Medical Forum / Diseases and Disorders / Arthritis / July 2005
osteo and depression - vent
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m_eL - 12 Jul 2005 09:04 GMT I'm having trouble coping. I don't like my life this way. I just need to gripe for a minute.
it's not fair, i'm only 48 and i can't even walk up a flight of stairs or look down at a desk, kitchen counter, sewing machine, etc. People say "my grandma has that" or people my age say "my mom has that"... I know they mean well. It's in my cervical spine and now has started to affect my knees, and i have a pinched nerve and frozen shoulder. I miss my long walks in the evenings, or going to work, or even pushing the vacuum without pain. i resent being around people who talk about doing this or that, and it's all stuff i can't do.
I want my body back when it was able to do stuff. This sucks. I'm on AD's already and have anti-anxiety meds, since i had these issues before the osteoarthritis, but i'm tired of this. i miss my paycheck and being able to buy things i want to give to people and occasional goodies for myself.
i still keep looking for a "cure" becuz there damn well has to be one becuz i can't imagine adapting to this. I'm angry. or sad. or just kind of hating myself right now. i don't feel loved or cherished or special becuz i can't see myself that way. i'm trying not to tack my anger onto external things or other people, becuz it's the arthritis/anxiety/depression that i'm angry at, without that i think i could deal with the normal crap life throws at everyone. Sorry this is so negative, i usually try to see the bright side of everything but am having a low moment i guess. Thanks for listening.
Kim - 12 Jul 2005 11:45 GMT I understand how you feel, I go through that too sometimes. I'm sure most people with any form of arthritis do. Personally I often feel really down being 37 with RA. Putting on weight from prednisolone, not being able to exercise how I once could because it hurts too much. Having to take all these meds when I didn't have to before. letting my husband do most of the more physical housework because it hurts my arms too much. Having my dog look sadly at me because im too tired to walk her again or I can only last about 1/4 as long as I used to be able to walk her. It does suck, a great deal. im with you on all that.
I hate that I have a disease too. I also dislike the comments about oh arthritis I know so and so with that have you tried this and have you tried that. The first 100 times I tried to explain the difference between RA and other forms of arthritis but after a while you just end up smiling and nodding and don't bother trying to explain it anymore. I particularly cant stand the comments of how well I look, that I don't look like there's anything wrong with me. I could be in heaps of pain standing up or trying to hang out some washing but because I look so well it makes it hard for people to understand that you really are not all that well.
Vent all you like, I don't mind reading vents as it is comforting in a way as then I know its not just me that does it. At least you keep looking and hoping for a cure, I do that too even though everytime I'm disappointed its nice to still have optimism don't you agree? I think we will all have hate the world times and also accepting times and they will come and go.
does anyone really just ever accept they have this and not question it and get angry at it now and then?
I'm sorry your feeling so bad about it all right now.
Kim
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. [quoted text clipped - 33 lines] > of > everything but am having a low moment i guess. Thanks for listening. Gary Z - 12 Jul 2005 14:37 GMT The following reads as oversimplified, but it is also true. I pulled this from a Medco web sight. I also am on antidepressants meds and they have helped me to not focus on the disease, but to accept I have it and move forward as best I can. Used to be very athletic so it has been hard on me to have to give that all up. I still manage a round of golf (riding) and usually take a pain med afterward, but not always anymore. I have gained weight from lack of exercise, but I can do something about that with some modifications.
Sorry about the bold type, but the response font is automatic as far as I can tell.
GaryZ
Body, mind, spirit - Making the most of good health requires careful attention to the body, mind, and spirit. People with osteoarthritis must plan and develop daily routines that maximize their quality of life and minimize disability. They also need to evaluate these routines periodically to make sure they are working well.
Good health also requires a positive attitude. People must decide to make the most of things when faced with the challenges of osteoarthritis. This attitude - a good-health mindset - doesn't just happen. It takes work, every day. And with the right attitude, you will achieve it.
Self-management programs do help People with osteoarthritis find that self-management programs help them:
a.. Understand the disease.
b.. Reduce pain while remaining active.
c.. Cope physically, emotionally, and mentally.
d.. Have greater control over the disease.
e.. Build confidence in their ability to live an active, independent life. Enjoy A "good-health attitude" a.. Focus on your abilities instead of disabilities.
b.. Focus on your strengths instead of weaknesses.
c.. Break down activities into small tasks that you can manage.
d.. Incorporate fitness and nutrition into daily routines.
e.. Develop methods to minimize and manage stress.
f.. Balance rest with activity.
g.. Develop a support system of family, friends, and health professionals.
>> I'm having trouble coping. I don't like my life this way. I just need >> to [quoted text clipped - 35 lines] >> side of >> everything but am having a low moment i guess. Thanks for listening. spodosaurus - 12 Jul 2005 16:50 GMT > I hate that I have a disease too. I also dislike the comments about oh > arthritis I know so and so with that have you tried this and have you tried [quoted text clipped - 5 lines] > to hang out some washing but because I look so well it makes it hard for > people to understand that you really are not all that well. My patience with people doing the 'you look well' crap when I find myself in a situation where I have to disclose what's going on with me is starting to wear very thin. A few times recently I've looked them in the eyes and said "Thank you, I'm relieved to know I'll make a good looking corpse" or something similar. Unfortunately with me, too often the 'you look well' turns out to be an accusation: they expect me to be languishing in a hospital bed, and when I don't meet their expectations they imply that I'm really not as sick as I've said. They don't see the tubes running in through my chest, or the constant blood tests, or the tranfusions, etc etc etc. They don't want to think about the very real pain that exists in this world that some of us must endure, so they'd prefer to think we're exaggerating, and that sh.ts me off to no end.
Ari
spodosaurus - 12 Jul 2005 16:52 GMT >> I hate that I have a disease too. I also dislike the comments about >> oh arthritis I know so and so with that have you tried this and have [quoted text clipped - 21 lines] > > Ari That post would have meant more with my signature file attached, but I've only just realised that it was on a different RAID array than it used to be after last week's reconfiguration of my file server :-(
Ari
 Signature spammage trappage: replace fishies_ with yahoo
I'm going to die rather sooner than I'd like. I tried to protect my neighbours from crime, and became the victim of it. Complications in hospital following this resulted in a serious illness. I now need a bone marrow transplant. Many people around the world are waiting for a marrow transplant, too. Please volunteer to be a marrow donor: http://www.abmdr.org.au/ http://www.marrow.org/
firechief - 13 Jul 2005 00:18 GMT Ari wrote:
> My patience with people doing the 'you look well' crap when I > find myself in a situation where I have to disclose what's going > on with me is starting to wear very thin. Janitors today are sanitation engineers. Don't downplay your physical problems.
Stating "arthritis" is like a women replying, "I"m only a housewife."
Use terms like osteophlebitis, osteopoililosis, osteosynovitis, palindromic rheumatism, hypertropic arthritis (OA). palindromic arthritis, ankylosing spondylitis.
Ask you doctor for the medical name of what you have and use that whenever someone snoops/asks.
Is it contagious? Yeah, I have/carry the HLA-27B marker.
... Tombstone for ELMER FUDD --- W.I.P.
Navy1 - 13 Jul 2005 00:43 GMT Good idea, firechief. People won't admit they don't know what you are talking about.
Loujean Retired and love it. Throw that FISH out and put in an S to email me.
> Ari wrote: > [quoted text clipped - 17 lines] > >... Tombstone for ELMER FUDD --- W.I.P. RoseB - 13 Jul 2005 01:14 GMT >Good idea, firechief. People won't admit they don't know what you are >talking about. [quoted text clipped - 3 lines] >Throw that FISH out and >put in an S to email me. When I was young, I tended to tell people that I had Still's Disease rather than say I had JRA because then a) people did not really know what it was; b) it saved me from the "but you're so young" speech; and c) it sounded far more exotic than saying arthritis. To me there was always a stigma associated with the word arthritis because of the media image portrayed- that you could take two aspirin and instantly be dancing. The term arthritis did not adequately protray my symptoms of pain, weakness, and fatigue. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
Navy1 - 13 Jul 2005 22:20 GMT >>Good idea, firechief. People won't admit they don't know what you are >>talking about. [quoted text clipped - 16 lines] > > Please remove "Ima" to reply. I know what you mean. In 1990, I had cryptococcal sinusitis which actually is a serious fungal disease in the sinuses. The cryp...itis sure sounds more serious than a fungus infection to the uninformed. Of course, most doctors just turn white because it is a very serious condition and if allowed to get into the brain, at that time, all they could do was give you morphine and keep you comfortable while you die! The scariest part of it is that there are usually no symptoms. They found mine while removing a cyst from the sinus.
Loujean Loujean Retired and love it. Throw that FISH out and put in an S to email me.
d'huit - 14 Jul 2005 02:31 GMT > Good idea, firechief. People won't admit they don't know what you are > talking about. [quoted text clipped - 3 lines] > Throw that FISH out and > put in an S to email me. sigh . . . my list is waaaay too long to even remember it, let alone attempt that.
kate
>> Ari wrote: >> [quoted text clipped - 17 lines] >> >>... Tombstone for ELMER FUDD --- W.I.P. Jo Firey - 13 Jul 2005 01:24 GMT > Ari wrote: > [quoted text clipped - 15 lines] > > Is it contagious? Yeah, I have/carry the HLA-27B marker. Yep. I got good at saying nondifferentiating spondyloarthropathy. Which basically means the doctors hasn't pinned it down yet. But still sounds good.
Now its officially RA, but the hand surgeon thinks gouty arthritis.
Jo
m_eL - 13 Jul 2005 02:22 GMT > Ari wrote: > [quoted text clipped - 15 lines] > > Is it contagious? Yeah, I have/carry the HLA-27B marker. How does this sound? Multi-level cervical spondylosis with unilateral radiculopathy, foraminal stenosis, bilateral chondromalacia patellae and adhesive capsulitis. That should shut 'em, up, huh? :-)
Thanks for all the kind responses in this thread, reminds me i'm not alone after all.
firechief - 13 Jul 2005 07:58 GMT > Thanks for all the kind responses in this thread, reminds me > i'm not alone after all. You're never alone in A.S.A.
... I'm not perfect, but my cat thinks it is.
Nann Bell - 13 Jul 2005 21:00 GMT > How does this sound? > Multi-level cervical spondylosis with unilateral radiculopathy, foraminal > stenosis, bilateral chondromalacia patellae and adhesive capsulitis. > That should shut 'em, up, huh? :-) heehee, sure - tell them that's what you have, heehee I can just picture their eyes glazing over. then you finish it up with "in other words, I hurt like hell all over".
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Navy1 - 13 Jul 2005 22:23 GMT >> Ari wrote: >> [quoted text clipped - 23 lines] >Thanks for all the kind responses in this thread, reminds me i'm not alone >after all. Yep. You're never alone. I think that is one of the most comforting statement anybody can make.
Loujean Loujean Retired and love it. Throw that FISH out and put in an S to email me.
Lurker at Large - 12 Jul 2005 20:13 GMT > I hate that I have a disease too. I also dislike the comments about oh > arthritis I know so and so with that have you tried this and have you tried > that. The first 100 times I tried to explain the difference between RA and > other forms of arthritis but after a while you just end up smiling and > nodding and don't bother trying to explain it anymore. I particularly cant [de-lurking for a moment]
I got the same thing when I was growing up with JRA. People would always ask me why I limped (from pain). Not wanting to launch into a full medical history, I'd usually just say I had arthritis. The reply would invariably be "Isn't that an old-person's disease?" ARGH! I also didn't care for the comments like "Oh, my gramma has that", or "Yep, my mom has that". I guess they're just trying to sound sympathetic, but when you have chronic pain comments like this are NOT appreciated.
Sharon
Cindy - 12 Jul 2005 13:32 GMT Yes I understand...I am only 47 and I get tired of people looking at me and saying...Well you look good...or even worse I think is when people look at me and say "Man do you look tired!" Throw in FM, psuedogout on top of OA,anxiety and depression.... Yep go ahead and vent...Like Kim says....We then at least don't feel so alone even though I wouldn't wish this on anyone... And you know that excercise to help FM....Well what if it hurts your OA too much to excercise....I love to swim and I do that, but last night I was up half the night because I was hurting so bad from swimming yesterday... So I guess let us just vent together... Big HUGS Cindy
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. [quoted text clipped - 33 lines] > of > everything but am having a low moment i guess. Thanks for listening. Harvey R. Stone - 12 Jul 2005 14:34 GMT Hi M, Welcome to ASA. You have come to the right place where people understand what it means to live with arthritis. I am male, diagnosed as having RA by three Rheumatologists. It started at age 38 and I am 65 now. I started taking Disease modifying drugs when I was 45 and my life started to turn around. I do not think you have OA with what is taking place with you. I am not a doctor but I think you have one of the inflammatory types of arthritis. Please see an RD and get started on going back to work and living life your way. People making those remarks are just ignorant of what living with arthritis is all about but in this newsgroup,,,, we know,,,, we have been there with you and will be with you through it all. We talk about the best way to do things. We talk about the medicines with doctors,,,, operations ,,,, recovery,,,ect.ect. Please see a Rheumatologist and get started on a better tomorrow. Harv
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. [quoted text clipped - 33 lines] > of > everything but am having a low moment i guess. Thanks for listening. debbie m. - 12 Jul 2005 18:13 GMT Hi,
I think we've all been where you are so we can understand to a degree. I was 37 when I first got sick. I know about losing those things you once enjoyed doing. What you are feeling now is a normal process. I'm sorry you feel bad and I hope that coming here talking about it has made it a little bit easier for you.
debbie m.
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. [quoted text clipped - 21 lines] > everyone. Sorry this is so negative, i usually try to see the bright side of > everything but am having a low moment i guess. Thanks for listening. Ian - 12 Jul 2005 18:39 GMT NOBODY@blahhhblah.blah wrote:
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. Gripe away, kiddo! I'm prepared to listen. (I've snipped the rest but I did read it first) I have only just been diagnosed, and that was by my GP, so I'll switch things round a bit: Now, this is cold comfort, but I, having lost the last remnants of my sight some years back (accidental damage), have experienced some of the frustrations you speak of. I've also had the old "My father went blind too!" and the "Have you been blind all your life?" and the like. And of course, some people seem to assume that because your eyes don't work, then your brain must be equally functionless. A local bank's investment advisor recently lost me to another outfit by doing just this, after only two meetings! I miss a lot of things too:reading text on the printed page, walking about freely without depending on a conductor, for example. I don't think I ever experienced depression or anger; for one thing, it was caused by two (count 'em, two) separate incidents, both involving carelessness or stupidity or recklessness on my part, take your pick! The left retina detached following a traffic accident in which my motorcycle was hit by a car coming through on red (I should have looked right before starting off on green, not left) and some nine years later, I came out of a pub after a good deal of boozing, crossed the road in a nonchalant manner with hands in pockets, and nonchalantly tripped on the kerb and smashed my face into the sidewalk ... real clever thing to do, huh? the concussion, of course, caused the right retina to come apart at the seams, although several operations over the next four years or so held things together for a good time so the deterioration was gradual. I seem to recall I tried to look on it as a challenge, and found ways to circumvent the increasing difficulties, electronics mainly but some I devised for myself. I also looked for things to keep my mind occupied, so I wouldn't end up sitting staring blankly at the wall all day. Why am I burdening you with all this boring stuff, I hear you ask. Well, maybe it's a way of saying, like with the other replies you've had, 'there are others out there with this and other disabilities, who do know how it is and can empathize with you in this, and you are not alone, also, in letting it get you down.' Being a newbie to the condition, I'll let the others advise in more detail, and shut up at this point except to hope you find better treatment as a result to help you.
-- Ian (Probably the best-dressed Town Drunk in town)
Skip - 13 Jul 2005 02:03 GMT Oh sweetie, gripe, rant, kick sand out of the sandbox even! It's *not* fair and occassionally it just darn well sucks. Some days you just have to let the feelings escape.
It's frustrating to be angry at something you can't really get your hands on. I plan on cutting the word "arthritis" out of thick foam - just so I can punch the living daylights out of it and then say "there, I beat arthritis". Won't help my joints but my spirit will feel better, lol!
And get thee to your doctor. When the symptoms change it's time to review. It sounds like you've take meds for anxiety/depression for a while -you already know how pain is a circle that makes all three worse. Iif you don't already have one, get a referral to a rheumitologist and get the pain controlled. Maybe we can't do the things we'd like to, but we have a right to be comfortable doing the things we can.
Here is a hug and a shoulder to lean on. I have chocolate to share.....
Skip
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. [quoted text clipped - 21 lines] > everyone. Sorry this is so negative, i usually try to see the bright side of > everything but am having a low moment i guess. Thanks for listening. m_eL - 13 Jul 2005 09:01 GMT >Here is a hug and a shoulder to lean on. I have chocolate to share..... I'll take all of those! :-) (just bought a bag of dark chocolate hershey's kisses, let's party!!!) There's definitely something about chocolate....
Navy1 - 13 Jul 2005 22:22 GMT I want some chocolate, too, but shouldn't have it. Oh heck, do you have the kind with nuts in it and I'll go get some extra Maalox! Loujean
>Oh sweetie, gripe, rant, kick sand out of the sandbox even! It's *not* fair >and occassionally it just darn well sucks. Some days you just have to let [quoted text clipped - 53 lines] >of >> everything but am having a low moment i guess. Thanks for listening. Loujean Retired and love it. Throw that FISH out and put in an S to email me.
Nann Bell - 13 Jul 2005 21:00 GMT I've been AWOL of late, but I say - Go for it! Gripe away! We hear ya more truly than most can. I can say from personal experience that pinched nerves are among the most miserable of things out there. Hey, just tell them you have severe spinal problems - the general public often seems more sympathetic to "back problems" than to arthritis, maybe because more folks have experienced major back problems. And I watched my DH deal with a frozen shoulder - I cannot imagine the pain and frustration of haing both at once.
I've been pretty fortunate in not having too, too many of the comments everyone hate. I've gotten the "you're too young" line a lot (not as much as I used to, sniff, sniff) and I just chcuckle and say, "I wish! Mine is due to a confused immune system and it can happen at any age." But I digress....
Oh, I've been pretty lucky with the loose comments, but one really got me the other day. I mentioned something coming up and the person said something along the lines of, "oh, so you'll be playing catch-up like the rest of us!" Hunh? I've been playing catch-up for 20 years and have long since had to accept the fact that I will never be able to "do it all" again. But the circumstances were such that I couldn't say that.... sigh...... Since when does acceptance of your limitations have to translate into "leisure" to others? Oh well. My intent isn't to turn your thread into my own gripe list, but just to say you have a right to get fed up and we're a good place to let it all out so you can get up tomorrow and try to get through another day.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Becky - 16 Jul 2005 00:01 GMT WOW, this is like reading something I would write. I know exactly how you feel almost that we could be identical! I to miss the long walks, actually just about anything. I have a gym membership but as late I am only using the sauna there. I have the osteo in my lower back, and RA in everything else. I am only 49. People see me at the store, and say oh my you look great, so glad you are doing better. Better, that didn't come from my lips, just theirs, and I usually just say oh thanks, I use to say don't really feel well, but they don't want to hear that. I told my mom I wish big huge purple dot was in the middle of my forehead , then people would see something is wrong. I wish you well, have any drugs helped you at all> I am taking MTX, and got a scrip for enbrel but am holding off for a couple more weeks for that, I have come down with bursitis of the hips, boy that is not fun, and now it is sciatica running down the same leg. YIKES Well didn't mean for this to turn into me whinny, just wanted to let you know I know EXACTLY how you feel. Hang in there Becky
> I'm having trouble coping. I don't like my life this way. I just need to > gripe for a minute. [quoted text clipped - 33 lines] > of > everything but am having a low moment i guess. Thanks for listening. m_eL - 16 Jul 2005 04:45 GMT >WOW, this is like reading something I would write. I know exactly how you >feel almost that we could be identical! I to miss the long walks, actually [quoted text clipped - 13 lines] >know I know EXACTLY how you feel. >Hang in there Thanks, you too. It's amazing to me how many people here know how it feels, especially about the social interaction and stuff.
I have a daily exercise routine i do at the advice of my physical therapist, and i try to enjoy it. It's not like a "real" workout, but more like some moves that people recovering from stuff would do. Those rubber resistance bands, i've found, are VERY friendly and don't force anything past my comfort level at the time. Music, vary the order a bit, and do it at times when i'm feeling the least pain. I tried a little gardening today, like 10 minutes and i'm all tightened up and hurting, (but i smell like lovely lavender!) time to go soak in the tub and retire to the recliner in front of the giant tv with my husband. He didn't even get mad at me when i fumbled a glass of ice tea with my clumsy hand and it went all over a bunch of papers - he shouldn't have left them on the kitchen counter anyway!! ;-)
I guess, all in all, it was not a bad day.
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