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Medical Forum / Diseases and Disorders / Arthritis / April 2005

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Good news, Bad news

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Rosemarie Shiver - 08 Apr 2005 18:09 GMT
Bad news: Bextra being pulled off the market.
Good news: Today I got Mobic samples.
Good news: USA Today called wanting to know what I think about the news. Is
it a good thing when the media consults you? She'll be calling back again in
2 days.

Bad news: I'm heavier than I've ever been and it's a bit scary.
Good news: BP is normal.
Good news: Zetia doesn't hurt my muscles and my cholesterol is 200!! Yay!
Mixed news?: I'm abnormal yet normal?

Bad news: I could have had RA this whole time...I need a whole new work-up.
More bad news: the only RD in town will only give me Pred. which makes me
seriously ill. Can't go back 'cuz I can't change her mind.
Badder still: My choices are to go 75 miles North one way or 80 miles West
one way to get myself an RD.
Good news: Looks like one of the RD's will be opening an office not far from
Normie's work...only 30 miles one way.
Better news still: These docs here will work closely with whomever I see for
arthritis.

Bad news: I'll be closing down the blog 'cuz I can't seem to get myself
writer unblocked. :-(
Good news: I'll be happy to contribute to any other if anyone asks.
Better news: I'm here with ya'all. <g>

Dunno if that's more good than bad but it feels like it is.

Many Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

Jo Firey - 08 Apr 2005 18:50 GMT
> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
[quoted text clipped - 30 lines]
>
> Many Hugs from Rosie

One of the really cooler things you learn out of life as you get older.
Even a little sunshine brightens a cloudy day.  Even a little good news,
properly cherished and nourished overshadows far more than its weight in bad
news,

If you are weighing good news vs bad, its your choice which scale to put
your thumb on.

Hugs back.

Jo
Rosemarie Shiver - 08 Apr 2005 21:31 GMT
   Very true, Jo....and thanks. Wasn't any sunshine quite as welcome as
comin' out of the dark of each of the hurricanes...but this will do just
fine.:-)

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> > Bad news: Bextra being pulled off the market.
[quoted text clipped - 43 lines]
>
> Jo
Smokie Darling (Annie) - 08 Apr 2005 18:56 GMT
> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
[quoted text clipped - 3 lines]
>
> Bad news: I'm heavier than I've ever been and it's a bit scary.

That was me in 2002, but I'm back to healthier weight, finally.

> Good news: BP is normal.
> Good news: Zetia doesn't hurt my muscles and my cholesterol is 200!! Yay!
> Mixed news?: I'm abnormal yet normal?

Hey, that sounds like me!  Either it's scary (that you are like me) or
just peachy (which is in and of itself scary).

> Bad news: I could have had RA this whole time...I need a whole new work-up.
> More bad news: the only RD in town will only give me Pred. which makes me
> seriously ill. Can't go back 'cuz I can't change her mind.
> Badder still: My choices are to go 75 miles North one way or 80 miles West
> one way to get myself an RD.

Well, is there a "decent" PCP who can follow RA?  Since we are limited
with RDs here, many PCPs will take care of RA patients, so long as they
see an RD at least once a year (used to be I had to go to Denver 255
miles or Salt Lake City more than 255 but no "mountains" to go over to
see an RD, and I never went because I couldn't handle it).  Then you'd
have a rheumy for the occasional visit, and a PCP for the 'scripts
recommended by they RD.

> Good news: Looks like one of the RD's will be opening an office not far from
> Normie's work...only 30 miles one way.
[quoted text clipped - 13 lines]
> "If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
> Outta Hell II

It feels like more good, or the good outweighs the bad.

Smokie Darling (Annie) - who believes that you may have answered her
one question, but need more coffee (the whole pot wasn't enough <snerk>)
Rosemarie Shiver - 08 Apr 2005 21:30 GMT
Hmmmmm,

   So Annie...yer saying suck it up and do the driving. Got it. LOL Teasing
ya! But I hear ya.

   I'm a complex situation and they've kinda given up on trying to manage
me on their own.....more than a PCP wants to deal with.

    Yeah, living out in rural areas sure limits the choices! I've not had
any Medicare HMO since leaving Miami and that makes it harder. Luckily
hubby's PPO just kicked in and the PCP sez use it on a new RD....'cuz I'm
complex. LOL

SD Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> > Bad news: Bextra being pulled off the market.
[quoted text clipped - 60 lines]
> Smokie Darling (Annie) - who believes that you may have answered her
> one question, but need more coffee (the whole pot wasn't enough <snerk>)
Smokie Darling (Annie) - 08 Apr 2005 23:24 GMT
> Hmmmmm,
>
>     So Annie...yer saying suck it up and do the driving. Got it. LOL Teasing
> ya! But I hear ya.

Well, now I was thinking more along the lines of 75 or 80 miles without
Mountains, I'd have done it at least twice a year.  The mountains
changed that for me.  I knew I had worded it poorly, I should have just
cancelled it rather than post.

>     I'm a complex situation and they've kinda given up on trying to manage
> me on their own.....more than a PCP wants to deal with.

Well, see, if you get an RD that agrees to physical visits twice a year
and notes to your primary (and progress notes back to them from the
PCP), then you don't have to suffer and you don't have to see the Pred
Pusher.

>      Yeah, living out in rural areas sure limits the choices! I've not had
> any Medicare HMO since leaving Miami and that makes it harder. Luckily
> hubby's PPO just kicked in and the PCP sez use it on a new RD....'cuz I'm
> complex. LOL
>
> SD Hugs from Rosie

Hugs back at ya, wish I could *say* things better, but some days...

Smokie Darling (Annie)

> --
> "If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
[quoted text clipped - 63 lines]
> > Smokie Darling (Annie) - who believes that you may have answered her
> > one question, but need more coffee (the whole pot wasn't enough <snerk>)
Rosemarie Shiver - 09 Apr 2005 00:04 GMT
Hey Annie,

   It's ok! No one here would ever think of editing a post for clarity so
doncha worry about it. I was just teasing about your 'imaginary' chiding and
I know you weren't, really.

   Doncha feel you can't click the Send button, ok?

More Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> > Hmmmmm,
[quoted text clipped - 115 lines]
> > > one question, but need more coffee (the whole pot wasn't enough
> <snerk>)
Paul T. Holland - 09 Apr 2005 00:56 GMT
let me see if i have read all these exchanges properly...it is being discussed
in the context of
a) rosie
and b) 'manage', 'complex', and 'deal with'...

now, am i the only one who finds this juxtapositon of ideas a non-sequitur????

shucks i'm only surprised that the whole dang bunch doesn't yell 'duck and
cover' when your name is brought up...

(which i will now do meself i think....)

> Hmmmmm,
>
[quoted text clipped - 78 lines]
> > Smokie Darling (Annie) - who believes that you may have answered her
> > one question, but need more coffee (the whole pot wasn't enough <snerk>)
RhondaM - 08 Apr 2005 20:46 GMT
Cure for writers block.... just start dumping everything that comes to mind
on paper.. then you will unblock yourself. It might just be things that do
not matter or even something weird, but it will work.

> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
[quoted text clipped - 30 lines]
>
> Many Hugs from Rosie
Rosemarie Shiver - 08 Apr 2005 21:33 GMT
Thanks, Rhonda!

   Lemme see.....fog, foggy, fogger, foggiest, fog. Howzat? :-)

Jokin' Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> Cure for writers block.... just start dumping everything that comes to mind
> on paper.. then you will unblock yourself. It might just be things that do
[quoted text clipped - 34 lines]
> >
> > Many Hugs from Rosie
RhondaM - 08 Apr 2005 22:59 GMT
fog, foggy, foggiest, brain fart. lost brain, no brains. Thats how I feel
today. I guess I am tired. I tried to stay up to watch the Popes funeral. Oh
well.

> Thanks, Rhonda!
>
[quoted text clipped - 51 lines]
> Bat
>> > Outta Hell II
d'huit - 12 Apr 2005 19:26 GMT
that works for me, but i use an egg timer just to keep me writing jibberish
and not getting up and walking away from it.LOL

kate

> Cure for writers block.... just start dumping everything that comes to
> mind on paper.. then you will unblock yourself. It might just be things
[quoted text clipped - 35 lines]
>>
>> Many Hugs from Rosie
Carole - 08 Apr 2005 20:57 GMT
> Bad news: I'm heavier than I've ever been and it's a bit scary.

Get a copy of Dr. Phil's book.  DO all the exercises in it...do not skip
them thinking that they are not important. They are. I started his
weight loss challenge in mid January and I'm down 33 pounds. If you do
it for no other reason, do it for your heart. Take it from one who is
finding out what living with heart disease is like. I got mine from a
virus not my weight, but I know that now that my heart is permanently
damaged, this weight can't be helping it any as it has to work harder to
get the blood throughout my body. Less body=Less work for it.

> Good news: BP is normal.

This is good :-)  For some reason, even though I was always overweight
my B/P was always good.

Carole :)
Rosemarie Shiver - 08 Apr 2005 21:26 GMT
Heya, Carole,

    Oh noooooo! LOL Dr. Phil is bad for many, if not most, Fibromites. Mayo
Clinic sez I can swim and have sex. The pain management doc added I can
stretch and saunter. And that's it. It's gotta be mostly diet because I'm
hypermobile and have shifty spine. The major injury of Dr. Phil's style
ain't worth it for me. Neither is buying the book, for me.

    I am wishing ya the best on SSDI...I was a teacher/professor b4 I
became disabled and I got the SSDI on the first try with a lawyer. That was
in 1991 so that trells ya how long I've been this way. Hang in there...it'll
happen 4 U. Honestly, when yer done, yer done. I'm well done. LOL

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> > Bad news: I'm heavier than I've ever been and it's a bit scary.
[quoted text clipped - 14 lines]
>
> Carole :)
Paul T. Holland - 09 Apr 2005 00:58 GMT
i won't say it, really i won't........

> Heya, Carole,
>
>      Oh noooooo! LOL Dr. Phil is bad for many, if not most, Fibromites. Mayo
> Clinic sez I can swim and have sex. The pain management doc added I can
> stretch and saunter. And that's it.
Rosemarie Shiver - 09 Apr 2005 03:31 GMT
  That's verrrry good ,Paul...'cuz after your post above I just might hafta
saunter and stretch....well, you get the picture. <weg>

Laffs and Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> i won't say it, really i won't........
>
[quoted text clipped - 3 lines]
> > Clinic sez I can swim and have sex. The pain management doc added I can
> > stretch and saunter. And that's it.
Paul T. Holland - 10 Apr 2005 22:34 GMT
lol   no, no, no, no, - even at a saunter you could move faster'n me at this
point! but hey! i've got my eyes closed - how'd you see me anyway?

>    That's verrrry good ,Paul...'cuz after your post above I just might hafta
> saunter and stretch....well, you get the picture. <weg>
[quoted text clipped - 12 lines]
> > > Clinic sez I can swim and have sex. The pain management doc added I can
> > > stretch and saunter. And that's it.
Carole - 09 Apr 2005 18:06 GMT
Hi Rosie,

I wasn't talking about the exercises as in physical exercises. There are
written exercises in the book that help you deal with why you eat. They
are the ones that have helped me immensely. I always knew that I was
eating to fill voids in my life, but once I starting writing out the
questions and answers I really took a look at why I was overeating and
was made more aware of those things. It really helped as when I was
diagnosed with CHF, I didn't run out and binge. And now if I feel the
need to have some chocolate, I just buy a small bar and not the BIG bars
I used to buy. I guess I'm learning portion control. Due to my
condition, I have to stick to a very strict low sodium no caffeine diet,
 and doing Dr Phil's questions has helped me in that area as well :)

I am going to ask my therapist if I can start swimming. There is a pool
near me that has discounted rates for disabled people and since my
doctor has declared me 100% disabled, I guess I qualify :)

Hugs,
Carole :)

> Heya, Carole,
>
[quoted text clipped - 10 lines]
>
> Hugs from Rosie
DeeTee and Bob Taggart - 08 Apr 2005 22:30 GMT
{{{{{{{Rosie}}}}}}}

DeeTee
________________________________
DeeTee and Bob Taggart
http://www.marykay.com/dtaggart3
http://mysite.verizon.net/vze8fwov/
________________________________
> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
[quoted text clipped - 30 lines]
>
> Many Hugs from Rosie
Rosemarie Shiver - 09 Apr 2005 00:02 GMT
Back atcha DeeTee. I'll see your CAT scan and raise ya an MRI.

{{{{DeeTee}}}}

Extra Gentle Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> {{{{{{{Rosie}}}}}}}
>
[quoted text clipped - 38 lines]
> >
> > Many Hugs from Rosie
Marmartoo - 09 Apr 2005 00:12 GMT
I had a CAT scan and an MRI last year, and a PET scan.  I was
dumbfounded at what each of them cost.  Sure glad Medicare was paying
instead of me personally.
Gwen

> Back atcha DeeTee. I'll see your CAT scan and raise ya an MRI.
>
[quoted text clipped - 56 lines]
> Bat
> > > Outta Hell II
Rosemarie Shiver - 09 Apr 2005 00:16 GMT
Whoa! I fold. And Gwen wins the pot!

GL Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> I had a CAT scan and an MRI last year, and a PET scan.  I was
> dumbfounded at what each of them cost.  Sure glad Medicare was paying
[quoted text clipped - 73 lines]
> > Bat
> > > > Outta Hell II
jb - 09 Apr 2005 01:48 GMT
I sure hope I don't have to have either of these test before September 2005,
when my Medicare comes effective. That is what scares me about having no
ins. coverage.  What the cost would be and how we would pay it.
where there is a will there is a way!!
Janice
I could sure use everyones prayers better health

|I had a CAT scan and an MRI last year, and a PET scan.  I was
| dumbfounded at what each of them cost.  Sure glad Medicare was paying
[quoted text clipped - 73 lines]
| > Bat
| > > > Outta Hell II
RoseB - 09 Apr 2005 04:31 GMT
Aww RRRosie. Yer gots a long list of bad and very bads.

A really good exercise is ironin, doncha know. LOL
It kinda puts the starch back into yez.

Or is it that you have to stay away from ironin?
Come to think of it, I think that is it.

Yes, stay away from ironin' and you will feel much better.

R ( number 1)
    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Rosemarie Shiver - 09 Apr 2005 22:01 GMT
Rose :-)

  I have been ooooh so good about staying away from the i werd. I haven't
used the i werd at all in quite a while. Not even Monsieur Holland could
argue about that one.<weg> Hope Spring up there is good for you this year!

Rose Hugs from Rose2

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> Aww RRRosie. Yer gots a long list of bad and very bads.
>
[quoted text clipped - 11 lines]
>
>      Please remove "Ima" to reply.
RoseB - 09 Apr 2005 22:54 GMT
>Rose :-)
>
[quoted text clipped - 3 lines]
>
>Rose Hugs from Rose2

It has been a great spring really, after a great winter. We only
really had a week or two of the cold wet white stuff. We are spoiled
here in the southern interior of BC.

    Rose   @}>->--
    Being educated means that rather than fearing the unknown, one seeks to understand it. RB

    Please remove "Ima" to reply.
Nanny - 10 Apr 2005 05:23 GMT
Hello friend.  Good news:  May I have your autograph?  USA Today no less!
I'd say that's a good sign.  Very good news:  Your BP is normal, in spite of
your weight!  Stupendous news:  you're here with us :-)  Nanny
> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
[quoted text clipped - 30 lines]
>
> Many Hugs from Rosie
Newsgroup Spambuster - 11 Apr 2005 00:30 GMT
{{{{{{{{{{{{Rosie}}}}}}}}}}}}}}

Well, Rosie, dear, sounds like you got quite the mixed bag of goods and
bads there, but I'd say more good than bad!   For that I am happy for
you!!!

Sure hope the mobic will work well for you and that you won't even miss
the bextra.  Also really glad to hear that you have found a cholesterol
med that works for you too.   Yay!!!

If you end up having to drive so far for an RD, do you know of anyone
that you can visit or get together for lunch or something in the area
where the RD is located?   At least that would make the long drive seem
not so bad if you can make the trip worth more than just the drive to
the RD.   I drive about 45-50 miles for my lung doctor, but I also take
the time on those trips to visit with some of my family and friends that
are out in that area, which makes the longer trip all the more worth it
to me.  

As far as the extra weight goes, summer is coming and all those fresh
veggies and fruits usually make it easier to take off a few pounds.
Also the warmer weather is nicer for long walks and such.   Maybe you
and Normie can go for some long walks together!!!

Hugs to you dear lady and hope things keep going well for you!!!   Keep
up the good work!

Donna G
Rosemarie Shiver - 11 Apr 2005 02:53 GMT
    LOL I'll be glad to mail ya a photocopy of the main article signed.
Need I say I'm glad you're back here 2? I am.

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

> Hello friend.  Good news:  May I have your autograph?  USA Today no less!
> I'd say that's a good sign.  Very good news:  Your BP is normal, in spite of
[quoted text clipped - 33 lines]
> >
> > Many Hugs from Rosie
Nanny - 11 Apr 2005 05:41 GMT
I'd be pleased as punches if you would send a photocopy of your now-famous
article and signature :-)  I'll be watching for it.  Nanny
>     LOL I'll be glad to mail ya a photocopy of the main article signed.
> Need I say I'm glad you're back here 2? I am.
[quoted text clipped - 48 lines]
> Bat
>> > Outta Hell II
Nann Bell - 11 Apr 2005 00:14 GMT
> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
> Good news: USA Today called wanting to know what I think about the news. Is
> it a good thing when the media consults you? She'll be calling back again in
> 2 days.

I hear ya --- calling my RD as soon as this cold lets me get well enough to
do so.  Maybe I can talk him into one of the "old" NSAIDs, those ones that
are now nice, cheap generics.

Oh!  I finally saw the other USA Today article at the library in town the
following week.  That twinkle in your eye in your picture was so purely
Rosie, it had to be you!  :)

> Bad news: I could have had RA this whole time...I need a whole new work-up.
> More bad news: the only RD in town will only give me Pred. which makes me
[quoted text clipped - 5 lines]
> Better news still: These docs here will work closely with whomever I see for
> arthritis.

Good news: you live where winter driving is not a concern (hey!  I drove home
85 miles in a snowstorm after thumb injections!  Ok, ok, in all honesty the
lidocaine he used in the injections made driving home easier than driving
there, but it was snow fairly heavily for part of the drive.)

Better news: you get to where driving 30 miles to your RD is not a big deal
as long as you have automatic transmission and it's pretty much country
roads.  (still wouldn't care to drive 30 miles in metro Boston!)  And in such
areas the RDs get used to doing this a bit different as you can't just "drop
by".

> Bad news: I'll be closing down the blog 'cuz I can't seem to get myself
> writer unblocked. :-(
> Good news: I'll be happy to contribute to any other if anyone asks.
> Better news: I'm here with ya'all. <g>

well, in completely honest selfishness, I've missed having you here and want
you around more anyway!

> Dunno if that's more good than bad but it feels like it is.

who cares about reality?  If it feels like more good than bad, it is!

Signature

Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Newsgroup Spambuster - 11 Apr 2005 00:34 GMT
BTW, Rosie, you will let us know when the next article appears in USA
Today won't you???!!!

Donna G
Rosemarie Shiver - 11 Apr 2005 02:51 GMT
    Sure, Donna! Yesterday. Muhahaha. :-) No really, yesterday. Same pic
but only a one line quote this time. So a yawner, perhaps? <g>

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> BTW, Rosie, you will let us know when the next article appears in USA
> Today won't you???!!!
>
> Donna G
Rosemarie Shiver - 11 Apr 2005 02:54 GMT
{{{{Nann}}}}

Hugs from Rosie

Signature

"If you wanna get it done, you gotta fight for yourself" -- Meat Loaf, Bat
Outta Hell II

>
> > Bad news: Bextra being pulled off the market.
[quoted text clipped - 43 lines]
>
> who cares about reality?  If it feels like more good than bad, it is!
Squirrely - 11 Apr 2005 21:34 GMT
Rosie,

Know that I am thinking of you sweetie. You sure have alot going on there.
The good news is good, and the bad news is bad. ;-)

I hope things start going better for you.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

> Bad news: Bextra being pulled off the market.
> Good news: Today I got Mobic samples.
[quoted text clipped - 30 lines]
>
> Many Hugs from Rosie
 
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