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Medical Forum / Diseases and Disorders / Arthritis / June 2005

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Tests and more test then doctor's meetng

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Don W - 01 Jun 2005 16:09 GMT
We arrived at the hospital at 7:45 AM and reported for the pulmonary
test,  completed it and guzzled down a quart of "banana smoothie" barium
for the CT scan at 9:30 AM , whoops we have to do an iodine injection
with the scan; tech hits the spot the first time but it starts gushing
blood like crazy, the gusher is finally under control and the IV is
inserted and the scan completed.

We have a preliminary discussion with the Doc's assistant which leads to
some more blood draws and a deep venous sonogram of both  legs to
determine there are no blood clots accompanying my swollen feet and legs.

Finally down to business with the Doctor and his assistant.  I have a
form of non Hodgkin's lymphoma which may have been there for a long
time, there is no way of knowing this for sure.  My form of cancer rates
in the area of 6 to eight months to live without any form of treatment
and most prevalent in men and people with compromised immune systems.

 The best chance of survival rests in a series of chemotherapy sessions
spaced  out over approximately eight months.  The sessions will be
injections given one day in the hospital  and a three week rest period
at home where other drugs may be used and tests run during hospital
visits to keep track of the progress to date between each major injection.

Spent another 45 minutes trying to get the first session scheduled and
date to insert a PICC line.  Man there  trying to schedule a follow-up
appointment post treatment for same problem as mine.  His has been put
in remission using the same method by the same Doc of whom he cannot say
too much in praise of his success.

Sounds encouraging, but, it will be a long haul.  More in detail later,
I am bushed today and have slept off and on all day.

Don Whitely
Gwen Love - 02 Jun 2005 05:18 GMT
Don, prayers for patience and great success with the treatments.
Gwen

> We arrived at the hospital at 7:45 AM and reported for the pulmonary
> test,  completed it and guzzled down a quart of "banana smoothie" barium
[quoted text clipped - 29 lines]
>
> Don Whitely
Jo Firey - 02 Jun 2005 06:35 GMT
Thank you for letting us know what is happening.  I can only imagine just
how wiped out you must be.  You are and will continue to be in my thoughts
and prayers.

Jo
> We arrived at the hospital at 7:45 AM and reported for the pulmonary test,
> completed it and guzzled down a quart of "banana smoothie" barium for the
[quoted text clipped - 29 lines]
>
> Don Whitely
Rosemarie Shiver - 02 Jun 2005 08:07 GMT
Sending you a ton of healing wishes and good vibes.

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> We arrived at the hospital at 7:45 AM and reported for the pulmonary
> test,  completed it and guzzled down a quart of "banana smoothie" barium
[quoted text clipped - 29 lines]
>
> Don Whitely
Diane - 02 Jun 2005 13:39 GMT
don, i can imagine how bushed you are, physically and emotionally. how
great that man who was in remission was there to give you
encouragement! i'll pray for the same outcome for you.

diane
Harvey R. Stone - 02 Jun 2005 14:42 GMT
> don, i can imagine how bushed you are, physically and emotionally. how
> great that man who was in remission was there to give you
> encouragement! i'll pray for the same outcome for you.
>
> diane

  There are times in life when just what a person needs is supplied by
someone that we do not know.   It makes me want to believe in Angels.
Harv
RoseB - 02 Jun 2005 14:21 GMT
Don,
I wish you much success with your chemo. It will not be an easy road,
as I am sure you well know. The alternative is not too great either.
My prayer is that you have the strength to deal with the chemo, that
your side effects be minimal, and that you get the best possible
outcome. We will be thinking and praying for you.

I hope that you will have a chance to check out the two cancer support
websites that I mentioned in another post. There you will be able to
communicate with others who have been through or are going through the
same thing. They may be aboe to give you some suggestions about
dealing with fatigue and nausea.  There are also links to all sorts of
cancer information.

I wish you well.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Don W - 02 Jun 2005 05:52 GMT
Rose,

I have checked out both sites and have found them both beneficial. I
appreciate your including them in your post.  There are lots of things I
have yet to learn about this entire treatment scenario.  It seems so
easy to talk about them now, when I have not experienced the fatigue,
vomiting etc. that accompanies them.

Don Whitely


> Don,
> I wish you much success with your chemo. It will not be an easy road,
[quoted text clipped - 16 lines]
>
>      Please remove "Ima" to reply.
Duckie - 03 Jun 2005 04:47 GMT
I think they have medications [yeah I know - one more
drug] to help control the nausea and vomiting. I am
guessing they will give you a script for that soon. So
did they tell you the name of the drug going into the
pic line? That Rituxan I tried for the RA is approved
by the FDA for non hodgkins.
Duckie

> Rose,
>
[quoted text clipped - 5 lines]
>
> Don Whitely
Don W - 03 Jun 2005 16:28 GMT
Duckie.

Rituxin is one of the drugs in the cocktail of drugs which will be in
the chemotherapy.  The other mix is a group of drugs called "Chop".

Don Whitely

> I think they have medications [yeah I know - one more drug] to help
> control the nausea and vomiting. I am guessing they will give you a
[quoted text clipped - 12 lines]
>>
>> Don Whitely
Duckie - 04 Jun 2005 18:16 GMT
Cool Don. Something in there to help the RA. That is
going to be a good side effect.
Keep us updated. You know us - nosey but lovable.
Prayers continue for you and yours.
Duckie

> Duckie.
>
> Rituxin is one of the drugs in the cocktail of drugs which will be in
> the chemotherapy.  The other mix is a group of drugs called "Chop".
>
> Don Whitely
Adelle - 03 Jun 2005 18:21 GMT
> Don,
> I wish you much success with your chemo. It will not be an easy road,
[quoted text clipped - 11 lines]
>
> I wish you well.

So well said. So I'll just say, same from me.

My Dad had multiple myeloma, also a cancer of the bone marrow. Chemo did not
make him ill at all, though he was fatigued. He lived with it for years
until it damaged his kidneys. Those were wonderful years.

I hope you have an even better result than my Dad. May you have a wonderful
outcome from your treatment!

Adelle Stavis
DeeTee and Bob Taggart - 02 Jun 2005 14:30 GMT
It's good, then, that you're getting treatment. Now I know you'll pull
through this.  Hugs.

DeeTee
________________________________
DeeTee and Bob Taggart
http://www.marykay.com/dtaggart3
http://mysite.verizon.net/vze8fwov/
________________________________
> We arrived at the hospital at 7:45 AM and reported for the pulmonary test,
> completed it and guzzled down a quart of "banana smoothie" barium for the
[quoted text clipped - 29 lines]
>
> Don Whitely
Harvey R. Stone - 02 Jun 2005 14:39 GMT
Thank you very much for the well done report.    Sleep, rest,   the hard
part is over.   I am very sorry to tell you that continued reporting is
required in this newsgroup because any one of us could be doing the same
thing you are doing so well.
Harv

> We arrived at the hospital at 7:45 AM and reported for the pulmonary test,
> completed it and guzzled down a quart of "banana smoothie" barium for the
[quoted text clipped - 29 lines]
>
> Don Whitely
Ann - 02 Jun 2005 18:19 GMT
Don:  Just to give you a bit of encouragement, my Dad was diagnosed with
non-Hodgkins lymphoma at the age of 75.  He underwent two series of
chemo treatments that lasted about a year, was not at all sick during
them (just fatigue) and went into remission.  He returned to work in
between treatments and continued to feel well enough to work part time
until he passed away at age 84 of completely unrelated heart disease.

This was several years ago and the chemo meds have improved since then.
I am looking forward to extremely good results for you.  It's a battle,
but it is one that you and the doctors can win.  I'll keep you in my
daily prayers.

Ann
Kelly Cobb - 02 Jun 2005 14:57 GMT
((((Don))))

I hope you got some well-deserved rest last night and are waking up
refreshed and ready to take on this new challenge. I know it's a long road,
but seems to be one with a potential for a good outcome.

I'll be watching for your reports and keeping you in my thoughts and
prayers.

Kelly C.
Jean - 02 Jun 2005 17:32 GMT
> I'll be watching for your reports and keeping you in my thoughts and
> prayers.
>
> Kelly C.

As will I.  You have been added to my prayer list.

Jean
Mary Z - 02 Jun 2005 15:31 GMT
>Sounds encouraging, but, it will be a long haul.  More in detail later,
>I am bushed today and have slept off and on all day.

Keep us posted on your situation and keep up the good fight.  We are
keeping you in our thoughts and prayers. -- MZ

Visit my website:
http://www.mzuschlag.com
d'huit - 02 Jun 2005 18:26 GMT
((((((((((((((((((((don))))))))))))))))))  it really sucks bigtime that you
have to go through chemo, but thank goodness there is a treatment and hope
for you, don.  my wishes, thoughts and prayers are for a good outcome for
you, guy.   get all the rest you can and take good care of yourself.  will
continue hanging in there with you.

kate

> We arrived at the hospital at 7:45 AM and reported for the pulmonary test,
> completed it and guzzled down a quart of "banana smoothie" barium for the
[quoted text clipped - 29 lines]
>
> Don Whitely
Sunny52 - 02 Jun 2005 19:49 GMT
Don,

I pray that the chemo and the testing will not be too difficult, and
that you will have great success at the end of the treatments.

Keeping you in thoughts and prayer.

Bonnie
Duckie - 03 Jun 2005 04:41 GMT
banana smoothie -- is that the only flavor. They would
have seen that coming back at them. Your gusher reminds
me of a long ago KJ story when she was trying Prosorba
to an avail.
Glad you are getting down to business and really glad
you ran into that other man while trying to schedule
appointments. As you know, there is nothing like good
support and info.
Get some rest, you are going to need it. And do keep
posting your journey. Prayers are on going.
Duckie

> We arrived at the hospital at 7:45 AM and reported for the pulmonary
> test,  completed it and guzzled down a quart of "banana smoothie" barium
[quoted text clipped - 29 lines]
>
> Don Whitely

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Nann Bell - 03 Jun 2005 15:13 GMT
thanks for the update and get all teh rest you need.  that ASA angel will be
there on your shoulder all the way through this.

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Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Squirrely - 04 Jun 2005 01:29 GMT
Don,

You are still in our prayers and thoughts. I am hoping all this works out
for you in the end. I hope the treatments help you greatly. Even if I don't
write about it you will continue on our prayer list till I hear you are
doing great.

Your family is also included on that list.

I Know Denise feels the same way also. when I read your post to her, she was
putting your name on her list.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> We arrived at the hospital at 7:45 AM and reported for the pulmonary test,
> completed it and guzzled down a quart of "banana smoothie" barium for the
[quoted text clipped - 29 lines]
>
> Don Whitely
 
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