Medical Forum / Diseases and Disorders / Arthritis / March 2005
I Give Up (Rant)
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Carole - 20 Mar 2005 19:41 GMT Well, they just called from disability and they said that I no longer qualify for payments. They said if I'm well enough to go to rehab, then I'm well enough to go back to work. I told her that I could only do ten minutes on the treadmill at rehab and then I was exhausted, but that doesn't matter. And that just because I have shortness of breath and extreme fatigue, I can go back to work, according to them. Of course, the doctor said I can't go back to work, so now what am I supposed to do? I really have no choice at this point as they cut my disability on March 8 (never told me they were doing it) and now that they are not reinstating it, I don't have the money for the rent, or any of these medical bills that are coming in now. I've almost maxxed out my credit card on the copays, so I'm screwed. I can't believe this is happening as I'm sitting here doing everything the doctor tells me to do. I'm going to call him first thing tomorrow morning, but this woman from the disability said that unless he can give them new information, she doesn't have anything to reinstate my disability on. So it looks like I'll be going back to work full time on Tuesday, and if I die or get worse, then so be it.
When is it going to be my turn??
Carole
lennyd4@excite.com - 20 Mar 2005 21:12 GMT > Well, they just called from disability and they said that I no longer
> qualify for payments. They said if I'm well enough to go to rehab, then > I'm well enough to go back to work. I told her that I could only do ten > minutes on the treadmill at rehab and then I was exhausted, but that > doesn't matter. And that just because I have shortness of breath and > extreme fatigue, I can go back to work, according to them. Of course,
> the doctor said I can't go back to work, so now what am I supposed to
> do? I really have no choice at this point as they cut my disability on > March 8 (never told me they were doing it) and now that they are not [quoted text clipped - 5 lines] > disability said that unless he can give them new information, she > doesn't have anything to reinstate my disability on. So it looks like
> I'll be going back to work full time on Tuesday, and if I die or get > worse, then so be it. > > When is it going to be my turn?? > > Carole Carole: yOU SHOULD SEE A LAWYER
Carole - 20 Mar 2005 23:30 GMT > Carole: > > yOU SHOULD SEE A LAWYER I can't pay my rent, Lenny...so there's no way I can pay a lawyer.
Carole
Smokie Darling (Annie) - 21 Mar 2005 00:07 GMT > > Carole: > > [quoted text clipped - 3 lines] > > Carole Carole,
A couple of things. First off, much empathy and gentle "e" hugs for you.
Secondly, after speaking to your cardiologist, contact the local Courthouse (or even the DA) ask them for the number for the "pro bono" office. If necessary, explain a bit to them so they can better direct you.
Many lawyers will give their first consult (if less than 45 to 60 minutes depending on the lawyer) for free. You can find out if they are willing to take it on contingency; however, keep in mind that if they do this, they may take a larger percentage of any award you may receive.
See if you can contact the state insurance board, I think that's what I mean (brain isn't working great these days). Speak with a rep there and find out what your rights are. I know I'm confusing things (and unfortunately, people), but you need to try and get all these little ducks in a row.
I'm sure more will come to me, but at least you can feel that you are doing "something", rather than letting events roll over you. Remember to take time for you (meditation is a wonder, when it can be managed), nothing these idiots do is worth your health.
You are in my prayers. Try to stay calm (I *know*, it's really hard right now). Be sure that your first call is to your cardiologist. It's possible that the paperwork sent to him slipped through the cracks.
Have a nice cup of herbal tea, and put your feet up, and watch something that makes you cry (that works for me, a sad movie lets me allow all the aggravation out through "silly" tears. YMMV).
Smokie Darling (Annie)
Carole - 21 Mar 2005 09:49 GMT Thanks, Annie. My first phone call tomorrow will be to the cardiologist. Hopefully he won't be in surgery and will be in the office early. I'm not sure all this is worth a lawyer as we're only talking about short term disability. I would have only been getting benefits for the rest of this month and possibily half of next month. And by the time all of this went through law offices, I'll be homeless and bankrupt. So I have to hope that the doctor or someone at his office can do something.
The problem is that they are basing their whole decision on his notes from my last visit. That visit was because I was having chest pains and shortness of breath which he said was from stress as nothing in my heart condition was causing it. So according to the insurance company, I now no longer have congestive heart failure, which is ridiculous. I'm on 7 different prescriptions to control this thing.
Thanks for the prayers, they are the only thing that is keeping me going at this point as I'm so tired of all of this.
Carole
> Carole, > [quoted text clipped - 33 lines] > > Smokie Darling (Annie) debbie m. - 21 Mar 2005 02:13 GMT ((((((((((((((((((Carole))))))))))))
I wish I had the answer for you. I don't. I've been through a lot the past several weeks and don't even have the answer for what I'm going to do.
I just wanted you to know that you will be in my thoughts!!!!
debbie m. http://www.angelfire.com/ga2/angels1/
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 18 lines] > > Carole RhondaM - 21 Mar 2005 02:15 GMT ((((((((((((((((Carole)))))))))))) Dang them red tape idiots! I am ranting for ya. About the attorney thing can you find one that will work for you but will only charge if they collect??? I do not know the whole situation but thats a thought. I agree with annie...put your feet up and relax a bit stress will make you hurt. I am thinking about you !
RhondaM
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 17 lines] > > Carole Jo Firey - 21 Mar 2005 03:39 GMT Monday, first thing, call or visit the hospital where you were treated or the cardiologists office or both. Even if they can't help you they may be able to hook you up with some kind of patient advocate or a disabled rights legal group.
For starters they have absolutely no standing to just cut off benefits weeks ago and not to notify you of this and to also notify you in writing of any appeal rights you have. Then get in touch with the insurance commissioner for your state - online might be best for this. And get in touch with human resources where you worked. They paid for or provided the policy right?
The above might not be the correct order to do things, but is does cover some of your options. They have really messed you over as by not telling you at the time you may have lost some weeks of entitlement to unemployment.
I know right now you probably don't feel like you can even raise your head. But once you can, then raise hell. If you have a friend that is good at yelling at people on the phone get them to come and help you out.
Oh, and check and see if you can get information on the insurance company online as well.
Now I realize that doesn't even begin to make it all better. And your body and your medication have to programmed to feel hopeless and helpless right now. For that all I can send is lots of prayers and purrs and good thoughts and good wishes.
Jo
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 17 lines] > > Carole Carole - 21 Mar 2005 09:56 GMT > Monday, first thing, call or visit the hospital where you were treated or > the cardiologists office or both. Even if they can't help you they may be > able to hook you up with some kind of patient advocate or a disabled rights > legal group. I will Jo.
> For starters they have absolutely no standing to just cut off benefits weeks > ago and not to notify you of this and to also notify you in writing of any > appeal rights you have. Then get in touch with the insurance commissioner > for your state - online might be best for this. And get in touch with human > resources where you worked. They paid for or provided the policy right? Yes, the disability policy is from my employer. The insurance company did not notify me that they were cutting off my benefits. I only found out when I logged on to my bank's website last Friday to pay bills as Friday was payday. They cut off my benefits on March 8th and I'm sure in the space of 10 days they could have phoned me or sent a registered letter to let me know. And no, they did not tell me anything about how to register an appeal.
> The above might not be the correct order to do things, but is does cover > some of your options. They have really messed you over as by not telling > you at the time you may have lost some weeks of entitlement to unemployment. Can I collect unemployment if my doctor says I cannot work? Right now I'm between a rock and a hard place. The doctor says I can't work as my heart is still too weak, but since I'm not getting disability I'm going to have to go back to work.
> I know right now you probably don't feel like you can even raise your head. > But once you can, then raise hell. If you have a friend that is good at > yelling at people on the phone get them to come and help you out. The problem with me is that I'm too stressed at this point, and getting depressed from all of this.
> Oh, and check and see if you can get information on the insurance company > online as well. [quoted text clipped - 5 lines] > > Jo Thanks, Jo. Yes, my body right now feels like a wet dishrag. I'm still suffering from fatigue from the meds. I take them around 8:30am and by 11:00am I'm asleep. And that's after sleeping all night. I just hope the cardiologist can do something as this is NUTS!
Hugs, Carole
Caroline Marold - 21 Mar 2005 06:44 GMT {{{{{{{{{{carole}}}}}}}}} It is total idiot week at the insurance companies. Duckie
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 18 lines] > > Carole
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KSMorris - 21 Mar 2005 08:29 GMT Huge sympathy for you here too. If you'r ein the States, try contacting a Legal Aid Clinic and see if they will take your case. If your in Ontario, getting a lawyer to take you on contingency is not allowed, but you may be able to get a group like trhe Downtown Legal Clinic (which likes to give U of T law students) tranining in cases that set precenedents. And the students are good.
I would seem to me that it wouldn't hurt to get opinions from your doctors as to whether you can go back to work, when you tell your doctors what is physically required for you to get to and from work and what is required of you once you get there.
And pray for your enemies.
K
Carole - 21 Mar 2005 10:01 GMT Thanks, K. I'm in the US. I did ask my doctor about going back to work. And we did talk at length about my job. He said I could go back possibly in a month. He wanted me to go to rehab and then see how I did. And then he would make his decision. My heart is still weak, so he wanted to see if the rehab would strengthen it. I don't know how an insurance company can compare walking on a treadmill with a heart monitor for ten minutes to working 10 hours a day (which includes 1/2 hour travel time there and back, 8 hours of working and an hour lunch). I will never stay awake for that length of time. But according to them, if I can go to rehab, I can go to work.
Carole
> Huge sympathy for you here too. If you'r ein the States, try > contacting a Legal Aid Clinic and see if they will take your case. If [quoted text clipped - 11 lines] > > K Carole - 21 Mar 2005 09:57 GMT That's for sure!
> {{{{{{{{{{carole}}}}}}}}} It is total idiot week at the insurance > companies. [quoted text clipped - 22 lines] >> >> Carole Cindy - 21 Mar 2005 15:04 GMT Carole...It sounds like you have an idiot for a case worker. But if your doctor will not release you to work... Okay...When I was on STD...The doctor told them what my restrictions were...Then the insurance company notified my employer who would then tell them if they would allow me to come back to work. Of course my employer said NO...So they had to continue paying me. Maybe the Doctors notes were misconstrued...I believe that after speaking to him...A call from him to the insurance company will be all they will need... Now when I was on LTD...And they decided to I was no longer disabled...It was a little harder...But in the end..The doctors came through for me. My OS told them sure she can work by now...Not reading my file and remembering that with my knees bone on bone...I could not stand on my feet on concrete for 8 or 9 hours a day...So he notified the insurance company and made sure they understood that all I could do is a sedentary job. My employer said NO we can't use her...So I got my benefits reinstated...
Sending prayers that you get some help... Cindy
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 17 lines] > > Carole Carole - 21 Mar 2005 16:30 GMT Thanks, Cindy. My job is basically sedentary, but it's stressful. (Having people yell at you all day because their cellphones are not working can be very stressful).
Not only is the case worker an idiot. She is also the most sarcastic b**ch I have ever spoken to on a phone!
Carole
> Carole...It sounds like you have an idiot for a case worker. But if your > doctor will not release you to work... [quoted text clipped - 36 lines] >> >>Carole Nann Bell - 21 Mar 2005 16:16 GMT ((((((((((((((Carole)))))))))))))))
You are doing the right thing by calling your cardio's office first thing in the morning. From what you say, you have a good cardio who looks out for his patients. I expect he or someone in his office will call the insurance company and read them the riot act. See if it's possible to at least speak with a nurse rather than just the receptionist and let them know how upset and stressed out you are by all of this. That will get them even more fired up ;)
If you don't get satisfaction after the doc calls (though I suspect you will), then *quickly* call the local Legal Aid/Legal Services. They will take your case on a sliding scale - possibly without charge. Often a lawyer can accomplish a lot without going to trial. A couple of phone calls, some medical records and/or a letter to the company may be all it takes.
But call your doctor and let them know they are *forcing* you to go back to work tomorrow. Fireworks will fly. It must have been really frustrating to be told all of this on a Sunday when you can't get on to fighting it for a while, but I hope you got some rest so you can fight the dragons today.
 Signature Nann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare
Carole - 21 Mar 2005 16:35 GMT Thanks, Nann. It was very frustrating as the call came in at 10am yesterday so I had to deal with this all day yesterday. I didn't sleep much last night and woke up at 3:45 with acid reflux. Took some antacid and went back to bed. At 5am I woke up with really bad diarrhea. And I've been up since then. I know it's from all the stress.
I have a direct number to my cardiologist's nurse, so I will call her at 9am. Then I'll try to get some sleep.
Carole
> ((((((((((((((Carole))))))))))))))) > [quoted text clipped - 16 lines] > be told all of this on a Sunday when you can't get on to fighting it for a > while, but I hope you got some rest so you can fight the dragons today. Adelle - 21 Mar 2005 18:37 GMT Carole;
1 - hugs!!!!! Now breathe.
OK, your cardiologist's office should call and scream bloody murder, if they are willing to. If the doc makes clear you are not cleared to work, the insurance company may just backtrack on their own. If not -
2 - Is this disability coverage through the gov't or through private insurance. How you go about dealing with it depends on what the source of the funds are. There are different ways to appeal the removal of benefits. You might want to consult a disability atty to see what your rights and options are. There may be emergency relief funds from your state, or an expedited state disability application that might help tide you over till the dust clears. Check the phone book do see if there is a community resources page. Usually there is a non-profit group for the disabled, often including the 'phrase 'independent living' in the name. The can be a huge fount of information (and understanding)
3 - If this is disability coverage from your employer, every insurance company has either an ombudsman or patient advocate to begin an appeal of withdrawal of benefits. The Human Resources dept of where you worked may also help you with finding out the appeal process. If they continue to refuse and you still can't work, most states have a law which punishes insurance companies for refusal to provide what they have contracted to provide. That's when you get an attorney. The statutes usually provide for attorneys fees separate from your award, so an attorney will usually take the case without up front fees.
4 - If this is gob's funds being cut off, there are also many administrative remedies open to you. But no one in the office is going to volunteer them. You need to get the pamphlets of your rights under the program and read those carefully. Someone at a non-profit specializing in the services to the disabled should be able to help you with those. The local Legal-Aid office may be a good place for a referral. Most do disability law, or farm it out to other non-profits. I volunteered for such a place, though I handled family law cases for them.
You are not powerless here. Things may not happen as fast as you would like, but you are not powerless.
As for immediate help with the rent - eviction is a process which takes time. SO as much as it is personally abhorrent to you to not pay the rent, you won't be thrown out on the street immediately.
Also - If you are a member of a religious congregation, there may be funds available within that community for just this kind of emergency.
Just some ideas.
Adelle
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 17 lines] > > Carole Carole - 21 Mar 2005 21:38 GMT Thanks, Adelle. I did speak to my cardiologist's nurse this morning. When I told her what was going on, she couldn't believe it. She said "But he didn't say you could go back to work!" I said "Yes, I know". He comes into the office after rounds at the hospital so she's going to have him call the witch at the insurance company. Hopefully he can straighten this all out and I won't need to go the legal route. This is disability through my employer, btw. Thanks again for all the info.
Hugs, Carole
> Carole; > [quoted text clipped - 47 lines] > > Adelle d'huit - 21 Mar 2005 19:07 GMT ((((((((((((((((((((((((carole))))))))))))))))))))) damn! you sure don't need this stress. i sooo feel for you. we went through hell with butch's disability insurance, short and long term for awhile, too. but that's insurance companies for you! that's what they get for employees when they won't hire anybody with an I.Q. over 60! (i used to think it was only sears roebuck that had that I.Q. requirement for employment.)
your doctor is the only one who can straighten them out and probably will do so pronto! i hope by now you've gotten a hold of him or his nurse and they're handling it so you can relax, sweetie.
kate
> Well, they just called from disability and they said that I no longer > qualify for payments. They said if I'm well enough to go to rehab, then [quoted text clipped - 17 lines] > > Carole Carole - 21 Mar 2005 21:40 GMT I think there are a number of companies with that IQ requirement :) Thanks for the hugs, I can really use them. I'm so stressed right now that I didn't sleep much last night. Now that I've talked to my cardiologist's nurse, maybe I'll try to take a nap.
Hugs, Carole
> ((((((((((((((((((((((((carole))))))))))))))))))))) damn! you sure don't > need this stress. i sooo feel for you. we went through hell with butch's [quoted text clipped - 8 lines] > > kate Newsgroup Spambuster - 22 Mar 2005 01:48 GMT {{{{{{{{{{{{{{{{{Carole}}}}}}}}}}}}}}}}
Sheesh, Carole, enough already! You need a break more than anyone I know on the health front and the financial front!!! Sure hope your cardiologist can get through some of those thick headed people and get you the help you both deserve and need. Do keep us posted as to how you are doing and know that you continue to be lifted in prayer and thought of often!
Hugs!
Donna G
Carole - 22 Mar 2005 02:06 GMT I feel the same way, Donna. I keep wondering when it's going to be my turn. I wonder if I should have moved out here (even though I'm much happier here than I was in NY). I think if all this happened to me while I was living in NY, I would have jumped off a skyscraper.
I am hoping my cardiologist can get through to them too. His nurse couldn't believe it when I told her what was going on.
Thanks for the prayers, I'm sure they are what is keeping me going.
Hugs, Carole
> {{{{{{{{{{{{{{{{{Carole}}}}}}}}}}}}}}}} > [quoted text clipped - 8 lines] > > Donna G Ann - 22 Mar 2005 02:50 GMT Carole, This is just terrible. I'm willing to bet it's a miscommunication between your doctor's office and the insurance company, especially since they cut you off so long ago. They probably don't have the latest reports from the cardiologist nor the dates/times of your appointments and tests. Keep at them because they can't just cut you off in the face of your doctor telling you that you can't return to work yet. I hate insurance companies!!!
Ann
d'huit - 22 Mar 2005 02:37 GMT >I think there are a number of companies with that IQ requirement :) Thanks >for the hugs, I can really use them. I'm so stressed right now that I [quoted text clipped - 3 lines] > Hugs, > Carole no doubt 60 is the i.q. requisite norm for a lot of companies.<g> so, now it is 4 hours later. i hope you did get a nap in, hon. (((((((((carole)))))))) i just know, from what you've said about him before, this doctor is caring enough to get it all straightened out for you.
have you tried meditation? you could use a good zen-out/zone-out about now. try the 4-4-4 breathing method to release stress. breathe in to a count of 4; hold for a count of 4; and exhale to a count of 4. do that several times in a row, focusing only on your breathing and counting. see if that helps you release stress a bit.
kate
>> ((((((((((((((((((((((((carole))))))))))))))))))))) damn! you sure >> don't need this stress. i sooo feel for you. we went through hell with [quoted text clipped - 8 lines] >> >> kate
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