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Medical Forum / Diseases and Disorders / Arthritis / July 2005Abatacept Study and Gimp Pinic!
:::::::::sneaking in:::::::::::: Hi Gang!!! Just popping in to let ya'll know that I am finally starting the Abatacept Study. I will get my first infusion on Tuesday, another in two weeks and monthly after that. It is a 6 month study and no one gets a placebo. I'm REAL excited about this one. I think it might be the one. I'll try to keep ya posted on how it goes. Now..about that Gimp Pinic, it's a month away so I need to know who is planning on coming. All the details are here: http://www.rheumorweb.com/picnic/ I hope to see lots of ya there, Bob's making a margarita monster machine!! Ya gotta see it to beleive it! ~KJ PS: Just got a news release that Abatacept is going to the FDA Arthritis Advisory Committee on Sept 6. Traditionly, if they give it a yes it doesn't take long until full FDA approval. Wow. Good news all along. I sure hope this works wonders for you. So my method for finding veins for the infusion is this: 1. day before drink a lot more water and very little caffeine 2. exercise a bit - doesn't need to be much but you need to break a sweat 3. Morning of - start drinking water when you first get up 4. get into a really hot shower just before you leave for the infusion Not really sure which one has helped the most but I think it is the combination as just drinking water wasn't doing it for me. They had to wrap both arms and search for a vein. Now we never have to wrap. You will have to let us know how you are doing. Duckie > PS: > Just got a news release that Abatacept is going to the FDA Arthritis > Advisory Committee on Sept 6. Traditionly, if they give it a yes it > doesn't take long until full FDA approval.  Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) > PS: > Just got a news release that Abatacept is going to the FDA Arthritis > Advisory Committee on Sept 6. Traditionly, if they give it a yes it > doesn't take long until full FDA approval. Can you tell us what is different about it from Enbrel or Remicade? Harv > Can you tell us what is different about it from Enbrel or Remicade? > Harv Hiya Harv!!! Enbrel and Remicade work on the TNF. As I understand it, Abatacept works by going more to the root of the immune system. T Cells are a major part of the immune system. Abatacept blocks one part of T Cells and prevents it from acting with another part to create autoimmune inflammation. Very basic and probably not totally accurate but that's the general gist of it anyways. ~KJ >> Can you tell us what is different about it from Enbrel or Remicade? >> Harv [quoted text clipped - 10 lines] > > ~KJ Thanks KJ and that really sounds good and may be just the thing for you. Harv so excitint, KJ! keep us posted. don't disappear! diane >PS: >Just got a news release that Abatacept is >going to the FDA Arthritis Advisory >Committee on Sept 6. Traditionly, if they >give it a yes it doesn't take long until full >FDA approval. KJ, Anyway you could post that news release for the rest of us??? I sure would love to read it and share it with my RD! Thanks! Donna G > Anyway you could post that news release for the rest of us??? I sure > would love to read it and share it with my RD! > > Thanks! Donna, It's here: http://www.fda.gov/oc/advisory/accalendar/2005/cder12532d090605.html ~KJ Donna...Here's the press relaese. Looks like the brand name will be ORENCIA http://makeashorterlink.com/?U1322338B Karen > KJ, > [quoted text clipped - 4 lines] > > Donna G Thanks Karen and KJ for the info......it is much appreciated! Donna G I want to see a picture of that? rofl I am of course in Nashville again this year. Duckie > I hope to see lots of ya there, Bob's making a margarita monster > machine!! Ya gotta see it to beleive it! > > ~KJ Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Hi KJ, Missed you here. I am pulling for you with the new medicine. It takes some courage to be in the test group for a new medicine and over the years I have come to know a lack of courage is not one of your problems. I hope your kids are doing well and they still get into my prayers every now and then. Harv > :::::::::sneaking in:::::::::::: > [quoted text clipped - 16 lines] > > ~KJ Yippeeeeeeeeeeeeee!!! I am soooo excited for you and keeping everything crossed for you that this med will be THE ONE for you! I eagerly await your sharing your experiences with this new med as this is something that I am headed for, and just waiting for it to be approved instead of doing a trial!!! Are you doing a pic line or a port or what for your IV access? Donna G Are you doing a pic line or a > port or what for your IV access? Right now we are trying for regular IVs. We're hoping that with a month between infusions my viens will have time to heal. The other good thing is that it is a short infusion time. If we can get a decent IV in it only has to last 30 minutes. We'll just have to wait and see how it goes. ~KJ Oh now that is really cool. 30 minutes. Do they require Benedryl with it or not. At least with a three hour with Remicade the stuff gets a chance to wear off. 30 minutes and I will need a cab. Duckie > Are you doing a pic line or a > [quoted text clipped - 8 lines] > > ~KJ Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) > Oh now that is really cool. 30 minutes. Do they require > Benedryl with it or not. At least with a three hour > with Remicade the stuff gets a chance to wear off. 30 > minutes and I will need a cab. No Benedryl! They keep you for a half hour after the infusion then you can go. Said there would be no reason to think that I wouldn't be able to drive myself home. ~KJ Now that is cool. Duckie > No Benedryl! They keep you for a half hour after the infusion then you > can go. Said there would be no reason to think that I wouldn't be able > to drive myself home. > > ~KJ Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) I'll be there - gotta get around to making my reservation sometime between tomorrow's open house/backyard BBQ and my departure Thursday for Florida and my high school band reunion. I've been way too busy this summer --- getting seriously tired. Got my fingers crossed for you and the abatacept! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
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