Are there any of you who have an autoimmune disorder and has a spouse who
has one?
I have RA and can't help feel angry at the prospect of my husband possibly
having MS. Take it so far he has had only optic neuritis that would point
towards a MS diagnosis but I do worry. Not angry at him, angry at the
illnesses. It seems to me that it would be odd for us both to have
something screwy. Then, of course, I worry if he does infact have MS how
that ups the odds of our son getting an autoimmune disorder.
Someone smack me and tell me I am not the only one.
Shandi
Joan Carter - 08 Mar 2005 04:37 GMT
>Are there any of you who have an autoimmune disorder and has a spouse who
>has one?
My husband and I both have MS, I have RA, asthma and thyroid problems. I think I
am one over my allowed three illnesses.
>I have RA and can't help feel angry at the prospect of my husband possibly
>having MS. Take it so far he has had only optic neuritis that would point
>towards a MS diagnosis but I do worry. Not angry at him, angry at the
>illnesses. It seems to me that it would be odd for us both to have
>something screwy. Then, of course, I worry if he does infact have MS how
>that ups the odds of our son getting an autoimmune disorder.
Jim and I both had MS when we met, so we both knew. The RA was an added bonus
after we were married.
>Someone smack me and tell me I am not the only one.
Won't smack you, but you are not the only one. Tell you what, I'll share my
chocolate with you, but don't tell the others.
---
Joan
RoseB - 08 Mar 2005 05:26 GMT
Tell you what, I'll share my
>chocolate with you, but don't tell the others.
No secrets are allowed. Forfeit your chocolate!
LOL
Rose @}>->--
Being educated means that rather than fearing the unknown, one seeks to understand it. RB
Please remove "Ima" to reply.
Joan Carter - 08 Mar 2005 16:43 GMT
>No secrets are allowed. Forfeit your chocolate!
No! No!
---
Joan
Cindy - 08 Mar 2005 12:54 GMT
Niether Mike or I have a auto immune disease...But we are both disabled...I
have OA in every joint in my body, Fibromyalgia,psuedogout, Depression and
Anxiety...
He has had 17 hernia repairs,Asthma, Emphysema, and He is only 50 and I am
only 47....And at least one of my children has Fibromyalgia and OA...And one
has a mental illness/Bipolar....
So no it isn't fair...And if I could eat Chocolate, I would share mine with
you...But I will help you confiscate all of it we can find ;)
Hugs Cindy
> Are there any of you who have an autoimmune disorder and has a spouse who
> has one?
[quoted text clipped - 9 lines]
>
> Shandi
RhondaM - 08 Mar 2005 20:14 GMT
Cindy, how is he doing. I can remember something about that he had to have
another surgery?
> Niether Mike or I have a auto immune disease...But we are both
> disabled...I have OA in every joint in my body, Fibromyalgia,psuedogout,
[quoted text clipped - 20 lines]
>>
>> Shandi
Lurker at Large - 08 Mar 2005 15:23 GMT
> Are there any of you who have an autoimmune disorder and has a spouse who
> has one?
[quoted text clipped - 7 lines]
>
> Someone smack me and tell me I am not the only one.
Yep, I have JRA (in remission) and my fiancee has fibro. We met after
his first marriage dissolved, partly due to the fact that he had a struggle
coming to terms with his pain and his wife had no compassion. I have tons of
compassion, having grown up with pain and limitations, but I'm a fighter too.
He says that sometimes I make him feel better, which surprises me because it's
not something I do on purpose. I have good coping skills, I guess.
I'm not sure how I'd cope with MS, though. I don't know much about it,
but it sounds like a really harsh disease. I think you should get ye both to
an MS support group asap.
And good for you, you sound like you'll support him. I was telling my
fiancee the other day that dealing with a chronic disease takes some mysterious
blend of acceptance and fighting. One never knows where to draw the line
between the two, and even now, although I do it I'm not sure if I could explain
HOW I do it.
Sharon
Nann Bell - 09 Mar 2005 14:35 GMT
> He says that sometimes I make him feel better, which surprises me because
> it's
> not something I do on purpose. I have good coping skills, I guess.
My husband makes me feel a lot better, too. It isn't anything much that he
consciously *does* (most of the time), it's just something about who he *is*.
He treats me in a way that conveys his deep knowledge of me as a person, his
abiding love for me, his acceptance of my limitations and his desire to see
me live as fully as possible with those limitations. It's a glorious thing
to live within. It sounds like you do the same thing for your fiance and
he's a lucky guy to have found you. It took some time to convince my husband
that he *is* doing a lot to help me, even though he often doesn't feel he's
doing enough. eventually he began to blieve me. Take your fiance's word for
it, he's the one who knows best how helpful you are to me in dealing with it
all.

Signature
Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare
Nann Bell - 08 Mar 2005 15:36 GMT
My DH has no autoimmune stuff, thank goodness. However it appears that both
my parents did. We know my dad had RA and Type 1 diabetes runs in his
family, as well as some other, non-autoimmune but genetic stuff. My mom's
been hypothyroid since before I was born. No one's ever told her for certain
that it's autoimmune but I suspect it is. In recent years she's had big bout
with polymyalgia, but they don't yet know if it's autoimmune. And she has a
very mild touch of psoriasis. And she inherited her dad's allergies.
My brother is a Type 1 diabetic - 35+ years since diagnosis. I have
psoriasis, PA/RA and fibro. Our sister has recently become hypothyroid. All
of us have allergies and have been quite grateful for all the advances in
treating them! Our parents seem to have passed on some autoimmune tendencies.
Even more importantly, ou parents gave us plenty of love and a stable, happy
home. They provided for us monetarily as they were able, while also teaching
us that "stuff" is not what matters most. They taught us a lot about living
with chronic illness and having as rich a life as you can possibly manage
with whatever comes your way. Given the choice, I'd rather have the whole
package they passed on to us, the not have the diseases.
So, you all are not the only ones, though is might seem at times that this is
taking togetherness a bit too far <bg> And I'm sure anger and frustration
is absolutely a normal reaction, especially at first. And it doesn't help
any at all that you really don't know yet, you're hanging there, waiting to
find out what's up. And it's possible that you have passed something on to
your son in the way of illness. And you can pass much postive stuff on to
your son that far outweighs any genetic illnesses. And remember that science
is making great strides every day...... the future is getting brighter for
autoimmune illnesses. Even now, we have several folks here who would not
have made it to this stage of their lives 50, or even 25, years ago.

Signature
Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare
Squirrely - 09 Mar 2005 14:04 GMT
Oh Nann, I am sorry to hear you have a family full of autoimmune stuff. But
boy your letter is so beautiful.
I know it really touched my heart. Thanks for sharing all that with us. I am
sure it did some good for alot of people.

Signature
Love and hugs to all
Good thoughts coming your way too.
Squirrely Jo
> My DH has no autoimmune stuff, thank goodness. However it appears that
> both
[quoted text clipped - 41 lines]
> autoimmune illnesses. Even now, we have several folks here who would not
> have made it to this stage of their lives 50, or even 25, years ago.
Mercedes - 08 Mar 2005 16:30 GMT
Thank you all for sharing your experiences. When I met my husband neither
one of us had problems, although it's arguable that his MS flared via Bell's
Palsy a year before I met him. I developed RA 4 years later after I had our
son. It just feels like I am contagious or something!
BTW all...you can have the chocolate but I get dibs on candy hearts and
gummy colas :)
Shandi
"Mercedes" <mnpmail@verizon.net> wrote in message
news:_e9Xd.81680$c.1854@trnddc07...
> Are there any of you who have an autoimmune disorder and has a spouse who
> has one?
[quoted text clipped - 9 lines]
>
> Shandi
Jo Firey - 08 Mar 2005 17:30 GMT
> Are there any of you who have an autoimmune disorder and has a spouse who
> has one?
[quoted text clipped - 9 lines]
>
> Shandi
If you are together long enough its likely you will both have to adjust to
problems the other develops, autoimmune or not. That's the in sickness and
in health thing.
Charlie always felt just a little smug and superior with his incredible good
health. But after he fell and broke his heel last year, he pretty much
trashed the opposite knee trying to get around without crutches. Now he
understands way more than he ever wanted to. And he is likely to beat me to
getting knee surgery. My knees kind of quieted down once they ate out all
the soft tissue.
Jo
Diane - 08 Mar 2005 18:02 GMT
This may sound weird, but one of the things that attracted me to John
(over a year ago) was that he had an autoimmune disease (crohn's). it
was in remission at the time, but i knew he understood what it was
like, thus he was compassionate toward me with regard to RA. he's
recently had a truly terrible and frightening 6 week crohns flare and i
got to be the compassionate one. it really helped that i understand the
frustration and helplessness of these diseases.
all that said, i am sorry for your worry about your son. that must be
scary.
hugs,
diane
RhondaM - 08 Mar 2005 20:16 GMT
My dh has osto arthritis in both knees. He is starting to have pain and
swelling in both of his knuckles. I told him that when the pain and swelling
occurs in both hands that he should go have this checked by the doctor for
RA.
> Are there any of you who have an autoimmune disorder and has a spouse who
> has one?
[quoted text clipped - 9 lines]
>
> Shandi
Renee D. - 08 Mar 2005 23:13 GMT
Disease happens - and it hurts. We can relieve pain somewhat, but
let's face it -- many of the problems we face cannot be "cured."
Yes, of course, I take pain medication. Life would hardly be worth
living without it. But
personally, I think your state of mind is so very, very important. I
rely on yoga breathing, meditating and reading. Louise Hay helps me.
Have I just been "kicked out?" If so, I want my chocolate back!
Renee
"There is no end of things in the heart."
Michael Connelly
Caroline Marold - 08 Mar 2005 23:15 GMT
I have RA with a positive HLA-B27. I have chronic
Iritis. When my husband had a third bout of Iritis, he
eye doctor order a blood test but didn't mention to him
what it was for. When he returned, he was told he had a
positive HLA-B27 gene. To that he tells the doctor, so
does my wife. To which the doctor says, do you have
children. A yes answer makes him say, get them test
right away.
Turns out my daughter has RA but has no symptoms except
her crunchy spine which she has had since she was 8. I
even have it on tape because I didn't think any doctor
was listening to that crazy mother. lol
So yes we both have auto immune issues and have passed
it along. Good news is that my daughter has already
been diagnosed and that took me 15 years. She has been
told to stay active and dance, ballet, yoga, pilates,
etc so that when she becomes less flexible she will
recognize it right away. So far, so good. She is 5
years older than when my symptoms started to get ugly.
And she has no pain. So figure if we are lucky, they
will be close to a cure by the time she does have pain.
We sure have a good new array of medication.
Hang in there.
Duckie
> Are there any of you who have an autoimmune disorder and has a spouse who
> has one?
[quoted text clipped - 9 lines]
>
> Shandi

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