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Medical Forum / Diseases and Disorders / Arthritis / July 2005

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rheumatologist in raleigh?

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Diane - 05 Jul 2005 00:15 GMT
do any of you know of a good rheumatologist in the raleigh, NC area? i
can't believe i'm going to have to find all new docs in a month! yikes.

diane
Alison DeLorme - 05 Jul 2005 00:58 GMT
I have been seeing Suzanne Zorn on Six Forks in Raleigh and I like the
practice. It's a solo practice. a lot of one-one attn felt in the office.
That's not such an issue for me b/c I've been dealing with RA for so long
and just want the facts, thank you... no hand holding necessary. But I know
it's important for many people. She is very thorough. I like that. She seems
ot be very aggressive, a seemingly good trait. But not for my situation
right now. As I've discussed b/f, she wants to try to get rid of every bit
of inflammation. And I'm not feeling so confident we can, having lived with
it for so long and tried many different things... I've only seen her twice
now but I'm happy... any questions feel free to email

alison
Diane - 05 Jul 2005 02:54 GMT
alison, wow, thank you! six forks rd would be perfect. i'll be changing
insurance (yet another thing to do. ack!) so will have to see if she
takes whatever i change to. do you know if she prescribes remicade? i
recall you talking about her and how she reminded me of my current RD
in that he, too, won't settle for less than perfection, which bugs me
on the one hand, but is better than negligence on the other. thanks so
much.

diane
Duckie - 05 Jul 2005 03:12 GMT
I am worrying over just all that myself right now. Not
that we have sold the house or anything but still....
Did you see my post about the Rituxan  shhhhhhh
Duckie

> alison, wow, thank you! six forks rd would be perfect. i'll be changing
> insurance (yet another thing to do. ack!) so will have to see if she
[quoted text clipped - 5 lines]
>
> diane

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Diane - 05 Jul 2005 04:51 GMT
i did see your rituxan post, duckie. fingers carefully crossed for you.

i think alison's doc won't work for me, since it looks like i'll
probably need to get BCBS and she doesn't participate with them. how do
you pay for your remicade now? mine costs me $20, but i think those
days will be over.however, BCBS will cost $110/month in NC, while i now
pay about $400/month for health insurance. poor john pays $700.

any nibbles on the house? mine's been on 9 days and i finally got a
couple of bites. it has slowed waaaayyy down here, and now people are
reducing the prices of their houses. by way down, i mean it takes 2 to
3 weeks to sell (don't hit me!). dee tee and bob really lucked out on
their timing.

my realtor yelled at me because of my blog, in which i discuss the air
conditioner breaking down, etc. it never occurred to me that potential
buyers would be reading my blog, but they are. apparently tons of
people were at the open house and word got around that i'm a writer,
and that's all it took to get people onto my website to learn all there
ever was to know about my house. :-)  duh. my realtor had a fit.
have you reduced your price? painted it white?

hugs,

diane
Mary Z - 05 Jul 2005 19:57 GMT
>i think alison's doc won't work for me, since it looks like i'll
>probably need to get BCBS and she doesn't participate with them. how do
>you pay for your remicade now? mine costs me $20, but i think those
>days will be over.however, BCBS will cost $110/month in NC, while i now
>pay about $400/month for health insurance. poor john pays $700.

If you are with government BCBS you will pay 10% of the cost of your
Remicade.  It is cheaper at the Dr office than the hospital.  I am
paying about  $260 for my Remicade.  Full price is about $3800 but
they discount and you pay 10% of the schedule.  Dr office is about
$60-$70 cheaper than the hospital.   Yours will be a fair amount
higher because you are on a lot more medication than I am  (5 mg/kg of
weight)

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Diane - 05 Jul 2005 21:19 GMT
thanks for the info, mary. yes, it will be a killer for me, as my
remicade full price is over 8K, given in the hospital. but i imagine
the negotiated price is considerably less. it will probablyh all come
out in the wash, anyhow. how have you found BCBS otherwise (do you have
standard?)

diane
Mary Z - 06 Jul 2005 01:33 GMT
> but i imagine
>the negotiated price is considerably less. it will probablyh all come
>out in the wash, anyhow. how have you found BCBS otherwise (do you have
>standard?)

Overall I like BCBS standard you can get better coverage with an HMO
but one year with Pacific Care was enough to convince me to be very
careful with them.  BCBS here in Oregon does not require any prior
approvals for Remicade, enbrel or Humira, my Drs love it because it is
so much less paperwork.  You need prior approvals for expensive
surgery and hospital stays and some tests but not very much and it is
simple.  They mess up on the billings once in a while, the mail order
pharmacy works pretty well and you can't beat the prices.  I can pick
almost any Dr I want and I don't have to stay within one medical group
the way you must with some HMOs.  My GP is here and my RD is in
Eugene, that was a big issue with Pacific no Care.  You might just
make your catastrophic coverage with those Remicade bills then you are
covered 100%.  I suggest you get infusions done at a Dr office, when I
said a $70 savings that was based on my 10% so I am guessing it is
probably close to $700 cheaper in a Dr office, or $1000 if you
consider the "full" price.   In your case it might be easily double
that amount.  BTW the basic version of BCBS is very misleading, you
need to read the complete description in the full insurance brochure.
For  infusion coverage  they are not as cheap as the summary
indicates. For example the BCBS standard coverage for infusions is 10%
of the cost.  However in  the summary for basic it says a $30 for Dr
or $40 copay for hospital treatment (sounds like a great deal), but
the summary fails to mention that under basic they also charge you 30%
for  the cost of drugs!  
BCBS is more expensive but I like the "no hassle" aspects  of the
insurance.  The Pacific worst Care I had to fight for everything.  My
Dr said many HMOs just wear patients down and they stopping fighting
for necessary care that is how they keep costs down.

I have a flexible health savings account and with the money I saved in
taxes I get at least one infusion covered.  It is worth checking into.
My income has been declining because I have put more into flexible
health savings account. -- MZ

Visit my website:
http://www.mzuschlag.com
Mary Z - 05 Jul 2005 20:13 GMT
>i think alison's doc won't work for me, since it looks like i'll
>probably need to get BCBS and she doesn't participate with them.

I think you were Federal?  Well this might be of help:
http://www.opm.gov/insure/health/index.asp

Visit my website:
http://www.mzuschlag.com
Duckie - 05 Jul 2005 21:58 GMT
We had one nibble while we were gone which is more than
we have had. And more people came to look which is more
than it had been. So things look like they are
beginning to pick up here. I did notice in CA that
people are having to lower their prices which means
that market is beginning to get softer while this one
is firming up a tiny bit. So we wait...
I am worried over the medical stuff. We have two
choices which sound rather like no choice out there. HP
dropped BCBS for their retirees and we had to find
other arrangements here last year. Or was that the year
before. Anyway, it has been great. But CA offers us
Pacificare and another I have not heard good things
about. MaryZ calls it PacificNocare. It seems to vary
on where you actually live so we will see. Kind of
hoping Stanford will take it all. I need to do a lot of
calling but we can't sign up until we are actually
there and then we have a month. Meanwhile, when is my
Remicade scheduled for before we leave. How does one
see a RD and get Remicade scheduled if you can sign up
for health insurance until you move in. My infusions
are six weeks apart. Often takes that long or longer to
make a RD appointment.  This is going to get tricky.

The price has been reduced but we are not painting --
at least not yet. We reduced it under the dump across
town that was marketed at our same price. Was hoping
they would look here, see it was cheaper, and in far
better shape. After looking at houses out there, I am
so ready to move. I even found one I really liked which
had been on the market a bit and the CA agent thought
we could get it well below the 829K asking. That
afternoon our MA agent called with the nibble. oh well.
I guess that beautiful cherry kitchen with the granite
counters and the stainless brand new appliances are not
going to be mine. But we will find something else. This
week is dead with the holiday. I am hoping the people
that want to get kids settled before the school year
come out of the woodwork soon.
So did you pull all the stuff off your blog?
Duckie

> i did see your rituxan post, duckie. fingers carefully crossed for you.
>
[quoted text clipped - 21 lines]
>
> diane

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Mary Z - 06 Jul 2005 01:38 GMT
>But CA offers us
>Pacificare and another I have not heard good things
>about. MaryZ calls it PacificNocare. It seems to vary
>on where you actually live so we will see. Kind of
>hoping Stanford will take it all.

Yikes they are the worst, I mentioned that to John.  My Dr said
Pacific Care was the absolute worst insurance he dealt with when it
came to remicade.  Sure hope you have another choice!  Check out their
one group medical policy. I was supposed  to go to one medical group
for all my care, no specialists outside the group unless the group
sent me.  What a nightmare! Pacificnocare.  -- MZ

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Alison DeLorme - 06 Jul 2005 01:38 GMT
she does partic. with bcbs. That's what I have... I remember looking
initially and not finding her on the list on the internet. But she's there.
I have had two different bcbs plans now and she's in both. Of course I'm
assuming you meant bc of nc....
Diane - 06 Jul 2005 04:30 GMT
>she does partic. with bcbs<

i will call her office and find out, alison. thanks for that heads up.
otherwise i'll just be picking a rheumy off a list because i like his
or her name. . .

diane
Mary Z - 05 Jul 2005 19:53 GMT
>I am worrying over just all that myself right now. Not
>that we have sold the house or anything but still....
>Did you see my post about the Rituxan  shhhhhhh

I would be worried also.  I know my Dr would not Rx Rituxan and
Remicade and I would bet that you won't find many RDs that will until
Rituxan is approved for RA and there is a protocol for
Remicade/rituxan. Another issue is that if you go with Pacificare
Insurance they are likely to put a fuss over the combination.
Remember my first Remicade with them?  The hospital canceled the first
appointment because they could not reach agreement on reimbursement.
They want approvals for anything that is expensive or exotic. Check
that out carefully.  On the positive side you will be near some big
hospitals so maybe they will do it on a research basis. -- MZ

Visit my website:
http://www.mzuschlag.com
Alison DeLorme - 06 Jul 2005 01:35 GMT
yes, she does the remicade infusions right in the office. I don't know the
specifics. We haven't gotten that far yet. I will likely try the humira
first... glad I could help
d'huit - 05 Jul 2005 23:51 GMT
YIKES!  just reiterating.  sounds like there is a keeper in the wing,
though.  good luck, sweetie!

kate
> do any of you know of a good rheumatologist in the raleigh, NC area? i
> can't believe i'm going to have to find all new docs in a month! yikes.
>
> diane
Nicole H - 06 Jul 2005 07:23 GMT
Check out Duke University.  That's where the army referred me to... they
take much better care of sick family members....
> do any of you know of a good rheumatologist in the raleigh, NC area? i
> can't believe i'm going to have to find all new docs in a month! yikes.
>
> diane
Duckie - 07 Jul 2005 00:34 GMT
My John would be very proud of that. He went to Duke as
an undergraduate. And actually my father, who was born
in 1912, was diagnosed by a Duke physician when he was
24 with AS. Regular PC had no idea what was wrong with
him. But I think Duke would be a bit of a haul for
regular care depending on what side of Raleigh their
new house in on.
Duckie

> Check out Duke University.  That's where the army referred me to... they
> take much better care of sick family members....
[quoted text clipped - 3 lines]
>>
>>diane

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Nicole H - 07 Jul 2005 07:26 GMT
I'm in CA so driving a few hrs is nothing for us LOL.  I can drive for 15
hrs and be in the same state.
I do believe that good medical care is worth traveling for.... I drive 2 hrs
each way to see my pain doctor who's amazing.
Duke is an amazing school... hands down!
 
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