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Medical Forum / Diseases and Disorders / Arthritis / May 2005lil bitty flare
or maybe a big one, I don't know. after 6 1/2 years of having my Psoriatic Arthur under control, I seem to be having my first serious flare. We've been futzing around with my MTX dosage, trying to get it as low as possible, and I think we futzed too much. my fingers are numb.. my hands hurt... my right hip.. the soles of my feet.. my knee, bits and pieces of my spine. I'm profoundly tired, and I want to cry. If anyone has the power make this all end as quickly as it began, please do so. I don't know if I can go back to what I had before for too long. the 'spousal unit has expressed that my illness is not something he can tolerate easily.. and that makes it that much worse to bear.. gah! I hate this disease!! Uv (the throbbing one) First, healing, soft squishy hugs for you... Next, a thwap for the 'spousal unit' for thinking that maybe you are intentionally making his life hard by being ill, or that you somehow are responsible for his being uncomfortable. Nobody tolerates these diseases easily, especially the ones who are trying to live a normal life through the pain. ARGH!! I'm so sorry to vent this frustration on you, Uv, but that just ticks me off. I don't blame you a bit for wanting to cry. Kelly C. > or maybe a big one, I don't know. > [quoted text clipped - 16 lines] > > Uv (the throbbing one) Gentle hugs, Uv. Believe me, I know the feeling of wanting to cry and my advice is to go somewhere and let it out. I kept all the feelings about my cardiac problem inside until one day when I had a mini breakdown at rehab one day. Once I had a really good cry, I felt a lot better. So let it out. As for the spousal unit, for him I have a good swift kick in the a.s. There is nothing worse than having to be around someone who doesn't understand. Life is not easy for anyone who is living with a disease, but know that you always have support here as we understand. And you can come here and vent whenever you want or need to. Carole > or maybe a big one, I don't know. > [quoted text clipped - 16 lines] > > Uv (the throbbing one) thinking of you and wanting you to know I am hoping you have many pain free days ahead.  SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > or maybe a big one, I don't know. > [quoted text clipped - 17 lines] > > Uv (the throbbing one) I am so sorry to hear this/ I pray that this is a short flare and that you will soon be feeling better. It seems to me that your meds need a bit of tweaking, Perhaps it's time to add something else? Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. {{{{{{{{{{{{{{{{{{Uv}}}}}}}}}}}}}}}} I think we all have got to quit messing with trying to go low with our meds. Did that once with my Arava and it took a year to get back in control. Actually I think that was the end of things working as well as they had. Wish I hadn't tried and I am guessing you are wishing that as well. Take a 2X4 to that spousal unit - I am in a bad mood - maybe I can do it for you. :) Duckie > or maybe a big one, I don't know. > [quoted text clipped - 16 lines] > > Uv (the throbbing one) Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) I am sorry to hear that you are in a flare... Sending a Huge Prayer and a Hug.... "Spousal Unit"....Well I can not believe he is trying to make you feel guilty for being sick...ARGH....Like Duckie said...A 2X4 Hugs Cindy > or maybe a big one, I don't know. > [quoted text clipped - 17 lines] > > Uv (the throbbing one) Spousal unit needs some TLC classes.... 2x4 is an idea...lol I like that one Duckie. It isn't your fault you hurt and feel like you know what. To blame you and give you heck just because you feel bad seems like a way for him not to deal with your illness. ((((((((((((((((((((((HUGS)))))))))))))))))))))) RhondaM > or maybe a big one, I don't know. > [quoted text clipped - 17 lines] > > Uv (the throbbing one) I'm not better yet, but at least I don't feel sorry for the s/o(fabitch) for making me feel bad about feeling bad. the last thing anyone needs is the feeling that you're going to be left at the curb like Tuesday's garbage for feeling badly and not being 100% . thank you all for your kind wishes and loaned 2x4's Uv (with the backhand) > the 'spousal unit has expressed that my illness is not something he can > tolerate easily.. and that makes it that much worse to bear.. > > gah! I hate this disease!! A lot of times Charlie complains that my hearing loss is harder on him than it is on me. Of course that's unreasonable, and we both know it. But in all honesty it is hard on him too. After all, he has never yelled at me in public for the way I deal with it. I have a couple of times yelled at him. It is inconvenient for both of us. Neither of us can do much of anything about it. And we both get frustrated. We both miss easy relaxed adult communication. And he is forced to deal with things that used to be my job. (Like all things telephone) That doesn't mean he "blames" me or that I feel guilty. Its just the way things are. And everytime we start to get a grip on the way things are, they change. Jo >> the 'spousal unit has expressed that my illness is not something he can >> tolerate easily.. and that makes it that much worse to bear.. [quoted text clipped - 17 lines] > > Jo I know I have to face that my illness and the impending doom of the flares and possible relapse into what I used to be before the good stuff kicked in. I realize that it has a large impact on the paradigm that he has for our life, and for me. ...that doesn't make it easier to take, it just adds a layer of anxiety that I can't cope with right now. I am feeling better, and he's obviously relieved. He did not sign up for this, he thought he was getting a healthy vibrant wife that could do anything.... Surprise, the "In Sickness and In Health" clause kicks in here,a nd he ain't liking it ONe Bit. Uv (ever patient) > I am feeling better, and he's obviously relieved. He did not sign up for > this, he thought he was getting a healthy vibrant wife that could do > anything.... > > Surprise, the "In Sickness and In Health" clause kicks in here,a nd he ain't > liking it ONe Bit. well, you never know for sure how things will go. My brother married someone who thought she'd have to care for him as diabetes took its toll on him. As it turns out, he's done very well with his diabetes (type 1) and has had very few complications from it. And she developed a chronic illness that has required a lot of devoted care from my brother....... You do what you gotta do. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare ((((((((((Uv))))))))))) I hear ya, had to stop everything due to illness and boy did I ever re-learn how much good the meds are doing me! Tell the s.u. that it ain't nearly as hard for him as it is for you and that you don't need him making it harder! And if grumbling continues, let him know that the Gimp Posse is ready to ride on any out-of-line spousal units! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare |
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