Medical Forum / Diseases and Disorders / Arthritis / June 2005
Grrrrrrrr...........darn hippa law!
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Newsgroup Spambuster - 07 Jun 2005 06:51 GMT I understand the basic concepts behind the newer hippa law, but what I guess I don't get and what really frustrates me to no end, is the way the hippa law gets put into practice.
When in the hospital recently, the hospital wouldn't even tell our pastor if I was there and what room I was in. Now, my pastor knew I was there, but trying to find me to pay me a visit was a whole nother story for the poor guy. He had to jump through all kinds of hoops to find out what floor and room I was in. Sometimes even family members who call to check on you are told that they have no record of you. Really, what purpose does this serve other than to frustrate people. I just don't get it!
The other thing that really bothers me is once you are out of the hospital, following up with additional medical care can be almost impossible because the doctors no longer send copies of what was done in the hospital for you to your doctors and then the doctors don't have any idea what went on and how to treat you or follow up with you! Grrrrr............yes, you can get copies of your medical records from the hospitals, but this often takes weeks to do, sometimes even months, not to mention the fact that you have to sign your life away just to let your other doctors know what took place and what needs to be followed up on.
Surely there has to be a better way of dealing with all of this!!!
Sorry, folks, I just needed to get that off my chest!!!
Donna G
Jo Firey - 07 Jun 2005 09:30 GMT > I understand the basic concepts behind the newer hippa law, but what I > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 23 lines] > > Sorry, folks, I just needed to get that off my chest!!! Here here. My own doctor can';t really get involved when I'm in the hospital useless he is the one who admitted me. I have to rely for aftercare on a surgeon who feels his job is done once he has cut. And gets frustrated if he has to deal with any sort of after care.
Course if worked out well last time. Once I got out of the hospital my surgeon was never available so I got to see the Nice good liking southern gentleman surgeon for wound care and such. He was sweet. Mind you I'd never let him near me with a scalpel. But he does great follow-up.
Then I threw a clot in my shoulder. Hospital fault for not maintaining a line. I don't really care. Just want it better and to be able to relax is peace and quiet for another week. They even got me a new TV for I could watch the NBA finals. (And joined me in my room for the party).
Cause for a lawsuit makes them so sweet and nice. Or at least they give the ones who would like to be sweet and nice free rein.
there should be a book title HIPPA in a small town. Do they have a clue what wives talk about at football games. Secrets, we aint got no bloody secrets.
Jo
Harvey R. Stone - 07 Jun 2005 12:54 GMT > Grrrrr............yes, you can get copies of your medical records from > the hospitals, but this often takes weeks to do, sometimes even months, [quoted text clipped - 6 lines] > Sorry, folks, I just needed to get that off my chest!!! > Donna G Well said,,,, It is a sign of the times. I do not know what the answer is but much the same can be seen in dealing with our schools and trying to get a child an education. 0 degree tolerance is a sign of incompetence and the inability of higher ups to make decisions while controlling a situation. Just because laws are passed does not mean the outcome will be improvement. Hospitals, schools,,ect. Harv
Smokie Darling (Annie) - 07 Jun 2005 14:08 GMT > I understand the basic concepts behind the newer hippa law, but what I > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 25 lines] > > Donna G Wow, and I always thought *my* town was the worst, for everything! I remember that when I was admitted, before I was given the "pre anesthesia" shot (great party drug if it's a SHORT party), I was asked to list who I would allow to know I was in hospital. When I said family, they asked for names, when I said friends, same thing. In fact, they were the ones who asked me if I wanted a priest to come see me (the docs weren't sure I was going to survive the sepsis), and which one. The hospital even called my doctor to tell him I was going to have emergency surgery, so he could be there when I woke up.
Perhaps you might suggest something like this to them? I know our hospital is networked, so after they put all the info into a laptop, they then took it and attached it to the network and downloaded my stuff (names, religion, allergies, food preferences) so that anyone with patient access could read whatever portions pertained to them.
IOW, the receptionist would not know my religion (as s/he did not have authorization for that screen), but s/he *could* see who all was allowed information about me.
Smokie Darling (Annie)-who just realized when she stopped being embarrassed by being naked in front of health care professional...
Jo Firey - 07 Jun 2005 18:01 GMT > Smokie Darling (Annie)-who just realized when she stopped being > embarrassed by being naked in front of health care professional... One does reach that point. Kind of fun in a way cause it makes some of them a bit nervous.
Jo
Janet N - 08 Jun 2005 08:33 GMT > Wow, and I always thought *my* town was the worst, for everything! I > remember that when I was admitted, before I was given the "pre > anesthesia" shot (great party drug if it's a SHORT party), I was asked > to list who I would allow to know I was in hospital. When I said > family, they asked for names, when I said friends, same thing. I had to request this over twenty years ago. I had a male visitor who decided he needed to stay with me night and day. I barely knew the guy. Ended up giving them a list of who could know I was there and who couldn't. Nearly backfired when friends travelled 500 miles to visit. Also had hospital security move my car to a different parking lot every day.
I guess I can see why they restrict information... I'd prefer it that way. It can be pretty unnerving when someone can get all your location info.
Janet N.
Mike-UK - 08 Jun 2005 10:02 GMT On Jun 8, Janet N posted:
> > Wow, and I always thought *my* town was the worst, for everything! I > > remember that when I was admitted, before I was given the "pre [quoted text clipped - 10 lines] > I guess I can see why they restrict information... I'd prefer it that way. > It can be pretty unnerving when someone can get all your location info. New Ruling From U.S. Justice Dept. Limits Privacy-Violation Prosecutions
An authoritative new ruling by the Justice Department sharply limits the government's ability to prosecute people for criminal violations of the law that protects the privacy of medical records. In short, the department said, people who work for an entity covered by the federal privacy law are not automatically covered by that law and may not be subject to its criminal penalties, which include a $250,000 fine and 10 years in prison for the most serious violations.
More @ http://www.privacy.org/
...may be of interest.
 Signature --------------------------- Another squeaking wheel @ http//tinyurl.com/6bf56
Mike's Brain @ http://tinyurl.com/4872c
Have a nice day, it really does do you good! :) ---------------------------
gickylynn . - 11 Jun 2005 01:26 GMT HIPAA is a good concept, but put in practice sucks
sure, it's there to protect patient's privacy, but it makes it frustrating for the patient as well as the health care workers
our hospital is one bit network, so sharing info with our dr's is ok - cuz when i was in, the su rgeon contacted my primary physician and rheumatolgist for help with getting me back down from these high doses of pred he had put me on
working in the health care field
hipaa for me has beennothing but a pain in the butt
but as a patient i'm glad they're working to protect my privacy
Jo Firey - 11 Jun 2005 03:50 GMT > HIPAA is a good concept, but put in practice sucks > [quoted text clipped - 11 lines] > > but as a patient i'm glad they're working to protect my privacy I just get the feeling that because it is a pain in the butt, too many in the health care field are making it more difficult for the patient than it has to be. (With plenty of help from their lawyers who often seen to be against any sharing of any information with anyone for any reason just as a matter of principle.)
Jo
Duckie - 07 Jun 2005 22:36 GMT That happened here at Lahey when it first started but seemed to iron out a bit over the last two years. Guess you need to have photo copies to take with you when you are discharged from the hospital. Like refuse leave unless you have them in your hot little hands. Duckie
> I understand the basic concepts behind the newer hippa law, but what I > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 25 lines] > > Donna G
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Nann Bell - 08 Jun 2005 05:40 GMT ((((((Donna)))))))
It seems that they should have a release of info form you can sign at the hospital asking that all records pertaining to your hospitalization be sent to Dr so-and-so. If they don't, send them a letter suggesting it!
As for your pastor, in Alpena area pastors register through the volunteer office and get hospital IDs that identify them as clergy. This allows them to get a patient's room number from the info desk downstairs. If I go in and ask, they won't tell me, but they will tell Mike with his ID badge. (Needless to say, his badge lives in the glove compartment of his car!)
As an aside, they are no longer allowed to say anyone's name on any emergency calls. Taht doesn't matter in larger areas, but around here it is a source of great frustration. Our emergency personnel in this county are all good-hearted volunteers, most of whom have had family here going back generations. They can all locate "John Doe's house" much faster then "555 W Fifth Street". Even if you tell them when you call to use your name, they are no allowed to do so. Blanket legislation isn't always the best solution.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
PattyDFX1 - 08 Jun 2005 14:38 GMT DonnaG wrote: following up with additional medical care can be almost impossible because the doctors no longer send copies of what was done in the hospital for you to your doctors and then the doctors don't have any idea what went on and how to treat you
I've learned just how nuts this is firsthand. Jeff was in the hospital (diabetic coma) from November 2nd to 7th. Because they screwed up his bipolar meds so badly, his psychiatrist requested a Depakote level on November 3rd. She called in the order and followed it up in writing. Jeff also signed a paper giving permission for her to speak to all his doctors and have access to all of his records. After about a million phone calls and finally threats of a lawsuit, we FINALLY received his lab results last week! Ridiculous! Our privacy should be protected, but, this is going too far <sigh>. -- Hugs, Patty Hoping your hills are never too steep.
d'huit - 08 Jun 2005 15:43 GMT > I understand the basic concepts behind the newer hippa law, but what I > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 25 lines] > > Donna G actually, i'm glad you got that off your chest. (((((((donnag))))))
what you describe really doesn't make sense. it seems very inefficient to me. i would think it makes integrating/coordinating care and/or treatments between specialties, to benefit the patient, more difficult and could also cause missed medical options/opportunities (for want of a better word).
there are a lot of hospitalized patients who are far too ill, temporarily, and who don't have a mate or an advocate to be a legal voice for them (might not have been able to afford to create the document that appoints somebody, or might not even have known such a document can be necessary)---to list who may or may not need to know, or need to have access to the patient's records, or access more general information about the patient's condition, or visiting access.
what of the person living alone who calls 911, just before they lapse into some suddenly unconscious state, like a diabetic coma or an altered state from a stroke or some such thing? too ill to point out or locate a purse or wallet, containing a list of whom to notify? what if they were too ill to sign the hippa document (or obviously, any other ER documents)? --does hippa automatically apply? does hippa apply to EMTs as well? so, does that mean that nobody will be informed of this person's plight?
i know that when i had those two epidural series done by the same doctor, i thought it was really strange to have to sign the same hippa form for each of the injection procedures in the same epidural series (3 times for each series, in other words). talk about wasting paper, time and money---it felt unnecessarily redundant to me.
boy, thinking about it--- i'm glad hippa wasn't in force when butch's life and death struggle began. towards the end of his life, which is also when i had double pneumonia, i truthfully didn't have any mindshare left to focus on that kind of thing---who should or shouldn't have access to him or his records (each and every time he entered the hospital, i mean). i was already on overload at every level. i can only imagine what it must be like for a patient who is utterly overwhelmed by his or her confusing and difficult situation to have to deal with this, too.
i agree with you, donnag. there has to be a better way and it shouldn't have to be the patient's responsibility in all cases. some laws are very dumb laws, because they are slap-dashed together with shortsightedness.
kate
Don W - 08 Jun 2005 12:12 GMT Lucky here I guess. Kansas City Medical Center (KU Med) issues you a slip with your secret number, whether you are in the hospital as an in-patient or there as an outpatient receiving treatment. You may give that secret number to anyone you want to share your medical condition with while you are there. As I have moved through the system doing tests they have always kept track of my wife and made certain that we end up at the same place after they have wheeled me down the hall to heaven knows where for the next test.
My Doctors there have access to all my medical records, tests, x-rays, MRI's, CT scans, etc. They can all stay on the same page and know what is happening with me. Cleveland Clinic in Cleveland Ohio had an even better similar system which I always marveled at when I was shipped off for test by a doctor with a five inch thick folder on all my tests etc., including Doctor's notes for the past year and sometimes a packet of x-Ray films I could not carry and requested transportation to deliver it to the next place I was bound for. I loved to confound the nurses and Doctors as I insisted on sitting there reading through the folder.
My cancer doctor at KU Med handed me a form to fill out which allowed me to select five KU Med doctors I wish to have updated reports on his treatments etc. for me. I will be anxious to see how well it works.
Don Whitely
>>I understand the basic concepts behind the newer hippa law, but what I >>guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 69 lines] > > kate Gwen Love - 08 Jun 2005 18:55 GMT The last two times I was admitted to the hospital I was asked if I wanted people to know I was there if someone called. I said Yes. Something like that can take care of the problem, seems to me. Gwen
> > I understand the basic concepts behind the newer hippa law, but what I > > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 69 lines] > > kate Jo Firey - 08 Jun 2005 20:53 GMT > The last two times I was admitted to the hospital I was asked if I wanted > people to know I was there if someone called. I said Yes. Something like > that can take care of the problem, seems to me. > Gwen It can take care of the problem, and it should take care of the problem. Only far too often it doesn't. I've come to believe that what I call over adherence to the HIPPA law is often a way for medical entities to more of less throw a tantrum at a law they resent and disagree with. Kind of an "I'll show you and your darn law:" kind of thing. I also believe from a legal point of view they use it as an excuse to keep how and why you were treated "private" even from you. It makes it very difficult to establish and prosecute a malpractice claim.
Jo
Mike-UK - 09 Jun 2005 00:06 GMT On Jun 8, Jo Firey posted:
> > The last two times I was admitted to the hospital I was asked if I wanted > > people to know I was there if someone called. I said Yes. Something like [quoted text clipped - 9 lines] > treated "private" even from you. It makes it very difficult to establish > and prosecute a malpractice claim. So where are we in the "problem-reaction-solution" scam?
Problem established.
Reaction established.
The solution? Follow the money and join the dots people...
(Ooh! All that lovely data! If only we could actually use it!)
"Won't somebody please think of the children! Shriek!"
 Signature --------------------------- Another squeaking wheel @ http//tinyurl.com/6bf56
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Have a nice day, it really does do you good! :) ---------------------------
Newsgroup Spambuster - 09 Jun 2005 04:27 GMT Thanks everyone for your responses!
As far as being asked, I never was asked and when you are by yourself and having a very difficult time talking, it can be most frustrating to get certain concerns across. I did get an evaluation form from the hospital and did not hold back on my feelings at all as far as some of the things that took place and my frustrations with their lack of communication to my other doctors, especially my pcp. Will be interesting to see if that gets their attention at all or not.
The other problem for me is, that I use one hospital and its physicians for all my health care except for the lung stuff. Because my lung issues are rather complicated, I use the other hospial in town primarily for my lung stuff. So, getting information from the one hospital to my other doctors at the other hospital makes things all the more difficult to contend with. It literally can take months for this to happen. At least when I have something done at the facilities where all my other doctors are, they are all tied into the same computer system so they can just pull up results of anything I have had done.
As much as I hate this new hippa law stuff and think it has really caused more problems than it has solved, I am not one to just roll over and let things go. I will continue to work on this process and to work with the doctors and hospitals to hopefully help them learn to be more patient friendly and more user friendly as a whole. Who knows, it could actually happen! ; )
Donna G
Nann Bell - 10 Jun 2005 15:33 GMT > As much as I hate this new hippa law stuff and think it has really > caused more problems than it has solved, I am not one to just roll over > and let things go. I will continue to work on this process and to work > with the doctors and hospitals to hopefully help them learn to be more > patient friendly and more user friendly as a whole. Who knows, it > could actually happen! ; ) heehee, keep us posted and remind me to stay on your good side!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
debbie m. - 08 Jun 2005 23:48 GMT Hi Donna,
Its good to see you posting. I hope you are feeling much better. On the other hand i've been in doctors office where they yell out your full name. How about that for hippa laws. lOL
debbie m.
> I understand the basic concepts behind the newer hippa law, but what I > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 25 lines] > > Donna G Jim McGowan - 14 Jun 2005 08:29 GMT Ahh... My latest Hipaa peeves:
My mother, who up till then was living by herself, cooking, driving, etc, felt dizzy and was taken to an ER and admitted. Dr. ordered heavy duty steroids cause he thought it was likely to be lack of O2 - breathing difficulties. She then got downright weird in the hospital: cursing, paranoia, going to the bathroom in the hallway. No one would tell my brother, sister, or I what was going on - Hipaa! Four weeks later after ins and outs of rehab, nursing home, and assisted living, she passed away. We found out she was terminal the day before. Liver failed - cirrhotic. Non-drinker all her life. It happens. But we found out that they knew this the second day in the hospital, but it was up to her to tell us - Hipaa! And her strange sudden psychotic episodes were found to be steroid-induced. So she was not in a clear state of mind to tell us - she had no idea - and my sis had durable power of atorney for merdical decisions, but that doesn't come into play unless they declare her incompetent. Whch they didn't, cause those docs didn't know about the steroid-induced psychosis - Hipaa. A truly sad state of affairs. What a mess.
And when I had to be admitted a year later, I insisted on listing all people who were allowed to know all my medical issues. I made it a long list - wife, children, aunts, uncles, and - yes - my voice mail! They said no, and I said, "See ya." Wouldn't let them get started till they attached that to my chart and gave my wife a signed receipt accepting the list as Hipaa compliant.
Lastly, I loved dealing with the miserable lady who works at the local MRI facility. She tried to have me sign a form saying I have received and read and agree to their Hipaa policy. But, I said, where is it? You didn't give me one! She looked at me with a pure hate in her eyes and told me "No one reads them - just sign the form!". OK, I decided to have some fun. I insisted she give me a form to read. She couldn't find any. They're a part of the hospital consortium in my area, so I called a friend in medical records at one of the hospitals and she had their Hipaa director (they actually have one of those?!) drive a box of them over, give me one, and then give the box, and a little "training", to the lady behind the counter! Fun to watch. To top it off, I insisted on the same long list of friends and relatives who are allowed to receive medical info on me. I think she may have quit..... :-)
 Signature Jim McGowan
> I understand the basic concepts behind the newer hippa law, but what I > guess I don't get and what really frustrates me to no end, is the way [quoted text clipped - 25 lines] > > Donna G Joan Carter - 14 Jun 2005 15:37 GMT >She looked at me with a pure hate in her eyes and told me "No one >reads them - just sign the form!". OK, I decided to have some fun. I [quoted text clipped - 6 lines] >relatives who are allowed to receive medical info on me. I think she may >have quit..... :-) Oh, Jim, that was terrible about your mother, but I did laugh at the part about the "lady" ?? who gave you such a hard time.
I don't think those types ever quit, they just stay on and get nastier. But if you visit her again, she may give it serious second thought and write out her resignation.
--- Joan
d'huit - 14 Jun 2005 17:16 GMT ROTFL! i can just see it on her next job appl. - reason for leaving prior employer:
jim mcgowan and his federally sanctioned harrassment via HIPPA regulations.
good for you, jim!
kate
> On Tue, 14 Jun 2005 03:29:03 -0400, "Jim McGowan" > <jcmcgowanATcomcastDOTnet> [quoted text clipped - 12 lines] >>relatives who are allowed to receive medical info on me. I think she may >>have quit..... :-) <gentle snip> . . . I did laugh at the part about
> the "lady" ?? who gave you such a hard time. > [quoted text clipped - 6 lines] > --- > Joan Joan Carter - 14 Jun 2005 18:34 GMT >jim mcgowan and his federally sanctioned harrassment via HIPPA regulations. I have to ask what HIPPA is. --- Joan
d'huit - 14 Jun 2005 21:29 GMT > On Tue, 14 Jun 2005 09:16:53 -0700, "d'huit" <threecedars@comcast.net> > wrote in [quoted text clipped - 6 lines] > --- > Joan LOL! and not at you, joan, but at me trying to explain it. it's actually HIPAA, but we all mess the anagram up. here's a link for a brief explanation: http://www.hipaaplus.com/abouthippa.htm
kate
d'huit - 14 Jun 2005 17:19 GMT i'm sorry about your mom's death, jim and all that horrible confusion surrounding it. that's awful. it's hard enough to lose a loved one without redtape making the process more difficult.
kate
> Ahh... My latest Hipaa peeves: > [quoted text clipped - 66 lines] >> >> Donna G Jim McGowan - 15 Jun 2005 06:29 GMT Yeah, it was a true revelation about the state of how our health care system can be thrown into a bit of chaos by a well-intentioned, but very difficult to implement, law.
Sad part is I couldn't even go and confront anyone about it. Some of the inside info was told to me by a very nice intern (or resident - not sure which) whose job was very much placed on the line by telling me what he did. I couldn't bring myself to blow any whistles at his expense. Also, my personal physician, when I told him about this, had one of his office staff pull up all of the chart information and test reports for my Mom, and print them out to give to me. He was really upset by it and wanted me to know just what happened; but then the staffer told him and I that her name and ID were logged while pulling all the data and they had called to ask her why she was doing that. Apparently since my Mom was never a patient at their office it's technically illegal to do what she, at my doc's orders, did. So again, I could not bring myself to go on a witch hunt and ruin people who helped me to the truth. Wouldn't have helped my Mom any by then.
I did, however, lay down a few strongly worded hints - by way of my brother, who lives in another town and has never been to my Doc's office - so that they knew that we knew. Also kept in contact with the hospital asking about their disjointed implementation of HIPAA. Can't tell, but I'm hoping that it made them look hard at their protocols. I don't want this to happen to anyone else.
 Signature Jim McGowan
> i'm sorry about your mom's death, jim and all that horrible confusion > surrounding it. that's awful. it's hard enough to lose a loved one [quoted text clipped - 72 lines] >>> >>> Donna G d'huit - 15 Jun 2005 15:11 GMT > Yeah, it was a true revelation about the state of how our health care > system can be thrown into a bit of chaos by a well-intentioned, but very [quoted text clipped - 21 lines] > I'm hoping that it made them look hard at their protocols. I don't want > this to happen to anyone else. you're right. nobody should have to experience what you and your family went through, jim. this is very sad and all the coulda's/ shoulda's/woulda's, after the fact, can't undo what occurred.
in my perception, there's a nobility of spirit that rises to the surface in many people, like you jim, who have endured the aftermath forced upon them by the actions of others and the chain of events leading up to it, that many of us would find unforgivable and ennervating. your efforts in delicately (to protect some people) trying to get the hospital to review their hipaa implimentation protocols, so that others do not have to fall victim to the same flawed policies, falls into that catagory of nobility of spirit, as does those whose efforts dared to help you piece together an explanation.
in too many situations of this particular nature, the hiding behind hippa, stonewalling, caginess and obvious c.y.o.a.-ing, by the institution involved, is reprehensible in the face of a family's loss. hospitals do these things, because they know they were, or something they're doing, is wrong. it was wrong that your family had to endure what it did. it is also equally wrong that your family is being deliberately denied, directly by the hospital involved, the details necessary to help you understand why this experience unfolded, as it did, to cause the experience to be forced upon you. all of you deserved no less than complete disclosure to help you understand and cope with what occurred and to simplify your grief and grieving processes. common decency requires no less than this--an honest explanation by the hospital.
hipaa, though well-intentioned, would not be difficult to impliment if in its origination process the legislation's implimentation guidelines had been more thoughtfully considered, and written with foresight and clarity. lacking those guidelines, its good intentions fall short and do disservice to many.
my heart goes out to you and your family, jim.
kate
>> i'm sorry about your mom's death, jim and all that horrible confusion >> surrounding it. that's awful. it's hard enough to lose a loved one [quoted text clipped - 77 lines] >>>> >>>> Donna G jb - 19 Jun 2005 08:34 GMT Jim you are in my thoughts and prayers. you sure have been through a lot janice
| Yeah, it was a true revelation about the state of how our health care system | can be thrown into a bit of chaos by a well-intentioned, but very difficult [quoted text clipped - 97 lines] | >>> | >>> Donna G
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