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Medical Forum / Diseases and Disorders / Arthritis / April 2005Rituxan is now scheduled
Finally got that call I was waiting for from the infusion clinic. She said so the doctor is switching you and I said no, I'm getting both. Big surprise on her part so we agreed she would call the RD's office to confirm that I wasn't crazy and then call me back. Well, RD didn't confirm the crazy part but did tell her that yes I was to take both. I also am taking Arava. So I have the Rituxan scheduled for four weeks in a row starting two weeks after my next Remicade. We are shoving the Remicade up from next Friday to next Tuesday. That allows the Rituxan to start sooner. My poor body needs something. So now I have some hope in front of me. Sometimes, that is all it takes. Hope. Duckie  Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) >Finally got that call I was waiting for from the >infusion clinic.... >Sometimes, that is all it takes. Hope. >Duckie well good luck with it all. You will be our first on rituxan- kind of a guinea pig duck. LOL (Kidding) Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. quack, snort rofl >>Finally got that call I was waiting for from the >>infusion clinic.... [quoted text clipped - 8 lines] > > Please remove "Ima" to reply. Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) wow, duckie, this is exciting! how many mg of remicade are you on now? i will probably be following you in this regimen when my doc gets a load of my fingers and ankle in a couple of weeks. hugs, diane I am at 6 week recall instead of 8 and it is only lasting 4 and fading at 3 so I hurt. Ankles slightly swollen but nothing swells much on me. Tendons are screaming first the elbow, then ankle, then some other place. Wait a minute and it will change. So 6 weeks at 5 mg per kilo of body weight. I think you are at 10mg per kilogram of body weight but still at the 8 weeks schedule. Tell you doctor that mine is adding Rituxan to the rest. Dr. Paul Delleripa at Lahey Clinic in Burlington, MA He can find him on line if he wants to talk. :) Would love to have you with me. Duckie > wow, duckie, this is exciting! how many mg of remicade are you on now? > i will probably be following you in this regimen when my doc gets a [quoted text clipped - 3 lines] > > diane Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) duckie, i'm "only" on 8 mg/kilo, but the nurses always mention what a "whopping" dose i'm getting, so i guess i'm a rarity. as usual. i feel much better than i look. my ankle/foot revoltingness is from a lot of previous damage. at least that's what i tell myself. keep us posted, diane Ah. sorry. wonder where I got the idea you were at 10. Of course, Chrone's [sp] patients have a really high dose. Duckie > duckie, i'm "only" on 8 mg/kilo, but the nurses always mention what a > "whopping" dose i'm getting, so i guess i'm a rarity. as usual. i feel [quoted text clipped - 3 lines] > > diane Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Yay, Duckie! Gotta get all fixed up for Portland... Kelly C.;o) > Finally got that call I was waiting for from the > infusion clinic. She said so the doctor is switching [quoted text clipped - 11 lines] > Sometimes, that is all it takes. Hope. > Duckie >So I have the Rituxan scheduled for four weeks in a row >starting two weeks after my next Remicade. We are >shoving the Remicade up from next Friday to next >Tuesday. That allows the Rituxan to start sooner. Good luck Duckie I sure hope this combo works for you! You are brave I don't think I would do both Remicade and Rituxan. You have amazing insurance was it hard to get it approved? Seems like they might call it experimental. Keep us posted on how this works, and especially any reactions to the rituxan. -- MZ Visit my website: http://www.mzuschlag.com I called the insurance company and they said that since it was medical and not pharmacy it would be covered. Lahey is a hospital with doctor's offices. It is an oddity but works and I have found it easy to get things done department to department. I have been lucky. I am guessing the two week pause from Remicade to Rituxan is for safety. Got my fingers crossed. The infusion room nurses have told me that any reaction happens while you are getting the drug. That is good to know. Hope they are right. Duckie > Good luck Duckie I sure hope this combo works for you! You are brave > I don't think I would do both Remicade and Rituxan. You have amazing [quoted text clipped - 4 lines] > Visit my website: > http://www.mzuschlag.com Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Keeping crossed whatever I can that this works for you! DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________ > Finally got that call I was waiting for from the infusion clinic. She said > so the doctor is switching you and I said no, I'm getting both. Big [quoted text clipped - 8 lines] > Sometimes, that is all it takes. Hope. > Duckie awaiting your reports of fabulous results! SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare Duckie, Sure hope this is the extra boost you need and that the rituxan will do the trick for you! Very anxious to hear your reports of how things go!!! Now, give you body at least a little time to let the new med work and lay off that housepacking for just a day or two! Donna G My office is 75% packed. The pods will be picked up tomorrow. Helene is coming in the morning to finish some of that and then help me pack the china to be shipped. I have found a buyer. yippee. Depending on the time she has left, we will attack the laundry room. Tuesday is Remicade, Wednesday is all sorts of me time, pedicure, manicure, facial. Thursday is PT and Dr visit to see results of MRI. So no packing until Friday. Got my fingers crossed that we will know by thursday if Sunday the 17th will be ready for our first open house. I am excited but nervous as well. I hope someone loves this house as much as I have. Duckie > Duckie, > [quoted text clipped - 4 lines] > > Donna G Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) Wishing the best outcome for you with this with the fewest side effects. SignatureLove and hugs to all Good thoughts coming your way too. Squirrely Jo > Finally got that call I was waiting for from the infusion clinic. She said > so the doctor is switching you and I said no, I'm getting both. Big [quoted text clipped - 8 lines] > Sometimes, that is all it takes. Hope. > Duckie you go, girlfriend! and you are right, a little hope can take you a long way. i'll be looking forward to hearing how it goes for you. (((((((((((duckie)))))))))))))) just cuz . . . do i need a particular reason to give you a hug?<smile> kate > Finally got that call I was waiting for from the infusion clinic. She said > so the doctor is switching you and I said no, I'm getting both. Big [quoted text clipped - 8 lines] > Sometimes, that is all it takes. Hope. > Duckie Nope, I take any and all hugs given or offered. :) Thanks Kate. Duckie > you go, girlfriend! and you are right, a little hope can take you a long > way. i'll be looking forward to hearing how it goes for you. [quoted text clipped - 15 lines] >>Sometimes, that is all it takes. Hope. >>Duckie Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) |
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