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Medical Forum / Diseases and Disorders / Arthritis / July 2005Update on the all important me
Hi All, Today I will take my second Enbrel shot after being in medicated remission from the TB medicine for 6 of the seven months............................................. It did take kind of take me back to when I was 40 or so. It started in my shoulders went to the base of my thumbs, then on the the wrists. That is when I had to drag myself back into the real world of a person with RA.... I am going to talk to my RD about doing the anti-bio schedule. I only have 4 more years of paid for insurance from my retirement agreement and I will be 70. So it goes. Harv Best wishes, Harv, that you continue to improve. Loujean >Hi All, Today I will take my second Enbrel shot after being in medicated >remission from the TB medicine for 6 of the seven [quoted text clipped - 6 lines] >goes. >Harv Harv, Do you mean you felt that the enbrel made you feel worse? "Sorry guess I am a little dense sometimes when it comes to understanding posts. Also I see you are done with your TB meds, that is great, I have to take it for one more month, they require 9 months of medicine out here where I am. I will start the enbrel on Aug 12th, that will be the end of my TB meds. I am still a little worried about it but don't want my hips to get worse. Wishing you good luck with the enbrel Becky > Hi All, Today I will take my second Enbrel shot after being in > medicated remission from the TB medicine for 6 of the seven [quoted text clipped - 6 lines] > it goes. > Harv > Harv, > Do you mean you felt that the enbrel made you feel worse? "Sorry guess I [quoted text clipped - 5 lines] > Wishing you good luck with the enbrel > Becky Hi Becky,,, The TB medicine put me in full medicated remission and Enbrel not needed. I have nearly 5 months supply in my frig. My RD said I only needed to take the medicine for 6 months and I took it 7. The Enbrel did like it has always done for me. I felt better the next day after taking my first shot three years ago and the same thing happened two weeks ago. I was going into a full, all over flare and it was stopped dead in its tracks without steroids this time. Three years ago I had a 100mg steroid shot and I sweet talked the nurse into giving me a 50mg in each cheek. That much of a shoot really hurts in one place.,,,,,,,,,,, But it must of been the Enbrel because like I said it turned off the flare this time without a steroid shot. Harv Ps I know I stopped the TB medicine early and my lung doctor wanted 9 months too. The breath and lung capacity, oxygen in the blood stream cost my insurance over a thousand dollars and the little blow machine in his office cost a hundred everytime it was used. The doctor was setting up to do all that again and I was not going for it. I have terrible scarring in my lungs that came from 3 packs a day or RA lung that is not going to get better and during those 7 months of seeing the specialist he did or prescribed nothing to actually help congestion,,, excess fluid or the my lung capacity. If he had of,,,,, I would of gone the full 9 months and did what ever test he wanted to run. Why go through all that again for nothing. By the way, I stopped smoking over 25 years ago and it is a good thing I did. Wow Harv, that is great the TB med did that for you, hasn't done that for me, I have one more month like I said and then done with it, I have taken the milk thistle all along also since it did have my liver enzymes go up a little. I am getting my first steroid shot hopefully in a couple of weeks, my RA doc sent me to an ortho guy to evaluate my right hip, he doesn't feel it is the RA for some reason, thinks it is bursitis and over use from the exercise I was doing, so will see. Maybe the enbrel will help it if I start it, the MTX makes me very tired and lately I am thinking that it may be the cause of my mental depression I am experiencing, which I have never had before at all, I am always an upbeat person on the go and since increasing it to 17.5 I just don't give a rip, sorry/ Anyway I am happy you are doing good, and good job on quitting smoking, I have tired for years to get my husband to quit, he is diabetic and still smokes, but has cut down but I tell him he needs to go all the way. Thanks for the reply and have a great week. Becky >> Harv, >> Do you mean you felt that the enbrel made you feel worse? "Sorry guess I [quoted text clipped - 31 lines] > for nothing. By the way, I stopped smoking over 25 years ago and it is a > good thing I did. > Wow Harv, that is great the TB med did that for you, hasn't done that for > me, I have one more month like I said and then done with it, I have taken [quoted text clipped - 13 lines] > Thanks for the reply and have a great week. > Becky Hi Becky, I am sorry to say that Methx and amitriptalene got me so down that I think the pain I was having each day,,, fuzzy thinking,,, and a down attitude helped me to retire early at 55. Ooooh if I had only taken my company disability which was 70% or what I was making at the time which would be far more than Fed. disability and pension but ya know,,,, you can not go back and redoooo anything. I thought I could get another job,,,, any job..... So it goes. About your husband smoking,,,,, they say that a persons lungs clean up after about two years but what they do not tell you about the scars is that they never go away or recover. They stay as they are or get worse. The thing is,,,,, like KJ,,,, you have to want to quit more than you want to smoke but I had help on my knees and like Enbrel,,,, it was help right now and I never smoked again. Sorry, I know you have read that before but it is the truth. Harv I hope all goes well for you Harv and that you get quick relief.  SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Hi All, Today I will take my second Enbrel shot after being in > medicated remission from the TB medicine for 6 of the seven [quoted text clipped - 6 lines] > it goes. > Harv >I hope all goes well for you Harv and that you get quick relief. > Love and hugs to all > Good thoughts coming your way too. > > Squirrely Jo Thank you Jo..... I am one of those people that Enbrel works really well for me and I chopped some limbs an mowed the lawn and enjoyed it a week ago but there for awhile my wife was doing that kind of stuff. Ohhhh does that skinny kid sweat alot.....pleasingly plumb... as they say. LOLOL Harv may the enbrel kick in again quickly for you. You have been through such torture in recent months. It is great that you are finally down with the TB meds and can have our precious Enbrel again. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare {{{{{{{{{{{{{{{Harv}}}}}}}}}}}}}} Praying the enbrel does the trick for you and gets you feeling much better real quick!!! God bless! Donna G > {{{{{{{{{{{{{{{Harv}}}}}}}}}}}}}} > [quoted text clipped - 4 lines] > > Donna G thank you,,,, it did. Almost got into a full flare before giving up the hope the TB antibiotic cured me of RA and had a shot of Enbrel. Harv So, Harv, how are you doing now that you are back on the enbrel? Doing better I pray!!! Donna G > So, Harv, how are you doing now that you are back on the enbrel? Doing > better I pray!!! > > Donna G Thank you for asking,,,,, Just like old times. One shot, one day, and good buy flare. My RD said Noooo to me trying Doxycyclene because the TB anti-bio put me in complete medicated remission....I wanted to try it... Maybe someday. He lost three long time patients last week and was kind of shook up about it. I told him about only for more years of insurance and he said that Enbrel worked so well for me that we will worry about that in four years. I really think it was just a bad time to talk to him about changes when I have something now that works so well now. Harv Ps The TB anti-bio lasted two weeks when stopped before I started to slip into a flare that might of went all over. Enbrel stopped that.
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