I truly hated the too sick to move and too wired to close my eyes that I get
from large doses of prednisone.  Usually it just makes everyone around me
suicidal, but sometimes it makes me feel that way too.  Usually I just stay
in my cage and snarl for food.

Is there anything he can find to do with his hands?  I used to knit.  I have
several afgahns that I identify by hospitalization.  1991 pnemonia,  1989
kidney stones, etc.    My Dad used to hook rugs.

Jo

Diane,

I wish I had some answers.  I don't.  I do hope something helps him
very soon for both your sakes.  I will continue to keep you in my
thoughts.

debbie m.

Diane,
I can't handle that dose of prednisone without valium too.  I get so wired,
depressed etc. etc.  As it is 7.5 mg of prednisone is too much for me with
the depression for long but medrol is better. The side effects are less for
me. Don't ask why.

Hopefully he will accept Remicade. I know it has been a lifesaver for some
friends with crohns.  In the meantime all you can do is be supportive.
Prednisone can be a godsend or a curse.  But it does help in cases like
this.
Hugs,
Kelly

sigh . . .  poor dear.  scratch that and make that, poor dears.  a man who
is ill and is someone we care very deeply about is a whole bunch of
confusing things rolled into one huge concern. (((((((((diane and
john))))))))))

letting him vent is good, wise one.   giving him a distraction might help a
little.  i thought of hooking rugs too, for some reason, but maybe not just
yet.  giving him information, will probably help with his fears, if he's
ready for that--- let him let you know when he's ready.  do you have an
extra laptop that he can research crohn's on (in bed)?  or maybe link up
with a crohn's support group?  or get him hooked on bubbels is another
thought, which might give him a rest from thinking so hard about everything,
though he'll still be working on it all at other levels.  do you feel the
need to challenge him a little to reach outside of himself, just a little?
is that your need or his? (i don't need the answers, hon) i only ask,
because i found myself feeling that way with butch and discovered that need
was mine, not butch's.

truth is, diane, john is probably exactly right where he needs to be, in
this particular moment.  by that, i mean different people process things
differently and for different lengths of time.  i believe, and i could be
wrong about this, john's still processing what's been happening to him.  and
i think, intuitively you know this.  just relax and trust your instincts,
sweetie.  you have superb instincts, diane.  i know it, because your books
reveal that part of you to your readers.  lots of hugs and love and healing
thoughts headed your way.
kate

(((((((((((((((Diane and John)))))))))))))))
jb

{{{{{Diane and John}}}}}}  I was 80mg for awhile and
dropped it myself to 60mg because I thought my heart
was going to thump itself out of my chest. 60 felt so
much better. That was the time that I was not sleeping
at all and found that Swahili to English dictionary and
found a name for my new kitty. And yes several of you
questioned my sanity lol. Hope the drug reduction by
the end of the week will have him feeling better soon
and on the road to getting his crohns in check. Hang in
there.
Duckie