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Medical Forum / Diseases and Disorders / Arthritis / April 2005

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the scoop on my cholesterol, GI problems, etc (long)

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Diane - 21 Apr 2005 04:34 GMT
i guess the bottom line is, i am just a physical wreck. i've really
lost track of all the things that are wrong with me that i'm supposed
to get checked and re-checked.
ok, enough griping. i know i'm not alone.

i saw my GI doc today. he is truly an amazing person. i've seen him for
15 years and he yells at me (literally) etc, but i always know he
cares. he spent an hour with me today. i left feeling as though he
wants me to be as healthy as i can be and that i am failing in my part
of the bargain. which i am.

GI system: this part i can't help, except to eat less garbage. my
esophogus is a mess (tho not barrett's, thank god), i have no sphincter
between the esophogus and stomach, and bile backs into my stomach, so
everything is going the wrong way. so i am now on prevacid and baclofen
for this, twice a day.

cholesterol: i forgot to get a copy of the bloodwork, but my total
cholesterol was 258 and my LDL was something like 170. a freak out
number, i guess, coz he seemed pretty freaked out. i felt ashamed of
myself because this past year i've lived on cheese danishes and  toffee
almond bars (damn starbucks!) oh, not to mention coffee. what did i
expect? and i am so sedentary. my main exercise is getting up from my
chair to let the dogs out.

so, the plan of attack:

lipitor, 20 mg, which after reading about the muscle side effects, etc,
some of you mentioned here, scares me. should i be scared?

baby aspirin: this also scares me because of the celebrex and low dose
warfarin i take. we discussed this but i'm still not sure how to handle
it.

diet: the biggie, and the thing i, as a mature grown-up who loves
herself, should be able to manage. i've eaten well before. i can do it
again. (psyching myself up here. . . ). anyhow, this doc has written
several books on the subject of diet and cardiac health. his ideas are
different from the norm, but fall most in line with the mediterranean
(sp?) diet. no fats other than olive, canola and hazelnut oil. no
cakes, cheese danish :-(, chocolate (small amounts of dark ok) (there
is no such thing as a small amount of any kind of chocolate in my
world)  fish 5 times a week (did you know that the same brand and size
can of water-pack tuna can have different fat contents? go check your
cans! the best are the ones with the highest fat content because of the
omega 3's) anyhow, i got quite the tutorial and he gave me one of his
books.

exercise: 5 days a week on the elliptical trainer. i just quit my gym
last week because i hadn't gone in over a year. i called this afternoon
and reactivated my membership.

so that's where i am. feeling kind of disgusted with myself for letting
things get this bad.

self-deprecating diane
Harvey R. Stone - 21 Apr 2005 14:23 GMT
> so that's where i am. feeling kind of disgusted with myself for letting
> things get this bad.
>
> self-deprecating diane

I fully understand how you feel and I have stopped my gym when going to the
gym has been a way of life for me for over half my life.  I have replaced it
with walking and I have a couple of machines that have not been used enough.
The secret to using them ENOUGH is to listen to or watch something while
using them.   The length of time used goes way up.
   One thing you and I must accept is that we can be our own worst enemy.
It is not OK to continue a lifestyle that is killing us.   Patting ourselves
on the back while making excuses or explaining to ourselves why today is not
a good day to do what is best for ourselves must be faced for what it is.
Good luck with it all Diane.  Putting this post in the newsgroup is the
first step to a better tomorrow.
Harv
Nann Bell - 21 Apr 2005 15:32 GMT
> cholesterol: i forgot to get a copy of the bloodwork, but my total
> cholesterol was 258 and my LDL was something like 170. a freak out
> number, i guess, coz he seemed pretty freaked out.

That's getting up there, though I've heard of much higher.  According to my
recent PCPs (the ones since my cholesterol has been high) those kind of
numbers are indicative of a genetic element at work - not just diet.  Don't
beat yourself up about those numbers, your cholesterol would have been high
even with a good diet and lots of exercise.  Probably not quite as high, but
still high.  In my case this was supported by both of y siblings (both of
whom eat more healthily than I, though my diet isn't THAT bad) also developed
chol. probs around the same age.

My total cholesterol was around 240 - there's a hole where the LDL was stored
in my brain - about this time last year.  After a couple of months on 20 of
Lipitor, my total was 170 and the LDL/HDL split needed just a slight tweak to
be ideal.  And at that point I'd been eating LOTS of eggs as we'd been
visiting up here interviewing for this job and kept being given farm-fresh
brown eggs.  Yum.  We agreed I'd achieve the needed further tweaking with
diet changes as the numbers were so clse to good.  YMMV, of course, but I
betcha it looks equally good for you.

> lipitor, 20 mg, which after reading about the muscle side effects, etc,
> some of you mentioned here, scares me. should i be scared?

No.  My sister did have the achiness that is listed in the side effects, but
it went away as soon as she stopped the statin she was on.  And it was a
different type of achiness - she's a former dancer (belonged to the local,
now-though-not-then professional, ballet company) and gymnast so she's
accustomed to ahing muscles but said this just didn't feel right and she was
all-over achy rather than localized as someone (Rosie?) said.

As for the liver effects, heck, you're already being watched for liver probs,
the same tests will pick up probs from the lipitor as well.   and I forget
what else is there in the way of side effects........

> baby aspirin: this also scares me because of the celebrex and low dose
> warfarin i take. we discussed this but i'm still not sure how to handle
> it.

I'm curious as to why baby aspirin?  Is he just anticipating cardiac problems
from the high cholesterol?  It does seem to me that there should be a solid
reason for adding it with your other NSAID use and with your GI probls in the
picture.

> diet: the biggie, and the thing i, as a mature grown-up who loves
> herself, should be able to manage. i've eaten well before. i can do it
[quoted text clipped - 3 lines]
> last week because i hadn't gone in over a year. i called this afternoon
> and reactivated my membership.

well, you know all too well that neither of these can hurt you any!  heehee  
And improving your diet even some and getting more exercise will really help
you a lot in dealing with stress too.  Lord knows you've had enough of that
lately.  And I bet once you get back into the gym, you'll be glad you did.  
(A good gym is probably what Mike and I miss most where we live now.  We have
a new resolution to drive the 50 miles RT into the mediocre gym more often if
we ever get over this respiratory bug, but we wouldn't have to push ourselves
into doing it were it a GOOD gym.  When we were visiting back home, we got
pases to the gym we used to belong to and it was so glorious to be working
out more again, even for that brief time.)

And remember, while a "perfect" diet might be nice, it usually isn't
necessary.  Whatever changes you can make will be good.  And this is the
right time of year to be eating more fresh fruit and veggies anyway.  If you
all do make the move to NC, you'll most likely have some really good farmer's
markets around you, too.......

> so that's where i am. feeling kind of disgusted with myself for letting
> things get this bad.

nah, don't waste time and energy on that.  Just look at this as additional
motivation to do some stuff you've wanted to do anyway.  And put that
deprecctory energy into the diet and exercise instead.  And remember that
genes are part of the picture, now it's time to try to balance out the
effects of those genes...........

((((((((((((Diane)))))))))))))

(and a hug to John as well........)

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Rosemarie Shiver - 21 Apr 2005 18:27 GMT
   It wuz Duckie :-). With me, any statin feels like the FM has been set
off with muscle spaz on top. It is significantly hurtful.....flu like aches
rather than soreness.

  I'd give the Lipitor a try, Diane...and if you start to hurt call the
office and call and call. If he's the kind to yell at you, give some back to
him.

  Dunno why Warfarin and asprin both. Sounds like overkill and this
particular combo, if it were me, I'd double-check with the PCP. IIRC you're
seeing a cardiologist? The cardiologist should have the greatest say.

  What Nann sez about genetics, with the addition that the cholesterol
number isn't static. It varies from test to test and you're not that far
from normal....if going by the usual 200 is OK. Sounds to me like he's one
of those that goes by the number 170...which is hard for the majority of
people to stay at...and makes him a cholesterol Nazi. Your body produces
cholesterol naturally...and going too low is kinda like saying "I want you
to reduce yer white cell count this month." Wuhhhh? LOL  170 is extreme.

  What concerns me is what he's not doing about your GI tract. Why aren't
you both discussing closing up that sphincter? I had Barrett's and if it
didn't resolve I was going to have that...but the Prevacid worked for me.
The difference being is I haven't had a gallbladder in years, so I didn't
have bile backup on top of it. That's really not good.

Hugs from Rosie

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"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> > cholesterol: i forgot to get a copy of the bloodwork, but my total
> > cholesterol was 258 and my LDL was something like 170. a freak out
[quoted text clipped - 78 lines]
>
> (and a hug to John as well........)
Diane - 21 Apr 2005 18:57 GMT
thanks for the pep talk, you guys.

>>What concerns me is what he's not doing about your GI tract. Why
aren't
you both discussing closing up that sphincter? <<

he said in my case it could make things worse than they are. i don't
remember why, tho. my brain kinda got stuck in the cholesterol stuff.

diane
Nann Bell - 22 Apr 2005 04:12 GMT
   What Nann sez about genetics, with the addition that the cholesterol
> number isn't static. It varies from test to test

heehee....LOL  There was the time they forgot to tell Mike he had to be
fasting for his bloodwork.  He dropped me at work (at &am), then went for
biscuits and gravy at Bob Evans while waiting for the lab to open.  A few
days later he got an alarmed phone call from the doctor's office.....  He's
fasted ever since and his last one was 170 - and the damn fool is 12 years
older than I and truly eats more fat!  damn genes............  still a good
story about the biscuits and gravy though..... the nurse was really worried
for a while there.  LOL

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Simply the thing I am shall make me live --- William Shakespeare

Duckie - 22 Apr 2005 21:35 GMT
LOL
Duckie

>     What Nann sez about genetics, with the addition that the cholesterol
>
[quoted text clipped - 8 lines]
> story about the biscuits and gravy though..... the nurse was really worried
> for a while there.  LOL

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Duckie - 22 Apr 2005 21:35 GMT
My MIL's was 400 controlled. Now that is scary. She
lived into her 80's but she was mean. rofl
Duckie

>>cholesterol: i forgot to get a copy of the bloodwork, but my total
>>cholesterol was 258 and my LDL was something like 170. a freak out
[quoted text clipped - 78 lines]
>
> (and a hug to John as well........)

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DeeTee and Bob Taggart - 21 Apr 2005 20:02 GMT
{{{{{{Diane}}}}}  We love you enough for all of that!!  I strongly believe
in moderation in all things.  I'm not getting out of this world alive so I'm
gonna go happy.  You can have the cheese danish....once a year on your
birthday.

DeeTee
________________________________
DeeTee and Bob Taggart
http://www.marykay.com/dtaggart3
http://mysite.verizon.net/vze8fwov/
________________________________
>i guess the bottom line is, i am just a physical wreck. i've really
> lost track of all the things that are wrong with me that i'm supposed
[quoted text clipped - 52 lines]
>
> self-deprecating diane
Don Kirkman - 21 Apr 2005 22:15 GMT
It seems to me I heard somewhere that Diane wrote in article
<1114054489.510921.61950@l41g2000cwc.googlegroups.com>:

[. . .]

>i saw my GI doc today. he is truly an amazing person. i've seen him for
>15 years and he yells at me (literally) etc, but i always know he
>cares. he spent an hour with me today. i left feeling as though he
>wants me to be as healthy as i can be and that i am failing in my part
>of the bargain. which i am.

[. . .]

>cholesterol: i forgot to get a copy of the bloodwork, but my total
>cholesterol was 258 and my LDL was something like 170. a freak out
[quoted text clipped - 3 lines]
>expect? and i am so sedentary. my main exercise is getting up from my
>chair to let the dogs out.

>so, the plan of attack:

>lipitor, 20 mg, which after reading about the muscle side effects, etc,
>some of you mentioned here, scares me. should i be scared?

My opinion, based on several years of reading the statin wars in
sci.med.cardiology and seven years on statins (mostly Lipitor at 80mg,
apparently a high dosage):  rather than being scared be alert; the
truly serious side effects like neurological symptoms and
skeleto-muscular problems including rhabdomyalysis, occur at a very
low rate.  The more common effects are less apt to be serious or
disabling, but include tiredness and muscular weakening.  Most studies
consider the reduction of cholesterol and triglycerides to be
effective enough to outweigh the risks of statin side effects but most
also caution about being aware of potential problems.

>baby aspirin: this also scares me because of the celebrex and low dose
>warfarin i take. we discussed this but i'm still not sure how to handle
>it.

I'm on 325mg, the adult dose, but have never been on any other blood
thinners, so I can't offer anything.

Good luck with these changes!
Diane - 22 Apr 2005 00:53 GMT
thanks for the info, don.

diane
Duckie - 22 Apr 2005 21:29 GMT
South Beach. It dropped my Cholesterol 50 points. I
added Lipitor and it came down another 50 so I am in a
good range now. Gentle hugs to you.
Duckie

> i guess the bottom line is, i am just a physical wreck. i've really
> lost track of all the things that are wrong with me that i'm supposed
[quoted text clipped - 52 lines]
>
> self-deprecating diane

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d'huit - 28 Apr 2005 19:16 GMT
(((((((((((((diane))))))))))))  i don't really have any good advice and
everybody has seemed to cover most of it.  but . . .

i'm going to share a secret with you, so don't tell anybody else, ok?

did you know that in most doctor's office suites there is a private room
where the walls are literally covered by dart boards?  uh-hunh.  it's true.
i noticed a door< labeled "private"< left ajar one day, peeked into its room
and watched a doctor doing what i'm about to tell you about.  and then, i
was caught and was rushed into an exam room.  well, that got me curious.
so, i went snooping about for that kind of room at every other doctor's
office wherever and whenever i had appointments.  and all of the doctors'
suites had such rooms!  and i even located such rooms in hospitals!

on each of the rings and wedges, of each and every dart board, there was a
particular syndrome, disorder or disease labeled.
the doctor begins his or her day by taking the charts of patients, for that
day's schedule, into that office (or he or she suddenly disappears from your
exam room, for a few minutes, while you await his or her return).

the patients' charts are color coded, and that's how the doctor knows how
many darts to throw for that particular patient that day.  so, if your color
coded chart indicates 4 darts are to be thrown for you, then the doctor
throws (while blindfolded, of course, and after spinning himself around so
he doesn't know which wall full of dart board illnesses he's aiming at) four
darts at the dart boards.

sometimes, the darts miss a board completely and either fall to the floor or
hit the wall between the dart boards.  each dart that misses its mark is one
less thing the doctor can scare you with or rag on you about.  and in fact,
because the dart missed entirely, the doctor has to tell you a positive
thing about yourself and/or your heath.  darts that land on lines, mean the
doctor has to tell you that something hasn't changed, neither for the better
nor for the worse.  and darts that hit a bull's eye, mean the doctor is
allowed to make you feel guilty about any other dart that hit a labeled
spot.

i've studied all of this very carefully and very discreetly over the last
few years.  the medical profession is very, very careful about protecting
this secret and that's why so few patients know about it.  but i'm a nosy
kaprosy, so i don't miss noticing stuff like this.

anyway, i guess what i'm trying to tell you, by sharing this secret with
you, is not to be too hard on yourself, cuz it's not your fault that your
doctor throws darts the way he does!

feel better, hon.  you'll do what you know you need to do.

kate

>i guess the bottom line is, i am just a physical wreck. i've really
> lost track of all the things that are wrong with me that i'm supposed
[quoted text clipped - 52 lines]
>
> self-deprecating diane
DeeTee and Bob Taggart - 28 Apr 2005 21:51 GMT
Kate - you are ADORABLE!!!!

DeeTee
________________________________
DeeTee and Bob Taggart
http://www.marykay.com/dtaggart3
http://mysite.verizon.net/vze8fwov/
________________________________
> (((((((((((((diane))))))))))))  i don't really have any good advice and
> everybody has seemed to cover most of it.  but . . .
[quoted text clipped - 104 lines]
>>
>> self-deprecating diane
Diane - 29 Apr 2005 00:24 GMT
kate, you are really on a roll lately. thanks for the chuckle.

diane, doing fine (so far) on lipitor (only been 4 days).
Nann Bell - 29 Apr 2005 14:59 GMT
> kate, you are really on a roll lately. thanks for the chuckle.
>
> diane, doing fine (so far) on lipitor (only been 4 days).

I just remembered - if you don't eat fish much, try taking a couple of fish
oil capsules daily.  That helps with the cholesterol beast too.

Sometimes I think it'd be easier just to do what I want and stop worrying
about health, then we get a really pretty day or I see my sweetheart smile or
something of the sort and I decide all over again that I want as much
healthy-ish living as possible.............

Heck, a century ago I would have died of infections before the age of 30, so
I might as well keep on enjoying all these modern meds!
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Nann
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Simply the thing I am shall make me live --- William Shakespeare

Diane - 29 Apr 2005 16:08 GMT
nann, i like you so much! your posts are always sane and positive. and
i agree with all you said. after a year of cheese danishes, i'm back on
raisin bran for breakfast and i can already tell my body appreciates
it, in more ways than one! there's so much wrong with us that we can't
do anything about, so it only makes sense to take responsibility for
the things we CAN change.
john is cooking fish for me every other night. actually, he's cooking
for me every night since i'm on deadline, but he's making sure to get
that fish in there. (i keep thinking, though, about dee tee saying i
can have a cheese danish on my birthday. . . )

diane

>>>Sometimes I think it'd be easier just to do what I want and stop
worrying
about health, then we get a really pretty day or I see my sweetheart
smile or
something of the sort and I decide all over again that I want as much
healthy-ish living as possible.............

Heck, a century ago I would have died of infections before the age of
30, so
I might as well keep on enjoying all these modern meds<<<
Squirrely - 29 Apr 2005 04:01 GMT
Diane,

I can't remember if I already answered this or not. But wanted you to know I
was thinking of you.

I will tell you the same as I did Rose. You have to knock this off getting
other stuff. That return line is too long for most of us to be standing in
it so many times. ;-)

Know you are in my heart always.

I finally got around to start reading Kiss River and am toward the end of
it. I am enjoying it. thank you so much.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

>>i guess the bottom line is, i am just a physical wreck. i've really
>> lost track of all the things that are wrong with me that i'm supposed
[quoted text clipped - 52 lines]
>>
>> self-deprecating diane
Diane - 29 Apr 2005 16:09 GMT
jo, you're so sweet! i'm glad you're enjoying Kiss River.

diane
Squirrely - 29 Apr 2005 22:04 GMT
Just finished it last night now starting tonight on the next one.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> jo, you're so sweet! i'm glad you're enjoying Kiss River.
>
> diane
PattyDFX1 - 29 Apr 2005 16:17 GMT
> my total cholesterol was 258 and my LDL was something like 170. a
freak out number...felt ashamed of myself because this past year i've
lived on cheese danishes and  toffee almond bars (damn starbucks!)

Hi Diane,
  I know the feeling :(  But, try not to be ashamed. Our diseases put
us in a bad place about taking care of other stuff. A skinny, active
person with that level would likely have a genetic propensity towards
high cholesterol. However, people like us (me!) who are typically
sedentary and 'fluffy' (that's what I call my overweight :), usually
can lower our cholesterol quite a bit with some lifestyle changes.
  When I was 33 (14 years ago), my RA was out of control; no physical
activity except taking care of my kids. I was overweight after 3
pregnancies in 4 years. My first fasting cholesterol was 252. Yikes! I
was terrified...scared, sick, upset...and, ashamed. But, I wasn't
willing to go the meds route at that point.
   I made some changes which ended up being not too difficult and the
'work' really paid off. First, I stopped eating ice cream every night
LOL. Changed my cooking oil to canola or olive oils only. Cut way back
on frying foods. Added a lot of fiber to my diet...more fruits and
veggies. Big salads were a staple at dinnertime. I wasn't willing to
give up red meat or eggs. We just ate a bit less of them. I also added
exercise, which was hardest of all, as my pain levels were great and
mobility was low. I started slow. Short walks around the house...10
minutes at a time, a few times a day. When the weather got better, I
started walking up and down the block. The longest I was ever able to
walk per day was 20 minutes. On the days when the pain was too great, I
made sure to spend 20 minutes, even if it was broken up, doing
stretches and light calisthenics. On days when my knees felt okay, I'd
go up and down the stairs 5 times, twice a day. With 3 small kids, I
had to find things that were simple and kept me near them. As an
adjunct, recommended by my ob/gyn, I added daily Evening Primrose oil
for it's cholesterol lowering benefits. These changes were all easy and
not too life-altering. Over the course of 6 months, I lost 25 pounds
and had a bit more energy, too. My cholesterol tested at 190! No meds
for me! Apparently, my raised cholesterol wasn't the genetic type. It
was due to my illness, overweight and sedentary lifestyle.
  Over the years, I'd gained back the weight and more. But, I kept up
with the diet changes and exercise. I also switched evening primrose to
flaxseed oil. I'm now thinking of changing to Omega's as Jeff and
Jeffrey take them for their bipolar with no side-effects. Omega's have
been shown to help cholesterol a lot. My switching to Omegas would lead
to one less pill bottle in this house : ) My cholesterol never went
over 200 again. In the past 5 months, due to some awful life-stressors,
I've lost almost 60 lbs. I don't eat much these days. Not a good way to
lose weight. Still, it's helped my joints to feel better and my
cholesterol is now 150. But, even without this big weight loss, I was
able to get my cholesterol down to a manageable level. It is possible,
without too much hassle. Since you've already started meds for it, it
should be even easier. I know you really did not need one more thing on
your plate. But, as things go, this one is doable. I just know you'll
be fine once the shock wears off : )  Please take good care of you and
don't feel too badly. Our RA makes us feel badly enough. We can't help
that we have it. And, sometimes it consumes us so much that we forget
we have other things that need caring for. Maybe, this was just a wake
up call saying: Diane! Start taking good care of YOU! : )  Sending
prayers and hugs to you!
--
Patty
Hoping your hills are never too steep.
DeeTee and Bob Taggart - 29 Apr 2005 17:27 GMT
What an awesome idea! I just set the timer on my stationary bicycle to 5
minutes and walked "the circuit" since I have an open floor plan.  I walked
two laps in one direction and turned and did two laps in the other, etc., so
I would not get dizzy.  The first 3 minutes were a breeze, the next one a
little harder and the last one was grueling, but I kept going until the
timer dinged.  This is a fantastic way for me to walk without worrying about
the weather and, if one day my legs quit half way through, I don't have to
figure out a way to get myself back home. Thanks, Patty!!

DeeTee
________________________________
DeeTee and Bob Taggart
http://www.marykay.com/dtaggart3
http://mysite.verizon.net/vze8fwov/
________________________________

>> my total cholesterol was 258 and my LDL was something like 170. a
> freak out number...felt ashamed of myself because this past year i've
[quoted text clipped - 56 lines]
> Patty
> Hoping your hills are never too steep.
Diane - 29 Apr 2005 18:44 GMT
patty, that was inspirational! thank you!

diane
 
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