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Medical Forum / Diseases and Disorders / Arthritis / April 2005

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Update on Me

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Carole - 06 Apr 2005 15:07 GMT
I had a really super birthday last Thursday, but ending up paying for it
over the weekend which I basically slept through. I'm still having
excessive fatigue and sleeping a lot.

I went to the cardiologist yesterday afternoon. My condition is the
same. He was really livid when he read the letter from the disability
insurance company!  He is sending them a VERY harsh letter, so hopefully
I will win my appeal. He also gave me samples of two of my meds so I
don't have to lay out the copays this month (they are $20 each so that
saves me some money).  I stopped in at DSHS on the way home and applied
for food stamps and cash assistance. I have to call them later today and
then go for an interview. Evidently I can apply for more things since
it's a medical condition that is preventing me from working.  Hopefully
I can get some help from them to tide me over, although at this point it
looks like eventually I will have to apply for SSDI. We went over my
test results today, and they were not good. So unless I get a miracle, I
think my working days are over.

Carole
Kelly Cobb - 06 Apr 2005 15:22 GMT
((((Carole))))

Having your working days be over wouldn't be so horrible, as long as you
have what you need to be well cared for.

I'll be hoping and praying that you win the appeal, get the assistance you
need and are able to keep your head above water until a determination is
made about SSDI.

Hugs,
Kelly C.

> I had a really super birthday last Thursday, but ending up paying for it
> over the weekend which I basically slept through. I'm still having
[quoted text clipped - 15 lines]
>
> Carole
Ann - 06 Apr 2005 18:22 GMT
Carole, I would apply for SSDI immediately.  You can do it by calling
the 800 number and they will make an appointment for a telephone
interview.  This does not mean you will never work again, only that you
expect to be disabled for 12 months.  The longer you wait to apply, the
longer it will be before you are accepted.  
Sounds like your doctor will take care of WC for you.  I hope you get
your checks started again soon.

Ann
Duckie - 06 Apr 2005 23:18 GMT
Sounds like you will have that doctor in your corner
for SSDI which is a great leap forward. Was thinking
about you today.
Duckie

> I had a really super birthday last Thursday, but ending up paying for it
> over the weekend which I basically slept through. I'm still having
[quoted text clipped - 15 lines]
>
> Carole

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Mary Z - 07 Apr 2005 01:23 GMT
> Hopefully
>I can get some help from them to tide me over, although at this point it
>looks like eventually I will have to apply for SSDI. We went over my
>test results today, and they were not good. So unless I get a miracle, I
>think my working days are over.

Wow I am sorry!  Must be very discouraging  and a huge burden to deal
with.  I admire your fortitude and courage.   If you need to unload
here please do so, it must be hard to cope.   (((((((huge hugs))))))

If you feel up to it join us for the gimpfest in Portland.  We can
sneak you in so it will not cost much, and it might bring your spirits
up a bit.  I wonder if you could ride with Kate or someone else from
Seattle.  Sometimes a little laughter and cheer does wonders.  -- MZ

Visit my website:
http://www.mzuschlag.com
Carole - 07 Apr 2005 01:36 GMT
Thanks, everyone. I am going to call my doctor tomorrow and see what I
should do. He has told me to apply for another three months of medical
leave.  When you apply for SSDI do they start counting the 12 months
from when I was first diagnosed, or the date I apply?  And if I get SSDI
would I be able to work part time? I could do part time, I just don't
have the energy or stamina for full time. Today I fell asleep at around
3pm and woke up at 5pm, and I don't think that's something an employer
would want me doing :)))

As for Portland, I don't think I'd have the energy to do it. And I
definitely can't afford it. I so wanted to go to my niece's college
graduation in May, but I had to tell her I wouldn't be there.
Financially I'm sunk at this point, so I'm hoping DSHS will give me some
 help when I go on Friday. I'll keep you all posted.

And thanks for telling me to vent here. This has all been so
frustrating. It's like my life totally changed overnight and it's not
been easy dealing with all of this.

BIG HUGS,
Carole
Mary Z - 07 Apr 2005 01:46 GMT
>As for Portland, I don't think I'd have the energy to do it. And I
>definitely can't afford it. I so wanted to go to my niece's college
>graduation in May, but I had to tell her I wouldn't be there.
>Financially I'm sunk at this point, so I'm hoping DSHS will give me some
>  help when I go on Friday. I'll keep you all posted.

Well if you change your mind let us know.  It would not cost you to
stay overnight and they have a free breakfast bar, plus lots of other
food freebies so it would cost very little especially if you drive
down with someone, but we sure understand the lack of energy.  My
father (he had CHF) found oxygen  improved his energy did your Dr
suggest anything?  Please stay in touch.  -- MZ

Visit my website:
http://www.mzuschlag.com
Carole - 07 Apr 2005 14:44 GMT
> Well if you change your mind let us know.  It would not cost you to
> stay overnight and they have a free breakfast bar, plus lots of other
> food freebies so it would cost very little especially if you drive
> down with someone, but we sure understand the lack of energy.  My
> father (he had CHF) found oxygen  improved his energy did your Dr
> suggest anything?  Please stay in touch.  -- MZ

Thanks Mary. My doctor hasn't said anything about oxygen. The only time
I had it was when I was in the hospital. Parts of the day I'm OK, but
then it seems like I just all of a sudden get mega tired and I have to
lay down. My sleep patterns are also way off so I don't think anyone
would want to share a room with me as they wouldn't get much sleep. Last
night I was up at 3am, and then at 5:15, and finally got up at 6am. So
I'd have to see how I am doing by then. Is it in June?

Hugsies,
Carole
Mary Z - 07 Apr 2005 19:51 GMT
>. My sleep patterns are also way off so I don't think anyone
>would want to share a room with me as they wouldn't get much sleep. Last
>night I was up at 3am, and then at 5:15, and finally got up at 6am. So
>I'd have to see how I am doing by then. Is it in June?

yes it is the weekend of the 18th, we hope to see you if you feel up
to it.

My father had sleep apnea and his cardio said it contributed to his
CHF.  Hopefully your cardio knows all about your sleep problems.  --
mz

Visit my website:
http://www.mzuschlag.com
Carole - 07 Apr 2005 21:25 GMT
>>. My sleep patterns are also way off so I don't think anyone
>>would want to share a room with me as they wouldn't get much sleep. Last
[quoted text clipped - 7 lines]
> CHF.  Hopefully your cardio knows all about your sleep problems.  --
> mz

Thanks Mary. I think part of my problem is that I get so tired during
the day that I fall asleep whether I want to or not. Often I am sitting
on the couch watching a TV show and the next thing I know I'm waking
up...and I don't remember closing my eyes to fall asleep. When I go to
bed, I'm tired, but after 4-5 hours of sleep I'm awake again. I've tried
forcing myself to stay up all day, but I still wake up at 5 or 6am. I'll
ask my doctor next time I see him.

Hugs,
Carole :)
Carole - 07 Apr 2005 14:45 GMT
PS
DSHS phoned me yesterday and I have an interview tomorrow (Friday) at
2:30.  I have to get together all my bills, bank statements, etc.

Wish me luck!
Carole :)
Alix M. Hall - 07 Apr 2005 15:14 GMT
{{{{{{{{Carole}}}}}}}}}
Carole - 09 Apr 2005 18:14 GMT
Well, I went to DSHS yesterday. I had an interview with a woman who had
such a heavy accent, I could hardly understand what she was saying. When
she asked what my illness was, I answered "Congestive Heart Failure" and
she asked me how to spell it. Somehow we managed to get the papers
filled out and I qualified for general assistance ($339 a month - don't
ask me how they expect you to live on that) and food stamps.

Then I saw the social worker. She was really nice and helped me a lot.
She had me file for SSI and also told me to file for SSDI just in case I
can't go back to work. She said that since the process can take a few
months, it would be wise to start it now. She is also seeing about
getting me some retroactive medical assistance to help with all these
medical bills.

I know a lot of you are on SSDI. I've also been reading things about
whether you need a lawyer to do this or not. So could those of you who
have applied and gotten approved let me know if a lawyer is necessary?
My doctor wrote one hell of a letter to my company's disability
insurance for my short term disability. He told them that I was 100%
disabled as I only have 20% of my left heart that is working, thus the
excessive fatigue that I have.

I'd appreciate any advice you can all offer.

Thanks,
Carole :)
Kelly Cobb - 09 Apr 2005 18:43 GMT
I'm sorry I can't help with the SSDI stuff but I wanted to let you know that
I am so glad you were able to get some assistance and that people are
working to get things fixed for you. I really hope you get a big, fat check
for the payments that were cut off and that the SSDI is approved quickly.

Hugs,
Kelly C.

> Well, I went to DSHS yesterday. I had an interview with a woman who had
> such a heavy accent, I could hardly understand what she was saying. When
[quoted text clipped - 22 lines]
> Thanks,
> Carole :)
Jo Firey - 09 Apr 2005 20:17 GMT
> Well, I went to DSHS yesterday. I had an interview with a woman who had
> such a heavy accent, I could hardly understand what she was saying. When
[quoted text clipped - 21 lines]
> Thanks,
> Carole :)

Just my own experience.  I really dragged my feet on applying for SSDI.  I
knew I couldn't work but there wasn't any one specific thing that I felt
matched the criteria.

I finally filled out the paperwork and sent it in.  They sent me to two of
their own doctors.  That wasn't a big deal, and their shrink even made me
feel better about applying.

In my case, well before I filled out the paperwork I made a list of
everything, and I mean everything that is wrong with me.  Made sure to
include it all.  And to include all the doctors.

I used a May 2003 date of disability as that was a date I had surgery that
really wiped me out.  It was more than a year later before I finally turned
in the paperwork.  In November 2004 I got a check for twelve months.
December 2003-Nov 2004.  No problems.

Jo
Carole - 09 Apr 2005 21:12 GMT
> Just my own experience.  I really dragged my feet on applying for SSDI.  I
> knew I couldn't work but there wasn't any one specific thing that I felt
[quoted text clipped - 14 lines]
>
> Jo

Hi Jo,

I have also been dragging on this. I guess I didn't want to admit that
my working days were over. But after talking with the social worker
yesterday, I feel better about it all. It wasn't my fault that I got a
virus, or that for whatever reason it attacked my heart instead of just
coming out as a regular virus would. So she made me see that I shouldn't
feel bad about applying for all of this stuff.

I don't know what their doctors would do that already hasn't been done.
My cardiologist has the results of my echocardiagram and my heart
catheterization. What's there is there. It clearly shows severe heart
damage that's not going to get better.

I'm going to go call them on Monday and then fill out the forms online
to get this started. I'd LOVE a big check to help me take care of these
bills. At this point, I'm trying to cover the rent, car payment and car
insurance. I'm also applying for assistance with the electric bill and
the phone bill. Hopefully, I'll get approved for all of that.

Hugs,
Carole
Duckie - 10 Apr 2005 01:01 GMT
I love your doctor.
Duckie

> Well, I went to DSHS yesterday. I had an interview with a woman who had
> such a heavy accent, I could hardly understand what she was saying. When
[quoted text clipped - 22 lines]
> Thanks,
> Carole :)

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Ann - 10 Apr 2005 05:16 GMT
Carole:
I applied for SSDI and was accepted on the first application without
ever having to go to any of their doctors and without a lawyer.
Get a notebook and write all your doctors, hospitalizations, tests, etc
and look up the addresses and phone numbers, and dates (you need this
for the long form they send).
Write down all your jobs for the past 15 years, addresses, phone
numbers, supervisors and job duties.  Be very specific on the job duties
(you will also need this info for the forms).
Now...Important stuff...jot down everything you had to do at your job,
bending over to use a bottom file drawer, for instance.  Trouble holding
a pen or a phone, trouble climbing stairs, losing your breath when
speaking.  Little insignificant things that you might not have paid too
much attention to at the time.
Then write down everything you no longer can do at home....making meals
ex: you have to microwave instead of using oven, you use paper plates so
you don't have to wash dishes,  Sit down to prepare meals, prepare
sandwiches or zap frozen dinners Can't do housework, garden, do laundry
etc. Emphasize that it just doesn't get done. Maybe you cut your hair
short because you can't hold your arms up long enough to brush/curl it
etc.
Keep copies of everything you send SSA because they often ask for the
same thing over and over and you need to remember what you told them.
The rest of it comes directly from your doctor's records.  I didn't get
any records from my doctors, but let SSA get them. They don't care about
a doctor's letter saying you are disabled- they want his actual office
notes.  Good luck with it.



Ann
firechief - 12 Apr 2005 21:51 GMT
> I know a lot of you are on SSDI. I've also been reading
> things about  whether you need a lawyer to do this or
[quoted text clipped - 5 lines]
> my left heart that is working, thus the excessive fatigue
> that I have.

I would never recommend someone with the medical
backup -- paperwork and doctor's statements -- use a
lawyer for the initial filing for SSDI.    He's going to get
1/2 of your first check.

If you're denied SSDI, then you could consider hiring
one for an appeal.

... Dawn:  the time of day when people with computers go to bed.
Carole - 12 Apr 2005 22:58 GMT
>  I would never recommend someone with the medical
>  backup -- paperwork and doctor's statements -- use a
[quoted text clipped - 3 lines]
>  If you're denied SSDI, then you could consider hiring
>  one for an appeal.

Thanks, Firechief. I definitely have medical backup (echocardiagram,
heart catheterization, EKG) - all the tests say the same thing. So I'm
just going to apply online and have my cardiologist send them whatever
they need.

Carole
Diane - 13 Apr 2005 01:11 GMT
carole, i somehow missed this post about all you're going through. the
financial worries on top of the physical problems seem so unfair. i'm
glad that social worker could ease your mind about applying for ssdi
and i hope you're one of the people who only has to apply once to get
it. you deserve all the help you can get.

hugs,

diane
Carole - 13 Apr 2005 17:21 GMT
> carole, i somehow missed this post about all you're going through. the
> financial worries on top of the physical problems seem so unfair. i'm
[quoted text clipped - 5 lines]
>
> diane

Thanks, Diane. It's certainly not been an easy journey, that's for sure!
All I wanted when I moved to Washington was time for me to do the things
I never had time for before since I spent most of my life taking care of
everyone else. Now I have lots of time for me, but I can't do anything.
I am hoping the SSDI goes through as if it doesn't, I don't have a clue
as to what I will do.

Hugs,
Carole
Squirrely - 11 Apr 2005 21:37 GMT
I am glad your bday was a good one. I sure feel for you though with all that
you are going thru. I wish you luck with getting disability and such so that
you don't have to keep worrying about the money situation.

Know that you are in my thoughts.

Signature

Love and hugs to all
Good thoughts coming your way too.

Squirrely Jo

>I had a really super birthday last Thursday, but ending up paying for it
>over the weekend which I basically slept through. I'm still having
[quoted text clipped - 15 lines]
>
> Carole
Carole - 12 Apr 2005 01:05 GMT
> I am glad your bday was a good one. I sure feel for you though with all that
> you are going thru. I wish you luck with getting disability and such so that
> you don't have to keep worrying about the money situation.
>
> Know that you are in my thoughts.

Thanks, Squirrely.  I have decided to take this whole thing one day at a
time. Right now I'm inundated with filling out forms. I went to DSHS
last Friday. They gave me food stamps and put me in for general
assistance. It's only $339 a month, but at least it's something and it
means I'll have to take less of a cash advance on my credit card to pay
the May rent. I am hoping and praying that the disability insurance
company does my appeal and gets me the money they owe me from March 9th
  to the present date. I don't know how they can deny my benefits after
the letter my doctor wrote. At least if I can get all these monetary
things taken care of, I can get back to trying to get a little better.

Hugs,
Carole
 
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