It looks like I will be starting the Abatacept study in a month or so.
Had my regular RD appointment this morning and before he even examined
me we talked about the study. Then he did my joint check and was
surprised at how boggy and swollen they were. Gave me a big old shot of
cortisone in the butt to help me get over this flare.
He said they should be set up and ready for the study in about a month
and they'll give me a call then. It looks like I am a perfect guinea
pig! I'm a little nervous about giving up my kineret, but it doesn't
seem to be doing the job as well as it used to. It's time to try
something new so I guess the study came at a good time.
The good news is that there is no drug washout reqired for the study.
So I can stay on kineret right up until I start the new drug.
I'll keep everyone posted as to when I start.
~KJ
Gaetan Michiels - 17 May 2005 15:19 GMT
KJ,
Don't be afraid KJ, the infusions are very smooth and gently, no allergic
reactions, painless...and only 30 minutes.
After three infusions you can feel the positive effect on your RA unless you
have only sugar water in your bag (placebo).
Good luck with the Abatacept (=CTLA4-IG)
Wil
Waving from Belgium
> It looks like I will be starting the Abatacept study in a month or so.
> Had my regular RD appointment this morning and before he even examined
[quoted text clipped - 14 lines]
>
> ~KJ
Harvey R. Stone - 17 May 2005 17:40 GMT
> I'll keep everyone posted as to when I start.
>
> ~KJ
Thanks,,, please do.\
Harv
d'huit - 17 May 2005 20:48 GMT
> It looks like I will be starting the Abatacept study in a month or so.
> Had my regular RD appointment this morning and before he even examined
[quoted text clipped - 14 lines]
>
> ~KJ
i wouldn't think you were human if you weren't a little nervous about being
in a new drug study. may abatacept be the magic bullet for you, kj!
kate
DeeTee and Bob Taggart - 17 May 2005 23:05 GMT
We'll all be praying that this is the one. Hugs, DeeTee

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> It looks like I will be starting the Abatacept study in a month or so.
> Had my regular RD appointment this morning and before he even examined
[quoted text clipped - 14 lines]
>
> ~KJ
Duckie - 17 May 2005 23:12 GMT
Good luck with it. I had asked about that one and my RD
had me try Rituxan first.
Here is hoping it kicks in quickly and takes over
control without much trouble.
How is it administered - infusion I think. How long and
what is the repeat dose regime.
Duckie
> It looks like I will be starting the Abatacept study in a month or so.
> Had my regular RD appointment this morning and before he even examined
[quoted text clipped - 14 lines]
>
> ~KJ

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KJ - 18 May 2005 11:02 GMT
It's a short infusion, about a half hour. I think it's given on day 1,
15, 29 and every 28 days after that. Most common side effects are
headache and nasopharangitis. From what I've read it's very effective
in those who have failed the TNF drugs. We'll see!
~KJ
> Good luck with it. I had asked about that one and my RD
> had me try Rituxan first.
[quoted text clipped - 3 lines]
> what is the repeat dose regime.
> Duckie
Duckie - 19 May 2005 04:41 GMT
And what is nasopharangitis? Sounds like something to
do with the nose?
Duckie
> It's a short infusion, about a half hour. I think it's given on day 1,
> 15, 29 and every 28 days after that. Most common side effects are
> headache and nasopharangitis. From what I've read it's very effective
> in those who have failed the TNF drugs. We'll see!
>
> ~KJ
Alice Faber - 19 May 2005 04:58 GMT
Pharyngitis, maybe? The pharynx is the upper throat. Sounds like the
side effect is that it might give you a sore throat!
> And what is nasopharangitis? Sounds like something to
> do with the nose?
[quoted text clipped - 6 lines]
> >
> > ~KJ

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AF
"Non Sequitur U has a really, really lousy debate team."
--artyw raises the bar on rec.sport.baseball
firechief - 19 May 2005 06:40 GMT
> And what is nasopharangitis? Sounds like something to
> do with the nose?
Inflammation of the nasopharynx. <g>
nasopharynx: The part of the pharynx situated above the
soft palate (postnasal space)
pharynx: The passageway for air from the nasal cavity to
the karynx and for food from the mouth to the esophagus.
And there are 4 pages of diseases associated with it. <g>
... A flying saucer results when a nudist spills his coffee.
Squirrely - 18 May 2005 21:25 GMT
KJ,
Denise and I hope this works well for you and that is the answer that will
fix all your problems for you.
Know that we are thinking of you.

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Love and hugs to all
Good thoughts coming your way too.
Squirrely Jo
> It looks like I will be starting the Abatacept study in a month or so.
> Had my regular RD appointment this morning and before he even examined
[quoted text clipped - 14 lines]
>
> ~KJ