wed, 03 Aug 2005 15:57:29 GMT, "Maggie" <Magwheels@nospamshaw.ca> wrote > in [quoted text clipped - 9 lines] > --- > Joan I have RA and have struggled with hip bursitis for several years. I haven't found anything to give much relief, it seems to come and go as it pleases. I have had numerous cortisone injections in the bursa of each hip. Sometimes they help and sometimes I can tell no difference. The orthopedic doc has mentioned surgery to remove the bursa as an option but I haven't reached the point of willingly doing that. I hope you can find something that will help you. I have RA and have struggled with hip bursitis for several years. I haven't found anything to give much relief, it seems to come and go as it pleases. I have had numerous cortisone injections in the bursa of each hip. Sometimes they help and sometimes I can tell no difference. The orthopedic doc has mentioned surgery to remove the bursa as an option but I haven't reached the point of willingly doing that. I hope you can find something that will help you. Angela Hi Angela I'm about ready to give up on the cortisone injections as they don't work at all for me. I read that removing the bursa can sometimes be the only help but was hoping it wouldn't come to that. It sure makes life difficult when it hurts to move your hip at all. Thanks so much for replying and I hope you find some relief soon too. Maggie >I have RA and have struggled with hip bursitis for several years. I > haven't found anything to give much relief, it seems to come and go as [quoted text clipped - 5 lines] > > Angela Maggie, I've had bursitis in my "good" hip (other one replaced) for about 3 or 4 years. For a while it was agony just like yours. I had several shots in it which helped for a short while, and then within the last six months it has stopped hurting so badly. If I sit a long time and get up, it is hard to get started walking because it hurts then. Otherwise, it really doesn't bother me much now. Hope that will happen for you very soon. Gwen > Hello > I have been recently diagnosed with rheumatoid arthritis but have had [quoted text clipped - 11 lines] > Maggie > To respond privately remove nospam. Thank you Gwen, I hope it happens soon too. What a pain in the near butt! :) I hope you continue to feel better. Have a great day Maggie > Maggie, I've had bursitis in my "good" hip (other one replaced) for about > 3 [quoted text clipped - 29 lines] >> Maggie >> To respond privately remove nospam. Maggie, I am also on tramadol up to three times daily for pain. That could be the reason mine is so much better. Can your RD give you something for the pain? I'm also on a muscle relaxant so I can sleep. Gwen > Thank you Gwen, I hope it happens soon too. What a pain in the near butt! :) [quoted text clipped - 34 lines] > >> Maggie > >> To respond privately remove nospam. I had to have a THR and my hip pain subsided. jb | Hello | I have been recently diagnosed with rheumatoid arthritis but have had [quoted text clipped - 11 lines] | Maggie | To respond privately remove nospam. A THR for bursitis or something worse than that? I'm desperate for answers so please let me know what happened to you. Thanks for replying Maggie >I had to have a THR > and my hip pain subsided. [quoted text clipped - 22 lines] > | Maggie > | To respond privately remove nospam. Maggie, I too have similar trouble with my hip. One thing that helped me was a corisone shot in the hip. I've had several over the years and they have worked well for me. The can last from three to six months. I hope you find some relief soon. debbie m. > Hello > I have been recently diagnosed with rheumatoid arthritis but have had [quoted text clipped - 11 lines] > Maggie > To respond privately remove nospam. Geez, I don't have any answers for you either, but I do have hip problems, mostly on the left side. I know how frustrating it can be, to be on a bunch of different meds and still be experiencing pain. I also have tramadol, 2 up to three times a day and that does help a lot, most of the time, anyway. I am also on Enbrel, azulfidine, prednisone, methotrexate, leucovorin, Soma(one at night to sleep), and the tramadol. Is there anything that your Rd can do for you? I haven't had my hip injected, but I have had my wrists injected (three times each now) as well as my thumb, and it helped me a lot. I hope that you can find some relief soon, Char Hallo Bursitis posters, Has anyone heard of the study by Dr. Klemes regarding vitamin B12 injections for bursitis? My sister mentioned this to her doc. and he is willing to let her try this for her bursitis. The primary article was published in 1975, see below. I haven't read the whole paper just a report elsewhere. Has anyone tried this route? Know anything about this treatment? Here's a quote I located: "In a preliminary study, intramuscular injections of vitamin B121 2 relieved the symptoms of acute subdeltoid (shoulder) bursitis and also decreased the amount of calcification in some cases. This mechanism is not understood. Oral B vitamins are unlikely to have the same effect, since the body's absorption of vitamin B12 is quite limited. ..." Comments? Kindest regards, Diana 1. Klemes IS. Vitamin B12 in acute subdeltoid bursitis. Indust Med Surg 1957;26:290-2. 2. Kellman M. Bursitis: a new chemotherapeutic approach. J Am Osteopathic Assoc 1962;61:896-903. (PMID: 14454988 [PubMed - OLDMEDLINE for Pre1966] > Geez, I don't have any answers for you either, but I do have hip > problems, mostly on the left side. [quoted text clipped - 9 lines] > I hope that you can find some relief soon, > Char I really don't know about bursitis. And the article is pretty old. The injection should be unnecessary if you wanted to try B-12. At the suggestion of a friend who has had gastric bypass surgery, I've started taking sublingual B vitamins. You get the B-12 that way with out having to deal with the shot. Available in Walmart or Walgreens etc at a very low price. Jo > Hallo Bursitis posters, > Has anyone heard of the study by Dr. Klemes regarding vitamin B12 [quoted text clipped - 32 lines] >> I hope that you can find some relief soon, >> Char Jo, thanks for input.. the article did point out that oral B vitamin would be unlikely to have the same effect as injections.... The dose mentioned in the article is 1,000 micrograms daily for three weeks, then once or twice a week for two or three weeks ...Also, according to the study over a five year period only three patients failed to respond to this vitamin B12 therapy for the bursitis condition.... Kindest regards, Diana >I really don't know about bursitis. And the article is pretty old. The >injection should be unnecessary if you wanted to try B-12. At the [quoted text clipped - 40 lines] >>> I hope that you can find some relief soon, >>> Char > Jo, thanks for input.. the article did point out that oral B vitamin would > be unlikely to have the same effect as injections.... The dose mentioned > in the article is 1,000 micrograms daily for three weeks, then once or > twice a week for two or three weeks ...Also, according to the study over a > five year period only three patients failed to respond to this vitamin B12 > therapy for the bursitis condition.... Sublingual (liquid placed under the tongue) isn't the same as taking a pill, which I'm quite sure is what they meant by oral in the article thirty years ago. Jo Thanks again, Jo. See article below (which would appear to be a reliable source) for a comparison between oral and sublingual vitamin B12: http://www.cce.cornell.edu/food/expfiles/topics/stipanuk/stipanukqanda.html and a small quote here (just in case you don't have time to wade through the whole page): "... I have seen no studies comparing oral vs. sublingual vitamin B12. The promotion of sublingual B12 (and vitamin B12 nasal sprays) seems to come entirely from the manufacturers of this form of B12. There is no question that sublingual B12 works, but the conclusion of scientists seems to be that it works the same as oral vitamin B12, which is much cheaper. Vitamin B12 is a relatively large, water-soluble molecule that requires a specific receptor-mediated process for uptake across the intestine. It is not likely to be absorbed through the mucosal membranes of the mouth. The amounts (micrograms) of vitamin B12 provided by prescribed oral vs. sublingual supplements is essentially the same -- another indication that they are absorbed similarly. [If sublingual were absorbed much better, one would expect that the dosage could be lower.] ..." If/when my sister goes the injection route for the B12 and there is an improvement I will post the outcome. Wouldn't it be wonderful? Since the RDA is somewhere between 2 and 6 mcg (wherever a person reads) the injection of 1,000 mcg is a massive dose. Maybe it is the dose rather than the method. What is your sublingual dose? Thanks for your input. Good health, Diana >> Jo, thanks for input.. the article did point out that oral B vitamin >> would be unlikely to have the same effect as injections.... The dose [quoted text clipped - 8 lines] > > Jo Have had monthly Vit B-12 shots since last Oct for Peripheral Neuropathy not in as much pain from it now like last Oct and I can not take Neurotin--tried that 2 times already. Found it has increased my stamina level and I can tell when it's time for the next shot without even looking at the calendar--I'm not as 'peppy' for the last 3 to 4 days before I get it. HTH Butterfly > Thanks again, Jo. > See article below (which would appear to be a reliable source) for a [quoted text clipped - 38 lines] >> >> Jo Hi Butterfly, Thanks for your response. What dose is your Vit B12 shot, please? It sounds as thought it has a positive effect to a degree for your our situation which is good ;o) BTW did you have any tests to determine if you had a vit B deficiency? Wondering about this too. And, if so what is it called? Any ideas? Kindest regards, Diana > Have had monthly Vit B-12 shots since last Oct for Peripheral Neuropathy > not in as much pain from it now like last Oct and I can not take [quoted text clipped - 4 lines] > > Butterfly > tests to determine if you had a vit B deficiency? Wondering about this > too. And, if so what is it called? Any ideas? Talkng to myself ... that would be the Schilling test, then ;o) I don't believe that I was ever tested for Vit B, but my rheumy has given me B12 shots! This is for my FMS. I always ask for them and they come about every 6 monthes. I also take vit B12 daily. I have noticed a difference as well. Take care, Vickie B. Thanks Vickie, Good to know that you get some relief. Any idea what the dose of the Vit B shot is? Thanks Diana >I don't believe that I was ever tested for Vit B, but my rheumy has > given me B12 shots! This is for my FMS. I always ask for them and [quoted text clipped - 4 lines] > > Vickie B. Think its around 1000MG, monthly. Wonder if it has helped the fibromyalgia? I don't seem to have as many or as harsh of flares like I use to. Not sure of the exact name of the test all I know is that I made a Vampire very happy : ) Had 2 Vampire tests that day---one fasting and one non. Butterfly > Hi Butterfly, > Thanks for your response. What dose is your Vit B12 shot, please? [quoted text clipped - 14 lines] >> >> Butterfly Hi Butterfly, Thank you. Since you're not in as much pain would say the B12 definitely has some beneficial effects. This is good news indeed, and something to share with my sister who has very painful bursitis (perhaps all bursitis is very painful). Anyway, I found something called the Schilling test which sounds very complicated and includes a radioactive dose ;o( It is used to determine whether Vit B12 is absorbed normally. The test measures the 'intrinsic factor' that is produced in the stomach and binds to Vit B12. All very complicated for me at this time. My sister's doc. didn't mention any such test, but he was willing to let her try the Vit B12 injection route. Thanks again. Kindest regards, Diana > Think its around 1000MG, monthly. Wonder if it has helped the > fibromyalgia? I don't seem to have as many or as harsh of flares like I [quoted text clipped - 13 lines] >> Kindest regards, >> Diana HI Maggie, Boy or boy can I relate to you, I have tried everything also, have an appointment with an ortho surgeon in a couple of weeks, my foot doc keeps thinking it is caused from my orthodcis but that is not the case I am proving to her. It is no fun, is yours worse in the morning? Mine seems to be and then gets better the more I stretch but sure is bad when I try and take the dogs for a walk, I am turning 50 soon and already feel 90! Hang in there Becky > Hello > I have been recently diagnosed with rheumatoid arthritis but have had [quoted text clipped - 11 lines] > Maggie > To respond privately remove nospam. |
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