One week followup

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DianeW - 17 Apr 2005 16:05 GMT

It's been a week now since my IVIG infusion and after the first three
days of incredible normalcy, things drifted back to the typical.
Thursday night I developed chills and discovered I had a fever. It was
just 99.9 but enough to give me a headache and feel like crap. Didn't
know what it was from. Is the pic line infected? (No) Is it herx
reaction again? My wrists were red and swollen and the itchy joints
were starting up. I had this every 3 days or so right after I first
started the IV abx and wrote it off as herx reaction but it had been 8
days without a fever or swollen joints and of course the major high
from the IVIG. Sooo... I layed low for a few days sleeping and feeling
rather crappy. Sometime yesterday I started feeling better. The fever
is gone and I had more energy. Did some shopping and couldn't get to
sleep last night. Woke up at 4 and did some minor housework - laundry
and stuff. Very tired now but don't feel like sleeping. Who knows about
this roller coaster I'm on!

DianeW

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Nann Bell - 18 Apr 2005 14:25 GMT

(((((((((Di))))))))) it sounds so frustrating.

no answers, but if this keeps happening, I'd certainly think this is worth
mentioning to your docs, esp. the ID guy. It might provide another clus.

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Nann
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Simply the thing I am shall make me live --- William Shakespeare

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d'huit - 18 Apr 2005 18:50 GMT

> (((((((((Di))))))))) it sounds so frustrating.
>
> no answers, but if this keeps happening, I'd certainly think this is worth
> mentioning to your docs, esp. the ID guy. It might provide another clus.

(((((((((((((dianew))))))))))))) my thoughts, too. maybe this is an
adjustment period? i hope.

kate

> remove the Gator cheer to email me
> Simply the thing I am shall make me live --- William Shakespeare

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DianeW - 18 Apr 2005 21:27 GMT

That's what I'm thinking. I've had a 3-4 day cycle thing with fever and
joint pain going on ever since I started the abx so this is consistant
with that. And the ID did say it would take two treatments to tell if
it was really going to work and that he was "encouraged" by my initial
reaction to the IVIG. Just got to wait and see. We want it all at once
don't we?

Today I hurt all over.Been in bed all day and I'm still in my jammies
but am not going to miss Nick's lacrosse game. His team is in 3rd place
which wasn't expected at the beginning of the year and tonite begins
the playoffs. They are playing a team they expect to beat. Sadly, the
school they are playing lost a student to "car surfing" (riding on the
hood of a car while it is moving) yesterday. What a stupid dangerous
stunt. There have been several kids die from that in the past 2-3 years
and yet some teens still feel they are invincible. I don't think the
boy was a lacrosse player but I'm sure the school population is going
to be grieving. I don't think there will be a big turnout. The news
said they had grief counselors there all day.

Well -- Gonna start getting ready. If I get ready early enough maybe I
can hit Starbucks for a tripple jolt of energy.

DianeW

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