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Medical Forum / Diseases and Disorders / Arthritis / March 2005Stopping Enbrel temporarily
Hi all. I came down with a nasty respiratory infection over the last couple of days. Called my rheumy doc and he said to stop the Enbrel injections immediatly until it clears up. He said to not stop the MTX injections though. He scared me when he said, "We don't want that to turn into pneumonia so stop the Enbrel." Since on Enbrel it seems I have been fatigued and kind of cold all the time. Could that be true or is just my imagination? I had a bad cold which turned to pneumonia in only 2 days in January. I'm still trying to get the resulting sinus infection cleared up. I'm on my 4th and 5th antibiotic. Have bronchitis again as well. No Enbrel since early January. Not fun.  SignatureCyberhugs, DianeW It is only with the heart that one can see rightly; what is essential is invisible to the eye. --Antoine de Saint Exup?ry > Hi all. I came down with a nasty respiratory infection over the last > couple of days. Called my rheumy doc and he said to stop the Enbrel [quoted text clipped - 4 lines] > Since on Enbrel it seems I have been fatigued and kind of cold all the > time. Could that be true or is just my imagination? > I had a bad cold which turned to pneumonia in only 2 days in January. > I'm still trying to get the resulting sinus infection cleared up. I'm > on my 4th and 5th antibiotic. Have bronchitis again as well. No Enbrel > since early January. Not fun. That is really scary. I am getting kind of nervous about Enbrel. Especially since my doc said to get off of it so I would not get pneumonia. I think maybe the MTX was doing good enough for me. I see him in a couple of weeks again and we are going to have a heart to heart. >> I had a bad cold which turned to pneumonia in only 2 days in January. >> I'm still trying to get the resulting sinus infection cleared up. I'm [quoted text clipped - 6 lines] > I think maybe the MTX was doing good enough for me. I see him in a couple > of weeks again and we are going to have a heart to heart. Hi, I can only tell you my experience with flu, walking pneumonia and Enbrel. I took one two many Enbrel shots after I had the flu and recovered from that almost and it went into serious lung problems. I am still not a hundred percent from all that and I am going to take an Enbrel shot today which means that it has been two weeks and two days since the last shot. The good thing about ENBREL for me is that it catches up quick. I hope it works out better for you than it did for me. I did not handle this too well. I should of taken one shot less and started the anti-biotic medicines, shots sooner. We live and learn. Harv > Hi all. I came down with a nasty respiratory infection over the last > couple of days. Called my rheumy doc and he said to stop the Enbrel [quoted text clipped - 4 lines] > Since on Enbrel it seems I have been fatigued and kind of cold all the > time. Could that be true or is just my imagination? Hope you're feeling better soon - seems that these infections are rife at the moment. Roll on spring! Just jumping in to ask about stopping Enbrel. I have had to stop mine, prior to surgery, and I was wondering about others' experiences. How long does it take for any flaring to kick in? They want me to stop two weeks before, and for a minimum of two weeks after surgery. Jayne >> Hi all. I came down with a nasty respiratory infection over the last >> couple of days. Called my rheumy doc and he said to stop the Enbrel [quoted text clipped - 14 lines] > >Jayne When I was taking it I stopped for 2 weeks when I had the flu and my arthritis felt great. I think my body was too busy fighting the flu to bother with my joints. I started up again and didn't flare at all. Thumper To reply drop XYZ in address > When I was taking it I stopped for 2 weeks when I had the flu and my > arthritis felt great. I think my body was too busy fighting the flu > to bother with my joints. I started up again and didn't flare at all. > Thumper > To reply drop XYZ in address Thanks for the reply Thumper. I hope I don't flare, as I can't imagine its much fun wrestling with crutches with sore hands and shoulders, but I have noticed that I feel extremely fatigued this week. Fingers crossed! Jayne Jayne, when is your surgery? Gwen > > When I was taking it I stopped for 2 weeks when I had the flu and my > > arthritis felt great. I think my body was too busy fighting the flu [quoted text clipped - 7 lines] > > Jayne > Jayne, when is your surgery? > Gwen Its on Monday coming Gwen (if you can cross anything for me that would be nice! I am a bit nervous as its the first proper grown up surgery I've had!) Jayne Jayne, you know the prayer group on the NG is powerful and we will be praying for you. Don't worry; all will go well. Are you having a TKR? Gwen > > Jayne, when is your surgery? > > Gwen [quoted text clipped - 4 lines] > > Jayne > Jayne, you know the prayer group on the NG is powerful and we will be > praying for you. Don't worry; all will go well. Are you having a TKR? > Gwen Thank you Gwen - and yes, its a left knee TKR. When I'm recovered from that, I'm going on the list for the right knee, so lots to look forward to this year! Jayne > Thank you Gwen - and yes, its a left knee TKR. When I'm recovered from > that, I'm going on the list for the right knee, so lots to look forward to > this year! > > Jayne You are on the prayer list, Jayne. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare >> Thank you Gwen - and yes, its a left knee TKR. When I'm recovered from >> that, I'm going on the list for the right knee, so lots to look forward [quoted text clipped - 4 lines] > > You are on the prayer list, Jayne. Thank you Nann - its a comfort when people are thinking of you. Jayne >>> Thank you Gwen - and yes, its a left knee TKR. When I'm recovered from >>> that, I'm going on the list for the right knee, so lots to look forward [quoted text clipped - 8 lines] > > Jayne you're on my prayer list too, jayne. what time will your surgery be? kate >> Thank you Nann - its a comfort when people are thinking of you. >> [quoted text clipped - 3 lines] > > kate LOL kate, it was at 12 midday on Monday, and I can't believe it, but I'm home now, walking with two sticks. It wasn't much fun for a couple of days, but I am very glad to be home, even though the physio is really hard. Jayne Did that in nov. before my TKR with my Remicade and Arava. By time of surgery I was one hurting, stiff, slow moving puppy. Good news was that surgery came with pain meds so I lived. :) Kept having stuff I needed antibiotics for so keep having to stop and start the Arava and it was a long while before I got my Remicade back. Tell your doctor you may need pain meds prior to surgery as your medication clears your body. And good luck Duckie > Hope you're feeling better soon - seems that these infections are rife at > the moment. Roll on spring! [quoted text clipped - 5 lines] > > Jayne Signature_('> (_<_) _ _('< -quack (_<_) _ __('< *QUACK!* <_{__) _('< "|,,|_" (_<_) _('< "AFLAC!" (_<_) No answers, just here to hold your hand. DeeTee ________________________________ DeeTee and Bob Taggart http://www.marykay.com/dtaggart3 http://mysite.verizon.net/vze8fwov/ ________________________________ > Hi all. I came down with a nasty respiratory infection over the last > couple of days. Called my rheumy doc and he said to stop the Enbrel [quoted text clipped - 4 lines] > Since on Enbrel it seems I have been fatigued and kind of cold all the > time. Could that be true or is just my imagination? It's interesting, they are now trying the biologics for psoriasis as well. Many patients seem to be having varying side effects. Some docs are beginning to question their overall efficacy and safety. I too might ? the safety. They drug companies say it's just like insulin. I don't really buy that. Same family, proven track record and efficacy no way. I personally think more studies are needed. Bruce SignatureI believe in the separation of Church and Hate > No answers, just here to hold your hand. > [quoted text clipped - 12 lines] >> Since on Enbrel it seems I have been fatigued and kind of cold all the >> time. Could that be true or is just my imagination? Thanks everyone. I am off to see my main doc in an hour. Will keep you posted. Four days after skipping my last scheduled Enbrel injection and just barely starting to feel better. I actually lost my voice at one point and pretty much stayed in bed all day yesterday. I think my immune system got whalloped by the Enbrel. I am honestly kind of afraid to start it back up as long as the MTX does a reasonable job of controlling my RA. > Thanks everyone. I am off to see my main doc in an hour. Will keep you > posted. Four days after skipping my last scheduled Enbrel injection and > just barely starting to feel better. I actually lost my voice at one point > and pretty much stayed in bed all day yesterday. That might just be from the virus normally. For almost a decade now I've lost my voice at some point with every respiratory bug I've gotten. Sometimes I don't feel that bad, but lose my voice as I'm recovering. It was a big problem when I worked a job that involoved lots and lots of talking. I don't know what the crud is that's going around our area, but folks are relapsing left and right. They think they're over it and it comes back and wallops them. Maybe that's what's going on with you. It's miserablet folks do recover eventually. SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare It could also be a flare of RA causing the voice loss. Remember we can geat RA in our larynx just as we get it in our joints. My voice is often terrible. I have been scoped twice and all they say is my vocal chords are inflamed due to RA and acid reflux. Rose @}>->-- Being educated means that rather than fearing the unknown, one seeks to understand it. RB Please remove "Ima" to reply. > That might just be from the virus normally. For almost a decade now I've > lost my voice at some point with every respiratory bug I've gotten. > Sometimes I don't feel that bad, but lose my voice as I'm recovering. It was > a big problem when I worked a job that involoved lots and lots of talking. Nann, my wife gets a lot of respiratory bugs but she never loses her voice. Could you tell me what you are doing differently which might cause this loss of voice. <G> Cooly > Nann, my wife gets a lot of respiratory bugs but she never loses her > voice. Could you tell me what you are doing differently which might > cause this loss of voice. <G> LOL you devil. and it rarely happened when I was younger... and healthier... and single.... <g> SignatureNann remove the Gator cheer to email me Simply the thing I am shall make me live --- William Shakespeare |
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