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Medical Forum / Diseases and Disorders / Arthritis / July 2005Warning......whine alert!
Grrrrrrr................just got home from a few days in the hospital. The sinus stuff (infection/bloody nose) along with an ear infection triggered the breathing problems and off to the ER it was late monday evening. Got admitted and here I am home again doing better but as usual exhausted, coughing my fool head off, and so sore I can hardly move. I am soooooo sick and tired of being sick and tired!!! I know, I know, you have all been there done that! Uggggh!!! The first night at the hospital, I had this nurse who told me that RA is really not hereditary or from infection, but is primarily from people being lazy and inactive/immobile! Huh? Don't know where she gets her information from! OK, here is my selfish whiney part! I am really really getting bummed out. The annual gimp picnic is just around the corner and I am incredibly bummed that I may have to miss this years. This would be the first one I would miss and I sooooo look forward to them every year and the fun we have there. This years has been moved up to august instead of late september, and that is not a good thing for me at all. It has been so unusualy hot and humid this summer, that I'm afraid if I go and sit outdoors for a day and it is hot and humid like it has been lately, that I will end up in trouble with my breathing and such. Usually by late september the weather has cooled significantly and the humidity is almost non existent which is much better for my old lungs. Also, this years will be during KJ's 40th birthday!!! I know, such a stupid thing to get all bummed out about, but hey, what can I say. They are always soooo much fun! I also have to start deciding whether or not I want to give up my enbrel or continue on with the more severe infections. The infections seem to be getting more and more difficult to get on top of and yet if I give up my enbrel, then I go back to getting stuff like iritis, pericarditis, saliva gland inflammation, RA lung problems, etc. Hmmmmmm.............not much of a choice and am not sure what is the best way to go and what is the lesser of the two evils. Sure wish my body would just co-operate a bit more and quit making things so lively! I know things could be so much worse than they are and trust me, I am very thankful for many things. Just guess I am tired and feeling a little whiney right now. Sorry folks and thanks for letting me get that whine off my chest! Pass the extra sharp cheese please! ; ) Donna G > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 5 lines] > I am soooooo sick and tired of being sick and tired!!! I know, I > know, you have all been there done that! Uggggh!!! Yes, I know how you feel. I think this is serious for you and you need time to recover. if I go and sit outdoors for a day and it is hot and humid like it has been lately, that I will end up in trouble with my breathing and such. I think that is good thinking on your part. Its time for you to come first. > Usually by late september the weather has cooled significantly and the > humidity is almost non existent which is much better for my old lungs. > Also, this years will be during KJ's 40th birthday!!! > > I know, such a stupid thing to get all bummed out about, but hey, what > can I say. They are always soooo much fun! Yes, she is fun and we miss her not posting around here anymore. > I also have to start deciding whether or not I want to give up my enbrel > or continue on with the more severe infections. It is something to talk to your RD about. While I was taking that TB-antibio, my cough and the fluid in my lungs just got worse and worse. I stopped taking Enbrel and I now have almost a four month supply in the frig and my lungs have almost cleared up. Stopping the DMARD can send your inflam.arth into a tail spin that is hard to pull our of. I did that with Methx for this reason and Arava for that reason and went pretty far down the road to being bed ridden like Kitty. Enbrel saved me from that and I nearly had to get myself a new RD for not telling him enough. The infections seem to > be getting more and more difficult to get on top of and yet if I give up > my enbrel, then I go back to getting stuff like iritis, pericarditis, > saliva gland inflammation, RA lung problems, etc. > Hmmmmmm.............not much of a choice and am not sure what is the > best way to go and what is the lesser of the two evils. That is why your RD has to have control. Sure wish my > body would just co-operate a bit more and quit making things so lively! > I know things could be so much worse than they are and trust me, I am > very thankful for many things. Just guess I am tired and feeling a > little whiney right now. >Donna G With good reason and do not worry about that. We all have our bad times. Harv Donna, Glad you are back out of the hospital. Sorry that you have so much going on again. I feel for you. I can understand you venting about the gimp picnic and such. You get tired of giving up so much because of your health and that is understandable. It does get to you at times. You have held up so well so many times. You do not whine often, and I would be if I was going thru all you do. ;-) By the way, can you breathe better now that you got that whine off you chest. I bet it was weighing you down. Just kidding here, hope it put a smile on your face. Know we have you in our heart, thoughts, and prayers at all times. You are a very special person, I hope you know that.  SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 44 lines] > > Donna G Whine all you want. You need to report this nurse, she is dangerous to have around. Is she going to take an incorrect course of action for her patients; because she has mistaken opinions on a major disease. The Hospital I use, K. U Medical Center in Kansas City, MO uses a patient survey for all in patient as well as out patient stays. On my last survey I reported a food service person who did not want to take my order for Breakfast, insisting I call it in. Even though it was evident I was holding a wash cloth over my arm attempting to stop the bleeding which I had caused when I accidentally pulled out my IV. I would have needed a third hand to phone it in. Don Whitely > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 44 lines] > > Donna G {{{{{{{{{{{{{{{{{{Don}}}}}}}}}}}}}}}} Sheesh, Don, what a terrible thing to have to go through. It is unbelievable how thoughtless and awful some of these people in the medical field can treat you. I always pray that they never find themselves in the same situation and realize just how awful they really have been! You and yours continue to be in my prayers and I sure hope they can beat this evil monster down for you!!! God bless! Donna G Donna, Sucks that you feel so lousy. Don't blame you a bit for feeling feeling a bit down and wanting to whine a bit. ;) We'd miss you terribly if you couldn't make it to the picnic - but we would NEVER want you to risk ending up back in the hospital just to come. If you're not feeling up to the picnic, I think we're gonna have bug you with a phone call so everyone can at least say hi to ya. Take care of yourself and I hope this all starts clearing up for you soon. I think KJ's still gonna start abatacept soon - maybe it'll be a miracle drug and lots of people will be feeling better in the near future. Love ya, Kimmy donna, i'm sorry you're going through all this! the uncertainty about what to do with regard to enbrel must weigh on you. sorry, too, that you may miss the gimp picnic. and when you feel up to it, PLEASE report that b$#^& nurse to her supervisor. grrrrrrrrrrrrrrrrrrrrrrrrrrrrrr diane (((((((((((((((((((((((donnag))))))))))))))))))))) geez louise! you sooooo deserve a break, sweetness. i think i missed the "self-ish whiney part" in this missive of yours. what i heard was sane disappointment and sensible caution, with a bit of trying to figure things out, thrown in. boy, i wish i could have been there when that sanctimonious catty nurse coughed up her hairball of wisdom. i'd have stuck my foot out just as she tried to walk by me and let her kiss the floor. hey, leg extensions are a form of exercise, right? and exercising is not being lazy, right? i would have been just taking her advice, right? grrrrrrrrr . . . her boss needs to educate her! i hope you feel loads better and very soon, sweetie. lovingly, kate > donna, i'm sorry you're going through all this! the uncertainty about > what to do with regard to enbrel must weigh on you. sorry, too, that [quoted text clipped - 4 lines] > > diane {{{{{{{{{{{{{{{Donnag}}}}}}}}}}}}}}}}} I can't fix any of that but sure wish I could fix some of it for you. Duckie > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 44 lines] > > Donna G Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Duckie thanks for copying the whole post my server must have missed this one. Donna....I'm sorry you've hit another bump in the road. As for giving up your enbrel I know what your talking about. I did end up giving mine up due to numerous sinus infections. We've moved on to remicade and after one infusion I already have a UTI...so I can really understand the infection stand point. I've been on antibiotics more this year than I've been off them. As for that evil nurse...well...I wish a week of RA on her...could it possibly be mine...I have vacation planned for next week..lol. Hang in there, kiddo!! Feel better soon! melissa >{{{{{{{{{{{{{{{Donnag}}}}}}}}}}}}}}}}} I can't fix any >of that but sure wish I could fix some of it for you. [quoted text clipped - 48 lines] >> >> Donna G LOL.......thanks Melissa. Hope you have a great vacation and a pain free one as well! Donna G >Duckie thanks for copying the whole post my server must have missed this >one. [quoted text clipped - 8 lines] >As for that evil nurse...well...I wish a week of RA on her...could it >possibly be mine...I have vacation planned for next week..lol. Why just a week? We have to live with it. >Hang in there, kiddo!! Feel better soon! > [quoted text clipped - 52 lines] >>> >>> Donna G {{{{{{{{{{{{{{{{{{{{{{Donna!}}}}}}}}}}}}}}}}}}}}}}} Sorry to hear you were in the hospital. Glad you are back home :-) Take care of YOU! :)) Don't you just love when people make comments and they don't know what they are talking about? There ought to be a law against it! And I know how you feel about missing the picnic. I wanted to go to Portland, but it just couldn't happen this year. But there is always next year :)) And I'm sure everyone will post pictures. I know it's not the same, but we do the best we can :) BIG HUGS, Carole :) > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 44 lines] > > Donna G Donna, you really do have reason to whine, with or without the cheese. You are having, and have had, such a hard time. I wish you hadn't been so lazy so you wouldn't have RA! HA, what a stupid thing for a nurse to say, and I hope you told her so. Will be praying for you, especially that you will know what to do about the enbrel. Gwen > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 44 lines] > > Donna G You know that really great line to say when someone looks at you emerge from your car and says "you don't look handicapped".... Wow and you don't look stupid either but I guess we are both wrong. You be sure to tell on her to anyone connected to that hospital. How old was she anyway? Duckie > Donna, you really do have reason to whine, with or without the cheese. You > are having, and have had, such a hard time. I wish you hadn't been so lazy [quoted text clipped - 51 lines] >> >>Donna G Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Duckie, The nurse was probably in her mid 30's if I had to guess. Not really very old at all. The thing that surprised me when she made the comment was, I happened to get admitted to the transplant floor as the pulmonary floor was full. I thought to myself, geez, I sure hope she is a little more encouraging and positive to the patients who are getting transplants than she is to me. Would hate to think that she would blame those transplant patients for their problems or need for transplants! Donna G ROFLMAO!!! Kate, sweetie, you are just too precious!!! I love your "exercise" program and should have thought of it myself while I was there!!! LOLOL!!! Donna G I am so sorry to hear about your health problems. I am also sorry to hear about the ignorance about RA displayed by the nurse. It surprises me that nurses are not better trained in the area of autoimmune diseases. I know from experience though that many do not understand RA. When I was 24 or so having my first tkr a nurse told me that her son had been going out with a girl with RA, and she encouraged him to break up with this girl because as she put it "you don't want to marry someone with those problems". The son listened to his mama. I was left feeling very badly though because the message that I was getting was to forget any kind of normalcy in life and expect to live life as a "cripple". I have since encountered many more nurses that displayed compassion and understanding, and the realization that people need not be limited in spite of a poor prognosis. Hopefully this nurse will develop some understanding, and show a greater degree of empathy in the future. Take care of yourself, and know that we are thinking about you. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. Yikes, Rose, what a terrible thing to say to your child. It's a shame too to realize that those type of bad habits just continue to get passed down when people are that niave and stupid. How awful to tell someone to dump another person just because they have some health problems. I have to agree with you, though, for every stupid and hurtful comment or for every time some health care professional treats you poorly, there are just as many out there who work very hard and are very caring, compassionate, and knowledgeable!!! Thank goodness!!! Donna G PS.....BTW, how are you coming along with your recovery from your mugging and how is your mom doing? Did your sister decide to have her surgery this month? >PS.....BTW, how are you coming along with your recovery from your >mugging and how is your mom doing? Did your sister decide to have her >surgery this month? I was doing fine until I saw what I believe was the perp yesterday. It did shake me up a little. We have a huge music festival in town, and there are some down town events. After one of these events, she was frantically gathering soda cans and bottles, and was even getting them out of the garbage cans. While I am all in favor of recycling, what stood out was her fervor in getting these bottles. She appeared almost manic. It is clear to me that she is still desperately in need of a fix. My mother has improved somewhat, but is still dealing with the uti and now maybe a uri as well. She is getting home care twice each day, and has only been out to go to her doctor. It is a little worrisome because we do not want her to become housebound. My sister would have had the surgery on the 19th, but there is some issue with between her surgeon and the hospital, resulting in her surgety being postponed until the first week of September. I think that there are some politics involved with patients that are out of that health region. I am not really sure of the details myself. So that is that. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. YIKES, Rose, that must have really been unsettling to see your attacker again! Hope she is not someone you'll run into very often. Are you still couseling with the victims help people? I imagine it will take quite some time for you to get over all of this! Donna G Whine all you want, Sending Good Thoughts, {{{{ Donna }}}} GramPaHugs, Alex, > Grrrrrrr................just got home from a few days in the hospital. > The sinus stuff (infection/bloody nose) along with an ear infection [quoted text clipped - 44 lines] > > Donna G -- Any information is included for informational or entertainment purposes only, is based on my personal experiences & is an expression of my opinion. **************************************************** * Love radiating from 45.10n x 93.30w M/SP Mn * <a href="http://home.mn.rr.com/apbiii">AOL Click</a> * <a href="http://grampahugs.ath.cx/">AOL Click</a> **************************************************** "Newsgroup Spambuster" <ngspambuster@webtv.net> wrote in message news:22336- > The first night at the hospital, I had this nurse who told me that RA is > really not hereditary or from infection, but is primarily from people > being lazy and inactive/immobile! Huh? Don't know where she gets her > information from! Only just starting to get calmed down from this. Grrrrrrr, When I can simmer down from hearing about people with this sort of belief system I do feel sorry for them. And it is a belief system. That somehow anything wrong is anyone's life is their fault. If we were just all better people nothing bad would ever happen. And just coincidentally those who teach this nonsense can also teach you how to be the better person if you will just support them. Why do I feel sorry for them? Because somewhere, somehow bad things are going to happen. And then they are stuck with feeling responsible and not good enough, or they are stuck with a trashed belief system. Or both. Note: I am not blaming any particular religion for this. Its a control thing that has polluted everything from witchdoctors to Islam to JudeoChristianity. Jo ((((Donna)))) I'm sorry to be so late chiming in on your story. I hope you know how much I admire, respect, and love you. I think you are one of the toughest women I know. I can't believe what a rough year this has been for you. It's not fair and I think maybe you've forgotten where the return line is. You know that we should feel sorry for that nurse...she has that rectal/cranial inversion and it can be tough to remedy. Usually takes a size 10 boot to get that straightened out. For every one of those types of stories, I hear of a good one, though, and that gives me hope. When I was in labor with Rachel, after laboring at home for 12 hours, the shift changed at the hospital and my new nurse came in to introduce herself. I greeted her with my teeth bared because of a contraction. She reached out and grabbed my hand and told me to squeeze. Her knuckles were worse off than mine and I refused to do it. When the contraction passed, she gave me heck for not squeezing.lol I got my breath and told her that I knew how much it hurt to have my hands squeezed and there was no way I was going to do that to her. She told me she'd been an OB nurse for 15 years and her hands were a testimony to the babies she'd helped deliver, RA or not.lol I went ahead and squeezed after that. It surprises me that there are still people out there who want to hurt people for no reason. What did that nurse you had hope to accomplish? Was she just having a bad day? Was she truly ignorant, or just rude? Either way, a report to her supervisor seems in order. Many soft hugs, Kelly C. ROFL!!! I think you may be right Kelly, I have forgotten where the return line is. Could you be so kind as to point me in the right direction again? LOL!!! Donna G (((((((((((((((((Donna)))))))))))))))))))) all of that just sucks. I have some extra sharp Pinconning cheese in the frig, would that do? I'm sending prayers for the weather to break so you can make the picnic. This hot, humid stuff just can't last as long up here as it does in Florida! Maybe we'll get some nice cool fronts through for that weekend. (We're off to Cheboygan State Park this afternoon for 2 nights of camping. Even though we (kinda) have air conditioning, we find we do a lot better on these hot days if we get up to Lake Huron to cool down and clear our sinuses. Get lovely sunsets in the bargain!) SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Nann, Hope you and MIke had a wonderful time camping and hope you both survived the heat and humidity. Donna G >(((((((((((((((((Donna)))))))))))))))))))) all of that just sucks. I have >some extra sharp Pinconning cheese in the frig, would that do? [quoted text clipped - 7 lines] >these hot days if we get up to Lake Huron to cool down and clear our sinuses. > Get lovely sunsets in the bargain!) Hey, Nann, Are you anywhere near Northport and Traverse City? My dad was born and lived in Northport. I had a very dear friend in Alpena who had arthritis very bad. When I came for a visit, we all went to Mackinaw Island and had the buffet lunch at the Grand Hotel. She asked her husband how much it was, when he paid before and blanched. He said, "Never mind, just everybody eat as much as you can hold!" We had more fun pushing her wheelchair up some of the paths (this, of course, was in my pre-arthur days). Lots of prayers and hugs your way Donna. > Hey, Nann, > Are you anywhere near Northport and Traverse City? My dad was born [quoted text clipped - 5 lines] > fun pushing her wheelchair up some of the paths (this, of course, was > in my pre-arthur days). Heh, my definition of "near" has changed since I moved up here! Recent gas prices though are beginnning to change that back. Heck, I drive 30 miles one way to get my blood drawn! But, i live over on the "Sunrise Side", in Hillman, 23 miles west of Alpena. Don't know about when your friend lived around here, as Alpena used to be larger, but now there is no RD in our area. Mine is out of Petoskey, but fortunately for their patients, he and his partner also are "visiting specialists" in several other communities. I had to see him in Petoskey for my first visit, but now see him in Rogers City. We're going to Mackinac Island this fall. The Episcopal dioceses of Michigan have a biennial "conference" for clergy there in late October. As it's at the end of the season, the get a special rate at the Grand Hotel, 60% off the usual rate (for the cheapest rooms, of course!). It's the only way we could afford to go there and we're definitely going to treat ourselves to it this fall! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >> Hey, Nann, >> Are you anywhere near Northport and Traverse City? My dad was born [quoted text clipped - 23 lines] >afford to go there and we're definitely going to treat ourselves to it this >fall! Guess I should read all the messages before I post. I see that you've answered my question. Let us know how it is staying at the Grand Hotel. It's an old hotel. For a lot of inside viewing get a hold of the movie SOMEWHERE IN TIME with Christopher Reeve. It's kind of spooky but awfully good. The lilacs are tremendously old there and just beautiful. That's the one thing I miss the most about Michingan I don't know where her RD was, as this was back in the late 1980's and both she and her husband have died since then. Alpena is also the home town of my priest. Small world, isn't it? Loujean I've seen that movie. It's a good popcorn and girls night out movie. Duckie >>>Hey, Nann, >>>Are you anywhere near Northport and Traverse City? My dad was born [quoted text clipped - 38 lines] > > Loujean Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) I think Jane Seymour is such a beautiful woman. I believe she's got set of twins? >I've seen that movie. It's a good popcorn and girls >night out movie. [quoted text clipped - 42 lines] >> >> Loujean Sorry I didn't get here for the start of the thread. My 9 year old grandson was here all week so he could hang with me and also go to Vacation Bible School at my church. I'm 20 minutes south of the church and he's another 20 minutes south of me and his mother and I don't have our own transportaion. Friends of mine who were working with the VBS gave him rides (and me a ride the last day for the family time and prize giving--Billy got the prize he had his eye on all week). He had a great time and pretty much so did I (but I am worn out LOL). Donna, I hope you get around to at least mentioning that nurse on some kind of survey or when you see your doctor. I ran into a doctor like that one time in ER many a moon ago. Nell Memory Stirring Music http://www.nellybly.com/ Donna, you have had a bad year and now it's time to heal. I got furious when I read about that nurse, It recalled memories of an ENT doc I saw who told me I didn't have RA and should exercise more to get limber. He said his 92 year old mother, recovering from hip surgery, moved better than I did. I managed to blurt out that I was there about an ear problem but almost burst into tears. Forget this poor excuse for a medical professional and concentrate on getting better. I'm sorry if you have to miss the picnic but I'm sure everyone able to get there will be thinking of you that day. Ann {{{{{{{{{{{{{{{{{Ann}}}}}}}}}}}}}}}}}}} Yikes, Ann, you are one together lady. I think I would have been inclined to lose it with that ENT specialist with a remark like that. Grrrrrr...........ignorance is NOT bliss! Donna G |
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