Medical Forum / Diseases and Disorders / Arthritis / April 2005
Update on Me
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Carole - 06 Apr 2005 15:07 GMT I had a really super birthday last Thursday, but ending up paying for it over the weekend which I basically slept through. I'm still having excessive fatigue and sleeping a lot.
I went to the cardiologist yesterday afternoon. My condition is the same. He was really livid when he read the letter from the disability insurance company! He is sending them a VERY harsh letter, so hopefully I will win my appeal. He also gave me samples of two of my meds so I don't have to lay out the copays this month (they are $20 each so that saves me some money). I stopped in at DSHS on the way home and applied for food stamps and cash assistance. I have to call them later today and then go for an interview. Evidently I can apply for more things since it's a medical condition that is preventing me from working. Hopefully I can get some help from them to tide me over, although at this point it looks like eventually I will have to apply for SSDI. We went over my test results today, and they were not good. So unless I get a miracle, I think my working days are over.
Carole
Kelly Cobb - 06 Apr 2005 15:22 GMT ((((Carole))))
Having your working days be over wouldn't be so horrible, as long as you have what you need to be well cared for.
I'll be hoping and praying that you win the appeal, get the assistance you need and are able to keep your head above water until a determination is made about SSDI.
Hugs, Kelly C.
> I had a really super birthday last Thursday, but ending up paying for it > over the weekend which I basically slept through. I'm still having [quoted text clipped - 15 lines] > > Carole Ann - 06 Apr 2005 18:22 GMT Carole, I would apply for SSDI immediately. You can do it by calling the 800 number and they will make an appointment for a telephone interview. This does not mean you will never work again, only that you expect to be disabled for 12 months. The longer you wait to apply, the longer it will be before you are accepted. Sounds like your doctor will take care of WC for you. I hope you get your checks started again soon.
Ann
Duckie - 06 Apr 2005 23:18 GMT Sounds like you will have that doctor in your corner for SSDI which is a great leap forward. Was thinking about you today. Duckie
> I had a really super birthday last Thursday, but ending up paying for it > over the weekend which I basically slept through. I'm still having [quoted text clipped - 15 lines] > > Carole
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Mary Z - 07 Apr 2005 01:23 GMT > Hopefully >I can get some help from them to tide me over, although at this point it >looks like eventually I will have to apply for SSDI. We went over my >test results today, and they were not good. So unless I get a miracle, I >think my working days are over. Wow I am sorry! Must be very discouraging and a huge burden to deal with. I admire your fortitude and courage. If you need to unload here please do so, it must be hard to cope. (((((((huge hugs))))))
If you feel up to it join us for the gimpfest in Portland. We can sneak you in so it will not cost much, and it might bring your spirits up a bit. I wonder if you could ride with Kate or someone else from Seattle. Sometimes a little laughter and cheer does wonders. -- MZ
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Carole - 07 Apr 2005 01:36 GMT Thanks, everyone. I am going to call my doctor tomorrow and see what I should do. He has told me to apply for another three months of medical leave. When you apply for SSDI do they start counting the 12 months from when I was first diagnosed, or the date I apply? And if I get SSDI would I be able to work part time? I could do part time, I just don't have the energy or stamina for full time. Today I fell asleep at around 3pm and woke up at 5pm, and I don't think that's something an employer would want me doing :)))
As for Portland, I don't think I'd have the energy to do it. And I definitely can't afford it. I so wanted to go to my niece's college graduation in May, but I had to tell her I wouldn't be there. Financially I'm sunk at this point, so I'm hoping DSHS will give me some help when I go on Friday. I'll keep you all posted.
And thanks for telling me to vent here. This has all been so frustrating. It's like my life totally changed overnight and it's not been easy dealing with all of this.
BIG HUGS, Carole
Mary Z - 07 Apr 2005 01:46 GMT >As for Portland, I don't think I'd have the energy to do it. And I >definitely can't afford it. I so wanted to go to my niece's college >graduation in May, but I had to tell her I wouldn't be there. >Financially I'm sunk at this point, so I'm hoping DSHS will give me some > help when I go on Friday. I'll keep you all posted. Well if you change your mind let us know. It would not cost you to stay overnight and they have a free breakfast bar, plus lots of other food freebies so it would cost very little especially if you drive down with someone, but we sure understand the lack of energy. My father (he had CHF) found oxygen improved his energy did your Dr suggest anything? Please stay in touch. -- MZ
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Carole - 07 Apr 2005 14:44 GMT > Well if you change your mind let us know. It would not cost you to > stay overnight and they have a free breakfast bar, plus lots of other > food freebies so it would cost very little especially if you drive > down with someone, but we sure understand the lack of energy. My > father (he had CHF) found oxygen improved his energy did your Dr > suggest anything? Please stay in touch. -- MZ Thanks Mary. My doctor hasn't said anything about oxygen. The only time I had it was when I was in the hospital. Parts of the day I'm OK, but then it seems like I just all of a sudden get mega tired and I have to lay down. My sleep patterns are also way off so I don't think anyone would want to share a room with me as they wouldn't get much sleep. Last night I was up at 3am, and then at 5:15, and finally got up at 6am. So I'd have to see how I am doing by then. Is it in June?
Hugsies, Carole
Mary Z - 07 Apr 2005 19:51 GMT >. My sleep patterns are also way off so I don't think anyone >would want to share a room with me as they wouldn't get much sleep. Last >night I was up at 3am, and then at 5:15, and finally got up at 6am. So >I'd have to see how I am doing by then. Is it in June? yes it is the weekend of the 18th, we hope to see you if you feel up to it.
My father had sleep apnea and his cardio said it contributed to his CHF. Hopefully your cardio knows all about your sleep problems. -- mz
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Carole - 07 Apr 2005 21:25 GMT >>. My sleep patterns are also way off so I don't think anyone >>would want to share a room with me as they wouldn't get much sleep. Last [quoted text clipped - 7 lines] > CHF. Hopefully your cardio knows all about your sleep problems. -- > mz Thanks Mary. I think part of my problem is that I get so tired during the day that I fall asleep whether I want to or not. Often I am sitting on the couch watching a TV show and the next thing I know I'm waking up...and I don't remember closing my eyes to fall asleep. When I go to bed, I'm tired, but after 4-5 hours of sleep I'm awake again. I've tried forcing myself to stay up all day, but I still wake up at 5 or 6am. I'll ask my doctor next time I see him.
Hugs, Carole :)
Carole - 07 Apr 2005 14:45 GMT PS DSHS phoned me yesterday and I have an interview tomorrow (Friday) at 2:30. I have to get together all my bills, bank statements, etc.
Wish me luck! Carole :)
Alix M. Hall - 07 Apr 2005 15:14 GMT Carole - 09 Apr 2005 18:14 GMT Well, I went to DSHS yesterday. I had an interview with a woman who had such a heavy accent, I could hardly understand what she was saying. When she asked what my illness was, I answered "Congestive Heart Failure" and she asked me how to spell it. Somehow we managed to get the papers filled out and I qualified for general assistance ($339 a month - don't ask me how they expect you to live on that) and food stamps.
Then I saw the social worker. She was really nice and helped me a lot. She had me file for SSI and also told me to file for SSDI just in case I can't go back to work. She said that since the process can take a few months, it would be wise to start it now. She is also seeing about getting me some retroactive medical assistance to help with all these medical bills.
I know a lot of you are on SSDI. I've also been reading things about whether you need a lawyer to do this or not. So could those of you who have applied and gotten approved let me know if a lawyer is necessary? My doctor wrote one hell of a letter to my company's disability insurance for my short term disability. He told them that I was 100% disabled as I only have 20% of my left heart that is working, thus the excessive fatigue that I have.
I'd appreciate any advice you can all offer.
Thanks, Carole :)
Kelly Cobb - 09 Apr 2005 18:43 GMT I'm sorry I can't help with the SSDI stuff but I wanted to let you know that I am so glad you were able to get some assistance and that people are working to get things fixed for you. I really hope you get a big, fat check for the payments that were cut off and that the SSDI is approved quickly.
Hugs, Kelly C.
> Well, I went to DSHS yesterday. I had an interview with a woman who had > such a heavy accent, I could hardly understand what she was saying. When [quoted text clipped - 22 lines] > Thanks, > Carole :) Jo Firey - 09 Apr 2005 20:17 GMT > Well, I went to DSHS yesterday. I had an interview with a woman who had > such a heavy accent, I could hardly understand what she was saying. When [quoted text clipped - 21 lines] > Thanks, > Carole :) Just my own experience. I really dragged my feet on applying for SSDI. I knew I couldn't work but there wasn't any one specific thing that I felt matched the criteria.
I finally filled out the paperwork and sent it in. They sent me to two of their own doctors. That wasn't a big deal, and their shrink even made me feel better about applying.
In my case, well before I filled out the paperwork I made a list of everything, and I mean everything that is wrong with me. Made sure to include it all. And to include all the doctors.
I used a May 2003 date of disability as that was a date I had surgery that really wiped me out. It was more than a year later before I finally turned in the paperwork. In November 2004 I got a check for twelve months. December 2003-Nov 2004. No problems.
Jo
Carole - 09 Apr 2005 21:12 GMT > Just my own experience. I really dragged my feet on applying for SSDI. I > knew I couldn't work but there wasn't any one specific thing that I felt [quoted text clipped - 14 lines] > > Jo Hi Jo,
I have also been dragging on this. I guess I didn't want to admit that my working days were over. But after talking with the social worker yesterday, I feel better about it all. It wasn't my fault that I got a virus, or that for whatever reason it attacked my heart instead of just coming out as a regular virus would. So she made me see that I shouldn't feel bad about applying for all of this stuff.
I don't know what their doctors would do that already hasn't been done. My cardiologist has the results of my echocardiagram and my heart catheterization. What's there is there. It clearly shows severe heart damage that's not going to get better.
I'm going to go call them on Monday and then fill out the forms online to get this started. I'd LOVE a big check to help me take care of these bills. At this point, I'm trying to cover the rent, car payment and car insurance. I'm also applying for assistance with the electric bill and the phone bill. Hopefully, I'll get approved for all of that.
Hugs, Carole
Duckie - 10 Apr 2005 01:01 GMT I love your doctor. Duckie
> Well, I went to DSHS yesterday. I had an interview with a woman who had > such a heavy accent, I could hardly understand what she was saying. When [quoted text clipped - 22 lines] > Thanks, > Carole :)
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Ann - 10 Apr 2005 05:16 GMT Carole: I applied for SSDI and was accepted on the first application without ever having to go to any of their doctors and without a lawyer. Get a notebook and write all your doctors, hospitalizations, tests, etc and look up the addresses and phone numbers, and dates (you need this for the long form they send). Write down all your jobs for the past 15 years, addresses, phone numbers, supervisors and job duties. Be very specific on the job duties (you will also need this info for the forms). Now...Important stuff...jot down everything you had to do at your job, bending over to use a bottom file drawer, for instance. Trouble holding a pen or a phone, trouble climbing stairs, losing your breath when speaking. Little insignificant things that you might not have paid too much attention to at the time. Then write down everything you no longer can do at home....making meals ex: you have to microwave instead of using oven, you use paper plates so you don't have to wash dishes, Sit down to prepare meals, prepare sandwiches or zap frozen dinners Can't do housework, garden, do laundry etc. Emphasize that it just doesn't get done. Maybe you cut your hair short because you can't hold your arms up long enough to brush/curl it etc. Keep copies of everything you send SSA because they often ask for the same thing over and over and you need to remember what you told them. The rest of it comes directly from your doctor's records. I didn't get any records from my doctors, but let SSA get them. They don't care about a doctor's letter saying you are disabled- they want his actual office notes. Good luck with it.
Ann
firechief - 12 Apr 2005 21:51 GMT > I know a lot of you are on SSDI. I've also been reading > things about whether you need a lawyer to do this or [quoted text clipped - 5 lines] > my left heart that is working, thus the excessive fatigue > that I have. I would never recommend someone with the medical backup -- paperwork and doctor's statements -- use a lawyer for the initial filing for SSDI. He's going to get 1/2 of your first check.
If you're denied SSDI, then you could consider hiring one for an appeal.
... Dawn: the time of day when people with computers go to bed.
Carole - 12 Apr 2005 22:58 GMT > I would never recommend someone with the medical > backup -- paperwork and doctor's statements -- use a [quoted text clipped - 3 lines] > If you're denied SSDI, then you could consider hiring > one for an appeal. Thanks, Firechief. I definitely have medical backup (echocardiagram, heart catheterization, EKG) - all the tests say the same thing. So I'm just going to apply online and have my cardiologist send them whatever they need.
Carole
Diane - 13 Apr 2005 01:11 GMT carole, i somehow missed this post about all you're going through. the financial worries on top of the physical problems seem so unfair. i'm glad that social worker could ease your mind about applying for ssdi and i hope you're one of the people who only has to apply once to get it. you deserve all the help you can get.
hugs,
diane
Carole - 13 Apr 2005 17:21 GMT > carole, i somehow missed this post about all you're going through. the > financial worries on top of the physical problems seem so unfair. i'm [quoted text clipped - 5 lines] > > diane Thanks, Diane. It's certainly not been an easy journey, that's for sure! All I wanted when I moved to Washington was time for me to do the things I never had time for before since I spent most of my life taking care of everyone else. Now I have lots of time for me, but I can't do anything. I am hoping the SSDI goes through as if it doesn't, I don't have a clue as to what I will do.
Hugs, Carole
Squirrely - 11 Apr 2005 21:37 GMT I am glad your bday was a good one. I sure feel for you though with all that you are going thru. I wish you luck with getting disability and such so that you don't have to keep worrying about the money situation.
Know that you are in my thoughts.
 Signature Love and hugs to all Good thoughts coming your way too.
Squirrely Jo
>I had a really super birthday last Thursday, but ending up paying for it >over the weekend which I basically slept through. I'm still having [quoted text clipped - 15 lines] > > Carole Carole - 12 Apr 2005 01:05 GMT > I am glad your bday was a good one. I sure feel for you though with all that > you are going thru. I wish you luck with getting disability and such so that > you don't have to keep worrying about the money situation. > > Know that you are in my thoughts. Thanks, Squirrely. I have decided to take this whole thing one day at a time. Right now I'm inundated with filling out forms. I went to DSHS last Friday. They gave me food stamps and put me in for general assistance. It's only $339 a month, but at least it's something and it means I'll have to take less of a cash advance on my credit card to pay the May rent. I am hoping and praying that the disability insurance company does my appeal and gets me the money they owe me from March 9th to the present date. I don't know how they can deny my benefits after the letter my doctor wrote. At least if I can get all these monetary things taken care of, I can get back to trying to get a little better.
Hugs, Carole
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