Medical Forum / Diseases and Disorders / Arthritis / April 2005
the scoop on my cholesterol, GI problems, etc (long)
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Diane - 21 Apr 2005 04:34 GMT i guess the bottom line is, i am just a physical wreck. i've really lost track of all the things that are wrong with me that i'm supposed to get checked and re-checked. ok, enough griping. i know i'm not alone.
i saw my GI doc today. he is truly an amazing person. i've seen him for 15 years and he yells at me (literally) etc, but i always know he cares. he spent an hour with me today. i left feeling as though he wants me to be as healthy as i can be and that i am failing in my part of the bargain. which i am.
GI system: this part i can't help, except to eat less garbage. my esophogus is a mess (tho not barrett's, thank god), i have no sphincter between the esophogus and stomach, and bile backs into my stomach, so everything is going the wrong way. so i am now on prevacid and baclofen for this, twice a day.
cholesterol: i forgot to get a copy of the bloodwork, but my total cholesterol was 258 and my LDL was something like 170. a freak out number, i guess, coz he seemed pretty freaked out. i felt ashamed of myself because this past year i've lived on cheese danishes and toffee almond bars (damn starbucks!) oh, not to mention coffee. what did i expect? and i am so sedentary. my main exercise is getting up from my chair to let the dogs out.
so, the plan of attack:
lipitor, 20 mg, which after reading about the muscle side effects, etc, some of you mentioned here, scares me. should i be scared?
baby aspirin: this also scares me because of the celebrex and low dose warfarin i take. we discussed this but i'm still not sure how to handle it.
diet: the biggie, and the thing i, as a mature grown-up who loves herself, should be able to manage. i've eaten well before. i can do it again. (psyching myself up here. . . ). anyhow, this doc has written several books on the subject of diet and cardiac health. his ideas are different from the norm, but fall most in line with the mediterranean (sp?) diet. no fats other than olive, canola and hazelnut oil. no cakes, cheese danish :-(, chocolate (small amounts of dark ok) (there is no such thing as a small amount of any kind of chocolate in my world) fish 5 times a week (did you know that the same brand and size can of water-pack tuna can have different fat contents? go check your cans! the best are the ones with the highest fat content because of the omega 3's) anyhow, i got quite the tutorial and he gave me one of his books.
exercise: 5 days a week on the elliptical trainer. i just quit my gym last week because i hadn't gone in over a year. i called this afternoon and reactivated my membership.
so that's where i am. feeling kind of disgusted with myself for letting things get this bad.
self-deprecating diane
Harvey R. Stone - 21 Apr 2005 14:23 GMT > so that's where i am. feeling kind of disgusted with myself for letting > things get this bad. > > self-deprecating diane I fully understand how you feel and I have stopped my gym when going to the gym has been a way of life for me for over half my life. I have replaced it with walking and I have a couple of machines that have not been used enough. The secret to using them ENOUGH is to listen to or watch something while using them. The length of time used goes way up. One thing you and I must accept is that we can be our own worst enemy. It is not OK to continue a lifestyle that is killing us. Patting ourselves on the back while making excuses or explaining to ourselves why today is not a good day to do what is best for ourselves must be faced for what it is. Good luck with it all Diane. Putting this post in the newsgroup is the first step to a better tomorrow. Harv
Nann Bell - 21 Apr 2005 15:32 GMT > cholesterol: i forgot to get a copy of the bloodwork, but my total > cholesterol was 258 and my LDL was something like 170. a freak out > number, i guess, coz he seemed pretty freaked out. That's getting up there, though I've heard of much higher. According to my recent PCPs (the ones since my cholesterol has been high) those kind of numbers are indicative of a genetic element at work - not just diet. Don't beat yourself up about those numbers, your cholesterol would have been high even with a good diet and lots of exercise. Probably not quite as high, but still high. In my case this was supported by both of y siblings (both of whom eat more healthily than I, though my diet isn't THAT bad) also developed chol. probs around the same age.
My total cholesterol was around 240 - there's a hole where the LDL was stored in my brain - about this time last year. After a couple of months on 20 of Lipitor, my total was 170 and the LDL/HDL split needed just a slight tweak to be ideal. And at that point I'd been eating LOTS of eggs as we'd been visiting up here interviewing for this job and kept being given farm-fresh brown eggs. Yum. We agreed I'd achieve the needed further tweaking with diet changes as the numbers were so clse to good. YMMV, of course, but I betcha it looks equally good for you.
> lipitor, 20 mg, which after reading about the muscle side effects, etc, > some of you mentioned here, scares me. should i be scared? No. My sister did have the achiness that is listed in the side effects, but it went away as soon as she stopped the statin she was on. And it was a different type of achiness - she's a former dancer (belonged to the local, now-though-not-then professional, ballet company) and gymnast so she's accustomed to ahing muscles but said this just didn't feel right and she was all-over achy rather than localized as someone (Rosie?) said.
As for the liver effects, heck, you're already being watched for liver probs, the same tests will pick up probs from the lipitor as well. and I forget what else is there in the way of side effects........
> baby aspirin: this also scares me because of the celebrex and low dose > warfarin i take. we discussed this but i'm still not sure how to handle > it. I'm curious as to why baby aspirin? Is he just anticipating cardiac problems from the high cholesterol? It does seem to me that there should be a solid reason for adding it with your other NSAID use and with your GI probls in the picture.
> diet: the biggie, and the thing i, as a mature grown-up who loves > herself, should be able to manage. i've eaten well before. i can do it [quoted text clipped - 3 lines] > last week because i hadn't gone in over a year. i called this afternoon > and reactivated my membership. well, you know all too well that neither of these can hurt you any! heehee And improving your diet even some and getting more exercise will really help you a lot in dealing with stress too. Lord knows you've had enough of that lately. And I bet once you get back into the gym, you'll be glad you did. (A good gym is probably what Mike and I miss most where we live now. We have a new resolution to drive the 50 miles RT into the mediocre gym more often if we ever get over this respiratory bug, but we wouldn't have to push ourselves into doing it were it a GOOD gym. When we were visiting back home, we got pases to the gym we used to belong to and it was so glorious to be working out more again, even for that brief time.)
And remember, while a "perfect" diet might be nice, it usually isn't necessary. Whatever changes you can make will be good. And this is the right time of year to be eating more fresh fruit and veggies anyway. If you all do make the move to NC, you'll most likely have some really good farmer's markets around you, too.......
> so that's where i am. feeling kind of disgusted with myself for letting > things get this bad. nah, don't waste time and energy on that. Just look at this as additional motivation to do some stuff you've wanted to do anyway. And put that deprecctory energy into the diet and exercise instead. And remember that genes are part of the picture, now it's time to try to balance out the effects of those genes...........
((((((((((((Diane)))))))))))))
(and a hug to John as well........)
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Rosemarie Shiver - 21 Apr 2005 18:27 GMT It wuz Duckie :-). With me, any statin feels like the FM has been set off with muscle spaz on top. It is significantly hurtful.....flu like aches rather than soreness.
I'd give the Lipitor a try, Diane...and if you start to hurt call the office and call and call. If he's the kind to yell at you, give some back to him.
Dunno why Warfarin and asprin both. Sounds like overkill and this particular combo, if it were me, I'd double-check with the PCP. IIRC you're seeing a cardiologist? The cardiologist should have the greatest say.
What Nann sez about genetics, with the addition that the cholesterol number isn't static. It varies from test to test and you're not that far from normal....if going by the usual 200 is OK. Sounds to me like he's one of those that goes by the number 170...which is hard for the majority of people to stay at...and makes him a cholesterol Nazi. Your body produces cholesterol naturally...and going too low is kinda like saying "I want you to reduce yer white cell count this month." Wuhhhh? LOL 170 is extreme.
What concerns me is what he's not doing about your GI tract. Why aren't you both discussing closing up that sphincter? I had Barrett's and if it didn't resolve I was going to have that...but the Prevacid worked for me. The difference being is I haven't had a gallbladder in years, so I didn't have bile backup on top of it. That's really not good.
Hugs from Rosie
 Signature "If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat Outta Hell II
> > cholesterol: i forgot to get a copy of the bloodwork, but my total > > cholesterol was 258 and my LDL was something like 170. a freak out [quoted text clipped - 78 lines] > > (and a hug to John as well........) Diane - 21 Apr 2005 18:57 GMT thanks for the pep talk, you guys.
>>What concerns me is what he's not doing about your GI tract. Why aren't you both discussing closing up that sphincter? <<
he said in my case it could make things worse than they are. i don't remember why, tho. my brain kinda got stuck in the cholesterol stuff.
diane
Nann Bell - 22 Apr 2005 04:12 GMT What Nann sez about genetics, with the addition that the cholesterol
> number isn't static. It varies from test to test heehee....LOL There was the time they forgot to tell Mike he had to be fasting for his bloodwork. He dropped me at work (at &am), then went for biscuits and gravy at Bob Evans while waiting for the lab to open. A few days later he got an alarmed phone call from the doctor's office..... He's fasted ever since and his last one was 170 - and the damn fool is 12 years older than I and truly eats more fat! damn genes............ still a good story about the biscuits and gravy though..... the nurse was really worried for a while there. LOL
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Duckie - 22 Apr 2005 21:35 GMT LOL Duckie
> What Nann sez about genetics, with the addition that the cholesterol > [quoted text clipped - 8 lines] > story about the biscuits and gravy though..... the nurse was really worried > for a while there. LOL
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Duckie - 22 Apr 2005 21:35 GMT My MIL's was 400 controlled. Now that is scary. She lived into her 80's but she was mean. rofl Duckie
>>cholesterol: i forgot to get a copy of the bloodwork, but my total >>cholesterol was 258 and my LDL was something like 170. a freak out [quoted text clipped - 78 lines] > > (and a hug to John as well........)
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DeeTee and Bob Taggart - 21 Apr 2005 20:02 GMT {{{{{{Diane}}}}} We love you enough for all of that!! I strongly believe in moderation in all things. I'm not getting out of this world alive so I'm gonna go happy. You can have the cheese danish....once a year on your birthday.
DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________
>i guess the bottom line is, i am just a physical wreck. i've really > lost track of all the things that are wrong with me that i'm supposed [quoted text clipped - 52 lines] > > self-deprecating diane Don Kirkman - 21 Apr 2005 22:15 GMT It seems to me I heard somewhere that Diane wrote in article <1114054489.510921.61950@l41g2000cwc.googlegroups.com>:
[. . .]
>i saw my GI doc today. he is truly an amazing person. i've seen him for >15 years and he yells at me (literally) etc, but i always know he >cares. he spent an hour with me today. i left feeling as though he >wants me to be as healthy as i can be and that i am failing in my part >of the bargain. which i am. [. . .]
>cholesterol: i forgot to get a copy of the bloodwork, but my total >cholesterol was 258 and my LDL was something like 170. a freak out [quoted text clipped - 3 lines] >expect? and i am so sedentary. my main exercise is getting up from my >chair to let the dogs out.
>so, the plan of attack:
>lipitor, 20 mg, which after reading about the muscle side effects, etc, >some of you mentioned here, scares me. should i be scared? My opinion, based on several years of reading the statin wars in sci.med.cardiology and seven years on statins (mostly Lipitor at 80mg, apparently a high dosage): rather than being scared be alert; the truly serious side effects like neurological symptoms and skeleto-muscular problems including rhabdomyalysis, occur at a very low rate. The more common effects are less apt to be serious or disabling, but include tiredness and muscular weakening. Most studies consider the reduction of cholesterol and triglycerides to be effective enough to outweigh the risks of statin side effects but most also caution about being aware of potential problems.
>baby aspirin: this also scares me because of the celebrex and low dose >warfarin i take. we discussed this but i'm still not sure how to handle >it. I'm on 325mg, the adult dose, but have never been on any other blood thinners, so I can't offer anything.
Good luck with these changes!
Diane - 22 Apr 2005 00:53 GMT thanks for the info, don.
diane
Duckie - 22 Apr 2005 21:29 GMT South Beach. It dropped my Cholesterol 50 points. I added Lipitor and it came down another 50 so I am in a good range now. Gentle hugs to you. Duckie
> i guess the bottom line is, i am just a physical wreck. i've really > lost track of all the things that are wrong with me that i'm supposed [quoted text clipped - 52 lines] > > self-deprecating diane
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d'huit - 28 Apr 2005 19:16 GMT (((((((((((((diane)))))))))))) i don't really have any good advice and everybody has seemed to cover most of it. but . . .
i'm going to share a secret with you, so don't tell anybody else, ok?
did you know that in most doctor's office suites there is a private room where the walls are literally covered by dart boards? uh-hunh. it's true. i noticed a door< labeled "private"< left ajar one day, peeked into its room and watched a doctor doing what i'm about to tell you about. and then, i was caught and was rushed into an exam room. well, that got me curious. so, i went snooping about for that kind of room at every other doctor's office wherever and whenever i had appointments. and all of the doctors' suites had such rooms! and i even located such rooms in hospitals!
on each of the rings and wedges, of each and every dart board, there was a particular syndrome, disorder or disease labeled. the doctor begins his or her day by taking the charts of patients, for that day's schedule, into that office (or he or she suddenly disappears from your exam room, for a few minutes, while you await his or her return).
the patients' charts are color coded, and that's how the doctor knows how many darts to throw for that particular patient that day. so, if your color coded chart indicates 4 darts are to be thrown for you, then the doctor throws (while blindfolded, of course, and after spinning himself around so he doesn't know which wall full of dart board illnesses he's aiming at) four darts at the dart boards.
sometimes, the darts miss a board completely and either fall to the floor or hit the wall between the dart boards. each dart that misses its mark is one less thing the doctor can scare you with or rag on you about. and in fact, because the dart missed entirely, the doctor has to tell you a positive thing about yourself and/or your heath. darts that land on lines, mean the doctor has to tell you that something hasn't changed, neither for the better nor for the worse. and darts that hit a bull's eye, mean the doctor is allowed to make you feel guilty about any other dart that hit a labeled spot.
i've studied all of this very carefully and very discreetly over the last few years. the medical profession is very, very careful about protecting this secret and that's why so few patients know about it. but i'm a nosy kaprosy, so i don't miss noticing stuff like this.
anyway, i guess what i'm trying to tell you, by sharing this secret with you, is not to be too hard on yourself, cuz it's not your fault that your doctor throws darts the way he does!
feel better, hon. you'll do what you know you need to do.
kate
>i guess the bottom line is, i am just a physical wreck. i've really > lost track of all the things that are wrong with me that i'm supposed [quoted text clipped - 52 lines] > > self-deprecating diane DeeTee and Bob Taggart - 28 Apr 2005 21:51 GMT Kate - you are ADORABLE!!!!
DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________
> (((((((((((((diane)))))))))))) i don't really have any good advice and > everybody has seemed to cover most of it. but . . . [quoted text clipped - 104 lines] >> >> self-deprecating diane Diane - 29 Apr 2005 00:24 GMT kate, you are really on a roll lately. thanks for the chuckle.
diane, doing fine (so far) on lipitor (only been 4 days).
Nann Bell - 29 Apr 2005 14:59 GMT > kate, you are really on a roll lately. thanks for the chuckle. > > diane, doing fine (so far) on lipitor (only been 4 days). I just remembered - if you don't eat fish much, try taking a couple of fish oil capsules daily. That helps with the cholesterol beast too.
Sometimes I think it'd be easier just to do what I want and stop worrying about health, then we get a really pretty day or I see my sweetheart smile or something of the sort and I decide all over again that I want as much healthy-ish living as possible.............
Heck, a century ago I would have died of infections before the age of 30, so I might as well keep on enjoying all these modern meds!
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Diane - 29 Apr 2005 16:08 GMT nann, i like you so much! your posts are always sane and positive. and i agree with all you said. after a year of cheese danishes, i'm back on raisin bran for breakfast and i can already tell my body appreciates it, in more ways than one! there's so much wrong with us that we can't do anything about, so it only makes sense to take responsibility for the things we CAN change. john is cooking fish for me every other night. actually, he's cooking for me every night since i'm on deadline, but he's making sure to get that fish in there. (i keep thinking, though, about dee tee saying i can have a cheese danish on my birthday. . . )
diane
>>>Sometimes I think it'd be easier just to do what I want and stop worrying about health, then we get a really pretty day or I see my sweetheart smile or something of the sort and I decide all over again that I want as much healthy-ish living as possible.............
Heck, a century ago I would have died of infections before the age of 30, so I might as well keep on enjoying all these modern meds<<<
Squirrely - 29 Apr 2005 04:01 GMT Diane,
I can't remember if I already answered this or not. But wanted you to know I was thinking of you.
I will tell you the same as I did Rose. You have to knock this off getting other stuff. That return line is too long for most of us to be standing in it so many times. ;-)
Know you are in my heart always.
I finally got around to start reading Kiss River and am toward the end of it. I am enjoying it. thank you so much.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
>>i guess the bottom line is, i am just a physical wreck. i've really >> lost track of all the things that are wrong with me that i'm supposed [quoted text clipped - 52 lines] >> >> self-deprecating diane Diane - 29 Apr 2005 16:09 GMT jo, you're so sweet! i'm glad you're enjoying Kiss River.
diane
Squirrely - 29 Apr 2005 22:04 GMT Just finished it last night now starting tonight on the next one.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
> jo, you're so sweet! i'm glad you're enjoying Kiss River. > > diane PattyDFX1 - 29 Apr 2005 16:17 GMT > my total cholesterol was 258 and my LDL was something like 170. a freak out number...felt ashamed of myself because this past year i've lived on cheese danishes and toffee almond bars (damn starbucks!)
Hi Diane, I know the feeling :( But, try not to be ashamed. Our diseases put us in a bad place about taking care of other stuff. A skinny, active person with that level would likely have a genetic propensity towards high cholesterol. However, people like us (me!) who are typically sedentary and 'fluffy' (that's what I call my overweight :), usually can lower our cholesterol quite a bit with some lifestyle changes. When I was 33 (14 years ago), my RA was out of control; no physical activity except taking care of my kids. I was overweight after 3 pregnancies in 4 years. My first fasting cholesterol was 252. Yikes! I was terrified...scared, sick, upset...and, ashamed. But, I wasn't willing to go the meds route at that point. I made some changes which ended up being not too difficult and the 'work' really paid off. First, I stopped eating ice cream every night LOL. Changed my cooking oil to canola or olive oils only. Cut way back on frying foods. Added a lot of fiber to my diet...more fruits and veggies. Big salads were a staple at dinnertime. I wasn't willing to give up red meat or eggs. We just ate a bit less of them. I also added exercise, which was hardest of all, as my pain levels were great and mobility was low. I started slow. Short walks around the house...10 minutes at a time, a few times a day. When the weather got better, I started walking up and down the block. The longest I was ever able to walk per day was 20 minutes. On the days when the pain was too great, I made sure to spend 20 minutes, even if it was broken up, doing stretches and light calisthenics. On days when my knees felt okay, I'd go up and down the stairs 5 times, twice a day. With 3 small kids, I had to find things that were simple and kept me near them. As an adjunct, recommended by my ob/gyn, I added daily Evening Primrose oil for it's cholesterol lowering benefits. These changes were all easy and not too life-altering. Over the course of 6 months, I lost 25 pounds and had a bit more energy, too. My cholesterol tested at 190! No meds for me! Apparently, my raised cholesterol wasn't the genetic type. It was due to my illness, overweight and sedentary lifestyle. Over the years, I'd gained back the weight and more. But, I kept up with the diet changes and exercise. I also switched evening primrose to flaxseed oil. I'm now thinking of changing to Omega's as Jeff and Jeffrey take them for their bipolar with no side-effects. Omega's have been shown to help cholesterol a lot. My switching to Omegas would lead to one less pill bottle in this house : ) My cholesterol never went over 200 again. In the past 5 months, due to some awful life-stressors, I've lost almost 60 lbs. I don't eat much these days. Not a good way to lose weight. Still, it's helped my joints to feel better and my cholesterol is now 150. But, even without this big weight loss, I was able to get my cholesterol down to a manageable level. It is possible, without too much hassle. Since you've already started meds for it, it should be even easier. I know you really did not need one more thing on your plate. But, as things go, this one is doable. I just know you'll be fine once the shock wears off : ) Please take good care of you and don't feel too badly. Our RA makes us feel badly enough. We can't help that we have it. And, sometimes it consumes us so much that we forget we have other things that need caring for. Maybe, this was just a wake up call saying: Diane! Start taking good care of YOU! : ) Sending prayers and hugs to you! -- Patty Hoping your hills are never too steep.
DeeTee and Bob Taggart - 29 Apr 2005 17:27 GMT What an awesome idea! I just set the timer on my stationary bicycle to 5 minutes and walked "the circuit" since I have an open floor plan. I walked two laps in one direction and turned and did two laps in the other, etc., so I would not get dizzy. The first 3 minutes were a breeze, the next one a little harder and the last one was grueling, but I kept going until the timer dinged. This is a fantastic way for me to walk without worrying about the weather and, if one day my legs quit half way through, I don't have to figure out a way to get myself back home. Thanks, Patty!!
DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________
>> my total cholesterol was 258 and my LDL was something like 170. a > freak out number...felt ashamed of myself because this past year i've [quoted text clipped - 56 lines] > Patty > Hoping your hills are never too steep. Diane - 29 Apr 2005 18:44 GMT patty, that was inspirational! thank you!
diane
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